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Islam Z, Pollock K, Patterson A, et al. Thinking ahead about medical treatments in advanced illness: a qualitative study of barriers and enablers in end-of-life care planning with patients and families from ethnically diverse backgrounds. Southampton (UK): National Institute for Health and Care Research; 2023 Jun. (Health and Social Care Delivery Research, No. 11.07.)

Cover of Thinking ahead about medical treatments in advanced illness: a qualitative study of barriers and enablers in end-of-life care planning with patients and families from ethnically diverse backgrounds

Thinking ahead about medical treatments in advanced illness: a qualitative study of barriers and enablers in end-of-life care planning with patients and families from ethnically diverse backgrounds.

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List of abbreviations

ACP

advance care planning

A&E

accident and emergency

BCT

behaviour change technique

BFCG

bereaved family caregiver

CI

chief investigator

CNLW

Community Network Liaison Worker

DNACPR

do not attempt cardiopulmonary resuscitation

EOLC

end-of-life care

EOLCP

end-of-life care planning

FCG

family caregiver

GP

general practitioner

HCP

health-care professional

LOROS

Leicestershire and Rutland Organisation for the Relief of Suffering

MND

motor neurone disease

NICE

National Institute for Health and Care Excellence

NIHR

National Institute for Health and Care Research

NPT

normalisation process theory

PCBR

public, carers and bereaved relatives

PEOLC

palliative and end-of-life care

PI

principal investigator

PPI

patient and public involvement

ReSPECT

Recommended Summary Plan for Emergency Care and Treatment

WS

workstream

Copyright © 2023 Islam et al.

This work was produced by Islam et al. under the terms of a commissioning contract issued by the Secretary of State for Health and Social Care. This is an Open Access publication distributed under the terms of the Creative Commons Attribution CC BY 4.0 licence, which permits unrestricted use, distribution, reproduction and adaption in any medium and for any purpose provided that it is properly attributed. See: https://creativecommons.org/licenses/by/4.0/. For attribution the title, original author(s), the publication source – NIHR Journals Library, and the DOI of the publication must be cited.

Bookshelf ID: NBK593183

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