Demographic characteristics of relatives

Fiona Lobban; Duncan Appelbe; Victoria Appleton; Golnar Aref-Adib; Johanna Barraclough; Julie Billsborough; Naomi R Fisher; Sheena Foster; Bethany Gill; David Glentworth; Chris Harrop; Sonia Johnson; Steven H Jones; Tibor Z Kovacs; Elizabeth Lewis; Barbara Mezes; Charlotte Morton; Elizabeth Murray; Puffin O’Hanlon; Vanessa Pinfold; Jo Rycroft-Malone; Ronald Siddle; Jo Smith; Chris J Sutton; Pietro Viglienghi; Andrew Walker; Catherine Wintermeyer

Appendix 6Demographic characteristics of relatives

Demographic and clinical characteristics of the relatives cared for by participants at baseline and at the 12-week and 24-week follow-ups are presented in Table 33. The most common relationship was mother (participant) and child (relative cared for). Individuals cared for were primarily aged < 25 years and living at home. The most commonly reported diagnosis was psychosis. However, there were relatively high rates of missing data or instances when participants did not know the diagnosis of their relative.

TABLE 33

Summary of relatives cared for by research participants

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Copyright © Queen’s Printer and Controller of HMSO 2020. This work was produced by Lobban et al. under the terms of a commissioning contract issued by the Secretary of State for Health and Social Care. This issue may be freely reproduced for the purposes of private research and study and extracts (or indeed, the full report) may be included in professional journals provided that suitable acknowledgement is made and the reproduction is not associated with any form of advertising. Applications for commercial reproduction should be addressed to: NIHR Journals Library, National Institute for Health Research, Evaluation, Trials and Studies Coordinating Centre, Alpha House, University of Southampton Science Park, Southampton SO16 7NS, UK.

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NIHR Journals Library, Southampton (UK)

NLM Citation

Lobban F, Appelbe D, Appleton V, et al. An online supported self-management toolkit for relatives of people with psychosis or bipolar experiences: the IMPART multiple case study. Southampton (UK): NIHR Journals Library; 2020 Sep. (Health Services and Delivery Research, No. 8.37.) Appendix 6, Demographic characteristics of relatives.

TABLE 33

Summary of relatives cared for by research participants

Relative characteristic	Time point, n (%)
Relative characteristic	Baseline (N = 75)	Follow-up 1 (12 weeks) (N = 23)	Follow-up 2 (24 weeks) (N = 30)
Participant’s relationship to relative(s)
Mother	45 (60)	14 (61)	13 (43)
Father	2 (2.67)	1 (4)	2 (7)
Grandfather	–	–	1 (3)
Sibling	3 (4)	1 (4)	–
Wider family	1 (1)	1 (4)	1 (3)
Daughter	7 (9)	–	4 (13)
Son	–	–	1 (3)
Partner	5 (7)	1 (4)	–
Friend	–	1 (4)	–
Other	1 (1)	–	–
Missing	11 (15)	4 (17)	8 (27)
Age of relative(s) (years)
< 16–25	37 (49)	10 (43)	10 (33)
26–35	10 (13)	4 (17)	5 (17)
36–50	7 (9)	4 (17)	1 (3)
> 50	10 (13)	1 (4)	6 (20)
Missing	11 (15)	4 (17)	8 (27)
Relative’s diagnosis
I don’t know	5 (7)	–	–
Bipolar disorder, bipolar affective disorder, manic depression	6 (8)	–	1 (3)
Schizophrenia	2 (3)	2 (9)	4 (13)
Psychosis	38 (51)	10 (43)	9 (30)
Schizoaffective disorder	1 (1)	1 (4)	–
Other	10 (13)	4 (17)	6 (20)
Missing	13 (17)	6 (26)	10 (33)
Relative living with participant
Yes	43 (57)	12 (52)	10 (33)
No	19 (25)	5 (22)	10 (33)
Missing	13 (17)	6 (26)	10 (33)