| Study | Reason for Exclusion |
|---|---|
| Abbott, J., Hart, A., Measuring and reporting quality of life outcomes in clinical trials in cystic fibrosis: A critical review, Health and Quality of Life Outcomes, 3, 2005 | Narrative review. |
| Aitken, M. L., Caldwell, E., Wilhelm, E., Goss, C. H., Early intervention in pulmonary exacerbation, Pediatric Pulmonology, 46, 2011 | Conference abstract of RCT in the United States. |
| Anonymous,, Services for adults with cystic fibrosis, Journal of Cystic Fibrosis, 1, 103–9, 2002 | Meeting report. |
| Balzano, J., Fresenius, A., Walker, P., Berdella, M., Portenoy, R. K., Bookbinder, M., Glajchen, M., Plachta, A., Langfelder-Schwind, E., Chen, J., Dhingra, L., Web-based symptom screening in cystic fibrosis patients: A feasibility study, Journal of Cystic Fibrosis, 15, 102–8, 2016 | No relevant comparison. |
| Barnes, R., Commissioning of cystic fibrosis services in England, Journal of the Royal Society of Medicine, 99 Suppl 46, 36–45, 2006 | Discussion paper. |
| Bella, S., Murgia, F., Cotognini, C., Alghisi, F., Montemitro, E., Program of home telemonitoring in patients with cystic fibrosis over a period of 2 years: A contribution to the rationalization of care, Clinica Terapeutica, 164, e313-e317, 2013 | Costs/economic analysis. No relevant outcomes presented. |
| Bella, S., Murgia, F., Tozzi, A. E., Cotognini, C., Lucidi, V., Five years of Telemedicine in Cystic Fibrosis Disease, Clinica Terapeutica, 160, 457–60, 2009 | FEV1 presented graphically not numerically. Other outcomes not relevant. |
| Bourke, S. J., Doe, S. J., Gascoigne, A. D., Heslop, K., Fields, M., Reynolds, D., Mannix, K., An integrated model of provision of palliative care to patients with cystic fibrosis, Palliative Medicine, 23, 512–7, 2009 | Aim not relevant: a descriptive analysis of the circumstances of death and the palliative care needs of all patients attending one CF centre. |
| Bowler, I., Pierrepoint, M., Evans, R., Response to ‘Full, shared and hybrid paediatric care for cystic fibrosis (CF) in South and Mid Wales’… Arch Dis Child. 2012 Jan;97(1):17–20, Archives of Disease in Childhood, 97, 88–89, 2012 | Comment. |
| Bradley, J. M., Wallace, E. S., Elborn, J. S., Howard, J. L., McCoy, M. P., An audit of the effect of intravenous antibiotic treatment on spirometric measures of pulmonary function in cystic fibrosis, Irish Journal of Medical Science, 168, 25–8, 1999 | Given the availability of prospective studies on the intervention and outcomes covered by this study, this study was excluded because it is retrospective. |
| Bramwell, E. C., Halpin, D. M. G., DuncanSkingle, F., Hodson, M. E., Geddes, D. M., Home treatment of patients with cystic fibrosis using the “Intermate”: the first year’s experience, Journal of Advanced Nursing, 22, 1063–1068, 1995 | Given the availability of prospective studies on the intervention and outcomes covered by this study, this study was excluded because it used historical controls. |
| Bremont, F., Dutau, G., Organization of home care for patients with cystic fibrosis, Pediatric Pulmonology - Supplement, 16, 231, 1997 | Discussion paper. |
| Brown-Ewing, L. J., Finkelstein, S. M., Budd, J. R., Kujawa, S. J., Wielinski, C. L., Warwick, W. J., Nguyen, S., Implementation of a home-based program for early detection of clinical deterioration in cystic fibrosis, Medical Instrumentation, 22, 240–6, 1988 | No relevant data. |
| Byrne, N. M., Hardy, L., Community physiotherapy for children with cystic fibrosis: a family satisfaction survey, Journal of Cystic Fibrosis, 4, 123–7, 2005 | Descriptive. |
| Carruthers, Maureen, Stevens, Anna-Marie, Palliative care and cystic fibrosis - the benefits of integrated working, European Journal of Palliative Care, 21, 277–282, 2014 | Narrative review with case report. |
| Chait, H., Home care: the cystic fibrosis patient, Resp. Ther, 3, 37–39+68, 1973 | Discussion paper / narrative review. |
| Chowdhury, F., Wildman, M. J., Gunn, E., Bilton, D., Cystic fibrosis deaths in usa and UK: Comparisons of registry and routine data, Thorax, 66, A163-A164, 2011 | Abstract only. No relevant comparative interventions presented. |
| Chuang, S., Doumit, M., McDonald, R., Hennessy, E., Katz, T., Jaffe, A., Annual Review Clinic improves care in children with cystic fibrosis, Journal of Cystic Fibrosis, 13, 186–9, 2014 | Not relevant intervention. |
| Clarke, Blayne T., Home care in respiratory therapy, Canadian Journal of Respiratory Therapy, 52, 51–52, 2016 | Commentary. |
| Cohen, R. I., Jaffrey, F., Fulman, M., Maniscalco, P., Ryan-Frank, C., LaVecchia, G., Application of a microsystem-based project to improve the inpatient care of adults with cystic fibrosis, Annals of the American Thoracic Society, 10, 198–204, 2013 | No relevant data. |
| Cohen-Cymberknoh, M., Shoseyov, D., Kerem, E., Managing cystic fibrosis: strategies that increase life expectancy and improve quality of life, American Journal of Respiratory & Critical Care Medicine, 183, 1463–71, 2011 | Narrative review. |
| Collins, C. E., MacDonald-Wicks, L., Rowe, S., O’Loughlin, E. V., Henry, R. L., Normal growth in cystic fibrosis associated with a specialised centre, Archives of Disease in Childhood, 81, 241–6, 1999 | No relevant comparison. |
| Colombo, C., Littlewood, J., The implementation of standards of care in Europe: state of the art, Journal of Cystic Fibrosis, 10 Suppl 2, S7–15, 2011 | Narrative review. |
| Cote, D., Oruck, J., Thickson, N., A review of a Manitoba Home IV Antibiotic Program, Canadian Journal of Hospital Pharmacy, 42, 137–141, 1989 | No relevant data. |
| Cottrell, J., Burrows, E., Community-based care in cystic fibrosis: role of the cystic fibrosis nurse specialist and implications for patients and families, Disability & Rehabilitation, 20, 254–61, 1998 | Narrative review. |
| Cox, N. S., Alison, J. A., Button, B. M., Wilson, J. W., Holland, A. E., Feasibility and acceptability of an internet-based program to promote physical activity in adults with cystic fibrosis, Respiratory Care, 60, 422–9, 2015 | Uncontrolled before-after study; no relevant intervention. |
| Cox, N. S., Alison, J. A., Rasekaba, T., Holland, A. E., Telehealth in cystic fibrosis: a systematic review, Journal of Telemedicine & Telecare, 18, 72–8, 2012 | Systematic review. Individual studies of interest included. |
| Cox, N. S., McKay, K. O., Follett, J. M., Alison, J. A., Home IV Antibiotic Therapy and Exercise Capacity in Children with CF: A Case Series, Cardiopulmonary Physical Therapy Journal, 22, 16–9, 2011 | Case series from Australia. |
| Cummings, E., Hauser, J., Cameron-Tucker, H., Fitzpatrick, P., Jessup, M., Walters, E. H., Reid, D., Turner, P., Enhancing self-efficacy for self-management in people with cystic fibrosis, Studies in Health Technology & Informatics, 169, 33–7, 2011 | Quantitative data analysis subject of forthcoming paper. |
| David, T. J., Intravenous antibiotics at home in children with cystic fibrosis, Journal of the Royal Society of Medicine, 82, 130–1, 1989 | Narrative review. |
| David, T. J., Home intravenous antibiotic therapy: Practical aspects in children, Journal of the Royal Society of Medicine, Supplement, 90, 26–33, 1997 | Recommendations and discussion paper. |
| Davis, S., Davis, P., Mather, F., Tankersly, P., Waring, W., A randomized trial of home intravenous antibiotic therapy (HIVAT) in cystic fibrosis (CF): Short-term safety and efficacy [abstract], Pediatric Pulmonology, 5, 1990 | Abstract of RCT. Given the availability of full papers on home IV antibiotic therapy, abstracts were excluded from this review. |
| Davis, S., Davis, P., Mather, F., Waring, W., Home, IVAntibiotic Study Group, A randomized trial of home intravenous antibiotic therapy (HIVAT) in cystic fibrosis (CF): Short-term psychological effects [abstract], Pediatric Pulmonology, 5, 281–2, 1990 | No relevant outcomes: psychological scores: self-concept, anxiety, coping. |
| Dodge, J. A., Patient-centred cystic fibrosis services, Journal of the Royal Society of Medicine, 98 Suppl 45, 2–6, 2005 | Narrative review. |
| Doull, I., Shared care-is it worth it for the patient?, Journal of the Royal Society of Medicine, 105 Suppl 2, S25–9, 2012 | Narrative review. |
| Doull, I., Evans, H., Clarke, J., Creese, K., Hodges, I., Narayan, V., Okuonghae, H., Owen, G., Pitchaikani, P., Full, shared and hybrid paediatric care for cystic fibrosis in South and Mid Wales, Archives of Disease in Childhood, 97, 17–20, 2012 | Cross-sectional. |
| Driessen, Julia, Bonhomme, Andro, Chang, Woody, Nace, David A., Kavalieratos, Dio, Perera, Subashan, Handler, Steven M., Nursing Home Provider Perceptions of Telemedicine for Reducing Potentially Avoidable Hospitalizations, Journal of the American Medical Directors Association, 17, 519–524, 2016 | Indirect population. |
| Dryden, C., O’Berst, E., Corrigan, D., Models of paediatric care for cystic fibrosis: local clinics can deliver equitable care and offer many benefits… Arch Dis Child. 2012 Jan;97(1):17–20, Archives of Disease in Childhood, 97, 88–90, 2012 | Narrative commentary on Doull Paper. No relevant data presented. |
| Elborn, J. S., Bell, S. C., Madge, S. L., Burgel, P. R., Castellani, C., Conway, S., De Rijcke, K., Dembski, B., Drevinek, P., Heijerman, H. G., Innes, J. A., Lindblad, A., Marshall, B., Olesen, H. V., Reimann, A. L., Sole, A., Viviani, L., Wagner, T. O., Welte, T., Blasi, F., Report of the European Respiratory Society/European Cystic Fibrosis Society task force on the care of adults with cystic fibrosis, European Respiratory JournalEur Respir J, 47, 420–8, 2016 | Narrative review and consensus statements. |
| Elliott, R. A., Thornton, J., Webb, A. K., Dodd, M., Tully, M. P., Comparing costs of home- versus hospital-based treatment of infections in adults in a specialist cystic fibrosis center, International Journal of Technology Assessment in Health Care, 21, 506–10, 2005 | No relevant outcome (costing study). |
| Ellis, J. M., Let parents give the care: iv therapy at home in cystic fibrosis, Professional Nurse, 4, 587–92, 1989 | No relevant data. |
| Fernandes, B. N., Jones, A., Simpson, A., Webb, K., Custovic, A., Should adrenaline auto-injectors be prescribed for cystic fibrosis patients having home intravenous antibiotics? A UK national audit, Thorax, 67, A104, 2012 | UK audit, but not relevant to models of care. |
| Finkelstein, S. M., Budd, J. R., Warwick, W. J., Feasibility and compliance of a home measurement monitoring program for cystic fibrosis, Journal of Chronic Diseases, 39, 195–205, 1986 | No relevant comparison. |
| Gilbert, J., Robinson, T., Littlewood, J. M., Home intravenous antibiotic treatment in cystic fibrosis, Archives of Disease in Childhood, 63, 512–7, 1988 | Poor quality reporting. |
| Gill, S., Home administration of intravenous antibiotics to children with cystic fibrosis, British Journal of Nursing, 2, 767–70, 1993 | Narrative review. |
| Goss, C. H., West, N. E., Allgood, S., Wilhelm, E., Khan, U., Howe, D., Hamblett, N. M., Aitken, M. L., Ramsey, B. W., Boyle, M. P., Mogayzel Jr, P. J., Gibson, R. L., Orenstein, D., Milla, C., Lechtzin, N., Assessment of the effectiveness of home monitoring trial in CF to identify and treat acute pulmonary exacerbation: The eice study results, Pediatric Pulmonology, 50, 342–343, 2015 | Outcomes of RCT are not presented in this abstract. |
| Greenop, D., Glenn, S., Ledson, M., Walshaw, M., Self-care and cystic fibrosis: a review of research with adults, Health & Social Care in the Community, 18, 653–61, 2010 | Narrative review. |
| Hammond, L. J., Caldwell, S., Campbell, P. W., Cystic fibrosis, intravenous antibiotics, and home therapy, Journal of Pediatric Health Care, 5, 24–30, 1991 | Narrative review. |
| Havermans, T., De Boeck, K., Cystic fibrosis: a balancing act?, Journal of Cystic Fibrosis, 6, 161–2, 2007 | Discussion paper. |
| Horvais, V., Touzet, S., Francois, S., Bourdy, S., Bellon, G., Colin, C., Durieu, I., Cost of home and hospital care for patients with cystic fibrosis followed up in two reference medical centers in France, International Journal of Technology Assessment in Health Care, 22, 525–31, 2006 | No relevant data. |
| Johnson, T., Treating cystic fibrosis patients in the home setting, Infusion, 14, 23–28, 2008 | Discussion paper including a description of how information about home care is given to patients at Columbus Children’s Hospital. |
| Jones, A. M., Adults with cystic fibrosis should be treated at a specialist centre, Paediatric Respiratory Reviews, 14, 13–15, 2013 | Narrative review. |
| Kinder, Frances DiAnna, Parents’ Perception of Satisfaction With Pediatric Nurse Practitioners’ Care And Parental Intent to Adhere To Recommended Health Care Regimen, Pediatric Nursing, 42, 138–144, 2016 | No relevant aim; no relevant intervention. |
| Kirk, S., Beatty, S., Callery, P., Gellatly, J., Milnes, L., Pryjmachuk, S., The effectiveness of self-care support interventions for children and young people with long-term conditions: a systematic review, Child: Care, Health and Development, 39, 305–324, 2013 | Included studies are not relevant. |
| Klettke, U., Magdorf, K., Staab, D., Bisson, S., Paul, K., Wahn, U., [Ambulatory vs. inpatient intravenous antibiotic therapy in mucoviscidosis patients-a controlled study], Pneumologie (Stuttgart, Germany), 53, 31–6, 1999 | In German. |
| Kuzemko, J. A., Home treatment of pulmonary infections in cystic fibrosis, CHEST, 94, 162S-165S, 1988 | Narrative review. |
| Lavie, M., Vilozni, D., Sokol, G., Somech, R., Szeinberg, A., Efrati, O., Hospital versus home treatment of respiratory exacerbations in cystic fibrosis, Medical Science Monitor, 17, CR698–703, 2011 | Setting does not fit inclusion criteria. |
| Lebecque, P., Leonard, A., De Boeck, K., De Baets, F., Malfroot, A., Casimir, G., Desager, K., Godding, V., Leal, T., Early referral to cystic fibrosis specialist centre impacts on respiratory outcome, Journal of Cystic Fibrosis, 8, 26–30, 2009 | No relevant comparison. |
| Lechtzin, N., Allgood, S., Kahn, U., Hamblett, N. M., Wilhelm, E., West, N. E., Howe, D., Aitken, M. L., Ramsey, B. W., Boyle, M. P., Mogayzel, P., Gibson, R. L., Orenstein, D., Milla, C., Goss, C. H., The effect of home spirometry and symptom monitoring on treatment adherence in CF, Pediatric Pulmonology, 50, 431, 2015 | Outcomes of RCT are not presented in this abstract. |
| Lechtzin, N., West, N., Allgood, S., Wilhelm, E., Khan, U., Mayer-Hamblett, N., Aitken, M. L., Ramsey, B. W., Boyle, M. P., Mogayzel, P. J., Jr., Goss, C. H., Rationale and design of a randomized trial of home electronic symptom and lung function monitoring to detect cystic fibrosis pulmonary exacerbations: the early intervention in cystic fibrosis exacerbation (eICE) trial, Contemporary Clinical Trials, 36, 460–9, 2013 | Aim not relevant: to describe the rationale and design of an ongoing trial. |
| Ledger, S. J., Owen, E., Prasad, S. A., Goldman, A., Willams, J., Aurora, P., A pilot outreach physiotherapy and dietetic quality improvement initiative reduces IV antibiotic requirements in children with moderate-severe cystic fibrosis, Journal of Cystic Fibrosis, 12, 766–72, 2013 | No relevant comparison. |
| Lima, H. A., Cystic fibrosis: management and treatment in the home care setting, Home Health Care Consultant, 5, 6–15, 1998 | Narrative review. |
| Littlewood, J. M., Good care for people with cystic fibrosis, Paediatric Respiratory Reviews, 1, 179–89, 2000 | Narrative review. |
| Loftus, T., Reclaiming their childhood: helping cystic fibrosis patients with high-tech home care, Caring, 7, 22–7, 1988 | No relevant data. |
| Magrabi, F., Lovell, N. H., Henry, R. L., Celler, B. G., Designing home telecare: A case study in monitoring cystic fibrosis, Telemedicine Journal and e-Health, 11, 707–719, 2005 | Qualitative review. No relevant outcomes presented. |
| Mahadeva, R., Webb, K., Westerbeek, R. C., Carroll, N. R., Dodd, M. E., Bilton, D., Lomas, D. A., Dodge, J. A., Clinical outcome in relation to care in centres specialising in cystic fibrosis: Cross sectional study, British Medical Journal, 316, 1771–1775, 1998 | Cross-sectional study. |
| McClure, M., Home care of patients with cystic fibrosis, Home Health Care Management & Practice, 19, 442–445, 2007 | Narrative review. |
| Merelle, M. E., Schouten, J. P., Gerritsen, J., Dankert-Roelse, J. E., Influence of neonatal screening and centralized treatment on long-term clinical outcome and survival of CF patients, European Respiratory Journal, 18, 306–15, 2001 | Poor quality reporting. Baseline characteristics not reported, follow-up not defined. |
| Mighten, J., Home intravenous therapy training for carers of children and young people, British Journal of Nursing, 16, 272–6, 2007 | Intervention not relevant: training package (instead of model of care). |
| Morrison, L., McIntosh, L., Freeman, A., UK national audit of physiotherapy clinical standards of care in cystic fibrosis, Journal of Cystic Fibrosis, 10, S67, 2011 | Abstract only. No relevant data presented. |
| Muirhead, C. A., Sanford, J. N., McCullar, B. G., Nolt, D., MacDonald, K. D., One Center’s Guide to Outpatient Management of Pediatric Cystic Fibrosis Acute Pulmonary Exacerbation, Clinical Medicine Insights. Pediatrics, 10, 57–65, 2016 | This paper describes a CF centre’s practices. No relevant comparison. |
| Munzenberger, P. J., Levin, S., Home parenteral antibiotic therapy for patients with cystic fibrosis, Hospital Pharmacy, 28, 20–8, 1993 | Narrative review. |
| Nazer, D., Abdulhamid, I., Thomas, R., Pendleton, S., Home versus hospital intravenous antibiotic therapy for acute pulmonary exacerbations in children with cystic fibrosis, Pediatric Pulmonology, 41, 744–9, 2006 | Given the availability of prospective studies on the intervention and outcomes covered by this study, this study was excluded because it is retrospective. |
| Nightingale, Julia, Shafiq, Irfan, End-of-life care for cystic fibrosis patients - part 2, European Journal of Palliative Care, 22, 136–141, 2015 | Narrative review. |
| Nikander, K., Denyer, J., Dodd, M., Dyche, T., Webb, K., Weller, P., Stableforth, D., The Adaptive Aerosol Delivery system in a telehealth setting: patient acceptance, performance and feasibility, Journal of aerosol medicine & pulmonary drug delivery, 23 Suppl 1, S21–7, 2010 | Study design does not fit protocol: no control group. |
| Oermann, C. M., Sockrider, M. M., Giles, D., Sontag, M. K., Accurso, F. J., Castile, R. G., Comparison of high-frequency chest wall oscillation and oscillating positive expiratory pressure in the home management of cystic fibrosis: a pilot study, Pediatric Pulmonology, 32, 372–7, 2001 | No relevant comparison. |
| Peckham, D., European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre, Journal of cystic fibrosis: official journal of the European Cystic Fibrosis Society, 13, S3–22, 2014 | Narrative review. |
| Pedersen, M. G., Jensen-Fangel, S., Olesen, H. V., Tambe, S. D., Petersen, E., Outpatient parenteral antimicrobial therapy (OPAT) in patients with cystic fibrosis, BMC Infectious Diseases, 15, 290, 2015 | No relevant comparison. |
| Pinney, M., Home care for CF patients, Nursing, 4, 70–1, 1974 | Letters. |
| Pond, M. N., Newport, M., Joanes, D., Conway, S. P., Home versus hospital intravenous antibiotic therapy in the treatment of young adults with cystic fibrosis, European Respiratory Journal, 7, 1640–4, 1994 | Given the availability of prospective studies on the intervention and outcomes covered by this study, this study was excluded because it is retrospective. |
| Post, P. N., Wittenberg, J., Burgers, J. S., Do specialized centers and specialists produce better outcomes for patients with chronic diseases than primary care generalists? A systematic review, International Journal for Quality in Health Care, 21, 387–96, 2009 | Systematic review. Individual studies included and reviewed. |
| Powers, S. W., Stark, L., Chamberlin, L., Sullivan, S., Filigno, S., Rausch, J., A multi-site, randomized, controlled clinical trial of behavioral and nutrition treatment for preschoolers with cystic fibrosis, Pediatric pulmonology, 48, 2013 | No relevant comparison. |
| Proesmans, M., Heyns, L., Moons, P., Havermans, T., De Boeck, K., Real life evaluation of intravenous antibiotic treatment in a paediatric cystic fibrosis centre: outcome of home therapy is not inferior, Respiratory Medicine, 103, 244–50, 2009 | Given the availability of prospective studies on the intervention and outcomes covered by this study, this study was excluded because it is retrospective. |
| Ramstrom, H., Erwander, I., Mared, L., Kornfalt, R., Seiving, B., Pharmaceutical intervention in the care of cystic fibrosis patients, Journal of Clinical Pharmacy & Therapeutics, 25, 427–34, 2000 | Not relevant comparison. |
| Rim, Matthew H., Smith, Lonnie, Kelly, Michael, Implementation of a patient-focused specialty pharmacy program in an academic healthcare system, American Journal of Health-System Pharmacy, 73, 831–838, 2016 | Indirect population; no relevant outcomes. |
| Rogers, D., Goodchild, M. C., Role of a domiciliary physiotherapist in the treatment of children with cystic fibrosis, Physiotherapy, 82, 396–421, 1996 | No relevant data. |
| Rovedder, P. M. E., Flores, J., Ziegler, B., Casarotto, F., Jaques, P., Barreto, S. S. M., De Tarso Roth Dalcin, P., Exercise programme in patients with cystic fibrosis: A randomized controlled trial, Respiratory Medicine, 108, 1134–1140, 2014 | Not relevant comparison. |
| Sarfaraz, S., Sund, Z., Jarad, N., Real-time, once-daily monitoring of symptoms and FEV1 in cystic fibrosis patients - A feasibility study using a novel device, Clinical Respiratory Journal, 4, 74–82, 2010 | No relevant data. |
| Sawicki, G. S., Goss, C. H., Tackling the increasing complexity of CF care, Pediatric Pulmonology, 50, S74-S79, 2015 | Narrative review. |
| Schneiderman-Walker, J., Pollock, S. L., Corey, M., Wilkes, D. D., Canny, G. J., Pedder, L., Reisman, J. J., A randomized controlled trial of a 3-year home exercise program in cystic fibrosis, Journal of Pediatrics, 136, 304–10, 2000 | No relevant comparison. |
| Selekman, J., Cystic fibrosis: what is involved in the home treatment program for these children, adolescents and young adults?, Pediatric Nursing, 3, 32–5, 1977 | Discussion paper. |
| Sequeiros, I. M., Jarad, N. A., Home intravenous antibiotic treatment for acute pulmonary exacerbations in cystic fibrosis - Is it good for the patient?, Annals of Thoracic Medicine, 4, 111–4, 2009 | Narrative review. |
| Sequeiros, I., Jarad, N., Home intravenous antibiotic treatment for acute pulmonary exacerbations in cystic fibrosis - Is it good for the patient?, Annals of Thoracic Medicine, 4, 111114, 2009 | Narrative review. |
| Shultz, E. K., Finkelstein, S. M., Budd, J. R., Moore, A., Warwick, W. J., A home-based pulmonary function monitor for cystic fibrosis, Medical Instrumentation, 22, 234–9, 1988 | Aim not relevant. |
| Smyth, A. R., Bell, S. C., Bojcin, S., Bryon, M., Duff, A., Flume, P., Kashirskaya, N., Munck, A., Ratjen, F., Schwarzenberg, S. J., SermetGaudelus, I., Southern, K. W., Taccetti, G., Ullrich, G., Wolfe, S., European Cystic Fibrosis, Society, European Cystic Fibrosis Society Standards of Care: Best Practice guidelines, Journal of Cystic Fibrosis, 13 Suppl 1, S23–42, 2014 | Narrative review. |
| Stanford, G., Parrott, H., Bilton, D., Agent, P., Positive pressure-analysing the effect of the addition of non-invasive ventilation (NIV) to home airway clearance techniques (ACT) in adult cystic fibrosis (CF) patients, Physiotherapy Theory & Practice, 31, 270–4, 2015 | No relevant comparison. |
| Stephenson, K., Intravenous therapy. Giving antibiotics at home, Nursing Standard, 3, 24–5, 1989 | Description of a home therapy programme. |
| Strandvik, B., Hjelte, L., Malmborg, A. S., Widen, B., Home intravenous antibiotic treatment of patients with cystic fibrosis, Acta Paediatrica, 81, 340–4, 1992 | Given the availability of prospective studies on the intervention and outcomes covered by this study, this study was excluded because it is not stated if it is prospective or retrospective - and seems to be retrospective considering the 1988 publication by Strandvik et al. on the same home care data. |
| Strandvik, B., Hjelte, L., Widen, B., Home intravenous antibiotic treatment in cystic fibrosis, Scandinavian Journal of Gastroenterology - Supplement, 143, 119–20, 1988 | No control group. |
| Tagliente, I., Trieste, L., Solvoll, T., Murgia, F., Bella, S., Telemonitoring in Cystic Fibrosis: A 4-year Assessment and Simulation for the Next 6 Years, Interactive Journal of Medical Research, 5, e11, 2016 | No relevant outcomes. |
| Termoz, A., Touzet, S., Bourdy, S., Decullier, E., Bouveret, L., Colin, C., Nove-Josserand, R., Reix, P., Cracowski, C., Pin, I., Bellon, G., Durieu, I., Effectiveness of home treatment for patients with cystic fibrosis: the intravenous administration of antibiotics to treat respiratory infections, Pediatric Pulmonology, 43, 908–15, 2008 | Given the availability of prospective studies on the intervention and outcomes covered by this study, this study was excluded because it is retrospective. |
| Thigpen, Jim, Odle, Brian, Intravenous and Inhaled Antimicrobials at Home in Cystic Fibrosis Patients, Home Health Care Management & Practice, 26, 101–110, 2014 | Narrative review. |
| Thornton, J., Elliott, R. A., Tully, M. P., Dodd, M., Webb, A. K., Clinical and economic choices in the treatment of respiratory infections in cystic fibrosis: comparing hospital and home care, Journal of Cystic Fibrosis, 4, 239–47, 2005 | Given the availability of prospective studies on the intervention and outcomes covered by this study, this study was excluded because it is retrospective. |
| Thornton, J., Elliott, R., Tully, M. P., Dodd, M., Webb, A. K., Long term clinical outcome of home and hospital intravenous antibiotic treatment in adults with cystic fibrosis, Thorax, 59, 242–6, 2004 | Given the availability of prospective studies on the intervention and outcomes covered by this study, this study was excluded because it is retrospective. |
| Van Aalderen, W. M. C., Mannes, G. P. M., Bosma, E. S., Roorda, R. J., Heymans, H. S. A., Home care in cystic fibrosis patients, European Respiratory Journal, 8, 172–175, 1995 | Narrative review. |
| Vinks, A. A. T. M. M., Brimicombe, R. W., Heijerman, H. G. M., Bakker, W., Continuous infusion of ceftazidime in cystic fibrosis patients during home treatment: Clinical outcome, microbiology and pharmacokinetics, Journal of Antimicrobial Chemotherapy, 40, 125–133, 1997 | Before-and-after study. Given the availability of comparative cohort studies on home IV antibiotic treatment, before-and-after studies were excluded from the review. |
| Walker, P., Berdella, M., Fresenius, A., Plachta, A., Wilder, K., Gordon, A., Chen, J., Bookbinder, M., Glajchen, M., Langfelder-Schwind, E., Portenoy, R., Dhingra, L., (192) Feasibility of monthly web-based screening for pain and symptoms in cystic fibrosis patients, Journal of Pain, 17, S23-S24, 2016 | Conference abstract, no RCT. |
| Watson, H., Bilton, D., Truby, H., A randomized controlled trial of a new behavioral home-based nutrition education program, “Eat Well with CF,” in adults with cystic fibrosis, Journal of the American Dietetic Association, 108, 847–52, 2008 | Not relevant intervention. |
| Weatherall, Louise, Respiratory nursing: New technology trialled on the ward, Kai Tiaki Nursing New Zealand, 22, 35–35, 2016 | Commentary on a forum. |
| Weber, H. C., Robinson, P. F., Saxby, N., Beggs, S. A., Els, I., Ehrlich, R. I., Do children with cystic fibrosis receiving outreach care have poorer clinical outcomes than those treated at a specialist cystic fibrosis centre?, Australian Journal of Rural HealthAust J Rural Health, 17, 17, 2016 | Cross-sectional study. |
| Winter, R. J., George, R. J., Deacock, S. J., Shee, C. D., Geddes, D. M., Self-administered home intravenous antibiotic therapy in bronchiectasis and adult cystic fibrosis, Lancet, 1, 1338–9, 1984 | Indirect population. |
| Wolter, J., Bowler, S., Nolan, P., McCormack, J., Intravenous home therapy: a randomised trial in adult cystic fibrosis patients. [abstract], Australian and New Zealand journal of medicine, 25, 1995 | Abstract of paper that has been included. |
| Zinman, R., Corey, M., Coates, A. L., Canny, G. J., Connolly, J., Levison, H., Beaudry, P. H., Nocturnal home oxygen in the treatment of hypoxemic cystic fibrosis patients, Journal of Pediatrics, 114, 368–77, 1989 | No relevant intervention. |
From: Appendix H, Excluded studies
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