What is a Medical Information Commons?

J Law Med Ethics. 2019 Mar;47(1):41-50. doi: 10.1177/1073110519840483.

Abstract

A 2011 National Academies of Sciences report called for an "Information Commons" and a "Knowledge Network" to revolutionize biomedical research and clinical care. We interviewed 41 expert stakeholders to examine governance, access, data collection, and privacy in the context of a medical information commons. Stakeholders' attitudes about MICs align with the NAS vision of an Information Commons; however, differences of opinion regarding clinical use and access warrant further research to explore policy and technological solutions.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Attitude
  • Humans
  • Information Dissemination*
  • Information Technology / standards*
  • Medical Informatics / standards*
  • National Academy of Sciences, U.S.
  • Stakeholder Participation / psychology
  • United States