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Taylor RM, Fern LA, Barber J, et al. Specialist cancer services for teenagers and young adults in England: BRIGHTLIGHT research programme. Southampton (UK): NIHR Journals Library; 2021 Nov. (Programme Grants for Applied Research, No. 9.12.)
Specialist cancer services for teenagers and young adults in England: BRIGHTLIGHT research programme.
Show detailsB RIGHTLIGHT
User involvement workshop 5 – Hypotheses Generating
Friday 18 September 2015
Venue:
Time 11–4pm (must be finished at 4pm)
Objective of workshop
- To generate hypotheses to underpin secondary analysis from YP perspective.
- Generate ideas about the content of the website.
- Generate new ideas for social media use, newsletter content, retention card content.
Outputs
- Output from hypotheses generating task/ideas for secondary analysis.
- Journal article/editorial on young person’s input into secondary analysis, hypotheses generating.
- Photos of the day.
ATTENDEES
BRIGHTLIGHT: Lorna Fern, Rachel Taylor, Anita Solanki, Sarah Lea, Ana Martins.
Delegates: 9 young people (collect demographic and consent forms).
FORMAT OF DAY
Set up projector or TV to play loop of videos and photos of previous workshops.
Attendees arrive and settle 10.30–11.00 in the café/canteen area
Welcome (11.00–11.15).
Rules: Lorna to do.
Anonymity.
Confidentiality.
Recording, photos and videos.
Fire alarms, toilets.
Down time.
Activity 1: ice breaker activity (11.15–11.45)
Using pipe cleaners ask young people to create object representing how they felt on their journey to workshop/current, followed by introductions of themselves starting with older members first, e.g. how long they’ve been involved, what kind of activities they have participated in.
Activity 2: presentation (11.45–12.00)
Introduce BRIGHTLIGHTs main aims (for those who have not attended before).
Update YAP on BRIGHTLIGHT progress made since last workshop.
Introduce objectives and purpose of the day followed by a programme of the day’s activities.
Ensure young people have a clear understanding of their purpose of the task/day.
Activity 3: website/social media/newsletter exercise (12.00–13.00)
New website look
AS to lead: Show new web.
Ask to think if they like, remind them of their ideas from last time – are these represented on new website?
Load existing page to show new members of how the page currently appears. Ways to improve the general look of page.
Break for lunch 13.00–13.45
13.45–14.00 Lorna will explain secondary analysis and hypotheses generating.
Activity 4: BRIGHTLIGHT Twister (14.00–15.45)
Introduce task using examples with the help of the team to demonstrate the Twister game.
SL Set up Dictaphone to record discussion.
BRIGHTLIGHT twister game (see separate instructions).
This will be reported on flip charts by RT.
LF: oversee.
RT: list combinations from spinner board.
Facilitators: AS/AM/SL (may not all be required so go upstairs for coffee).
Feedback and group discussion
Ask YP to regroup and discuss collectively the combinations from the Twister game.
Facilitator prompts.
Questions to ask/think about:
- Why are the two related?
- Can anyone give examples using their own experience?
Using the final list young people will be given three dots and asked to individually choose the three they think are the most important. This list will be presented to young people, who will be invited to work with the BRIGHTLIGHT team on the analysis and write up of these data.
Goodbyes 15.45–16.00.
If there’s time before lunch or at the end of the day
Newsletter
Content ideas.
What’s missing?
How often?
Post workshop meeting.
Questions to ask/think about:
- What kind of updates about the study do you want to know?
- How frequently should we upload study information?
- What else would you like to see on the Facebook page?
Young people can compare to other Facebook groups they are part of to suggest ways of improving BRIGHTLIGHT.
- Objective of workshop
- Outputs
- Attendees arrive and settle 10.30–11.00 in the café/canteen area
- Activity 1: ice breaker activity (11.15–11.45)
- Activity 2: presentation (11.45–12.00)
- Activity 3: website/social media/newsletter exercise (12.00–13.00)
- Activity 4: BRIGHTLIGHT Twister (14.00–15.45)
- Feedback and group discussion
- If there’s time before lunch or at the end of the day
- Example of the structure of a patient and public involvement workshop - Speciali...Example of the structure of a patient and public involvement workshop - Specialist cancer services for teenagers and young adults in England: BRIGHTLIGHT research programme
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