My Bibliography

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Xu M, Harel D, Carrier ME, Kwakkenbos L, Bartlett SJ, Gottesman K, Guillot G, Hummers L, Malcarne VL, Richard M, Thombs BD. Differential Item Functioning on the Cochin Hand Function Scale Among People With Systemic Sclerosis by Language, Sex, and Disease Subtype: A Scleroderma Patient-Centered Intervention Network (SPIN) Cohort Study. Arthritis Care Res (Hoboken). 2023 Jul 24;. doi: 10.1002/acr.25199. [Epub ahead of print] PubMed PMID: 37489073.

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Wurz A, Duchek D, Ellis K, Bansal M, Carrier ME, Tao L, Dyas L, Kwakkenbos L, Levis B, El-Baalbaki G, Rice DB, Wu Y, Henry RS, Bustamante L, Harb S, Hebblethwaite S, Patten SB, Bartlett SJ, Varga J, Mouthon L, Markham S, Thombs BD, Culos-Reed SN. A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team members. Disabil Rehabil. 2024 Feb;46(3):533-545. doi: 10.1080/09638288.2023.2169775. Epub 2023 Jan 28. PubMed PMID: 36708187.

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Wurz A, Ellis K, Duchek D, Bansal M, Carrier ME, Tao L, Dyas L, Kwakkenbos L, Levis B, El-Baalbaki G, Rice DB, Wu Y, Henry RS, Bustamante L, Harb S, Hebblethwaite S, Patten SB, Bartlett SJ, Varga J, Mouthon L, Markham S, Thombs BD, Culos-Reed SN. Exploring research team members' and trial participants' perceptions of acceptability and implementation within one videoconference-based supportive care program for individuals affected by systemic sclerosis during COVID-19: a qualitative interview study. Transl Behav Med. 2023 Jul 1;13(7):442-452. doi: 10.1093/tbm/ibac091. PubMed PMID: 36999812; PubMed Central PMCID: PMC10314727.

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Wu Y, Kwakkenbos L, Henry RS, Carrier ME, Gagarine M, Harb S, Bourgeault A, Tao L, Carboni-Jiménez A, Negeri Z, Patten S, Bartlett SJ, Mouthon L, Varga J, Benedetti A, Thombs BD. Factors associated with fears due to COVID-19: A Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 cohort study. J Psychosom Res. 2021 Jan;140:110314. doi: 10.1016/j.jpsychores.2020.110314. Epub 2020 Nov 25. PubMed PMID: 33271402; PubMed Central PMCID: PMC7685938.

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Wu Y, Kwakkenbos L, Henry RS, Tao L, Harb S, Bourgeault A, Carrier ME, Levis B, Sun Y, Bhandari PM, Carboni-Jiménez A, Gagarine M, He C, Krishnan A, Negeri ZF, Neupane D, Mouthon L, Bartlett SJ, Benedetti A, Thombs BD. Validation of the COVID-19 Fears Questionnaires for Chronic Medical Conditions: A Scleroderma Patient-centered Intervention Network COVID-19 Cohort study. J Psychosom Res. 2020 Dec;139:110271. doi: 10.1016/j.jpsychores.2020.110271. Epub 2020 Oct 8. PubMed PMID: 33096402; PubMed Central PMCID: PMC7543945.

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Wojeck RK, Knisely MR, Bailey DE, Somers TJ, Kwakkenbos L, Carrier ME, Nielson WR, Bartlett SJ, Malcarne VL, Hudson M, Levis B, Benedetti A, Mouthon L, Thombs BD, Silva SG. Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional study. EClinicalMedicine. 2023 Aug;62:102104. doi: 10.1016/j.eclinm.2023.102104. eCollection 2023 Aug. PubMed PMID: 37533421; PubMed Central PMCID: PMC10393558.

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Wojeck RK, Silva SG, Bailey DE Jr, Knisely MR, Kwakkenbos L, Carrier ME, Nielson WR, Bartlett SJ, Pope J, Thombs BD. Pain and Self-Efficacy Among Patients With Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study. Nurs Res. 2021 Set/Oct 01;70(5):334-343. doi: 10.1097/NNR.0000000000000528. PubMed PMID: 34173376; PubMed Central PMCID: PMC8543734.

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Wise RA, Bartlett SJ, Brown ED, Castro M, Cohen R, Holbrook JT, Irvin CG, Rand CS, Sockrider MM, Sugar EA. Randomized trial of the effect of drug presentation on asthma outcomes: the American Lung Association Asthma Clinical Research Centers. J Allergy Clin Immunol. 2009 Sep;124(3):436-44, 444e1-8. doi: 10.1016/j.jaci.2009.05.041. Epub 2009 Jul 25. PubMed PMID: 19632710; PubMed Central PMCID: PMC2948850.

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Ware P, Bartlett SJ, Paré G, Symeonidis I, Tannenbaum C, Bartlett G, Poissant L, Ahmed S. Using eHealth Technologies: Interests, Preferences, and Concerns of Older Adults. Interact J Med Res. 2017 Mar 23;6(1):e3. doi: 10.2196/ijmr.4447. PubMed PMID: 28336506; PubMed Central PMCID: PMC5383803.

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Wang L, Mitchell PK, Calle PP, Bartlett SL, McAloose D, Killian ML, Yuan F, Fang Y, Goodman LB, Fredrickson R, Elvinger F, Terio K, Franzen K, Stuber T, Diel DG, Torchetti MK. Complete Genome Sequence of SARS-CoV-2 in a Tiger from a U.S. Zoological Collection. Microbiol Resour Announc. 2020 May 28;9(22). doi: 10.1128/MRA.00468-20. PubMed PMID: 32467283; PubMed Central PMCID: PMC7256270.

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Wadden TA, Vogt RA, Andersen RE, Bartlett SJ, Foster GD, Kuehnel RH, Wilk J, Weinstock R, Buckenmeyer P, Berkowitz RI, Steen SN. Exercise in the treatment of obesity: effects of four interventions on body composition, resting energy expenditure, appetite, and mood. J Consult Clin Psychol. 1997 Apr;65(2):269-77. doi: 10.1037//0022-006x.65.2.269. PubMed PMID: 9086690.

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Wadden TA, Bartlett SJ, Foster GD, Greenstein RA, Wingate BJ, Stunkard AJ, Letizia KA. Sertraline and relapse prevention training following treatment by very-low-calorie diet: a controlled clinical trial. Obes Res. 1995 Nov;3(6):549-57. doi: 10.1002/j.1550-8528.1995.tb00189.x. PubMed PMID: 8653531.

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Wadden TA, Bartlett S, Letizia KA, Foster GD, Stunkard AJ, Conill A. Relationship of dieting history to resting metabolic rate, body composition, eating behavior, and subsequent weight loss. Am J Clin Nutr. 1992 Jul;56(1 Suppl):203S-208S. doi: 10.1093/ajcn/56.1.203S. PubMed PMID: 1615885.

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Vedadi A, Khairalla R, Che A, Nagee A, Saqib M, Ayub A, Wasim A, Macanovic S, Orchanian-Cheff A, Selzner-Malekkiani N, Bartlett S, Mucsi I. Patient-reported outcomes and patient-reported outcome measures in liver transplantation: a scoping review. Qual Life Res. 2023 Sep;32(9):2435-2445. doi: 10.1007/s11136-023-03405-1. Epub 2023 Apr 6. Review. PubMed PMID: 37022585.

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Toupin-April K, Barton JL, Fraenkel L, Meara A, Li LC, Brooks P, de Wit M, Stacey D, Légaré F, Shea B, Lyddiatt A, Hofstetter C, Christensen R, Scholte Voshaar M, Suarez-Almazor ME, Boonen A, Meade T, March L, Jull JE, Campbell W, Alten R, Karuranga S, Morgan EM, Kelly A, Kaufman J, Hill S, Maxwell LJ, Beaton D, El-Miedany Y, Mittoo S, Bartlett SJ, Singh JA, Tugwell PS. OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions. J Rheumatol. 2019 Oct;46(10):1409-1414. doi: 10.3899/jrheum.181071. Epub 2019 Feb 1. PubMed PMID: 30709963; PubMed Central PMCID: PMC6675671.

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Toupin-April K, Décary S, de Wit M, Meara A, Barton JL, Fraenkel L, Li LC, Brooks P, Shea B, Stacey D, Légaré F, Lydiatt A, Hofstetter C, Proulx L, Christensen R, Voshaar M, Suarez-Almazor ME, Boonen A, Meade T, March L, Jull JE, Campbell W, Alten R, Morgan EM, Kelly A, Kaufman J, Hill S, Maxwell LJ, Guillemin F, Beaton D, El-Miedany Y, Mittoo S, Westrich Robertson T, Bartlett SJ, Singh JA, Mannion M, Nasef SI, de Souza S, Boel A, Adebajo A, Arnaud L, Gill TK, Moholt E, Burt J, Jayatilleke A, Hmamouchi I, Carrott D, Blanco FJ, Mather K, Maharaj A, Sharma S, Caso F, Fong C, Fernandez AP, Mackie S, Nikiphorou E, Jones A, Greer-Smith R, Sloan VS, Akpabio A, Strand V, Umaefulam V, Monti S, Melburn C, Abaza N, Schultz K, Stones S, Kiwalkar S, Srinivasalu H, Constien D, King LK, Tugwell P. Endorsement of the OMERACT core domain set for shared decision making interventions in rheumatology trials: Results from a multi-stepped consensus-building approach. Semin Arthritis Rheum. 2021 Jun;51(3):593-600. doi: 10.1016/j.semarthrit.2021.03.017. Epub 2021 Apr 6. PubMed PMID: 33892937.

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Thombs BD, Jewett LR, Assassi S, Baron M, Bartlett SJ, Maia AC, El-Baalbaki G, Furst DE, Gottesman K, Haythornthwaite JA, Hudson M, Impens A, Korner A, Leite C, Mayes MD, Malcarne VL, Motivala SJ, Mouthon L, Nielson WR, Plante D, Poiraudeau S, Poole JL, Pope J, Sauve M, Steele RJ, Suarez-Almazor ME, Taillefer S, van den Ende CH, Arthurs E, Bassel M, Delisle V, Milette K, Leavens A, Razykov I, Khanna D. New directions for patient-centred care in scleroderma: the Scleroderma Patient-centred Intervention Network (SPIN). Clin Exp Rheumatol. 2012 Mar-Apr;30(2 Suppl 71):S23-9. Epub 2012 May 29. PubMed PMID: 22244687; PubMed Central PMCID: PMC3925434.

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Thombs BD, Kwakkenbos L, Carrier ME, Bourgeault A, Tao L, Harb S, Gagarine M, Rice D, Bustamante L, Ellis K, Duchek D, Wu Y, Bhandari PM, Neupane D, Carboni-Jiménez A, Henry RS, Krishnan A, Sun Y, Levis B, He C, Turner KA, Benedetti A, Culos-Reed N, El-Baalbaki G, Hebblethwaite S, Bartlett SJ, Dyas L, Patten S, Varga J. Protocol for a partially nested randomised controlled trial to evaluate the effectiveness of the scleroderma patient-centered intervention network COVID-19 home-isolation activities together (SPIN-CHAT) program to reduce anxiety among at-risk scleroderma patients. J Psychosom Res. 2020 Aug;135:110132. doi: 10.1016/j.jpsychores.2020.110132. Epub 2020 May 14. PubMed PMID: 32521358; PubMed Central PMCID: PMC7224675.

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Thombs BD, Kwakkenbos L, Levis B, Bourgeault A, Henry RS, Levis AW, Harb S, Tao L, Carrier ME, Bustamante L, Duchek D, Dyas L, El-Baalbaki G, Ellis K, Rice DB, Wurz A, Nordlund J, Gagarine M, Turner KA, Østbø N, Culos-Reed N, Hebblethwaite S, Patten S, Bartlett SJ, Varga J, Mouthon L, Markham S, Martin MS, Benedetti A. Effects of a multi-faceted education and support programme on anxiety symptoms among people with systemic sclerosis and anxiety during COVID-19 (SPIN-CHAT): a two-arm parallel, partially nested, randomised, controlled trial. Lancet Rheumatol. 2021 Jun;3(6):e427-e437. doi: 10.1016/S2665-9913(21)00060-6. Epub 2021 Apr 16. PubMed PMID: 33899008; PubMed Central PMCID: PMC8051930.

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Thombs BD, Kwakkenbos L, Henry RS, Carrier ME, Patten S, Harb S, Bourgeault A, Tao L, Bartlett SJ, Mouthon L, Varga J, Benedetti A. Changes in mental health symptoms from pre-COVID-19 to COVID-19 among participants with systemic sclerosis from four countries: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort study. J Psychosom Res. 2020 Dec;139:110262. doi: 10.1016/j.jpsychores.2020.110262. Epub 2020 Oct 3. PubMed PMID: 33070043; PubMed Central PMCID: PMC7532799.

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Thomas M, Marshall DA, Sanchez AL, Bartlett SJ, Boonen A, Fraenkel L, Proulx L, Voshaar M, Bansback N, Buchbinder R, Guillemin F, Hiligsmann M, Richards DP, Richards P, Shea B, Tugwell P, Falahee M, Hazlewood GS. Exploring perceptions of using preference elicitation methods to inform clinical trial design in rheumatology: A qualitative study and OMERACT collaboration. Semin Arthritis Rheum. 2023 Feb;58:152112. doi: 10.1016/j.semarthrit.2022.152112. Epub 2022 Nov 3. PubMed PMID: 36372015.

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Thomas M, Marshall DA, Choudhary D, Bartlett SJ, Sanchez AL, Hazlewood GS. The Application of Preference Elicitation Methods in Clinical Trial Design to Quantify Trade-Offs: A Scoping Review. Patient. 2022 Jul;15(4):423-434. doi: 10.1007/s40271-021-00560-w. Epub 2021 Dec 20. Review. PubMed PMID: 34927216.

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Tang E, Ekundayo O, Peipert JD, Edwards N, Bansal A, Richardson C, Bartlett SJ, Howell D, Li M, Cella D, Novak M, Mucsi I. Validation of the Patient-Reported Outcomes Measurement Information System (PROMIS)-57 and -29 item short forms among kidney transplant recipients. Qual Life Res. 2019 Mar;28(3):815-827. doi: 10.1007/s11136-018-2058-2. Epub 2018 Nov 22. PubMed PMID: 30467780.

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Tang E, Dano S, Edwards N, Macanovic S, Ford H, Bartlett S, Howell D, Li M, Novak M, Mucsi I. Screening for symptoms of anxiety and depression in patients treated with renal replacement therapy: utility of the Edmonton Symptom Assessment System-Revised. Qual Life Res. 2022 Feb;31(2):597-605. doi: 10.1007/s11136-021-02910-5. Epub 2021 Jun 17. PubMed PMID: 34138450.

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Ta V, Schieir O, Valois MF, Colmegna I, Hitchon C, Bessette L, Hazlewood G, Thorne C, Pope J, Boire G, Tin D, Keystone EC, Bykerk VP, Bartlett SJ. Predictors of Influenza Vaccination in Early Rheumatoid Arthritis 2017-2021: Results From the Canadian Early Arthritis Cohort. ACR Open Rheumatol. 2022 Jul;4(7):566-573. doi: 10.1002/acr2.11427. Epub 2022 Mar 29. PubMed PMID: 35349768; PubMed Central PMCID: PMC9274339.

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Sule SD, Bartlett S, Parker A, Dorsi M, Towns M, Bathon J. Preoperative autologous blood donation by arthritis patients is associated with preoperative anemia and perioperative transfusion. J Clin Rheumatol. 2004 Oct;10(5):252-8. doi: 10.1097/01.rhu.0000141505.63817.e6. PubMed PMID: 17043523.

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Spottiswoode N, Bartlett SL, Conley KJ, Seimon TA, Griffin DO, Sykes JM 4th. ANALYSIS OF PLASMODIUM LINEAGES IDENTIFIED IN CAPTIVE PENGUINS (SPHENISCIFORMES SPP.), EIDERS (SOMATERIA SPP.), AND INCA TERNS (LAROSTERNA INCA) IN A NORTH AMERICAN ZOOLOGICAL COLLECTION. J Zoo Wildl Med. 2020 Mar 17;51(1):140-149. doi: 10.1638/2019-0078. PubMed PMID: 32212557.

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Spirt BA, Graves LW, Weinstock R, Bartlett SJ, Wadden TA. Gallstone formation in obese women treated by a low-calorie diet. Int J Obes Relat Metab Disord. 1995 Aug;19(8):593-5. PubMed PMID: 7489033.

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Soueidan M, Bartlett SJ, Noureldin YA, Andersen RE, Andonian S. Leisure time physical activity, smoking and risk of recent symptomatic urolithiasis: Survey of stone clinic patients. Can Urol Assoc J. 2015 Jul-Aug;9(7-8):257-62. doi: 10.5489/cuaj.2879. PubMed PMID: 26316909; PubMed Central PMCID: PMC4537336.

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Sommer SJ, Harel D, Kwakkenbos L, Carrier ME, Gholizadeh S, Gottesman K, Leite C, Malcarne VL, Thombs BD. Assessing differential item functioning for the Social Appearance Anxiety Scale: a Scleroderma atient-centred Intervention Network (SPIN) Cohort Study. BMJ Open. 2020 Oct 12;10(10):e037639. doi: 10.1136/bmjopen-2020-037639. PubMed PMID: 33046467; PubMed Central PMCID: PMC7552836.

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Smith A, Krishnan JA, Bilderback A, Riekert KA, Rand CS, Bartlett SJ. Depressive symptoms and adherence to asthma therapy after hospital discharge. Chest. 2006 Oct;130(4):1034-8. doi: 10.1378/chest.130.4.1034. PubMed PMID: 17035435.

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Smit E, Crespo CJ, Michael Y, Ramirez-Marrero FA, Brodowicz GR, Bartlett S, Andersen RE. The effect of vitamin D and frailty on mortality among non-institutionalized US older adults. Eur J Clin Nutr. 2012 Sep;66(9):1024-8. doi: 10.1038/ejcn.2012.67. Epub 2012 Jun 13. PubMed PMID: 22692022.

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Smargiassi A, Goldberg MS, Wheeler AJ, Plante C, Valois MF, Mallach G, Kauri LM, Shutt R, Bartlett S, Raphoz M, Liu L. Associations between personal exposure to air pollutants and lung function tests and cardiovascular indices among children with asthma living near an industrial complex and petroleum refineries. Environ Res. 2014 Jul;132:38-45. doi: 10.1016/j.envres.2014.03.030. Epub 2014 Apr 16. PubMed PMID: 24742726.

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Sinnathurai P, Bartlett SJ, Halls S, Hewlett S, Orbai AM, Buchbinder R, Henderson L, Hill CL, Lassere M, March L. Investigating Dimensions of Stiffness in Rheumatoid and Psoriatic Arthritis: The Australian Rheumatology Association Database Registry and OMERACT Collaboration. J Rheumatol. 2019 Nov;46(11):1462-1469. doi: 10.3899/jrheum.181251. Epub 2019 Apr 1. PubMed PMID: 30936277.

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Schulman E, Bartlett SJ, Schieir O, Andersen KM, Boire G, Pope JE, Hitchon C, Jamal S, Thorne JC, Tin D, Keystone EC, Haraoui B, Goodman SM, Bykerk VP. Overweight, Obesity, and the Likelihood of Achieving Sustained Remission in Early Rheumatoid Arthritis: Results From a Multicenter Prospective Cohort Study. Arthritis Care Res (Hoboken). 2018 Aug;70(8):1185-1191. doi: 10.1002/acr.23457. Epub 2018 Jul 13. PubMed PMID: 29193840.

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Sawatzky R, Chan EKH, Zumbo BD, Ahmed S, Bartlett SJ, Bingham CO 3rd, Gardner W, Jutai J, Kuspinar A, Sajobi T, Lix LM. Montreal Accord on Patient-Reported Outcomes (PROs) use series-Paper 7: modern perspectives of measurement validation emphasize justification of inferences based on patient reported outcome scores. J Clin Epidemiol. 2017 Sep;89:154-159. doi: 10.1016/j.jclinepi.2016.12.002. Epub 2016 Dec 18. PubMed PMID: 27998744.

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Salmasi S, Kelly A, Bartlett SJ, de Wit M, March L, Tong A, Tugwell P, Tymms K, Verstappen S, De Vera MA. Researchers' perspectives on methodological challenges and outcomes selection in interventional studies targeting medication adherence in rheumatic diseases: an OMERACT-adherence study. BMC Rheumatol. 2021 Jul 8;5(1):26. doi: 10.1186/s41927-021-00193-4. PubMed PMID: 34233761; PubMed Central PMCID: PMC8265120.

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S Rapoport C, Choi AK, Kwakkenbos L, Carrier ME, Henry RS, Mouthon L, Roesch SC, Thombs BD, Malcarne VL. Evaluation of Measurement Properties and Differential Item Functioning in the English and French Versions of the University of California, Los Angeles, Loneliness Scale-6: A Scleroderma Patient-Centered Intervention Network (SPIN) Study. Arthritis Care Res (Hoboken). 2023 Oct;75(10):2158-2165. doi: 10.1002/acr.25115. Epub 2023 Apr 26. PubMed PMID: 36938696.

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Riekert KA, Bartlett SJ, Boyle MP, Krishnan JA, Rand CS. The association between depression, lung function, and health-related quality of life among adults with cystic fibrosis. Chest. 2007 Jul;132(1):231-7. doi: 10.1378/chest.06-2474. PubMed PMID: 17625085.

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Riehm KE, Kwakkenbos L, Carrier ME, Bartlett SJ, Malcarne VL, Mouthon L, Nielson WR, Poiraudeau S, Nielsen K, Baron M, Frech T, Hudson M, Pope J, Sauve M, Suarez-Almazor ME, Wigley FM, Thombs BD. Validation of the Self-Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient-Centered Intervention Network Cohort Study. Arthritis Care Res (Hoboken). 2016 Aug;68(8):1195-200. doi: 10.1002/acr.22807. PubMed PMID: 26619042.

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Rapoport CS, Choi AK, Kwakkenbos L, Carrier ME, Henry RS, Levis B, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Mayes MD, Mouthon L, Richard M, Worron-Sauvé M, Benedetti A, Roesch SC, Thombs BD, Malcarne VL. Moderators of Loneliness Trajectories in People with Systemic Sclerosis During the COVID-19 Pandemic: A SPIN COVID-19 Cohort Longitudinal Study. Int J Behav Med. 2024 Jun;31(3):352-362. doi: 10.1007/s12529-023-10248-0. Epub 2024 Jan 18. PubMed PMID: 38238585.

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Predmore Z, Chen EK, Concannon TW, Schrandt S, Bartlett SJ, Bingham CO, Xie RZ, Chapman RH, Frank L. Treatment goals for rheumatoid arthritis: patient engagement and goal collection. J Comp Eff Res. 2023 May;12(5):e220097. doi: 10.57264/cer-2022-0097. Epub 2023 Mar 28. PubMed PMID: 36976963; PubMed Central PMCID: PMC10402807.

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Pokharel G, Deardon R, Barnabe C, Bykerk V, Bartlett SJ, Bessette L, Boire G, Hitchon CA, Keystone E, Pope J, Schieir O, Tin D, Thorne C, Hazlewood GS. Joint Estimation of Remission and Response for Methotrexate-Based DMARD Options in Rheumatoid Arthritis: A Bivariate Network Meta-Analysis. ACR Open Rheumatol. 2019 Oct;1(8):471-479. doi: 10.1002/acr2.11052. eCollection 2019 Oct. PubMed PMID: 31777827; PubMed Central PMCID: PMC6858043.

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Orbai AM, Smith KC, Bartlett SJ, De Leon E, Bingham CO 3rd. "Stiffness has different meanings, I think, to everyone": examining stiffness from the perspective of people living with rheumatoid arthritis. Arthritis Care Res (Hoboken). 2014 Nov;66(11):1662-72. doi: 10.1002/acr.22374. PubMed PMID: 24891304; PubMed Central PMCID: PMC4211985.

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Orbai AM, Halls S, Hewlett S, Bartlett SJ, Leong AL, Bingham CO 3rd. More than Just Minutes of Stiffness in the Morning: Report from the OMERACT Rheumatoid Arthritis Flare Group Stiffness Breakout Sessions. J Rheumatol. 2015 Nov;42(11):2182-4. doi: 10.3899/jrheum.141172. Epub 2015 Mar 1. Review. PubMed PMID: 25729035; PubMed Central PMCID: PMC4556605.

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Nordlund J, Henry RS, Kwakkenbos L, Carrier ME, Levis B, Nielson WR, Bartlett SJ, Dyas L, Tao L, Fedoruk C, Nielsen K, Hudson M, Pope J, Frech T, Gholizadeh S, Johnson SR, Piotrowski P, Jewett LR, Gordon J, Chung L, Bilsker D, Levis AW, Turner KA, Cumin J, Welling J, Fortuné C, Leite C, Gottesman K, Sauve M, Rodríguez-Reyna TS, Larche M, van Breda W, Suarez-Almazor ME, Wurz A, Culos-Reed N, Malcarne VL, Mayes MD, Boutron I, Mouthon L, Benedetti A, Thombs BD. The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial. Trials. 2021 Nov 27;22(1):856. doi: 10.1186/s13063-021-05827-z. PubMed PMID: 34838105; PubMed Central PMCID: PMC8626736.

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Noonan VK, Lyddiatt A, Ware P, Jaglal SB, Riopelle RJ, Bingham CO 3rd, Figueiredo S, Sawatzky R, Santana M, Bartlett SJ, Ahmed S. Montreal Accord on Patient-Reported Outcomes (PROs) use series - Paper 3: patient-reported outcomes can facilitate shared decision-making and guide self-management. J Clin Epidemiol. 2017 Sep;89:125-135. doi: 10.1016/j.jclinepi.2017.04.017. Epub 2017 Apr 20. PubMed PMID: 28433671.

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Neyer MA, Henry RS, Carrier ME, Kwakkenbos L, Wojeck RK, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Mayes MD, Mouthon L, Nielson WR, Richard M, Worron-Sauvé M, Harel D, Malcarne VL, Bartlett SJ, Thombs BD. Validity, Reliability, and Differential Item Functioning of English and French Versions of the 10-Item Connor-Davidson Resilience Scale in Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study. Arthritis Care Res (Hoboken). 2023 Nov;75(11):2369-2378. doi: 10.1002/acr.25139. Epub 2023 Jun 7. PubMed PMID: 37128826.

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Naye F, Toupin-April K, de Wit M, LeBlanc A, Dubois O, Boonen A, Barton JL, Fraenkel L, Li LC, Stacey D, March L, Barber CEH, Hazlewood GS, Guillemin F, Bartlett SJ, Berthelsen DB, Mather K, Arnaud L, Akpabio A, Adebajo A, Schultz G, Sloan VS, Gill TK, Sharma S, Scholte-Voshaar M, Caso F, Nikiphorou E, Nasef SI, Campbell W, Meara A, Christensen R, Suarez-Almazor ME, Jull JE, Alten R, Morgan EM, El-Miedany Y, Singh JA, Burt J, Jayatilleke A, Hmamouchi I, Blanco FJ, Fernandez AP, Mackie S, Jones A, Strand V, Monti S, Stones SR, Lee RR, Nielsen SM, Evans V, Srinivasalu H, Gérard T, Demers JL, Bouchard R, Stefan T, Dugas M, Bergeron F, Beaton D, Maxwell LJ, Tugwell P, Décary S. OMERACT Core outcome measurement set for shared decision making in rheumatic and musculoskeletal conditions: a scoping review to identify candidate instruments. Semin Arthritis Rheum. 2024 Apr;65:152344. doi: 10.1016/j.semarthrit.2023.152344. Epub 2023 Dec 16. Review. PubMed PMID: 38232625.

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Nagaraj S, Barnabe C, Schieir O, Pope J, Bartlett SJ, Boire G, Keystone E, Tin D, Haraoui B, Thorne JC, Bykerk VP, Hitchon C. Early Rheumatoid Arthritis Presentation, Treatment, and Outcomes in Aboriginal Patients in Canada: A Canadian Early Arthritis Cohort Study Analysis. Arthritis Care Res (Hoboken). 2018 Aug;70(8):1245-1250. doi: 10.1002/acr.23470. PubMed PMID: 29125904.