Parents’ and health professionals’ ratings of outcomes on round 1 of the Delphi survey

Jeremy Parr; Lindsay Pennington; Helen Taylor; Dawn Craig; Christopher Morris; Helen McConachie; Jill Cadwgan; Diane Sellers; Morag Andrew; Johanna Smith; Deborah Garland; Elaine McColl; Charlotte Buswell; Julian Thomas; Allan Colver

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Parr J, Pennington L, Taylor H, et al. Parent-delivered interventions used at home to improve eating, drinking and swallowing in children with neurodisability: the FEEDS mixed-methods study. Southampton (UK): NIHR Journals Library; 2021 Mar. (Health Technology Assessment, No. 25.22.)

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Parent-delivered interventions used at home to improve eating, drinking and swallowing in children with neurodisability: the FEEDS mixed-methods study.

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Appendix 18Parents’ and health professionals’ ratings of outcomes on round 1 of the Delphi survey

Outcome	Parents (N = 81)				HPs (N = 76)
Outcome	n	Not important (score of 0–3) (%)	Important but not essential (score of 4–6) (%)	Essential (score of 7–9) (%)	n	Not important (score of 0–3) (%)	Important but not essential (score of 4–6) (%)	Essential (score of 7–9) (%)
Nutrition	81	0	11	89	76	0	3	97
General health	80	1	10	89	76	0	7	93
Weight	80	6	41	53	76	4	45	51
Height	78	18	51	31	76	18	50	32
Growth	79	0	25	75	76	0	24	76
Child’s enjoyment of mealtimes	80	1	16	83	76	0	9	91
Parent’s enjoyment of mealtimes	81	7	51	42	76	0	24	76
Quality of life of child	81	1	4	95	75	0	8	92
Quality of life of family	81	1	21	78	75	0	13	87
Mental health of parent	81	0	17	83	76	0	16	84
Safety	78	0	3	97	75	0	3	97
Oral motor control	76	0	13	87	74	3	23	74
Efficiency	80	13	44	44	75	5	35	60
Independence	80	13	28	60	75	3	67	31
Variety	81	5	44	51	75	4	73	23
Amount	81	4	35	62	75	5	55	40
Appetite	81	3	38	59	75	3	53	44
Mealtime behaviour	80	14	45	41	74	10	61	30
Mealtime Interaction	79	4	35	61	74	1	18	81
Social participation	80	4	46	50	74	1	22	77
Child’s understanding of mealtimes	80	4	45	51	74	4	45	51
Parent’s understanding of child’s EDSD	80	1	10	89	72	1	10	89

: The above figures are for those respondents who were able to score individual interventions (i.e. those who had used them) and, therefore, do not include those who reported being unable to score or for whom data were missing. Percentages were rounded to the nearest whole number and, therefore, rounded totals are occasionally different from 100%.

Copyright © Queen’s Printer and Controller of HMSO 2021. This work was produced by Parr et al. under the terms of a commissioning contract issued by the Secretary of State for Health and Social Care. This issue may be freely reproduced for the purposes of private research and study and extracts (or indeed, the full report) may be included in professional journals provided that suitable acknowledgement is made and the reproduction is not associated with any form of advertising. Applications for commercial reproduction should be addressed to: NIHR Journals Library, National Institute for Health Research, Evaluation, Trials and Studies Coordinating Centre, Alpha House, University of Southampton Science Park, Southampton SO16 7NS, UK.

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Parr J, Pennington L, Taylor H, et al. Parent-delivered interventions used at home to improve eating, drinking and swallowing in children with neurodisability: the FEEDS mixed-methods study. Southampton (UK): NIHR Journals Library; 2021 Mar. (Health Technology Assessment, No. 25.22.) Appendix 18, Parents’ and health professionals’ ratings of outcomes on round 1 of the Delphi survey.
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Appendix 18Parents’ and health professionals’ ratings of outcomes on round 1 of the Delphi survey

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