Having More Tender Than Swollen Joints is Associated With Worse Function and Work Impairment in Patients With Early Rheumatoid Arthritis.
ACR Open Rheumatol.
2024 Jun;6(6):347-355. doi: 10.1002/acr2.11658. Epub 2024 Mar 6. PubMed PMID:
38446125; PubMed Central PMCID:
PMC11168911.
Moderators of Loneliness Trajectories in People with Systemic Sclerosis During the COVID-19 Pandemic: A SPIN COVID-19 Cohort Longitudinal Study.
Int J Behav Med.
2024 Jun;31(3):352-362. doi: 10.1007/s12529-023-10248-0. Epub 2024 Jan 18. PubMed PMID:
38238585.
Consensus on the definitions and descriptions of the domains of the OMERACT Core Outcome Set for shared decision making interventions in rheumatology trials.
Semin Arthritis Rheum.
2024 Apr;65:152381. doi: 10.1016/j.semarthrit.2024.152381. Epub 2024 Jan 15. PubMed PMID:
38306813.
OMERACT Core outcome measurement set for shared decision making in rheumatic and musculoskeletal conditions: a scoping review to identify candidate instruments.
Semin Arthritis Rheum.
2024 Apr;65:152344. doi: 10.1016/j.semarthrit.2023.152344. Epub 2023 Dec 16. Review. PubMed PMID:
38232625.
Factors associated with physical function among people with systemic sclerosis: a SPIN cohort cross-sectional study.
Rheumatology (Oxford).
2024 Mar 12;. doi: 10.1093/rheumatology/keae162. [Epub ahead of print] PubMed PMID:
38471107.
Factors associated with satisfaction with social roles and activities among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort cross-sectional study.
RMD Open.
2024 Feb 29;10(1). doi: 10.1136/rmdopen-2023-003876. PubMed PMID:
38428973; PubMed Central PMCID:
PMC10910418.
A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team members.
Disabil Rehabil.
2024 Feb;46(3):533-545. doi: 10.1080/09638288.2023.2169775. Epub 2023 Jan 28. PubMed PMID:
36708187.
Stakeholder endorsement advancing the implementation of a patient-reported domain for harms in rheumatology clinical trials: Outcome of the OMERACT Safety Working Group.
Semin Arthritis Rheum.
2023 Dec;63:152288. doi: 10.1016/j.semarthrit.2023.152288. Epub 2023 Oct 26. PubMed PMID:
37918049.
Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study.
Rheumatology (Oxford).
2023 Nov 2;62(11):3771. doi: 10.1093/rheumatology/kez234. PubMed PMID:
31168593; PubMed Central PMCID:
PMC11009684.
Validity, Reliability, and Differential Item Functioning of English and French Versions of the 10-Item Connor-Davidson Resilience Scale in Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Arthritis Care Res (Hoboken).
2023 Nov;75(11):2369-2378. doi: 10.1002/acr.25139. Epub 2023 Jun 7. PubMed PMID:
37128826.
GLOBAL RETROSPECTIVE REVIEW OF SEVERE ACUTE RESPIRATORY SYNDROME SARS COV-2 INFECTIONS IN NONDOMESTIC FELIDS: MARCH 2020-FEBRUARY 2021.
J Zoo Wildl Med.
2023 Oct;54(3):607-616. doi: 10.1638/2022-0141. PubMed PMID:
37817628.
Evaluation of Measurement Properties and Differential Item Functioning in the English and French Versions of the University of California, Los Angeles, Loneliness Scale-6: A Scleroderma Patient-Centered Intervention Network (SPIN) Study.
Arthritis Care Res (Hoboken).
2023 Oct;75(10):2158-2165. doi: 10.1002/acr.25115. Epub 2023 Apr 26. PubMed PMID:
36938696.
Patient-reported outcomes and patient-reported outcome measures in liver transplantation: a scoping review.
Qual Life Res.
2023 Sep;32(9):2435-2445. doi: 10.1007/s11136-023-03405-1. Epub 2023 Apr 6. Review. PubMed PMID:
37022585.
Development and Evaluation of a Digital HIV Risk Assessment Tool Incorporated Within an App-Based Self-Testing Program.
J Acquir Immune Defic Syndr.
2023 Aug 15;93(5):387-394. doi: 10.1097/QAI.0000000000003210. PubMed PMID:
37155969; PubMed Central PMCID:
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Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional study.
EClinicalMedicine.
2023 Aug;62:102104. doi: 10.1016/j.eclinm.2023.102104. eCollection 2023 Aug. PubMed PMID:
37533421; PubMed Central PMCID:
PMC10393558.
Mental health symptoms in scleroderma during COVID-19: a Scleroderma Patient-centred Intervention Network (SPIN) cohort longitudinal study.
Clin Exp Rheumatol.
2023 Aug;41(8):1639-1643. doi: 10.55563/clinexprheumatol/cca0xv. Epub 2023 Apr 19. PubMed PMID:
37083160.
Differential Item Functioning on the Cochin Hand Function Scale Among People With Systemic Sclerosis by Language, Sex, and Disease Subtype: A Scleroderma Patient-Centered Intervention Network (SPIN) Cohort Study.
Arthritis Care Res (Hoboken).
2023 Jul 24;. doi: 10.1002/acr.25199. [Epub ahead of print] PubMed PMID:
37489073.
Exploring research team members' and trial participants' perceptions of acceptability and implementation within one videoconference-based supportive care program for individuals affected by systemic sclerosis during COVID-19: a qualitative interview study.
Transl Behav Med.
2023 Jul 1;13(7):442-452. doi: 10.1093/tbm/ibac091. PubMed PMID:
36999812; PubMed Central PMCID:
PMC10314727.
Assessing Fatigue in Patients Receiving Kidney Replacement Therapy Using PROMIS Computer Adaptive Testing.
Am J Kidney Dis.
2023 Jul;82(1):33-42.e1. doi: 10.1053/j.ajkd.2022.12.018. Epub 2023 Mar 9. PubMed PMID:
36906218.
Two-step screening for depressive symptoms in patients treated with kidney replacement therapies: a cross-sectional analysis.
Nephrol Dial Transplant.
2023 May 4;38(5):1318-1326. doi: 10.1093/ndt/gfac262. PubMed PMID:
36095145; PubMed Central PMCID:
PMC10157790.
"From Where I Stand": using multiple anchors yields different benchmarks for meaningful improvement and worsening in the rheumatoid arthritis flare questionnaire (RA-FQ).
Qual Life Res.
2023 May;32(5):1307-1318. doi: 10.1007/s11136-022-03227-7. Epub 2022 Sep 8. PubMed PMID:
36074252.
Treatment goals for rheumatoid arthritis: patient engagement and goal collection.
J Comp Eff Res.
2023 May;12(5):e220097. doi: 10.57264/cer-2022-0097. Epub 2023 Mar 28. PubMed PMID:
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Exploring perceptions of using preference elicitation methods to inform clinical trial design in rheumatology: A qualitative study and OMERACT collaboration.
Semin Arthritis Rheum.
2023 Feb;58:152112. doi: 10.1016/j.semarthrit.2022.152112. Epub 2022 Nov 3. PubMed PMID:
36372015.
Socioeconomic factors impact the risk of HIV acquisition in the township population of South Africa: A Bayesian analysis.
PLOS Glob Public Health.
2023;3(1):e0001502. doi: 10.1371/journal.pgph.0001502. eCollection 2023. PubMed PMID:
36963084; PubMed Central PMCID:
PMC10021863.
Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial.
Trials.
2022 Dec 12;23(1):994. doi: 10.1186/s13063-022-06923-4. PubMed PMID:
36510233; PubMed Central PMCID:
PMC9742661.
Development and psychometric evaluation of the CanSmart questionnaire to measure chronic disease self-management tasks.
BMC Psychol.
2022 Dec 7;10(1):293. doi: 10.1186/s40359-022-00995-2. PubMed PMID:
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PMC9730574.
Frequency of Symptomatic Adverse Events in Rheumatoid Arthritis: An Exploratory Online Survey.
J Rheumatol.
2022 Sep;49(9):998-1005. doi: 10.3899/jrheum.210688. Epub 2022 Mar 1. PubMed PMID:
35232804.
Feasibility and acceptability of using a meditation app in adults with rheumatic disease.
Explore (NY).
2022 Sep-Oct;18(5):523-525. doi: 10.1016/j.explore.2021.11.003. Epub 2021 Nov 9. PubMed PMID:
34801408; PubMed Central PMCID:
PMC9081288.
Remote Follow-up of Self-isolating Patients With COVID-19 Using a Patient Portal: Protocol for a Mixed Methods Pilot Study (Opal-COVID Study).
JMIR Res Protoc.
2022 Aug 18;11(8):e35760. doi: 10.2196/35760. PubMed PMID:
35820054; PubMed Central PMCID:
PMC9390833.
The FATIGUE-PRO: a new patient-reported outcome instrument to quantify fatigue in patients affected by systemic lupus erythematosus.
Rheumatology (Oxford).
2022 Aug 3;61(8):3329-3340. doi: 10.1093/rheumatology/keab920. PubMed PMID:
34897375; PubMed Central PMCID:
PMC9348773.
Mental Health Care Use and Associated Factors in Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study.
ACR Open Rheumatol.
2022 Aug;4(8):647-657. doi: 10.1002/acr2.11439. Epub 2022 May 23. PubMed PMID:
35603782; PubMed Central PMCID:
PMC9374049.
Barriers and Facilitators to Physical Activity for People With Scleroderma: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Arthritis Care Res (Hoboken).
2022 Aug;74(8):1300-1310. doi: 10.1002/acr.24567. Epub 2022 May 11. PubMed PMID:
33527717.
The Application of Preference Elicitation Methods in Clinical Trial Design to Quantify Trade-Offs: A Scoping Review.
Patient.
2022 Jul;15(4):423-434. doi: 10.1007/s40271-021-00560-w. Epub 2021 Dec 20. Review. PubMed PMID:
34927216.
Predictors of Influenza Vaccination in Early Rheumatoid Arthritis 2017-2021: Results From the Canadian Early Arthritis Cohort.
ACR Open Rheumatol.
2022 Jul;4(7):566-573. doi: 10.1002/acr2.11427. Epub 2022 Mar 29. PubMed PMID:
35349768; PubMed Central PMCID:
PMC9274339.
Can Peer Review Be Kinder? Supportive Peer Review: A Re-Commitment to Kindness and a Call to Action.
Can J Kidney Health Dis.
2022;9:20543581221080327. doi: 10.1177/20543581221080327. eCollection 2022. PubMed PMID:
35514878; PubMed Central PMCID:
PMC9067031.
The impact of tofacitinib on fatigue, sleep, and health-related quality of life in patients with rheumatoid arthritis: a post hoc analysis of data from Phase 3 trials.
Arthritis Res Ther.
2022 Apr 5;24(1):83. doi: 10.1186/s13075-022-02724-x. PubMed PMID:
35382883; PubMed Central PMCID:
PMC8981846.
Identifying Minimal and Meaningful Change in a Patient-Reported Outcomes Measurement Information System for Rheumatoid Arthritis: Use of Multiple Methods and Perspectives.
Arthritis Care Res (Hoboken).
2022 Apr;74(4):588-597. doi: 10.1002/acr.24501. Epub 2022 Mar 3. PubMed PMID:
33166066; PubMed Central PMCID:
PMC10360361.
Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program.
Pilot Feasibility Stud.
2022 Feb 26;8(1):45. doi: 10.1186/s40814-022-00994-5. PubMed PMID:
35219340; PubMed Central PMCID:
PMC8881754.
Patient and rheumatologist perspectives on tapering DMARDs in rheumatoid arthritis: a qualitative study.
Rheumatology (Oxford).
2022 Feb 2;61(2):606-616. doi: 10.1093/rheumatology/keab330. PubMed PMID:
33878168.
Validation of the PROMIS sleep disturbance item bank computer adaptive test (CAT) in patients on renal replacement therapy.
Sleep Med.
2022 Feb;90:36-43. doi: 10.1016/j.sleep.2022.01.001. Epub 2022 Jan 10. PubMed PMID:
35091171.
Mental health before and during the pandemic in people with systemic sclerosis.
Lancet Rheumatol.
2022 Feb;4(2):e82-e85. doi: 10.1016/S2665-9913(21)00363-5. Epub 2021 Dec 3. PubMed PMID:
34901884; PubMed Central PMCID:
PMC8641958.
Screening for symptoms of anxiety and depression in patients treated with renal replacement therapy: utility of the Edmonton Symptom Assessment System-Revised.
Qual Life Res.
2022 Feb;31(2):597-605. doi: 10.1007/s11136-021-02910-5. Epub 2021 Jun 17. PubMed PMID:
34138450.
Heterogeneity in Patient Characteristics and Differences in Treatment Across 4 Canadian Rheumatoid Arthritis Cohorts.
J Rheumatol.
2022 Jan;49(1):16-25. doi: 10.3899/jrheum.201688. Epub 2021 Aug 1. PubMed PMID:
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A Bridge Too Far? Real-World Practice Patterns of Early Glucocorticoid Use in the Canadian Early Arthritis Cohort.
ACR Open Rheumatol.
2022 Jan;4(1):57-64. doi: 10.1002/acr2.11334. Epub 2021 Oct 28. PubMed PMID:
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PMC8754017.
Reply.
Arthritis Rheumatol.
2022 Jan;74(1):178-180. doi: 10.1002/art.41918. Epub 2021 Dec 6. PubMed PMID:
34224658.
Pain levels and associated factors in the Scleroderma Patient-centered Intervention Network (SPIN) cohort: a multicentre cross-sectional study.
Lancet Rheumatol.
2021 Dec;3(12):e844-e854. doi: 10.1016/S2665-9913(21)00318-0. PubMed PMID:
38287631.
The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial.
Trials.
2021 Nov 27;22(1):856. doi: 10.1186/s13063-021-05827-z. PubMed PMID:
34838105; PubMed Central PMCID:
PMC8626736.
Corrigendum to: Patient and Rheumatologist Perspectives on Tapering DMARDs in Rheumatoid Arthritis: A Qualitative Study.
Rheumatology (Oxford).
2021 Nov 3;60(11):5484. doi: 10.1093/rheumatology/keab482. PubMed PMID:
34532735.
Inhaled and intranasal ciclesonide for the treatment of covid-19 in adult outpatients: CONTAIN phase II randomised controlled trial.
BMJ.
2021 Nov 2;375:e068060. doi: 10.1136/bmj-2021-068060. PubMed PMID:
34728476; PubMed Central PMCID:
PMC8561042.
Identifying barriers and facilitators to physical activity for people with scleroderma: a nominal group technique study.
Disabil Rehabil.
2021 Nov;43(23):3339-3346. doi: 10.1080/09638288.2020.1742391. Epub 2020 Mar 19. PubMed PMID:
32191536.
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