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| Core research team |
|---|
| Name | Position | Area of expertise |
|---|
Dr Irene Tuffrey-Wijne
(chief investigator) | Senior Research Fellow, SGUL/Kingston University and Maastricht University (Netherlands) | Qualitative methodologies and mixed-methods research; clinical background in learning disability nursing and palliative care nursing; chairperson of the Palliative Care for People with Learning Disabilities Network; chairperson of the European taskforce on intellectual disability of the European Association of Palliative Care |
| Dr Niki Giatras | Research Fellow, SGUL; day-to-day project manager | Background in psychology, physical activity and mental health; qualitative methodologies |
| Dr Lucy Goulding | Research Assistant, SGUL | Patient safety in NHS hospitals; mixed-methods health services research |
| Ms Liz Abraham | Research Assistant, SGUL | Clinical background in occupational therapy; health services research |
| Mr Gary Butler | Coresearcher; Research and Training Advisor, SGUL | Doing inclusive research; experience of living with learning disabilities |
| Mr Paul Adeline | Coresearcher; Research and Training Advisor, SGUL | Doing inclusive research; experience of living with learning disabilities; member of independent inquiry (Michael 2008)4 |
SGUL, St George’s, University of London.
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| Extended research team |
|---|
| Name | Position | Expertise |
|---|
| Professor Baroness Sheila Hollinsa | Professor of Psychiatry of Disability, SGUL; Member of House of Lords; family carer | Learning disabilities, research; member of independent inquiry (Michael 2008);4 families/carers of people with learning disabilities |
| Professor Christine Edwardsa | Director, Institute of Leadership and Management in Health, Kingston University | Organisation/management research |
| Dr Steven Gillard | Senior Lecturer, Social Sciences and Mental Health, SGUL | Qualitative methodologies; managing collaborative research projects |
| Dr Sarah White | Senior Biostatistician, SGUL | Statistical analysis |
| Ms Sara Christian | Research Fellow, SGUL/Kingston University | Change management |
SGUL, St George’s, University of London.
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Also a member of the research advisory board.
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| Research advisory boarda |
|---|
| Name | Position | Expertise |
|---|
Sir Leonard Fenwick
(chairperson) | Chief Executive of Newcastle upon Tyne Hospitals NHS Foundation Trust | Senior management; NHS hospitals |
| Professor Baroness Sheila Hollins | As listed above |
| Professor Christine Edwards | As listed above |
| Ms Vanessa Gordon | Associate Director of Patient Safety, NHS Commissioning Board | Patient safety; incident reporting |
| Ms Monica Stannard | Family carer | Families/carers of people with learning disabilities |
| Ms Amanda Cresswell | Research Assistant, SGUL; self-advocate | Experience of living with learning disabilities |
| Ms Vicki Raphael | Family carer | Families/carers of people with learning disabilities |
| Ms Vikki Carruth | Deputy Director of Nursing, St George’s Hospital | Nursing management, safeguarding |
| Ms Yvonne Connolly | Patient Safety Manager, St George’s Hospital | Patient safety, NHS hospitals |
| Dr Mark Cottee | Consultant and Senior Lecturer in Geriatric Medicine, St George’s Hospital | Elderly/dementia care; vulnerable groups |
| Ms Alison Robertson | Director of Nursing, St George’s Hospital | Professional leadership and quality improvement; management; NHS hospitals |
SGUL, St George’s, University of London.
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Core research team members attended research advisory board meetings.
Two research advisory board members from Mencap (Beverley Dawkins and Helen Mycock) withdrew after the first meeting, when a conflict of interest with the study became obvious. One coresearcher with learning disabilities, Lloyd Page, who also worked for Mencap, withdrew simultaneously for the same reason and was replaced by Gary Butler.
