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Distal monosomy 13q syndrome

MedGen UID:
1640346
Concept ID:
C4706502
Disease or Syndrome
Synonyms: 13q32 deletion; Distal 13q deletion; Distal monosomy 13q
SNOMED CT: Distal monosomy 13q (763527007); Distal monosomy 13q syndrome (763527007); 13q32 deletion (763527007); Distal 13q deletion (763527007)

Definition

A rare chromosomal anomaly syndrome resulting from a partial deletion of the long arm of chromosome 13. The syndrome has a highly variable phenotype and typical characteristics of varying degrees of intellectual disability and developmental delay, as well as central nervous system malformations (e.g. holoprosencephaly, anencephaly, ventriculomegaly, Dandy-Walker malformation), ocular abnormalities (e.g. hypertelorism, microphthalmia, strabismus, aniridia, retinal dysplasia) and craniofacial dysmorphism (microcephaly, trigonocephaly, large and malformed ears, broad prominent nasal bridge, micrognathia). Cardiac, genitourinary, gastrointestinal and skeletal manifestations have also been reported. [from SNOMEDCT_US]

Professional guidelines

PubMed

Kataoka A, Hirakawa S, Iwamoto M, Sakumura Y, Yoshinaga R, Ohba T
Kurume Med J 2011;58(4):127-30. doi: 10.2739/kurumemedj.58.127. PMID: 23047142

Recent clinical studies

Etiology

Yang M, Safavi S, Woodward EL, Duployez N, Olsson-Arvidsson L, Ungerbäck J, Sigvardsson M, Zaliova M, Zuna J, Fioretos T, Johansson B, Nord KH, Paulsson K
Blood 2020 Aug 20;136(8):946-956. doi: 10.1182/blood.2019004684. PMID: 32384149Free PMC Article
Yang YF, Ai Q, Huang C, Chen JL, Wang J, Xie L, Zhang WZ, Yang JF, Tan ZP
Gene 2013 Oct 1;528(1):51-4. Epub 2013 Apr 29 doi: 10.1016/j.gene.2013.03.145. PMID: 23639964
Kataoka A, Hirakawa S, Iwamoto M, Sakumura Y, Yoshinaga R, Ohba T
Kurume Med J 2011;58(4):127-30. doi: 10.2739/kurumemedj.58.127. PMID: 23047142
Parker H, Rose-Zerilli MJ, Parker A, Chaplin T, Wade R, Gardiner A, Griffiths M, Collins A, Young BD, Oscier DG, Strefford JC
Leukemia 2011 Mar;25(3):489-97. Epub 2010 Dec 10 doi: 10.1038/leu.2010.288. PMID: 21151023

Diagnosis

Kotani T, Tsuda H, Ito Y, Nakamura N, Ushida T, Imai K, Iitani Y, Fuma K, Muramatsu Y, Hayakawa M, Kajiyama H
J Med Case Rep 2022 Dec 27;16(1):481. doi: 10.1186/s13256-022-03713-z. PMID: 36572904Free PMC Article
Jurkiewicz D, Kugaudo M, Tańska A, Wawrzkiewicz-Witkowska A, Tomaszewska A, Kucharczyk M, Cieślikowska A, Ciara E, Krajewska-Walasek M
Pediatr Int 2015 Jun;57(3):486-91. Epub 2015 May 27 doi: 10.1111/ped.12611. PMID: 26012727
Kataoka A, Hirakawa S, Iwamoto M, Sakumura Y, Yoshinaga R, Ohba T
Kurume Med J 2011;58(4):127-30. doi: 10.2739/kurumemedj.58.127. PMID: 23047142
Chen CP, Su YN, Tsai FJ, Lin MH, Wu PC, Chern SR, Lee CC, Pan CW, Wang W
Taiwan J Obstet Gynecol 2011 Jun;50(2):205-11. doi: 10.1016/j.tjog.2010.04.001. PMID: 21791309
Parker H, Rose-Zerilli MJ, Parker A, Chaplin T, Wade R, Gardiner A, Griffiths M, Collins A, Young BD, Oscier DG, Strefford JC
Leukemia 2011 Mar;25(3):489-97. Epub 2010 Dec 10 doi: 10.1038/leu.2010.288. PMID: 21151023

Prognosis

Parker H, Rose-Zerilli MJ, Parker A, Chaplin T, Wade R, Gardiner A, Griffiths M, Collins A, Young BD, Oscier DG, Strefford JC
Leukemia 2011 Mar;25(3):489-97. Epub 2010 Dec 10 doi: 10.1038/leu.2010.288. PMID: 21151023
Alanay Y, Aktaş D, Utine E, Talim B, Onderoğlu L, Cağlar M, Tunçbilek E
Am J Med Genet A 2005 Jul 30;136(3):265-8. doi: 10.1002/ajmg.a.30808. PMID: 15948192

Clinical prediction guides

Alanay Y, Aktaş D, Utine E, Talim B, Onderoğlu L, Cağlar M, Tunçbilek E
Am J Med Genet A 2005 Jul 30;136(3):265-8. doi: 10.1002/ajmg.a.30808. PMID: 15948192

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