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Leigh syndrome, mitochondrial

MedGen UID:
1053661
Concept ID:
CN377802
Disease or Syndrome
Monarch Initiative: MONDO:0970944
OMIM®: 500017

Definition

Leigh syndrome is a clinically and genetically heterogeneous disorder resulting from defective mitochondrial energy generation. It most commonly presents as a progressive and severe neurodegenerative disorder with onset within the first months or years of life, sometimes resulting in early death. Affected individuals usually show global developmental delay or developmental regression, hypotonia, ataxia, dystonia, and ophthalmologic abnormalities, such as nystagmus or optic atrophy. The neurologic features are associated with the classic findings of T2-weighted hyperintensities in the basal ganglia and/or brainstem on brain imaging. Leigh syndrome can also have detrimental multisystemic affects on the cardiac, hepatic, gastrointestinal, and renal organs. Biochemical studies in patients with Leigh syndrome tend to show increased lactate and abnormalities of mitochondrial oxidative phosphorylation (summary by Lake et al., 2015). Genetic Heterogeneity of Leigh Syndrome Leigh syndrome can be a clinical presentation of a primary deficiency caused by genes involved in any of the mitochondrial respiratory chain complexes, both in the mitochondrial genome and in the nuclear genome. See 256000 for discussion of genetic heterogeneity of nuclear Leigh syndrome (NULS). [from OMIM]

Professional guidelines

PubMed

Na JH, Lee YM
Acta Neurol Scand 2022 Apr;145(4):414-422. Epub 2021 Dec 7 doi: 10.1111/ane.13566. PMID: 34877647
Barcelos I, Shadiack E, Ganetzky RD, Falk MJ
Curr Opin Pediatr 2020 Dec;32(6):707-718. doi: 10.1097/MOP.0000000000000954. PMID: 33105273Free PMC Article
Baertling F, Rodenburg RJ, Schaper J, Smeitink JA, Koopman WJ, Mayatepek E, Morava E, Distelmaier F
J Neurol Neurosurg Psychiatry 2014 Mar;85(3):257-65. Epub 2013 Jun 14 doi: 10.1136/jnnp-2012-304426. PMID: 23772060

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