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Lobban F, Appelbe D, Appleton V, et al. An online supported self-management toolkit for relatives of people with psychosis or bipolar experiences: the IMPART multiple case study. Southampton (UK): NIHR Journals Library; 2020 Sep. (Health Services and Delivery Research, No. 8.37.)

Appendix 6Demographic characteristics of relatives

Demographic and clinical characteristics of the relatives cared for by participants at baseline and at the 12-week and 24-week follow-ups are presented in Table 33. The most common relationship was mother (participant) and child (relative cared for). Individuals cared for were primarily aged < 25 years and living at home. The most commonly reported diagnosis was psychosis. However, there were relatively high rates of missing data or instances when participants did not know the diagnosis of their relative.

Tables

TABLE 33

Summary of relatives cared for by research participants

Relative characteristicTime point, n (%)
Baseline (N = 75)Follow-up 1 (12 weeks) (N = 23)Follow-up 2 (24 weeks) (N = 30)
Participant’s relationship to relative(s)
 Mother45 (60)14 (61)13 (43)
 Father2 (2.67)1 (4)2 (7)
 Grandfather––1 (3)
 Sibling3 (4)1 (4)–
 Wider family1 (1)1 (4)1 (3)
 Daughter7 (9)–4 (13)
 Son––1 (3)
 Partner5 (7)1 (4)–
 Friend–1 (4)–
 Other1 (1)––
 Missing11 (15)4 (17)8 (27)
Age of relative(s) (years)
 < 16–2537 (49)10 (43)10 (33)
 26–3510 (13)4 (17)5 (17)
 36–507 (9)4 (17)1 (3)
 > 5010 (13)1 (4)6 (20)
 Missing11 (15)4 (17)8 (27)
Relative’s diagnosis
 I don’t know5 (7)––
 Bipolar disorder, bipolar affective disorder, manic depression6 (8)–1 (3)
 Schizophrenia2 (3)2 (9)4 (13)
 Psychosis38 (51)10 (43)9 (30)
 Schizoaffective disorder1 (1)1 (4)–
 Other10 (13)4 (17)6 (20)
 Missing13 (17)6 (26)10 (33)
Relative living with participant
 Yes43 (57)12 (52)10 (33)
 No19 (25)5 (22)10 (33)
 Missing13 (17)6 (26)10 (33)
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