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Forster A, Ozer S, Crocker TF, et al. Longer-term health and social care strategies for stroke survivors and their carers: the LoTS2Care research programme including cluster feasibility RCT. Southampton (UK): NIHR Journals Library; 2021 Mar. (Programme Grants for Applied Research, No. 9.3.)

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Longer-term health and social care strategies for stroke survivors and their carers: the LoTS2Care research programme including cluster feasibility RCT.

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References

1.
Stroke Association. State of the Nation: Stroke Statistics; 2018. URL: www​.stroke.org.uk/sites​/default/files/state​_of_the_nation_2018.pdf (accessed 8 August 2020).
2.
Murray J, Young J, Forster A. Review of longer-term problems after a disabling stroke. Rev Clin Gerontol 2007;17:277–92. 10.1017/S0959259808002608 [CrossRef]
3.
Salter K, Hellings C, Foley N, Teasell R. The experience of living with stroke: a qualitative meta-synthesis. J Rehabil Med 2008;40:595–602. 10.2340/16501977-0238 [PubMed: 19020691] [CrossRef]
4.
Pindus DM, Mullis R, Lim L, Wellwood I, Rundell AV, Abd Aziz NA, Mant J. Stroke survivors’ and informal caregivers’ experiences of primary care and community healthcare services – a systematic review and meta-ethnography. PLOS ONE 2018;13:e0192533. 10.1371/journal.pone.0192533 [PMC free article: PMC5821463] [PubMed: 29466383] [CrossRef]
5.
Hackett ML, Pickles K. Part I: frequency of depression after stroke: an updated systematic review and meta-analysis of observational studies. Int J Stroke 2014;9:1017–25. 10.1111/ijs.12357 [PubMed: 25117911] [CrossRef]
6.
Tieges Z, Mead G, Allerhand M, Duncan F, van Wijck F, Fitzsimons C, et al. Sedentary behavior in the first year after stroke: a longitudinal cohort study with objective measures. Arch Phys Med Rehabil 2015;96:15–23. 10.1016/j.apmr.2014.08.015 [PubMed: 25220942] [CrossRef]
7.
Kwok T, Pan JH, Lo R, Song X. The influence of participation on health-related quality of life in stroke patients. Disabil Rehabil 2011;33:1990–6. 10.3109/09638288.2011.553709 [PubMed: 21955053] [CrossRef]
8.
Wolfe CD, Crichton SL, Heuschmann PU, McKevitt CJ, Toschke AM, Grieve AP, Rudd AG. Estimates of outcomes up to ten years after stroke: analysis from the prospective South London Stroke Register. PLOS Med 2011;8:e1001033. 10.1371/journal.pmed.1001033 [PMC free article: PMC3096613] [PubMed: 21610863] [CrossRef]
9.
Guidetti S, Andersson K, Andersson M, Tham K, Von Koch L. Client-centred self-care intervention after stroke: a feasibility study. Scand J Occup Ther 2010;17:276–85. 10.3109/11038120903281169 [PubMed: 20187757] [CrossRef]
10.
Rigby H, Gubitz G, Phillips S. A systematic review of caregiver burden following stroke. Int J Stroke 2009;4:285–92. 10.1111/j.1747-4949.2009.00289.x [PubMed: 19689757] [CrossRef]
11.
Cameron JI, Naglie G, Silver FL, Gignac MA. Stroke family caregivers’ support needs change across the care continuum: a qualitative study using the timing it right framework. Disabil Rehabil 2013;35:315–24. 10.3109/09638288.2012.691937 [PubMed: 22686259] [CrossRef]
12.
Forster A. Chapter 62: Long-Term Stroke Care. In Fillit H, Rockwood K, Young J, editors. Brocklehurst’s Textbook of Geriatric Medicine and Gerontology. 8th edn. Philadelphia, PA: Elsevier, Inc.; 2016. pp. 491–5.
13.
McKevitt C, Fudge N, Redfern J, Sheldenkar A, Crichton S, Rudd AR, et al. Self-reported long-term needs after stroke. Stroke 2011;42:1398–403. 10.1161/STROKEAHA.110.598839 [PubMed: 21441153] [CrossRef]
14.
World Health Organization. International Classification of Functioning and Disability: ICIDH-2, Beta-2 Draft – Short Version. Geneva: World Health Organization; 1999.
15.
Sumathipala K, Radcliffe E, Sadler E, Wolfe CD, McKevitt C. Identifying the long-term needs of stroke survivors using the International Classification of Functioning, Disability and Health. Chronic Illn 2012;8:31–44. 10.1177/1742395311423848 [PubMed: 22025770] [CrossRef]
16.
Ellis-Hill C, Robison J, Wiles R, McPherson K, Hyndman D, Ashburn A. Going home to get on with life: patients and carers experiences of being discharged from hospital following a stroke. Disabil Rehabil 2009;31:61–72. 10.1080/09638280701775289 [PubMed: 19152154] [CrossRef]
17.
Robison J, Wiles R, Ellis-Hill C, McPherson K, Hyndman D, Ashburn A. Resuming previously valued activities post-stroke: who or what helps? Disabil Rehabil 2009;31:1555–66. 10.1080/09638280802639327 [PubMed: 19479573] [CrossRef]
18.
Ch’ng AM, French D, McLean N. Coping with the challenges of recovery from stroke: long term perspectives of stroke support group members. J Health Psychol 2008;13:1136–46. 10.1177/1359105308095967 [PubMed: 18987086] [CrossRef]
19.
Collin C, Wade DT, Davies S, Horne V. The Barthel ADL Index: a reliability study. Int Disabil Stud 1988;10:61–3. 10.3109/09638288809164103 [PubMed: 3403500] [CrossRef]
20.
LoTSCare LUNS Study Team. Validation of the longer-term unmet needs after stroke (LUNS) monitoring tool: a multicentre study. Clin Rehabil 2013;27:1020–8. 10.1177/0269215513487082 [PubMed: 23787941] [CrossRef]
21.
Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol 2008;3:77–101. 10.1191/1478088706qp063oa [CrossRef]
22.
Lincoln YS, Guba EG. But is it rigorous? Trustworthiness and authenticity in naturalistic evaluation. New Directions for Program Evaluation 1986;1986:73–84. 10.1002/ev.1427 [CrossRef]
23.
Forster A, Mellish K, Farrin A, Bhakta B, House A, Hewison J, et al. Development and evaluation of interventions and tools to improve patient and carer centred outcomes in longer-term stroke care (LoTS care) and exploration of adjustment post stroke. Programme Grants Appl Res 2014;2(6). 10.3310/pgfar02060 [PubMed: 25642527] [CrossRef]
24.
Murray J, Young J, Forster A, Ashworth R. Developing a primary care-based stroke model: the prevalence of longer-term problems experienced by patients and carers. Br J Gen Pract 2003;53:803–7. [PMC free article: PMC1314716] [PubMed: 14601359]
25.
Ahuja SS, Clark S, Morahan EM, Ono M, Mulligan H, Hale L. The journey to recovery: experiences and perceptions of individuals following stroke. N Z J Physiother 2013;41:36–43.
26.
Pound P, Gompertz P, Ebrahim S. Social and practical strategies described by people living at home with stroke. Health Soc Care Community 1999;7:120–8. 10.1046/j.1365-2524.1999.00168.x [PubMed: 11560628] [CrossRef]
27.
Hare R, Rogers H, Lester H, McManus R, Mant J. What do stroke patients and their carers want from community services? Fam Pract 2006;23:131–6. 10.1093/fampra/cmi098 [PubMed: 16308328] [CrossRef]
28.
Kersten P, Low JT, Ashburn A, George SL, McLellan DL. The unmet needs of young people who have had a stroke: results of a national UK survey. Disabil Rehabil 2002;24:860–6. 10.1080/09638280210142167 [PubMed: 12450462] [CrossRef]
29.
Dickerson J, Forster A. Questions people ask about stroke: what’s changed in 20 years? SAGE Open Med 2015;3:2050312115591623. 10.1177/2050312115591623 [PMC free article: PMC4712790] [PubMed: 26770790] [CrossRef]
30.
Forster A, Brown L, Smith J, House A, Knapp P, Wright JJ, Young J. Information provision for stroke patients and their caregivers. Cochrane Database Syst Rev 2012;11:. 10.1002/14651858.CD001919.pub3 CD001919 [PMC free article: PMC6544775] [PubMed: 23152210] [CrossRef]
31.
National Institute of Health and Care Excellence. The Guidelines Manual: Appendix B: Methodology Checklist: Systematic Reviews and Meta-analyses. London: NICE; 2012. [PubMed: 27905714]
32.
Loetscher T, Lincoln NB. Cognitive rehabilitation for attention deficits following stroke. Cochrane Database Syst Rev 2013;5:. 10.1002/14651858.CD002842.pub2 CD002842 [PMC free article: PMC6464967] [PubMed: 23728639] [CrossRef]
33.
Saunders DH, Sanderson M, Brazzelli M, Greig CA, Mead GE. Physical fitness training for stroke patients. Cochrane Database Syst Rev 2013;10:. 10.1002/14651858.CD003316.pub5 CD003316 [PubMed: 24142492] [CrossRef]
34.
Xiao Y, Luo M, Wang J, Luo H. Inspiratory muscle training for the recovery of function after stroke. Cochrane Database Syst Rev 2012;5:. 10.1002/14651858.CD009360.pub2 CD009360 [PMC free article: PMC6465038] [PubMed: 22592740] [CrossRef]
35.
Legg LA, Drummond AE, Langhorne P. Occupational therapy for patients with problems in activities of daily living after stroke. Cochrane Database Syst Rev 2006;4:. 10.1002/14651858.CD003585.pub2 CD003585 [PMC free article: PMC6464890] [PubMed: 17054178] [CrossRef]
36.
Outpatient Service Trialists. Therapy based rehabilitation services for stroke patients at home. Cochrane Database Syst Rev 2003;1:. CD002925 [PMC free article: PMC6464951] [PubMed: 12535444]
37.
Aziz NA, Leonardi-Bee J, Phillips M, Gladman JR, Legg L, Walker MF. Therapy-based rehabilitation services for patients living at home more than one year after stroke. Cochrane Database Syst Rev 2008;2:. 10.1002/14651858.CD005952.pub2 CD005952 [PMC free article: PMC6464721] [PubMed: 18425928] [CrossRef]
38.
French B, Thomas LH, Leathley MJ, Sutton CJ, McAdam J, Forster A, et al. Repetitive task training for improving functional ability after stroke. Cochrane Database Syst Rev 2007;4:. 10.1002/14651858.CD006073.pub2 CD006073 [PubMed: 17943883] [CrossRef]
39.
Ellis G, Mant J, Langhorne P, Dennis M, Winner S. Stroke liaison workers for stroke patients and carers: an individual patient data meta-analysis. Cochrane Database Syst Rev 2010;5:. 10.1002/14651858.CD005066.pub2 CD005066 [PMC free article: PMC6464840] [PubMed: 20464736] [CrossRef]
40.
Laver KE, Schoene D, Crotty M, George S, Lannin NA, Sherrington C. Telerehabilitation services for stroke. Cochrane Database Syst Rev 2013;11. 10.1002/14651858.CD010255.pub2 [PMC free article: PMC6464866] [PubMed: 24338496] [CrossRef]
41.
Hackett ML, Anderson CS, House A, Xia J. Interventions for treating depression after stroke. Cochrane Database Syst Rev 2008;4:. 10.1002/14651858.CD003437.pub3 CD003437 [PubMed: 18843644] [CrossRef]
42.
Brady MC, Kelly H, Godwin J, Enderby P. Speech and language therapy for aphasia following stroke. Cochrane Database Syst Rev 2012;5:. 10.1002/14651858.CD000425.pub3 CD000425 [PubMed: 22592672] [CrossRef]
43.
Pollock A, Hazelton C, Henderson CA, Angilley J, Dhillon B, Langhorne P, et al. Interventions for visual field defects in patients with stroke. Cochrane Database Syst Rev 2011;10:. 10.1002/14651858.CD008388.pub2 CD008388 [PubMed: 21975779] [CrossRef]
44.
Legg LA, Quinn TJ, Mahmood F, Weir CJ, Tierney J, Stott DJ, et al. Non-pharmacological interventions for caregivers of stroke survivors. Cochrane Database Syst Rev 2011;10:. 10.1002/14651858.CD008179.pub2 CD008179 [PubMed: 21975778] [CrossRef]
45.
Forster A, Dickerson J, Young J, Patel A, Kalra L, Nixon J, et al. A structured training programme for caregivers of inpatients after stroke (TRACS): a cluster randomised controlled trial and cost-effectiveness analysis. Lancet 2013;382:2069–76. 10.1016/S0140-6736(13)61603-7 [PubMed: 24054816] [CrossRef]
46.
Crocker TF, Ozer S, Brown L, Hall JF, Forster A. Non-pharmacological interventions for longer-term stroke survivors or their carers: an overview of Cochrane Reviews. Cochrane Database Syst Rev 2019;4:. 10.1002/14651858.CD013317 CD013317 [CrossRef]
47.
Draper B, Bowring G, Thompson C, Van Heyst J, Conroy P, Thompson J. Stress in caregivers of aphasic stroke patients: a randomized controlled trial. Clin Rehabil 2007;21:122–30. 10.1177/0269215506071251 [PubMed: 17264106] [CrossRef]
48.
Hartke RJ, King RB. Telephone group intervention for older stroke caregivers. Topics Stroke Rehabil 2003;9:65–81. 10.1310/RX0A-6E2Y-BU8J-W0VL [PubMed: 14523701] [CrossRef]
49.
Lincoln NB, Walker MF, Dixon A, Knights P. Evaluation of a multiprofessional community stroke team: a randomized controlled trial. Clin Rehabil 2004;18:40–7. 10.1191/0269215504cr700oa [PubMed: 14763718] [CrossRef]
50.
Thomas SA, Walker MF, Macniven JA, Haworth H, Lincoln NB. Communication and Low Mood (CALM): a randomized controlled trial of behavioural therapy for stroke patients with aphasia. Clin Rehabil 2013;27:398–408. 10.1177/0269215512462227 [PMC free article: PMC3652643] [PubMed: 23059701] [CrossRef]
51.
Elman RJ, Bernstein-Ellis E. The efficacy of group communication treatment in adults with chronic aphasia. J Speech Lang Hear Res 1999;42:411–9. 10.1044/jslhr.4202.411 [PubMed: 10229456] [CrossRef]
52.
Johnson J, Pearson V. The effects of a structured education course on stroke survivors living in the community. Rehabil Nursing 2000;25:59–65. 10.1002/j.2048-7940.2000.tb01864.x [CrossRef]
53.
Mulders AHM, de Witte LP, Diederiks JPM. Evaluation of a rehabilitation after-care programme for stroke patients. J Rehabil Sci 1989;2:97–103.
54.
Dean CM, Rissel C, Sherrington C, Sharkey M, Cumming RG, Lord SR, et al. Exercise to enhance mobility and prevent falls after stroke: the Community Stroke Club Randomized Trial. Neurorehabil Neur Repair 2012;26:1046–57. 10.1177/1545968312441711 [PubMed: 22544817] [CrossRef]
55.
Flansbjer UB, Miller M, Downham D, Lexell J. Progressive resistance training after stroke: effects on muscle strength, muscle tone, gait performance and perceived participation. J Rehab Med 2008;40:42–8. 10.2340/16501977-0129 [PubMed: 18176736] [CrossRef]
56.
Jeong S, Kim MT. Effects of a theory-driven music and movement program for stroke survivors in a community setting. Appl Nurs Res 2007;20:125–31. 10.1016/j.apnr.2007.04.005 [PubMed: 17693215] [CrossRef]
57.
Lin KC, Wu CY, Wei TH, Lee CY, Liu JS. Effects of modified constraint-induced movement therapy on reach-to-grasp movements and functional performance after chronic stroke: a randomized controlled study. Clin Rehabil 2007;21:1075–86. 10.1177/0269215507079843 [PubMed: 18042603] [CrossRef]
58.
Lin KC, Wu CY, Liu JS. A randomized controlled trial of constraint-induced movement therapy after stroke. Acta Neurochir Suppl 2008;101:61–4. 10.1007/978-3-211-78205-7_10 [PubMed: 18642635] [CrossRef]
59.
Globas C, Becker C, Cerny J, Lam JM, Lindemann U, Forrester LW, Macko RF, Luft AR. Chronic stroke survivors benefit from high-intensity aerobic treadmill exercise: a randomized controlled trial. Neurorehabil Neur Repair 2012;26:85–95. 10.1177/1545968311418675 [PubMed: 21885867] [CrossRef]
60.
Olney SJ, Nymark J, Brouwer B, Culham E, Day A, Heard J, et al. A randomized controlled trial of supervised versus unsupervised exercise programs for ambulatory stroke survivors. Stroke 2006;37:476–81. 10.1161/01.STR.0000199061.85897.b7 [PubMed: 16410482] [CrossRef]
61.
Ouellette MM, LeBrasseur NK, Bean JF, Phillips E, Stein J, Frontera WR, Fielding RA. High-intensity resistance training improves muscle strength, self-reported function, and disability in long-term stroke survivors. Stroke 2004;35:1404–9. 10.1161/01.STR.0000127785.73065.34 [PubMed: 15105515] [CrossRef]
62.
Smania N, Aglioti SM, Girardi F, Tinazzi M, Fiaschi A, Cosentino A, Corato E. Rehabilitation of limb apraxia improves daily life activities in patients with stroke. Neurol 2006;67:2050–2. 10.1212/01.wnl.0000247279.63483.1f [PubMed: 17159119] [CrossRef]
63.
Tseng CN, Chen CCH, Wu SC, Lin LC. Effects of a range-of-motion exercise programme. J Adv Nurs 2007;57:181–91. 10.1111/j.1365-2648.2006.04078.x [PubMed: 17214754] [CrossRef]
64.
Werner RA, Kessler S. Effectiveness of an intensive outpatient rehabilitation program for postacute stroke patients. Am J Phys Med Rehabil 1996;75:114–20. 10.1097/00002060-199603000-00006 [PubMed: 8630191] [CrossRef]
65.
Wu C, Chen C, Tsai W, Lin K, Chou S. A randomized controlled trial of modified constraint-induced movement therapy for elderly stroke survivors: changes in motor impairment, daily functioning and quality of life. Archiv Phys Med Rehabil 2007;88:273–8. 10.1016/j.apmr.2006.11.021 [PubMed: 17321816] [CrossRef]
66.
Yelnik AP, Le Breton F, Colle FM, Bonan IV, Hugeron C, Egal V, et al. Rehabilitation of balance after stroke with multisensorial training: a single-blind randomized controlled study. Neurorehabil Neur Repair 2008;22:468–76. 10.1177/1545968308315996 [PubMed: 18780882] [CrossRef]
67.
Zedlitz AM, Rietveld TC, Geurts AC, Fasotti L. Cognitive and graded activity training can alleviate persistent fatigue after stroke: a randomized, controlled trial. Stroke 2012;43:1046–51. 10.1161/STROKEAHA.111.632117 [PubMed: 22308241] [CrossRef]
68.
Pitkanen K. Stroke rehabilitation in the elderly: a controlled study of the effectiveness and costs of a multidimensional intervention [Dissertation]. Kuopio: University of Kuopio; 2000.
69.
Desrosiers J, Noreau L, Rochette A, Carbonneau H, Fontaine L, Viscogliosi C, Bravo G. Effect of a home leisure education program after stroke: a randomized controlled trial. Arch Phys Med Rehabil 2007;88:1095–100. 10.1016/j.apmr.2007.06.017 [PubMed: 17826452] [CrossRef]
70.
Logan PA, Gladman JR, Avery A, Walker MF, Dyas J, Groom L. Randomised controlled trial of an occupational therapy intervention to increase outdoor mobility after stroke. BMJ 2004;329:1372–5. 10.1136/bmj.38264.679560.8F [PMC free article: PMC535450] [PubMed: 15564229] [CrossRef]
71.
Aben L, Heijenbrok-Kal MH, van Loon EM, Groet E, Ponds RW, Busschbach JJ, Ribbers GM. Training memory self-efficacy in the chronic stage after stroke: a randomized controlled trial. Neurorehabil Neur Repair 2013;27:110–7. 10.1177/1545968312455222 [PubMed: 22895620] [CrossRef]
72.
Chinchai P, Bunyamark T, Sirisatayawong P. Effects of caregiver education in stroke rehabilitation on the quality of life of stroke survivors. WFOT Bulletin 2010;61:56–63. 10.1179/otb.2010.61.1.015 [CrossRef]
73.
Roth T, Sokolov AN, Messias A, Roth P, Weller M, Trauzettel-Klosinski S. Comparing explorative saccade and flicker training in hemianopia: a randomized controlled study. Neurology 2009;72:324–31. 10.1212/01.wnl.0000341276.65721.f2 [PubMed: 19171828] [CrossRef]
74.
Sims J, Galea M, Taylor N, Dodd K, Jespersen S, Joubert L, Joubert J. Regenerate: assessing the feasibility of a strength-training program to enhance the physical and mental health of chronic post stroke patients with depression. Int J Geriatr Psychiatry 2009;24:76–83. 10.1002/gps.2082 [PubMed: 18613281] [CrossRef]
75.
Towle D, Lincoln NB, Mayfield LM. Evaluation of social work on depression after stroke. Clin Rehabil 1989;3:89–96. 10.1177/026921558900300201 [CrossRef]
76.
Tibaek S, Gard G, Jensen R. Pelvic floor muscle training is effective in women with urinary incontinence after stroke: a randomised, controlled and blinded study. Neurourol Urodyn 2005;24:348–57. 10.1002/nau.20134 [PubMed: 15791633] [CrossRef]
77.
Logan PA, Armstrong S, Avery TJ, Barer D, Barton GR, Darby J, et al. Rehabilitation aimed at improving outdoor mobility for people after stroke: a multicentre randomised controlled study (the Getting out of the House Study). Health Technol Assess 2014;18(29). 10.3310/hta18290 [PMC free article: PMC4781056] [PubMed: 24806825] [CrossRef]
78.
Sackley CM, Walker MF, Burton CR, Watkins CL, Mant J, Roalfe AK, et al. An Occupational Therapy intervention for residents with stroke-related disabilities in UK Care Homes (OTCH): cluster randomised controlled trial with economic evaluation. Health Technol Assess 2016;20(15). 10.3310/hta20150 [PMC free article: PMC4780993] [PubMed: 26927209] [CrossRef]
79.
Bodenheimer T. Interventions to improve chronic illness care: evaluating their effectiveness. Dis Manag 2003;6:63–71. 10.1089/109350703321908441 [PubMed: 14577900] [CrossRef]
80.
Boult C, Green AF, Boult LB, Pacala JT, Snyder C, Leff B. Successful models of comprehensive care for older adults with chronic conditions: evidence for the Institute of Medicine’s ‘retooling for an aging America’ report. J Am Geriatr Soc 2009;57:2328–37. 10.1111/j.1532-5415.2009.02571.x [PubMed: 20121991] [CrossRef]
81.
Coleman K, Mattke S, Perrault PJ, Wagner EH. Untangling practice redesign from disease management: how do we best care for the chronically ill? Annu Rev Public Health 2009;30:385–408. 10.1146/annurev.publhealth.031308.100249 [PubMed: 18925872] [CrossRef]
82.
Dennis SM, Zwar N, Griffiths R, Roland M, Hasan I, Powell Davies G, Harris M. Chronic disease management in primary care: from evidence to policy. Med J Aust 2008;188:S53–6. 10.5694/j.1326-5377.2008.tb01745.x [PubMed: 18429737] [CrossRef]
83.
Goodwin N, Curry N, Naylor C, Ross S, Duldig W. Managing People with Long-term Conditions. London: The King’s Fund; 2010.
84.
Singh D, Surrey and Sussex Primary Care Trust Alliance. Transforming chronic care: a systematic review of the evidence. Evid Based Cardiovasc Med 2005;9:91–4. 10.1016/j.ebcm.2005.03.011 [PubMed: 16379998] [CrossRef]
85.
Weingarten SR, Henning JM, Badamgarav E, Knight K, Hasselblad V, Gano A, Ofman JJ. Interventions used in disease management programmes for patients with chronic illness-which ones work? Meta-analysis of published reports. BMJ 2002;325:925. 10.1136/bmj.325.7370.925 [PMC free article: PMC130055] [PubMed: 12399340] [CrossRef]
86.
Coulter A, Roberts S, Dixon A. Delivering Better Services for People with Long-term Conditions: Building the House of Care. London: The King’s Fund; 2013.
87.
Department of Health and Social Care. The National Service Framework for Long-term Conditions. Leeds: Older People and Disability Policy Management Unit, Care Services Division, Department of Health and Social Care; 2005.
88.
Department of Health and Social Care. Supporting People with Long-term Conditions: An NHS and Social Care Model to Support Local Innovation and Integration. Leeds: Long Term Conditions Team, Primary Care, Department of Health and Social Care; 2005.
89.
Department of Health and Social Care. Supporting People with Long Term Conditions to Self Care: A Guide to Developing Local Strategies and Good Practice. Leeds: Long Term Conditions Team, Primary Care, Department of Health and Social Care; 2005.
90.
Mathers N, Roberts S, Hodkinson I, Karet B. Care Planning: Improving the Lives of People with Long-term Conditions. London: Royal College of General Practitioners; 2011.
91.
NHS England. Transforming Participation in Health and Care: The NHS Belongs to Us All. London: Patients and Information Directorate, NHS England; 2013.
92.
Skills for Care. Common Core Principles to Support Self-care. 2015. URL: www​.skillsforcare.org​.uk/Document-library​/Skills/Self-care/Commoncoreprinciples​.pdf (accessed 19 March 2019).
93.
Fryer CE, Luker JA, McDonnell MN, Hillier SL. Self management programmes for quality of life in people with stroke. Cochrane Database Syst Rev 2016;8:. 10.1002/14651858.CD010442.pub2 CD010442 [PMC free article: PMC6450423] [PubMed: 27545611] [CrossRef]
94.
Wray FD. Designing a Self-management Intervention for Stroke Survivors with Communication Difficulties. PhD thesis. Leeds: University of Leeds; 2017.
95.
Stroke Association. Accessible Information Guidelines. London: Stroke Association; 2012.
96.
Royal College of Physicians. SSNAP Clinical Audit: October 2013–March 2014. URL: www​.strokeaudit.org/results​/Clinical-audit/National-Results​.aspx (accessed 8 September 2020).
97.
Intercollegiate Stroke Working Party. National Clinical Guideline for Stroke. 3rd edn. London: Royal College of Physicians; 2008.
98.
Department of Health and Social Care (DHSC). National Service Framework for Older People. London: DHSC; 2001.
99.
McKenna S, Jones F, Glenfield P, Lennon S. Bridges self-management program for people with stroke in the community: a feasibility randomized controlled trial. Int J Stroke 2015;10:697–704. 10.1111/ijs.12195 [PubMed: 24256085] [CrossRef]
100.
Donaldson L. Expert patients usher in a new era of opportunity for the NHS. BMJ 2003;326:1279–80. 10.1136/bmj.326.7402.1279 [PMC free article: PMC1126164] [PubMed: 12805129] [CrossRef]
101.
Great Britain. Carer Act 2014. London: The Stationery Office; 2014.
102.
Hall JF. The Development of an Intervention for Carers of Stroke Survivors Using an Intervention Mapping Approach. PhD thesis. Leeds: University of Leeds; 2017.
103.
Bartholomew Eldridge LK, Markham CM, Ruiter RA, Fernandez ME, Kok G, Parcel GS. Planning Health Promotion Programs: An Intervention Mapping Approach. 4th edn. Hoboken, NJ: Wiley; 2016.
104.
Bartholomew LK, Parcel GS, Kok G, Gottlieb NH, Fernandez ME. Planning Health Promotion Programs: An Intervention Mapping Approach. 3rd edn. San Francisco, CA: Jossey-Bass; 2011.
105.
Cane J, O’Connor D, Michie S. Validation of the theoretical domains framework for use in behaviour change and implementation research. Implement Sci 2012;7:37. 10.1186/1748-5908-7-37 [PMC free article: PMC3483008] [PubMed: 22530986] [CrossRef]
106.
Nezu AM, Maguth Nezu C, D’Zurilla TJ. Problem-Solving Therapy: A Treatment Manual. New York, NY: Springer Publishing Company; 2012. 10.1891/9780826109415 [CrossRef]
107.
LoTSCare LUNS Study Team. Longer-term Unmet Needs after Stroke (LUNS). 2008. URL: https://journals​.sagepub​.com/doi/suppl/10​.1177/0269215513487082​/suppl_file/suppl-survey.pdf (accessed 19 August 2020).
108.
NHS Lothian. The Heart Manual. URL: www​.theheartmanual.com/ (accessed 21 May 2019).
109.
Npowered. Chronic Pain: The Pain Management Plan. URL: www​.pain-management-plan.co.uk/ (accessed 21 May 2019).
110.
Damschroder LJ, Aron DC, Keith RE, Kirsh SR, Alexander JA, Lowery JC. Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implement Sci 2009;4:50. 10.1186/1748-5908-4-50 [PMC free article: PMC2736161] [PubMed: 19664226] [CrossRef]
111.
Blickem C, Kennedy A, Jariwala P, Morris R, Bowen R, Vassilev I, et al. Aligning everyday life priorities with people’s self-management support networks: an exploration of the work and implementation of a needs-led telephone support system. BMC Health Serv Res 2014;14:262. 10.1186/1472-6963-14-262 [PMC free article: PMC4071856] [PubMed: 24938492] [CrossRef]
112.
Enabling Self Care. URL: www​.enablingselfcare.com/ (accessed 21 May 2019).
113.
Blickem C, Kennedy A, Vassilev I, Morris R, Brooks H, Jariwala P, et al. Linking people with long-term health conditions to healthy community activities: development of Patient-Led Assessment for Network Support (PLANS). Health Expect 2013;16:e48–59. 10.1111/hex.12088 [PMC free article: PMC3908360] [PubMed: 23731452] [CrossRef]
114.
Funnell SC, Rogers PJ. Purposeful Program Theory: Effective Use of Theories of Change and Logic Models. San Francisco, CA: Jossey-Bass; 2011.
115.
Hoffmann TC, Glasziou PP, Boutron I, Milne R, Perera R, Moher D, et al. Better reporting of interventions: template for intervention description and replication (TIDieR) checklist and guide. BMJ 2014;348:g1687. 10.1136/bmj.g1687 [PubMed: 24609605] [CrossRef]
116.
Hibbard JH, Stockard J, Mahoney ER, Tusler M. Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Serv Res 2004;39:1005–26. 10.1111/j.1475-6773.2004.00269.x [PMC free article: PMC1361049] [PubMed: 15230939] [CrossRef]
117.
Hibbard JH, Mahoney ER, Stockard J, Tusler M. Development and testing of a short form of the patient activation measure. Health Serv Res 2005;40:1918–30. 10.1111/j.1475-6773.2005.00438.x [PMC free article: PMC1361231] [PubMed: 16336556] [CrossRef]
118.
Forster A, Hartley S, Barnard L, Ozer S, Hardicre N, Crocker T, et al. An intervention to support stroke survivors and their carers in the longer term (LoTS2Care): study protocol for a cluster randomised controlled feasibility trial. Trials 2018;19:317. 10.1186/s13063-018-2669-5 [PMC free article: PMC5996505] [PubMed: 29891011] [CrossRef]
119.
Duprez V, Van Hooft SM, Dwarswaard J, van Staa A, Van Hecke A, Strating MM. The development and psychometric validation of the self-efficacy and performance in self-management support (SEPSS) instrument. J Adv Nurs 2016;72:1381–95. 10.1111/jan.12918 [PubMed: 26913585] [CrossRef]
120.
May CR, Finch T. Implementing, embedding, and integrating practices: an outline of normalization process theory. Sociology 2009;43:535–54. 10.1177/0038038509103208 [CrossRef]
121.
May CR, Finch T, Ballini L, MacFarlane A, Mair F, Murray E, et al. Evaluating complex interventions and health technologies using normalization process theory: development of a simplified approach and web-enabled toolkit. BMC Health Serv Res 2011;11:245. 10.1186/1472-6963-11-245 [PMC free article: PMC3205031] [PubMed: 21961827] [CrossRef]
122.
Rehm J, Üstün TB, Saxena S, Nelson CB, Chatterji S, Ivis F, et al. On the development and psychometric testing of the WHO screening instrument to assess disablement in the general population. Int J Methods Psychiatr Res 1999;8:110–22. 10.1002/mpr.61 [CrossRef]
123.
Ustün TB, Chatterji S, Kostanjsek N, Rehm J, Kennedy C, Epping-Jordan J, et al. Developing the World Health Organization Disability Assessment Schedule 2.0. Bull World Health Organ 2010;88:815–23. 10.2471/BLT.09.067231 [PMC free article: PMC2971503] [PubMed: 21076562] [CrossRef]
124.
World Health Organization. WHO Disability Assessment Schedule 2.0 (WHODAS 2.0), 36 Item Version. 2010. URL: www​.who.int/icidh/whodas/ (accessed 25 February 2020).
125.
Tennant R, Hiller L, Fishwick R, Platt S, Joseph S, Weich S, et al. The Warwick–Edinburgh Mental Well-being Scale (WEMWBS): development and UK validation. Health Qual Life Outcomes 2007;5:63. 10.1186/1477-7525-5-63 [PMC free article: PMC2222612] [PubMed: 18042300] [CrossRef]
126.
Stewart-Brown S, Janmohamed K. Warwick–Edinburgh Mental Well-being Scale (WEMWBS) User Guide. Version 1. 2008. URL: www​.healthscotland.com​/scotlands-health/population​/Measuring-positive-mental-health.aspx (accessed 25 February 2020).
127.
Putz R, O’Hara K, Taggart F, Stewart-Brown S. Using WEMWBS to measure the impact of your work on mental wellbeing: A practice-based user guide. 2012. URL: www​.corc.uk.net/media​/1244/wemwbs_practitioneruserguide.pdf (accessed 8 September 2020).
128.
Taggart F, Stewart-Brown S, Parkinson J. Warwick–Edinburgh Mental Well-being Scale (WEMWBS) User Guide. Version 2. 2015. URL: www​.healthscotland.com​/scotlands-health/population​/Measuring-positive-mental-health.aspx (accessed 25 February 2020).
129.
Brooks R. EuroQol: the current state of play. Health Policy 1996;37:53–72. 10.1016/0168-8510(96)00822-6 [PubMed: 10158943] [CrossRef]
130.
Dolan P. Modeling valuations for EuroQol health states. Med Care 1997;35:1095–108. 10.1097/00005650-199711000-00002 [PubMed: 9366889] [CrossRef]
131.
Krabbe P, Weijnen T. Guidelines for Analysing and Reporting EQ-5D Outcomes in the Measurement and Valuation for Health Status using EQ-5D: A European Perspective (Evidence from the EuroQol BIOMED Research Programme). In: Brooks R, Rabin R, De Cahrro F, editors. The Measurement and Valuation of Health Status Using EQ-5D: A European Perspective. Dordrecht: Springer Netherlands; 2003. pp. 7–19. 10.1007/978-94-017-0233-1 [CrossRef]
132.
EuroQol Research Foundation. EQ-5D-5L User Guide. 2019. URL: https://euroqol​.org/publications​/user-guides (accessed 8 September 2020).
133.
Al-Janabi H, Flynn TN, Coast J. Development of a self-report measure of capability wellbeing for adults: the ICECAP-A. Qual Life Res 2012;21:167–76. 10.1007/s11136-011-9927-2 [PMC free article: PMC3254872] [PubMed: 21598064] [CrossRef]
134.
Al-Janabi H, Keeley T, Mitchell P, Coast J. Can capabilities be self-reported? A think aloud study. Soc Sci Med 2013;87:116–22. 10.1016/j.socscimed.2013.03.035 [PMC free article: PMC3664929] [PubMed: 23631786] [CrossRef]
135.
Al-Janabi H, Peters TJ, Brazier J, Bryan S, Flynn TN, Clemens S, et al. An investigation of the construct validity of the ICECAP-A capability measure. Qual Life Res 2013;22:1831–40. 10.1007/s11136-012-0293-5 [PMC free article: PMC3764327] [PubMed: 23086535] [CrossRef]
136.
Flynn TN, Huynh E, Peters TJ, Al-Janabi H, Clemens S, Moody A, Coast J. Scoring the ICECAP-A capability instrument. Estimation of a UK general population tariff. Health Econ 2015;24:258–69. 10.1002/hec.3014 [PMC free article: PMC4322472] [PubMed: 24254584] [CrossRef]
137.
Keeley T, Al-Janabi H, Lorgelly P, Coast J. A qualitative assessment of the content validity of the ICECAP-A and EQ-5D-5L and their appropriateness for use in health research. PLOS ONE 2013;8:e85287. 10.1371/journal.pone.0085287 [PMC free article: PMC3868594] [PubMed: 24367708] [CrossRef]
138.
Millennium Survey of Poverty and Social Exclusion. Universities of Bristol, York, Loughborough, Heriot-Watt and the Office for National Statistics; 1999. URL: www​.bristol.ac.uk/poverty​/pse/poverty_and​_social_exclusion_online_appendix_​%20final%20version.pdf (accessed 8 September 2020).
139.
Ipsos MORI. GP Patient Survey. URL: https://gp-patient​.co​.uk/SurveysAndReports (accessed 25 February 2020).
140.
Elmståhl S, Malmberg B, Annerstedt L. Caregiver’s burden of patients 3 years after stroke assessed by a novel caregiver burden scale. Arch Phys Med Rehabil 1996;77:177–82. 10.1016/S0003-9993(96)90164-1 [PubMed: 8607743] [CrossRef]
141.
Anderson JK, Wallace LM. Evaluation of uptake and effect on patient-reported outcomes of a clinician and patient co-led chronic musculoskeletal pain self-management programme provided by the UK National Health Service. Br J Pain 2018;12:104–12. 10.1177/2049463717734015 [PMC free article: PMC5958511] [PubMed: 29796262] [CrossRef]
142.
Hardicre NK, Crocker TF, Wright A, Burton LJ, Ozer S, Atkinson R, et al. An intervention to support stroke survivors and their carers in the longer term (LoTS2Care): study protocol for the process evaluation of a cluster randomised controlled feasibility trial. Trials 2018;19:368. 10.1186/s13063-018-2683-7 [PMC free article: PMC6042238] [PubMed: 29996895] [CrossRef]
143.
Miles MB, Huberman AM. Qualitative Data Analysis: An Expanded Sourcebook. 2nd edn. Thousand Oaks, CA: SAGE Publications, Inc.; 1994.
144.
National Institute of Health and Care Excellence. Guide to the Methods of Technology Appraisal 2013. Process and methods [PMG9]. London: NICE; 2013. [PubMed: 27905712]
145.
The EuroQol Group. EuroQol – a new facility for the measurement of health-related quality of life. Health Policy 1990;16:199–208. 10.1016/0168-8510(90)90421-9 [PubMed: 10109801] [CrossRef]
146.
Department of Health and Social Care. NHS Reference Costs 2016 to 2017. 2017.URL: https://improvement​.nhs​.uk/resources/reference-costs/ (accessed 1 September 2017).
147.
Curtis L, Burns A. Unit Costs of Health and Social Care 2017. Canterbury: PSSRU, University of Kent; 2017. 10.22024/UniKent/01.02/65559 [CrossRef]
148.
Ramsey SD, Willke RJ, Glick H, Reed SD, Augustovski F, Jonsson B, et al. Cost-effectiveness analysis alongside clinical trials II-An ISPOR Good Research Practices Task Force report. Value Health 2015;18:161–72. 10.1016/j.jval.2015.02.001 [PubMed: 25773551] [CrossRef]
149.
Drummond MF, Sculpher MJ, Claxton K, Stoddart GL, Torrance GW. Methods for the Economic Evaluation of Health Care Programmes. 4th edn. Oxford: Oxford University Press; 2015.
150.
Eddy DM, Hollingworth W, Caro JJ, Tsevat J, McDonald KM, Wong JB, ISPOR-SMDM Modeling Good Research Practices Task Force. Model transparency and validation: a report of the ISPOR-SMDM Modeling Good Research Practices Task Force-7. Med Decis Making 2012;32:733–43. 10.1177/0272989X12454579 [PubMed: 22990088] [CrossRef]
151.
Becker G, Kaufman SR. Managing an uncertain illness trajectory in old age: patients’ and physicians’ views of stroke. Med Anthropol Q 1995;9:165–87. 10.1525/maq.1995.9.2.02a00040 [PubMed: 7671113] [CrossRef]
152.
Burton CR. Living with stroke: a phenomenological study. J Adv Nurs 2000;32:301–9. 10.1046/j.1365-2648.2000.01477.x [PubMed: 10964176] [CrossRef]
153.
Shannon RL, Forster A, Hawkins RJ. A qualitative exploration of self-reported unmet need one year after stroke. Disabil Rehabil 2016;38:2000–7. 10.3109/09638288.2015.1107784 [PubMed: 26733052] [CrossRef]
154.
Elmståhl S, Sommer M, Hagberg B. A 3-year follow-up of stroke patients: relationships between activities of daily living and personality characteristics. Arch Gerontol Geriatr 1996;22:233–44. 10.1016/0167-4943(96)00696-6 [PubMed: 15374173] [CrossRef]
155.
Bury M. Chronic illness as biographical disruption. Sociol Health Illn 1982;4:167–82. 10.1111/1467-9566.ep11339939 [PubMed: 10260456] [CrossRef]
156.
Faircloth CA, Boylstein C, Rittman M, Young ME, Gubrium J. Sudden illness and biographical flow in narratives of stroke recovery. Sociol Health Illn 2004;26:242–61. 10.1111/j.1467-9566.2004.00388.x [PubMed: 15027986] [CrossRef]
157.
Walsh M, Galvin R, Macey C, Mccormack C, Horgan F. National Survey of Stroke Survivors: Documenting the Experiences and Levels of Self-reported Long-term Need in Stroke Survivors in the First 5 Years. Systematic Review: Factors Associated with Community Re-integration in the First 12 Months Post Stroke: A Qualitative Synthesis. Dublin: Royal College of Surgeons in Ireland; 2013.
158.
English C, Hillier SL. Circuit class therapy for improving mobility after stroke. Cochrane Database Syst Rev 2010;7:. 10.1002/14651858.CD007513.pub2 CD007513 [PMC free article: PMC6464862] [PubMed: 20614460] [CrossRef]
159.
Sirtori V, Corbetta D, Moja L, Gatti R. Constraint-induced movement therapy for upper extremities in stroke patients. Cochrane Database Syst Rev 2009;4:. 10.1002/14651858.CD004433.pub2 CD004433 [PubMed: 19821326] [CrossRef]
160.
McGeough E, Pollock A, Smith LN, Dennis M, Sharpe M, Lewis S, et al. Interventions for post stroke fatigue. Cochrane Database Syst Rev 2009;3:. 10.1002/14651858.CD007030.pub2 CD007030 [PubMed: 19588416] [CrossRef]
161.
Winter J, Hunter S, Sim J, Crome P. Hands-on therapy interventions for upper limb motor dysfunction following stroke. Cochrane Database Syst Rev 2011;6:. 10.1002/14651858.CD006609.pub2 CD006609 [PMC free article: PMC6464865] [PubMed: 21678359] [CrossRef]
162.
Coupar F, Pollock A, Legg LA, Sackley C, van Vliet P. Home-based therapy programmes for upper limb functional recovery following stroke. Cochrane Database Syst Rev 2012;5:. 10.1002/14651858.CD006755.pub2 CD006755 [PMC free article: PMC6464926] [PubMed: 22592715] [CrossRef]
163.
Barclay-Goddard RE, Stevenson TJ, Poluha W, Thalman L. Mental practice for treating upper extremity deficits in individuals with hemiparesis after stroke. Cochrane Database Syst Rev 2011;5:. 10.1002/14651858.CD005950.pub4 CD005950 [PMC free article: PMC6464751] [PubMed: 21563146] [CrossRef]
164.
Thieme H, Mehrholz J, Behrens J, Pohl M, Dohle C. Mirror therapy for improving motor function after stroke [full review]. Cochrane Database Syst Rev 2012;3:. 10.1002/14651858.CD008449.pub2 CD008449 [PMC free article: PMC6464769] [PubMed: 22419334] [CrossRef]
165.
Bradt J, Magee WL, Dileo C, Wheeler BL, McGilloway E. Music therapy for acquired brain injury. Cochrane Database Syst Rev 2010;7:. 10.1002/14651858.CD006787.pub2 CD006787 [PubMed: 20614449] [CrossRef]
166.
Fletcher-Smith JC, Walker MF, Cobley CS, Steultjens EM, Sackley CM. Occupational therapy for care home residents with stroke. Cochrane Database Syst Rev 2013;6:. 10.1002/14651858.CD010116.pub2 CD010116 [PMC free article: PMC6464854] [PubMed: 23740541] [CrossRef]
167.
States RA, Pappas E, Salem Y. Overground physical therapy gait training for chronic stroke patients with mobility deficits. Cochrane Database Syst Rev 2009;3:. 10.1002/14651858.CD006075.pub2 CD006075 [PMC free article: PMC6464905] [PubMed: 19588381] [CrossRef]
168.
Pollock A, Baer G, Campbell P, Choo PL, Forster A, Morris J, et al. Physical rehabilitation approaches for the recovery of function and mobility following stroke. Cochrane Database Syst Rev 2014;4:. 10.1002/14651858.CD001920.pub3 CD001920 [PMC free article: PMC6465059] [PubMed: 24756870] [CrossRef]
169.
Mehrholz J, Pohl M, Elsner B. Treadmill training and body weight support for walking after stroke. Cochrane Database Syst Rev 2014;12:. 10.1002/14651858.CD002840.pub3 CD010255 [PMC free article: PMC6464779] [PubMed: 24458944] [CrossRef]
170.
Laver KE, George S, Thomas S, Deutsch JE, Crotty M. Virtual reality for stroke rehabilitation. Cochrane Database Syst Rev 2011;9:. 10.1002/14651858.CD008349.pub2 CD008349 [PubMed: 21901720] [CrossRef]
171.
Mehrholz J, Kugler J, Pohl M. Water-based exercises for improving activities of daily living after stroke. Cochrane Database Syst Rev 2011;1:. 10.1002/14651858.CD008186.pub2 CD008186 [PMC free article: PMC6464732] [PubMed: 21249701] [CrossRef]
172.
Grant A, Treweek S, Dreischulte T, Foy R, Guthrie B. Process evaluations for cluster-randomised trials of complex interventions: a proposed framework for design and reporting. Trials 2013;14:15. 10.1186/1745-6215-14-15 [PMC free article: PMC3600672] [PubMed: 23311722] [CrossRef]
173.
Kennedy A, Rogers A, Chew-Graham C, Blakeman T, Bowen R, Gardner C, et al. Implementation of a self-management support approach (WISE) across a health system: a process evaluation explaining what did and did not work for organisations, clinicians and patients. Implement Sci 2014;9:129. 10.1186/s13012-014-0129-5 [PMC free article: PMC4210530] [PubMed: 25331942] [CrossRef]
174.
Mudge S, Kayes N, McPherson K. Who is in control? Clinicians’ view on their role in self-management approaches: a qualitative metasynthesis. BMJ Open 2015;5:e007413. 10.1136/bmjopen-2014-007413 [PMC free article: PMC4431068] [PubMed: 25943372] [CrossRef]
175.
Norris M, Kilbride C. From dictatorship to a reluctant democracy: stroke therapists talking about self-management. Disabil Rehabil 2014;36:32–8. 10.3109/09638288.2013.776645 [PMC free article: PMC3906249] [PubMed: 23594054] [CrossRef]
176.
Levack WM, Dean SG, Siegert RJ, McPherson KM. Navigating patient-centered goal setting in inpatient stroke rehabilitation: how clinicians control the process to meet perceived professional responsibilities. Patient Educ Couns 2011;85:206–13. 10.1016/j.pec.2011.01.011 [PubMed: 21306859] [CrossRef]
177.
Jones F, McKevitt C, Riazi A, Liston M. How is rehabilitation with and without an integrated self-management approach perceived by UK community-dwelling stroke survivors? A qualitative process evaluation to explore implementation and contextual variations. BMJ Open 2017;7:e014109. 10.1136/bmjopen-2016-014109 [PMC free article: PMC5387947] [PubMed: 28373253] [CrossRef]
178.
Mäkelä P, Gawned S, Jones F. Starting early: integration of self-management support into an acute stroke service. BMJ Qual Improv Rep 2014;3:u202037.w1759. 10.1136/bmjquality.u202037.w1759 [PMC free article: PMC4645703] [PubMed: 26734258] [CrossRef]
179.
Glick HA, Doshi JA, Sonnad SS, Polsky D. Economic Evaluation in Clinical Trials. Oxford: Oxford University Press; 2014. 10.1093/med/9780199685028.001.0001 [CrossRef]
180.
Devlin N, Shah K, Feng Y, Mulhern B, van Hout B. Valuing health-related quality of life: an EQ-5D-5L value set for England. Health Econ 2018;27:7–22. 10.1002/hec.3564 [PMC free article: PMC6680214] [PubMed: 28833869] [CrossRef]
181.
Curtis L, Burns A. Unit Costs of Health and Social Care 2015. Canterbury: PSSRU, University of Kent; 2015.
182.
Gov.uk. Ethnicity Facts and Figures. Average Hourly Pay. 2018. URL: www​.ethnicity-facts-figures​.service.gov.uk​/work-pay-and-benefits​/pay-and-income/average-hourly-pay​/latest (accessed 25 February 2020).
183.
Hunter RM, Baio G, Butt T, Morris S, Round J, Freemantle N. An educational review of the statistical issues in analysing utility data for cost–utility analysis. PharmacoEconomics 2015;33:355–66. 10.1007/s40273-014-0247-6 [PubMed: 25595871] [CrossRef]
184.
Manca A, Hawkins N, Sculpher MJ. Estimating mean QALYs in trial-based cost-effectiveness analysis: the importance of controlling for baseline utility. Health Econ 2005;14:487–96. 10.1002/hec.944 [PubMed: 15497198] [CrossRef]
185.
Faria R, Gomes M, Epstein D, White IR. A guide to handling missing data in cost-effectiveness analysis conducted within randomised controlled trials. PharmacoEconomics 2014;32:1157–70. 10.1007/s40273-014-0193-3 [PMC free article: PMC4244574] [PubMed: 25069632] [CrossRef]
186.
White IR, Thompson SG. Adjusting for partially missing baseline measurements in randomized trials. Stat Med 2005;24:993–1007. 10.1002/sim.1981 [PubMed: 15570623] [CrossRef]
187.
Hayes RJ, Moulton LH. Cluster Randomised Trials. 1st edn. New York, NY: Chapman and Hall/CRC; 2009. 10.1201/9781584888178 [CrossRef]
188.
National Institute of Health and Care Excellence. Position Statement on Use of the EQ-5D-5L Valuation Set for England (Updated November 2018). URL: www​.nice.org.uk/about​/what-we-do/our-programmes​/nice-guidance​/technology-appraisal-guidance/eq-5d-5l (accessed 25 February 2020).
189.
van Hout B, Janssen MF, Feng YS, Kohlmann T, Busschbach J, Golicki D, et al. Interim scoring for the EQ-5D-5L: mapping the EQ-5D-5L to EQ-5D-3L value sets. Value Health 2012;15:708–15. 10.1016/j.jval.2012.02.008 [PubMed: 22867780] [CrossRef]
190.
O’Brien BJ, Briggs AH. Analysis of uncertainty in health care cost-effectiveness studies: an introduction to statistical issues and methods. Stat Methods Med Res 2002;11:455–68. 10.1191/0962280202sm304ra [PubMed: 12516984] [CrossRef]
191.
Briggs AH, O’Brien BJ, Blackhouse G. Thinking outside the box: recent advances in the analysis and presentation of uncertainty in cost-effectiveness studies. Annu Rev Public Health 2002;23:377–401. 10.1146/annurev.publhealth.23.100901.140534 [PubMed: 11910068] [CrossRef]
192.
Chen P, Lin KC, Liing RJ, Wu CY, Chen CL, Chang KC. Validity, responsiveness, and minimal clinically important difference of EQ-5D-5L in stroke patients undergoing rehabilitation. Qual Life Res 2016;25:1585–96. 10.1007/s11136-015-1196-z [PubMed: 26714699] [CrossRef]
193.
Office for National Statistics (ONS). National Life Tables, UK: 2015 to 2017. 2018. URL: www​.ons.gov.uk/releases​/nationallifetablesuk2015to2017 (accessed 20 October 2020).
194.
Guilhaume C, Saragoussi D, Cochran J, François C, Toumi M. Modeling stroke management: a qualitative review of cost-effectiveness analyses. Eur J Health Econ 2010;11:419–26. 10.1007/s10198-010-0228-4 [PubMed: 20238137] [CrossRef]
195.
Strong M, Oakley JE, Brennan A. Estimating multiparameter partial expected value of perfect information from a probabilistic sensitivity analysis sample: a nonparametric regression approach. Med Decis Making 2014;34:311–26. 10.1177/0272989X13505910 [PMC free article: PMC4819801] [PubMed: 24246566] [CrossRef]
196.
Sentinel Stroke National Audit Programme (SSNAP). CCG and LHB Results Portfolio (annual) April 2017–March 2018. URL: www​.strokeaudit.org/results​/Clinical-audit​/Clinical-CCG-LHB-LCG.aspx (accessed 8 September 2020).
197.
Aiken LS, West SG, Reno RR. Multiple Regression: Testing and Interpreting Interactions. Thousand Oaks, CA: SAGE Publications, Inc.; 1991.
198.
Frazier PA, Tix AP, Barron KE. Testing moderator and mediator effects in counseling psychology research. J Couns Psychol 2004;51:115–34. 10.1037/0022-0167.51.1.115 [CrossRef]
199.
Aguinis H, Beaty JC, Boik RJ, Pierce CA. Effect size and power in assessing moderating effects of categorical variables using multiple regression: a 30-year review. J Appl Psychol 2005;90:94–107. 10.1037/0021-9010.90.1.94 [PubMed: 15641892] [CrossRef]
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