TABLE 22

Parents’ and HPs’ agreement on outcomes rated as essential in rounds 1 and 2 of the Delphi survey

OutcomeRound 1 (%)Round 2 (%)
Parents (N = 81)HPs (N = 76)Parents (N = 61)HPs (N = 61)
Nutrition89979598
General health89939798
Weight53513448
Height31321212
Growth75768289
Child’s enjoyment of mealtimes83919098
Parent’s enjoyment of mealtimes42763978
Quality of life of child959298100
Mental health of parent83849397
Safety9797100100
Oral motor control87748672
Efficiency44601746
Independence60314328
Variety51232612
Amount62405325
Mealtime Interaction61816579
Social participation50775374
Parent’s understanding of child’s EDSD89899593
Quality of life of familya78879097
Appetitea59444638
Mealtime behavioura41303426
Child’s understanding of mealtimesa51515840
a

These items were not included in the national survey and, therefore, are presented at the end of the table.

Bold denotes a rating of ‘essential’ (i.e. a score of 7–9) by ≥ 67% within the stakeholder group. Shaded cells denote agreement by both stakeholder groups that the item was ‘essential’ (i.e. a score of 7–9) ≥ 67%.

From: Chapter 10, Aim 3: Delphi survey

Cover of Parent-delivered interventions used at home to improve eating, drinking and swallowing in children with neurodisability: the FEEDS mixed-methods study
Parent-delivered interventions used at home to improve eating, drinking and swallowing in children with neurodisability: the FEEDS mixed-methods study.
Health Technology Assessment, No. 25.22.
Parr J, Pennington L, Taylor H, et al.
Southampton (UK): NIHR Journals Library; 2021 Mar.
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