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Bennett WL, Pitts S, Aboumatar H, et al. Strategies for Patient, Family, and Caregiver Engagement [Internet]. Rockville (MD): Agency for Healthcare Research and Quality (US); 2020 Aug. (Technical Brief, No. 36.)

Cover of Strategies for Patient, Family, and Caregiver Engagement

Strategies for Patient, Family, and Caregiver Engagement [Internet].

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Appendix GWord Cloud

The strategies, barriers, and facilitators related to patient and family engagement suggested by our Key Informants using Poll Everywhere.

  • Status Quo Bias- Hard To Start Something New - Resistance To Change/Too Much Work To Add Another Thing
  • Need To Streamline For Families When Need To Engage For Multiple Family Members
  • No Requirement For Clinics And Hospitals To Engage Patients And Families
  • Patient Confidence In Decision Making (E.G., Using A Tool Such As Sure)
  • Medical Culture That Does Not Prioritize/Value Patient And Family Input
  • Patient Use Of Portal, Apps, Other Electronic Engagement Tools
  • Difficulty Selecting To Right Tools And Standardizing Protocols
  • Look Upstream To See How Well You Capture The Population
  • Portal Helps Input And Share Data With Multiple Providers
  • Lack Of Trust/Evidence That It Will Be Helpful/Useful
  • Structure Of Care System Doesn’t Accommodate PFE
  • Lack Of Payer And Health System Support
  • Patient Understanding Using Teach-Back
  • Patient-Reported Outcome Measures
  • Ability To Provide Useful Analytics
  • No Dedicated Funding/Resources
  • Is The Patient Ready To Engage?
  • Myths/Misperceptions Of PFE
  • Understandable Language
  • Fear Of Reputation Drop
  • Managing Expectations
  • Standardized Methods
  • Lack Of ROI Evidence
  • Telephonic Discussions
  • Family Preparedness
  • Medical Paternalism
  • Contact Information
  • Not Enough Time
  • Response
  • Willingness
  • Informed
  • Cost
Bookshelf ID: NBK561685

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