Patients and clinicians define symptom levels and meaningful change for PROMIS pain interference and fatigue in RA using bookmarking.
Rheumatology (Oxford).
2021 Sep 1;60(9):4306-4314. doi: 10.1093/rheumatology/keab014. PubMed PMID:
33471127; PubMed Central PMCID:
PMC8633670.
Patient Perspectives on Outcome Domains of Medication Adherence Trials in Inflammatory Arthritis: An International OMERACT Focus Group Study.
J Rheumatol.
2021 Sep;48(9):1480-1487. doi: 10.3899/jrheum.201568. Epub 2021 May 15. PubMed PMID:
33993113.
Researchers' perspectives on methodological challenges and outcomes selection in interventional studies targeting medication adherence in rheumatic diseases: an OMERACT-adherence study.
BMC Rheumatol.
2021 Jul 8;5(1):26. doi: 10.1186/s41927-021-00193-4. PubMed PMID:
34233761; PubMed Central PMCID:
PMC8265120.
Endorsement of the OMERACT core domain set for shared decision making interventions in rheumatology trials: Results from a multi-stepped consensus-building approach.
Semin Arthritis Rheum.
2021 Jun;51(3):593-600. doi: 10.1016/j.semarthrit.2021.03.017. Epub 2021 Apr 6. PubMed PMID:
33892937.
Effects of a multi-faceted education and support programme on anxiety symptoms among people with systemic sclerosis and anxiety during COVID-19 (SPIN-CHAT): a two-arm parallel, partially nested, randomised, controlled trial.
Lancet Rheumatol.
2021 Jun;3(6):e427-e437. doi: 10.1016/S2665-9913(21)00060-6. Epub 2021 Apr 16. PubMed PMID:
33899008; PubMed Central PMCID:
PMC8051930.
Using confirmatory factor analysis and Rasch analysis to examine the dimensionality of The Patient Assessment of Care for Chronic Illness Care (PACIC).
Qual Life Res.
2021 May;30(5):1503-1512. doi: 10.1007/s11136-020-02750-9. Epub 2021 Jan 25. PubMed PMID:
33492589.
Protein Electrophoresis and Haptoglobin Values for Captive Bongo (Tragelaphus eurycerus).
Front Vet Sci.
2021;8:646500. doi: 10.3389/fvets.2021.646500. eCollection 2021. PubMed PMID:
33996975; PubMed Central PMCID:
PMC8113405.
Conversion of Functional Assessment of Chronic Illness Therapy-Fatigue to Patient-Reported Outcomes Measurement Information System Fatigue Scores in Two Phase III Baricitinib Rheumatoid Arthritis Trials.
Arthritis Care Res (Hoboken).
2021 Apr;73(4):481-488. doi: 10.1002/acr.24144. PubMed PMID:
31961494.
Factors associated with fears due to COVID-19: A Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 cohort study.
J Psychosom Res.
2021 Jan;140:110314. doi: 10.1016/j.jpsychores.2020.110314. Epub 2020 Nov 25. PubMed PMID:
33271402; PubMed Central PMCID:
PMC7685938.
Pain and Self-Efficacy Among Patients With Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Nurs Res.
2021 Set/Oct 01;70(5):334-343. doi: 10.1097/NNR.0000000000000528. PubMed PMID:
34173376; PubMed Central PMCID:
PMC8543734.
SARS-COV-2 INFECTION AND LONGITUDINAL FECAL SCREENING IN MALAYAN TIGERS (PANTHERA TIGRIS JACKSONI), AMUR TIGERS (PANTHERA TIGRIS ALTAICA ), AND AFRICAN LIONS (PANTHERA LEO KRUGERI) AT THE BRONX ZOO, NEW YORK, USA.
J Zoo Wildl Med.
2021 Jan;51(4):733-744. doi: 10.1638/2020-0171. PubMed PMID:
33480553.
Improvements in Fatigue Lag Behind Disease Remission in Early Rheumatoid Arthritis: Results From the Canadian Early Arthritis Cohort.
Arthritis Rheumatol.
2021 Jan;73(1):53-60. doi: 10.1002/art.41499. Epub 2020 Dec 6. PubMed PMID:
32852109.
Validation of the COVID-19 Fears Questionnaires for Chronic Medical Conditions: A Scleroderma Patient-centered Intervention Network COVID-19 Cohort study.
J Psychosom Res.
2020 Dec;139:110271. doi: 10.1016/j.jpsychores.2020.110271. Epub 2020 Oct 8. PubMed PMID:
33096402; PubMed Central PMCID:
PMC7543945.
Changes in mental health symptoms from pre-COVID-19 to COVID-19 among participants with systemic sclerosis from four countries: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort study.
J Psychosom Res.
2020 Dec;139:110262. doi: 10.1016/j.jpsychores.2020.110262. Epub 2020 Oct 3. PubMed PMID:
33070043; PubMed Central PMCID:
PMC7532799.
Selecting, implementing and evaluating patient-reported outcome measures for routine clinical use in cancer: the Cancer Care Ontario approach.
J Patient Rep Outcomes.
2020 Nov 26;4(1):101. doi: 10.1186/s41687-020-00270-1. PubMed PMID:
33242136; PubMed Central PMCID:
PMC7691418.
What Does the Patient Global Health Assessment in Rheumatoid Arthritis Really Tell Us? Contribution of Specific Dimensions of Health-Related Quality of Life.
Arthritis Care Res (Hoboken).
2020 Nov;72(11):1571-1578. doi: 10.1002/acr.24073. PubMed PMID:
31549772; PubMed Central PMCID:
PMC7089829.
Anxiety impacts rheumatoid arthritis symptoms and health-related quality of life even at low levels.
Clin Exp Rheumatol.
2020 Nov-Dec;38(6):1176-1181. Epub 2020 Mar 5. PubMed PMID:
32141436; PubMed Central PMCID:
PMC7483642.
From People to Panthera: Natural SARS-CoV-2 Infection in Tigers and Lions at the Bronx Zoo.
mBio.
2020 Oct 13;11(5). doi: 10.1128/mBio.02220-20. PubMed PMID:
33051368; PubMed Central PMCID:
PMC7554670.
Assessing differential item functioning for the Social Appearance Anxiety Scale: a Scleroderma atient-centred Intervention Network (SPIN) Cohort Study.
BMJ Open.
2020 Oct 12;10(10):e037639. doi: 10.1136/bmjopen-2020-037639. PubMed PMID:
33046467; PubMed Central PMCID:
PMC7552836.
Scope of Outcomes in Trials and Observational Studies of Interventions Targeting Medication Adherence in Rheumatic Conditions: A Systematic Review.
J Rheumatol.
2020 Oct 1;47(10):1565-1574. doi: 10.3899/jrheum.190726. Epub 2019 Dec 15. PubMed PMID:
31839595.
Patient and Caregiver Priorities for Medication Adherence in Gout, Osteoporosis, and Rheumatoid Arthritis: Nominal Group Technique.
Arthritis Care Res (Hoboken).
2020 Oct;72(10):1410-1419. doi: 10.1002/acr.24032. PubMed PMID:
31325214.
Protocol for a partially nested randomised controlled trial to evaluate the effectiveness of the scleroderma patient-centered intervention network COVID-19 home-isolation activities together (SPIN-CHAT) program to reduce anxiety among at-risk scleroderma patients.
J Psychosom Res.
2020 Aug;135:110132. doi: 10.1016/j.jpsychores.2020.110132. Epub 2020 May 14. PubMed PMID:
32521358; PubMed Central PMCID:
PMC7224675.
Treatment Strategies in Early Rheumatoid Arthritis Methotrexate Management: Results From a Prospective Cohort.
Arthritis Care Res (Hoboken).
2020 Aug;72(8):1104-1111. doi: 10.1002/acr.23927. Epub 2020 Jul 5. PubMed PMID:
31112011.
Patient-reported outcomes in RA care improve patient communication, decision-making, satisfaction and confidence: qualitative results.
Rheumatology (Oxford).
2020 Jul 1;59(7):1662-1670. doi: 10.1093/rheumatology/kez506. PubMed PMID:
31665477; PubMed Central PMCID:
PMC7310086.
Participation in and outcomes from a 12-month tailored exercise programme for people with multiple sclerosis (MSTEP©): a randomized trial.
Clin Rehabil.
2020 Jul;34(7):927-937. doi: 10.1177/0269215520923089. Epub 2020 May 21. PubMed PMID:
32438828.
The Universal Patient Language: A Set of Resources and Tools to Design Patient Communications That Support Better Health Literacy.
Stud Health Technol Inform.
2020 Jun 25;269:264-274. doi: 10.3233/SHTI200041. PubMed PMID:
32594001.
Complete Genome Sequence of SARS-CoV-2 in a Tiger from a U.S. Zoological Collection.
Microbiol Resour Announc.
2020 May 28;9(22). doi: 10.1128/MRA.00468-20. PubMed PMID:
32467283; PubMed Central PMCID:
PMC7256270.
A catalyst for transforming health systems and person-centred care: Canadian national position statement on patient-reported outcomes.
Curr Oncol.
2020 Apr;27(2):90-99. doi: 10.3747/co.27.6399. Epub 2020 May 1. PubMed PMID:
32489251; PubMed Central PMCID:
PMC7253746.
The Scleroderma Patient-Centered Intervention Network Self-Management Program: Protocol for a Randomized Feasibility Trial.
JMIR Res Protoc.
2020 Apr 24;9(4):e16799. doi: 10.2196/16799. PubMed PMID:
32329747; PubMed Central PMCID:
PMC7210498.
ANALYSIS OF PLASMODIUM LINEAGES IDENTIFIED IN CAPTIVE PENGUINS (SPHENISCIFORMES SPP.), EIDERS (SOMATERIA SPP.), AND INCA TERNS (LAROSTERNA INCA) IN A NORTH AMERICAN ZOOLOGICAL COLLECTION.
J Zoo Wildl Med.
2020 Mar 17;51(1):140-149. doi: 10.1638/2019-0078. PubMed PMID:
32212557.
Self-management across chronic diseases: Targeting education and support needs.
Patient Educ Couns.
2020 Feb;103(2):398-404. doi: 10.1016/j.pec.2019.08.038. Epub 2019 Sep 6. PubMed PMID:
31575442.
Palindromic Rheumatism Frequently Precedes Early Rheumatoid Arthritis: Results From an Incident Cohort.
ACR Open Rheumatol.
2019 Dec;1(10):614-619. doi: 10.1002/acr2.11086. eCollection 2019 Dec. PubMed PMID:
31872182; PubMed Central PMCID:
PMC6917323.
Physical or Occupational Therapy Use in Systemic Sclerosis: A Scleroderma Patient-centered Intervention Network Cohort Study.
J Rheumatol.
2019 Dec;46(12):1605-1613. doi: 10.3899/jrheum.181130. Epub 2019 May 1. PubMed PMID:
31043542.
A quarter of patients time their early rheumatoid arthritis onset differently than physicians.
RMD Open.
2019;5(2):e000931. doi: 10.1136/rmdopen-2019-000931. eCollection 2019. PubMed PMID:
31803498; PubMed Central PMCID:
PMC6890380.
Prevalence and Characteristics of Metabolic Syndrome Differ in Men and Women with Early Rheumatoid Arthritis.
ACR Open Rheumatol.
2019 Nov;1(9):535-541. doi: 10.1002/acr2.11075. eCollection 2019 Nov. PubMed PMID:
31777836; PubMed Central PMCID:
PMC6858015.
Investigating Dimensions of Stiffness in Rheumatoid and Psoriatic Arthritis: The Australian Rheumatology Association Database Registry and OMERACT Collaboration.
J Rheumatol.
2019 Nov;46(11):1462-1469. doi: 10.3899/jrheum.181251. Epub 2019 Apr 1. PubMed PMID:
30936277.
Factors associated with patient-reported likelihood of using online self-care interventions: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study.
BMJ Open.
2019 Oct 14;9(10):e029542. doi: 10.1136/bmjopen-2019-029542. PubMed PMID:
31615796; PubMed Central PMCID:
PMC6797412.
Joint Estimation of Remission and Response for Methotrexate-Based DMARD Options in Rheumatoid Arthritis: A Bivariate Network Meta-Analysis.
ACR Open Rheumatol.
2019 Oct;1(8):471-479. doi: 10.1002/acr2.11052. eCollection 2019 Oct. PubMed PMID:
31777827; PubMed Central PMCID:
PMC6858043.
Advancing Stiffness Measurement in Rheumatic Disease: Report from the Stiffness Special Interest Group at OMERACT 2018.
J Rheumatol.
2019 Oct;46(10):1374-1378. doi: 10.3899/jrheum.181074. Epub 2019 Feb 15. PubMed PMID:
30770511; PubMed Central PMCID:
PMC6697231.
OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions.
J Rheumatol.
2019 Oct;46(10):1409-1414. doi: 10.3899/jrheum.181071. Epub 2019 Feb 1. PubMed PMID:
30709963; PubMed Central PMCID:
PMC6675671.
Patient Perspectives on DMARD Safety Concerns in Rheumatology Trials: Results from Inflammatory Arthritis Patient Focus Groups and OMERACT Attendees Discussion.
J Rheumatol.
2019 Sep;46(9):1168-1172. doi: 10.3899/jrheum.181185. Epub 2019 Feb 15. PubMed PMID:
30770516; PubMed Central PMCID:
PMC6697626.
Addressing Challenges in Developing a Core Domain Set in Adherence Interventions in Rheumatology: A Report from the OMERACT-Adherence Group.
J Rheumatol.
2019 Sep;46(9):1202-1206. doi: 10.3899/jrheum.181078. Epub 2019 Jan 15. PubMed PMID:
30647162.
OMERACT Filter 2.1: Elaboration of the Conceptual Framework for Outcome Measurement in Health Intervention Studies.
J Rheumatol.
2019 Aug;46(8):1021-1027. doi: 10.3899/jrheum.181096. Epub 2019 Feb 15. PubMed PMID:
30770515.
Consensus Building in OMERACT: Recommendations for Use of the Delphi for Core Outcome Set Development.
J Rheumatol.
2019 Aug;46(8):1041-1046. doi: 10.3899/jrheum.181094. Epub 2019 Feb 15. PubMed PMID:
30770512.
Improving Benefit-harm Assessment of Therapies from the Patient Perspective: OMERACT Premeeting Toward Consensus on Core Sets for Randomized Controlled Trials.
J Rheumatol.
2019 Aug;46(8):1053-1058. doi: 10.3899/jrheum.181123. Epub 2019 Jan 15. PubMed PMID:
30647191.
RETROSPECTIVE ANALYSIS OF MORTALITY IN CAPTIVE BONGO (TRAGELAPHUS EURYCERUS), 1995-2015.
J Zoo Wildl Med.
2019 Jun 13;50(2):303-307. doi: 10.1638/2018-0175. PubMed PMID:
31260193.
Association of Arthritis Onset with Influenza: Analysis of the Canadian Early Inflammatory Arthritis Cohort.
ACR Open Rheumatol.
2019 Mar;1(1):63-69. doi: 10.1002/acr2.1009. eCollection 2019 Mar. PubMed PMID:
31777782; PubMed Central PMCID:
PMC6858047.
Validation of the Patient-Reported Outcomes Measurement Information System (PROMIS)-57 and -29 item short forms among kidney transplant recipients.
Qual Life Res.
2019 Mar;28(3):815-827. doi: 10.1007/s11136-018-2058-2. Epub 2018 Nov 22. PubMed PMID:
30467780.
Shortening patient-reported outcome measures through optimal test assembly: application to the Social Appearance Anxiety Scale in the Scleroderma Patient-centered Intervention Network Cohort.
BMJ Open.
2019 Feb 22;9(2):e024010. doi: 10.1136/bmjopen-2018-024010. PubMed PMID:
30798308; PubMed Central PMCID:
PMC6398718.
PROMIS Fatigue short forms are reliable and valid in adults with rheumatoid arthritis.
J Patient Rep Outcomes.
2019 Feb 21;3(1):14. doi: 10.1186/s41687-019-0105-6. PubMed PMID:
30790155; PubMed Central PMCID:
PMC6384289.
What would you like to do?