We wish to acknowledge the contributions of the following:
Ms Sophie Baker (RA; phase 3) supported the RPM with data collection and analyses and contributed to drafting sections of the report.
Professor Christine Barrowclough contributed to study design, and provided expertise in the model of FI that was culturally adapted and the KASI, which she co-devised.
Professor Dinesh Bhugra provided expertise in transcultural psychiatry and delivered the trust-wide cultural competency workshop.
Patrick Cahoon (MMHSCT Lead for Service User and Carer Engagement) provided support with accessing service user and carer groups and facilitated access to services.
Reverend Paul Grey contributed to the study design, advised on all phases of the study, chaired the RAG and was a member of RMG and SSC.
Mr Calvin Heal (RA to Dr Sarah Cotterill) performed quantitative analyses and contributed to the write-up of Chapter 6.
Professor Shon Lewis contributed to the development of the study and provided senior oversight and advice throughout.
Professor Nicholas Tarrier contributed to study design, and provided expertise in the model of FI that was culturally adapted and the KASI, which he co-devised.
We should also like to thank the members of our RAG for their invaluable contribution:
Thanks also to our collaborators:
ACMHS, Manchester
Karina Lovell (Professor of Mental Health, University of Manchester)
Nusrat Husain (Professor of Psychiatry, University of Manchester)
Kevin Ronan (Foundation Professor in Psychology at Central Queensland University, Australia)
Rachel Meacock [Research Fellow (Health Economics), University of Manchester]
Dr Judith Richardson (Deputy Medical Director and Programme Director, Quality and Leadership, NICE).
Finally, we wish to thank BioMed Central for their permission to include aspects of the published CaFI protocol:
Edge D, Degnan A, Cotterill S, Berry K, Drake R, Baker J, et al. Culturally-adapted Family Intervention (CaFI) for African-Caribbeans diagnosed with schizophrenia and their families: a feasibility study protocol of implementation and acceptability. Pilot Feasibility Stud 2016;2:39.
Contributions of authors
Dr Dawn Edge (PI, Senior Lecturer) devised and oversaw the study; managed the RPM; led the phase 1 qualitative data collection (focus groups and consensus conference); co-analysed all qualitative data; led the writing of Chapters 1, 3, 4, 7 and 8 and contributed to others; and co-authored the published protocol and conference proceedings. She provided the final approval of the version to be published and agreement to be accountable for all aspects of the work in ensuring that questions related to the accuracy or integrity of any part of the work are appropriately investigated and resolved.
Ms Amy Degnan (RPM) conducted the literature review; co-analysed the qualitative data for the focus groups and acceptability study; led the write-up of Chapters 2 and 5; and contributed to the write-up of Chapters 1, 3, 5, 6 and 7. She was responsible for managing and preparing the qualitative and quantitative data for every phase and she co-authored the published protocol.
Dr Sarah Cotterill contributed to the conception of the study; wrote the data management plan; conducted the quantitative analyses; led the write-up of Chapter 6; contributed to Chapter 8; critically reviewed other chapters for intellectual content; and co-authored the published study protocol.
Dr Katherine Berry (Senior Lecturer, Clinical Psychologist) led the development of the therapy manual; contributed to the therapist training in the manual; contributed to the development of the fidelity scales and study design; supervised the therapists and FSMs; and co-authored the published study protocol.
Dr John Baker contributed to study design; co-facilitated consensus conference and analysed qualitative data; contributed to writing Chapters 3 and 4; critically reviewed other chapters for intellectual content; and co-authored the published study protocol.
Dr Richard Drake contributed to study design, analysis of quantitative data (specifically the relapse rating and health utility measure) and co-authored published study protocol. Oversaw and contributed to writing the systematic review (see Chapter 2).
Professor Kathryn Abel contributed to study design and interpretation of the study; critically revised the report for important intellectual content; provided senior oversight of the project; and co-authored the published study protocol.
Publications
Peer-reviewed publications
Edge D, Degnan A, Cotterill S, Berry K, Drake R, Baker J, et al. Culturally-adapted Family Intervention (CaFI) for African-Caribbeans diagnosed with schizophrenia and their families: a feasibility study protocol of implementation and acceptability. Pilot Feasibility Stud 2016;2:39.
Degnan A, Baker S, Edge D, Nottidge W, Noke M, Press CJ, et al. The nature and efficacy of culturally-adapted psychosocial interventions for schizophrenia: a systematic review and meta-analysis. Psychol Med 2017:1–14.
Edge D, Grey P. An assets-based approach to co-producing Culturally-adapted Family Intervention (CaFI) with African-Caribbeans diagnosed with schizophrenia and their families. Ethn Dis 2018; in press.
Peer-reviewed conference contributions
Edge D, Stephens A, Thomas Y. Overcoming Challenges: Innovative Solutions in Public Involvement in Research. NIHR Research Design Service North West Patient and Public Involvement (and Engagement) Conference, Manchester, 2016.
Edge D, Degnan A. Service Users, Carers and Healthcare Professionals’ Perceptions and Experiences of Mental Health Services for African-Caribbean People Diagnosed with Psychosis: A Qualitative Study. Division of Clinical Psychology Annual Conference, Liverpool, 2017.
Invited conference contributions
Edge D. Culturally-adapting Family Intervention (CaFI) for African-Caribbeans Diagnosed with Schizophrenia: An Assets-Based Approach to Co-Production. World Psychiatric Conference International Congress, Cape Town, South Africa, 2016.
Edge D, Thomas Y. Cultural Adaptation, Implementation and Evaluation of Family Intervention for African-Caribbean Service Users with Schizophrenia in Secondary Care. NIHR/Medicines and Healthcare products Regulatory Agency, Nottingham, 2014.
Data-sharing statement
All data requests should be submitted to the corresponding author for consideration. Access to available anonymised data may be granted following review.
Patient data
This work uses data provided by patients and collected by the NHS as part of their care and support. Using patient data is vital to improve health and care for everyone. There is huge potential to make better use of information from people’s patient records, to understand more about disease, develop new treatments, monitor safety, and plan NHS services. Patient data should be kept safe and secure, to protect everyone’s privacy, and it’s important that there are safeguards to make sure that it is stored and used responsibly. Everyone should be able to find out about how patient data are used. #datasaveslives You can find out more about the background to this citation here: https://understandingpatientdata.org.uk/data-citation.
Disclaimers
This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health and Social Care. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health and Social Care.
