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Longer-term health and social care strategies for stroke survivors and their carers: the LoTS2Care research programme including cluster feasibility RCT

Plain English summary
Scientific summary
SYNOPSIS
Workstream 1a: an exploration of the predictors of longer-term unmet needs and participation post stroke
Workstream 1b: review of literature to inform content and delivery of the care strategy
Workstream 2: national survey of post-discharge stroke services, and focus groups and interviews to identify service needs, barriers and enablers
Workstream 3: development of a theory-based supported self-management intervention based on targeted behaviours
Workstream 4: refinement and pilot implementation of the care strategy
Workstream 5: feasibility cluster randomised controlled trial of New Start
Workstream 5: process evaluation
Workstream 5: economic evaluation
Discussion
Acknowledgements
References
Appendix 1. Workstream 1a: full report
Appendix 2. Reviews included in workstream 1b overview
Appendix 3. Findings from literature review of delivery mechanisms (workstream 1b)
Appendix 4. Workstream 2: national survey
Appendix 5. Perceived needs of stroke survivors identified by workstream 2 focus groups
Appendix 6. Prioritising the needs of stroke survivors and their families (workstream 3)
Appendix 7. Example of behavioural outcomes, performance objectives and change objectives for prioritised need ‘engaging in meaningful activities’
Appendix 8. Problem-structuring, priority-setting for services and knowledge mobilisation
Appendix 9. Provisional summary of the framework for the intervention
Appendix 10. Workstream 4 action groups methods
Appendix 11. Example of a completed workstream 4 activity record
Appendix 12. New Start intervention outcomes chain
Appendix 13. Overview of assessment of progress: New Start care strategy delivery
Appendix 14. The LoTS2Care outcome measures
Appendix 15. Workstream 5: trial key findings, figures and tables
Appendix 16. Sentinel Stroke National Audit Programme-reported data versus recruitment and clinical screening figures
Appendix 17. Uptake of 6-month post-stroke reviews
Appendix 18. Factors that aided and impeded trial recruitment
Appendix 19. Process evaluation: detailed findings
Appendix 20. New Start intervention delivery data
Appendix 21. The LoTS2Care health economics analysis
List of abbreviations
List of supplementary material