TABLE 29, [Summary of control, autonomy and choice and a content validation of the EQ-5D, SF-36 and ICECAP-A]. - A systematic review, psychometric analysis and qualitative assessment of generic preference-based measures of health in mental health populations and the estimation of mapping functions from widely used specific measures

Subtheme	Summary description	ICECAP-A
Dependence and independence	Support was valued and seen as important for QoL. Indeed, those in more severe conditions aspired to more support and accepted they could not be independent However, support can make people feel dependent and this can be associated with loss of control and esteem. Concerns about loss of independence expressed by those with less severe conditions and/or physical comorbidity In review, discussed importance of personal autonomy to find the right balance between support and independence. Autonomy does not imply independence	Being independent (‘I am able to be independent . . .’) – but does not deal with need for support
Control	Self-control: mainly related to relief and management of symptoms, usually through medication. Anxiety and panic associated with fear of loss of control, and depression with lack of control Environment control: there was a desire to control the environment in order to feel safer. Can involve withdrawing into a smaller world – into a comfort zone	Feeling settled and secure
Choice	Having choice and opportunity is important for QoL. Participants usually associate this with money and access to resources which enable someone to do the things they want to do (capabilities theory). To get money, need opportunities to do paid work; these are limited by perceived discrimination and stress from work (so some did voluntary work)

Subtheme

Summary description

EQ-5D

SF-36

ICECAP-A

Dependence and independence

Support was valued and seen as important for QoL. Indeed, those in more severe conditions aspired to more support and accepted they could not be independent

However, support can make people feel dependent and this can be associated with loss of control and esteem. Concerns about loss of independence expressed by those with less severe conditions and/or physical comorbidity

In review, discussed importance of personal autonomy to find the right balance between support and independence. Autonomy does not imply independence

Being independent (‘I am able to be independent . . .’) – but does not deal with need for support

Control

Self-control: mainly related to relief and management of symptoms, usually through medication. Anxiety and panic associated with fear of loss of control, and depression with lack of control

Environment control: there was a desire to control the environment in order to feel safer. Can involve withdrawing into a smaller world – into a comfort zone

Feeling settled and secure

Choice

Having choice and opportunity is important for QoL. Participants usually associate this with money and access to resources which enable someone to do the things they want to do (capabilities theory). To get money, need opportunities to do paid work; these are limited by perceived discrimination and stress from work (so some did voluntary work)

From: Chapter 6, A qualitative analysis of interviews with mental health service users

Cover of A systematic review, psychometric analysis and qualitative assessment of generic preference-based measures of health in mental health populations and the estimation of mapping functions from widely used specific measures

A systematic review, psychometric analysis and qualitative assessment of generic preference-based measures of health in mental health populations and the estimation of mapping functions from widely used specific measures.

Health Technology Assessment, No. 18.34.

Brazier J, Connell J, Papaioannou D, et al.

Southampton (UK): NIHR Journals Library; 2014 May.

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