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Bennett WL, Pitts S, Aboumatar H, et al. Strategies for Patient, Family, and Caregiver Engagement [Internet]. Rockville (MD): Agency for Healthcare Research and Quality (US); 2020 Aug. (Technical Brief, No. 36.)

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Strategies for Patient, Family, and Caregiver Engagement [Internet].

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Appendix DList of Excluded Studies for Systematic Reviews

Studies are sorted by the reason for exclusion.

Does not apply to the Key Question

1.
Lombardero A, Hansen CD, Richie AE, et al. A Narrative Review of the Literature on Insufficient Sleep, Insomnia, and Health Correlates in American Indian/Alaska Native Populations. Journal of environmental and public health. 2019;2019:4306463. PMID: 31360174. [PMC free article: PMC6644264] [PubMed: 31360174]
2.
Miller WR. The Projected Care Trajectory for Persons with Epilepsy. The Nursing clinics of North America. 2019 Sep;54(3):425–35. PMID: 31331628. [PubMed: 31331628]
3.
Sousa H, Ribeiro O, Paul C, et al. Social support and treatment adherence in patients with end-stage renal disease: A systematic review. Seminars in dialysis. 2019 Jul 15. PMID: 31309612. [PubMed: 31309612]
4.
Vo V, Auroy L, Sarradon-Eck A. Patients’ Perceptions of mHealth Apps: Meta-Ethnographic Review of Qualitative Studies. JMIR mHealth and uHealth. 2019 Jul 10;7(7):e13817. PMID: 31293246. [PMC free article: PMC6652126] [PubMed: 31293246]
5.
Mulligan H, Wilkinson A, Chen D, et al. Components of community rehabilitation programme for adults with chronic conditions: A systematic review. International journal of nursing studies. 2019 May 31;97:114–29. PMID: 31234105. [PubMed: 31234105]
6.
Reiners F, Sturm J, Bouw LJW et al. Sociodemographic Factors Influencing the Use of eHealth in People with Chronic Diseases. International journal of environmental research and public health. 2019 Feb 21;16(4). PMID: 30795623. [PMC free article: PMC6406337] [PubMed: 30795623]
7.
McGilton KS, Vellani S, Yeung L, et al. Identifying and understanding the health and social care needs of older adults with multiple chronic conditions and their caregivers: a scoping review. BMC geriatrics. 2018 Oct 1;18(1):231. PMID: 30285641. [PMC free article: PMC6167839] [PubMed: 30285641]
8.
Kuo AM, Thavalathil B, Elwyn G, et al. The Promise of Electronic Health Records to Promote Shared Decision Making: A Narrative Review and a Look Ahead. Medical decision making : an international journal of the Society for Medical Decision Making. 2018 Nov;38(8):1040–5. PMID: 30226100. [PubMed: 30226100]
9.
Han HR, Hong H, Starbird LE, et al. eHealth Literacy in People Living with HIV: Systematic Review. JMIR public health and surveillance. 2018 Sep 10;4(3):e64. PMID: 30201600. [PMC free article: PMC6231824] [PubMed: 30201600]
10.
McCabe E, Miciak M, Dennett L, et al. Measuring therapeutic relationship in the care of patients with haemophilia: A scoping review. Health expectations : an international journal of public participation in health care and health policy. 2018 Dec;21(6):1208–30. PMID: 30160003. [PMC free article: PMC6250875] [PubMed: 30160003]
11.
Nazir MA, AlGhamdi L, AlKadi M, et al. The burden of Diabetes, Its Oral Complications and Their Prevention and Management. Open access Macedonian journal of medical sciences. 2018 Aug 20;6(8):1545–53. PMID: 30159091. [PMC free article: PMC6108795] [PubMed: 30159091]
12.
Budhwani S, Wodchis WP, Zimmermann C, et al. Self-management, self-management support needs and interventions in advanced cancer: a scoping review. BMJ supportive & palliative care. 2019 Mar;9(1):12–25. PMID: 30121581. [PubMed: 30121581]
13.
Kusnanto H, Agustian D, Hilmanto D. Biopsychosocial model of illnesses in primary care: A hermeneutic literature review. Journal of family medicine and primary care. 2018 May–Jun;7(3):497–500. PMID: 30112296. [PMC free article: PMC6069638] [PubMed: 30112296]
14.
Hart T, Driver S, Sander A, et al. Traumatic brain injury education for adult patients and families: a scoping review. Brain injury. 2018;32(11):1295–306. PMID: 30084694. [PMC free article: PMC6321983] [PubMed: 30084694]
15.
Miranda S, Marques A. Pilates in noncommunicable diseases: A systematic review of its effects. Complementary therapies in medicine. 2018 Aug;39:114–30. PMID: 30012382. [PubMed: 30012382]
16.
Mabweazara SZ, Ley C, Leach LL. Physical activity, social support and socio-economic status amongst persons living with HIV and AIDS: a review. African journal of AIDS research : AJAR. 2018 Jul;17(2):203–12. PMID: 30003848. [PubMed: 30003848]
17.
De Angelis G, Wells GA, Davies B, et al. The use of social media among health professionals to facilitate chronic disease self-management with their patients: A systematic review. Digital health. 2018 Jan–Dec;4:2055207618771416. PMID: 29942633. [PMC free article: PMC6016564] [PubMed: 29942633]
18.
Poitras ME, Maltais ME, Bestard-Denomme L, et al. What are the effective elements in patient-centered and multimorbidity care? A scoping review. BMC health services research. 2018 Jun 14;18(1):446. PMID: 29898713. [PMC free article: PMC6001147] [PubMed: 29898713]
19.
Contreras I, Vehi J. Artificial Intelligence for Diabetes Management and Decision Support: Literature Review. Journal of medical Internet research. 2018 May 30;20(5):e10775. PMID: 29848472. [PMC free article: PMC6000484] [PubMed: 29848472]
20.
Santos T, Lovell J, Shiell K, et al. The impact of cognitive impairment in dementia on self-care domains in diabetes: A systematic search and narrative review. Diabetes/metabolism research and reviews. 2018 Sep;34(6):e3013. PMID: 29707902. [PubMed: 29707902]
21.
de Kok BC, Widdicombe S, Pilnick A, et al. Doing patient-centredness versus achieving public health targets: A critical review of interactional dilemmas in ART adherence support. Social science & medicine (1982). 2018 May;205:17–25. PMID: 29631198. [PubMed: 29631198]
22.
Gierisch JM, Hughes JM, Edelman D, et al. VA Evidence-based Synthesis Program Reports. The Effectiveness of Health Coaching. Washington (DC): Department of Veterans Affairs (US); 2017. [PubMed: 29553632]
23.
Chan RJ, Marx W, Bradford N, et al. Clinical and economic outcomes of nurse-led services in the ambulatory care setting: A systematic review. International journal of nursing studies. 2018 May;81:61–80. PMID: 29518623. [PubMed: 29518623]
24.
McBrien KA, Ivers N, Barnieh L, et al. Patient navigators for people with chronic disease: A systematic review. PloS one. 2018;13(2):e0191980. PMID: 29462179. [PMC free article: PMC5819768] [PubMed: 29462179]
25.
Baker JM, Grant RW, Gopalan A. A systematic review of care management interventions targeting multimorbidity and high care utilization. BMC health services research. 2018 Jan 30;18(1):65. PMID: 29382327. [PMC free article: PMC5791200] [PubMed: 29382327]
26.
Tabassum R, Froeschl G, Cruz JP, et al. Untapped aspects of mass media campaigns for changing health behaviour towards non-communicable diseases in Bangladesh. Globalization and health. 2018 Jan 18;14(1):7. PMID: 29347986. [PMC free article: PMC5774160] [PubMed: 29347986]
27.
Marcolino MS, Oliveira JAQ D’Agostino M, et al. The Impact of mHealth Interventions: Systematic Review of Systematic Reviews. JMIR mHealth and uHealth. 2018 Jan 17;6(1):e23. PMID: 29343463. [PMC free article: PMC5792697] [PubMed: 29343463]
28.
Kish AM, Newcombe PA, Haslam DM. Working and caring for a child with chronic illness: A review of current literature. Child: care, health and development. 2018 May;44(3):343–54. PMID: 29341191. [PubMed: 29341191]
29.
King L, Harrington A, Linedale E, et al. A mixed methods thematic review: Health-related decision-making by the older person. Journal of clinical nursing. 2018 Apr;27(7–8):e1327–e43. PMID: 29322576. [PubMed: 29322576]
30.
Packer TL, Fracini A, Audulv A, et al. What we know about the purpose, theoretical foundation, scope and dimensionality of existing self-management measurement tools: A scoping review. Patient education and counseling. 2018 Apr;101(4):579–95. PMID: 29239734. [PubMed: 29239734]
31.
Warner MM, Kelly JT, Reidlinger DP, et al. Reporting of Telehealth-Delivered Dietary Intervention Trials in Chronic Disease: Systematic Review. Journal of medical Internet research. 2017 Dec 11;19(12):e410. PMID: 29229588. [PMC free article: PMC5742660] [PubMed: 29229588]
32.
Lenzen SA, Daniels R, van Bokhoven MA, et al. Disentangling self-management goal setting and action planning: A scoping review. PloS one. 2017;12(11):e0188822. PMID: 29176800. [PMC free article: PMC5703565] [PubMed: 29176800]
33.
Horrell LN, Kneipp SM. Strategies for recruiting populations to participate in the chronic disease self-management program (CDSMP): A systematic review. Health marketing quarterly. 2017 Oct–Dec;34(4):268–83. PMID: 29173109. [PMC free article: PMC5880205] [PubMed: 29173109]
34.
Mileski M, Kruse CS, Catalani J, et al. Adopting Telemedicine for the Self-Management of Hypertension: Systematic Review. JMIR medical informatics. 2017 Oct 24;5(4):e41. PMID: 29066424. [PMC free article: PMC5676030] [PubMed: 29066424]
35.
Lawn S, Zhi X, Morello A. An integrative review of e-learning in the delivery of self-management support training for health professionals. BMC medical education. 2017 Oct 10;17(1):183. PMID: 29017521. [PMC free article: PMC5634849] [PubMed: 29017521]
36.
Roland KB, Milliken EL, Rohan EA, et al. Use of Community Health Workers and Patient Navigators to Improve Cancer Outcomes Among Patients Served by Federally Qualified Health Centers: A Systematic Literature Review. Health equity. 2017;1(1):61–76. PMID: 28905047. [PMC free article: PMC5586005] [PubMed: 28905047]
37.
McCarroll R, Eyles H, Ni Mhurchu C. Effectiveness of mobile health (mHealth) interventions for promoting healthy eating in adults: A systematic review. Preventive medicine. 2017 Dec;105:156–68. PMID: 28882743. [PubMed: 28882743]
38.
Lamore K, Montalescot L, Untas A. Treatment decision-making in chronic diseases: What are the family members’ roles, needs and attitudes? A systematic review. Patient education and counseling. 2017 Dec;100(12):2172–81. PMID: 28838630. [PubMed: 28838630]
39.
Allison RL. Back to Basics: The Effect of Healthy Diet and Exercise on Chronic Disease Management. South Dakota medicine : the journal of the South Dakota State Medical Association. 2017 Spec;Spec No:10–8. PMID: 28817856. [PubMed: 28817856]
40.
Bassola B, Lusignani M. Self-care in People With Motor Neuron Disease: An Integrative Review. The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses. 2017 Oct;49(5):311–7. PMID: 28817497. [PubMed: 28817497]
41.
Wierenga KL, Lehto RH, Given B. Emotion Regulation in Chronic Disease Populations: An Integrative Review. Research and theory for nursing practice. 2017 Aug 1;31(3):247–71. PMID: 28793948. [PMC free article: PMC5992894] [PubMed: 28793948]
42.
Murphy LA, Harrington P, Taylor SJ, et al. Clinical-effectiveness of self-management interventions in chronic obstructive pulmonary disease: An overview of reviews. Chronic respiratory disease. 2017 Aug;14(3):276–88. PMID: 28774200. [PMC free article: PMC5720233] [PubMed: 28774200]
43.
Duff OM, Walsh DM, Furlong BA, et al. Behavior Change Techniques in Physical Activity eHealth Interventions for People With Cardiovascular Disease: Systematic Review. Journal of medical Internet research. 2017 Aug 2;19(8):e281. PMID: 28768610. [PMC free article: PMC5559649] [PubMed: 28768610]
44.
Birkhoff SD, Smeltzer SC. Perceptions of Smartphone User-Centered Mobile Health Tracking Apps Across Various Chronic Illness Populations: An Integrative Review. Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing. 2017 Jul;49(4):371–8. PMID: 28605151. [PubMed: 28605151]
45.
Napoles TM, Burke NJ, Shim JK, et al. Assessing Patient Activation among High-Need, High-Cost Patients in Urban Safety Net Care Settings. Journal of urban health : bulletin of the New York Academy of Medicine. 2017 Dec;94(6):803–13. PMID: 28597203. [PMC free article: PMC5722722] [PubMed: 28597203]
46.
Morsa M, Gagnayre R, Deccache C, et al. Factors influencing the transition from pediatric to adult care: A scoping review of the literature to conceptualize a relevant education program. Patient education and counseling. 2017 Oct;100(10):1796–806. PMID: 28528694. [PubMed: 28528694]
47.
Xu X, Mishra GD, Jones M. Evidence on multimorbidity from definition to intervention: An overview of systematic reviews. Ageing research reviews. 2017 Aug;37:53–68. PMID: 28511964. [PubMed: 28511964]
48.
Wang Y, Xue H, Huang Y, et al. A Systematic Review of Application and Effectiveness of mHealth Interventions for Obesity and Diabetes Treatment and Self-Management. Advances in nutrition (Bethesda, Md). 2017 May;8(3):449–62. PMID: 28507010. [PMC free article: PMC5421120] [PubMed: 28507010]
49.
Guo Y, Albright D. The effectiveness of telehealth on self-management for older adults with a chronic condition: A comprehensive narrative review of the literature. Journal of telemedicine and telecare. 2018 Jul;24(6):392–403. PMID: 28449619. [PubMed: 28449619]
50.
Janssen-Niemeijer AJ, Visse M, Van Leeuwen R, et al. The Role of Spirituality in Lifestyle Changing Among Patients with Chronic Cardiovascular Diseases: A Literature Review of Qualitative Studies. Journal of religion and health. 2017 Aug;56(4):1460–77. PMID: 28349298. [PubMed: 28349298]
51.
Bland V, Sharma M. Physical activity interventions in African American women: A systematic review. Health promotion perspectives. 2017;7(2):52–9. PMID: 28326284. [PMC free article: PMC5350550] [PubMed: 28326284]
52.
Whitehead L, Jacob E, Towell A, et al. The role of the family in supporting the self-management of chronic conditions: A qualitative systematic review. Journal of clinical nursing. 2018 Jan;27(1–2):22–30. PMID: 28231630. [PubMed: 28231630]
53.
Ulbrich EM, Mattei AT, de Fatima Mantovani M, et al. Care models for people with chronic diseases: integrative review. Investigacion y educacion en enfermeria. 2017 Jan;35(1):8–16. PMID: 29767919. [PubMed: 29767919]
54.
Reisinho MD, Gomes BP. Nursing interventions in monitoring the adolescent with Cystic Fibrosis: a literature review. Revista latino-americana de enfermagem. 2016 Dec 8;24:e2845. PMID: 27982311. [PMC free article: PMC5171783] [PubMed: 27982311]
55.
Damery S, Flanagan S, Combes G. Does integrated care reduce hospital activity for patients with chronic diseases? An umbrella review of systematic reviews. BMJ open. 2016 Nov 21;6(11):e011952. PMID: 27872113. [PMC free article: PMC5129137] [PubMed: 27872113]
56.
Thombs BD, Kwakkenbos L, Riehm KE, et al. Comparison of Self-Efficacy for Managing Chronic Disease between patients with systemic sclerosis and other chronic conditions: a systematic review. Rheumatology international. 2017 Feb;37(2):281–92. PMID: 27866246. [PubMed: 27866246]
57.
Rao A, Hickman LD, Sibbritt D, et al. Is energy healing an effective non-pharmacological therapy for improving symptom management of chronic illnesses? A systematic review. Complementary therapies in clinical practice. 2016 Nov;25:26–41. PMID: 27863608. [PubMed: 27863608]
58.
Lewis J, Ray P, Liaw ST. Recent Worldwide Developments in eHealth and mHealth to more Effectively Manage Cancer and other Chronic Diseases - A Systematic Review. Yearbook of medical informatics. 2016 Nov 10(1):93–108. PMID: 27830236. [PMC free article: PMC5171554] [PubMed: 27830236]
59.
Jornten-Karlsson M, Pintat S, Molloy-Bland M, et al. Patient-Centered Interventions to Improve Adherence to Statins: A Narrative Synthesis of Systematically Identified Studies. Drugs. 2016 Oct;76(15):1447–65. PMID: 27677773. [PMC free article: PMC5047948] [PubMed: 27677773]
60.
Bartlett Ellis RJ, Welch JL. Medication-taking behaviours in chronic kidney disease with multiple chronic conditions: a meta-ethnographic synthesis of qualitative studies. Journal of clinical nursing. 2017 Mar;26(5–6):586–98. PMID: 27648739. [PubMed: 27648739]
61.
Boehmer KR, Gionfriddo MR, Rodriguez-Gutierrez R, et al. Patient capacity and constraints in the experience of chronic disease: a qualitative systematic review and thematic synthesis. BMC family practice. 2016 Sep 1;17:127. PMID: 27585439. [PMC free article: PMC5009523] [PubMed: 27585439]
62.
Totten AM, Womack DM, Eden KB, et al. AHRQ Comparative Effectiveness Technical Briefs. Telehealth: Mapping the Evidence for Patient Outcomes From Systematic Reviews. Rockville (MD): Agency for Healthcare Research and Quality (US); 2016. [PubMed: 27536752]
63.
Jiang D, Kong W, Jiang JJ. Patient Engagement in Randomized Controlled Tai Chi Clinical Trials among the Chronically Ill. Reviews on recent clinical trials. 2017;12(1):24–33. PMID: 27527892. [PubMed: 27527892]
64.
Brzan PP, Rotman E, Pajnkihar M, et al. Mobile Applications for Control and Self Management of Diabetes: A Systematic Review. Journal of medical systems. 2016 Sep;40(9):210. PMID: 27520615. [PubMed: 27520615]
65.
Ershad Sarabi R, Sadoughi F, Jamshidi Orak R, et al. The Effectiveness of Mobile Phone Text Messaging in Improving Medication Adherence for Patients with Chronic Diseases: A Systematic Review. Iranian Red Crescent medical journal. 2016 May;18(5):e25183. PMID: 27437126. [PMC free article: PMC4939231] [PubMed: 27437126]
66.
Gucciardi E, Jean-Pierre N, Karam G, et al. Designing and delivering facilitated storytelling interventions for chronic disease self-management: a scoping review. BMC health services research. 2016 Jul 11;16:249. PMID: 27401836. [PMC free article: PMC4940988] [PubMed: 27401836]
67.
Matthew-Maich N, Harris L, Ploeg J, et al. Designing, Implementing, and Evaluating Mobile Health Technologies for Managing Chronic Conditions in Older Adults: A Scoping Review. JMIR mHealth and uHealth. 2016 Jun 9;4(2):e29. PMID: 27282195. [PMC free article: PMC4919548] [PubMed: 27282195]
68.
van Schie D, Castelein S, van der Bijl J, et al. Systematic review of self-management in patients with schizophrenia: psychometric assessment of tools, levels of self-management and associated factors. Journal of advanced nursing. 2016 Nov;72(11):2598–611. PMID: 27200500. [PubMed: 27200500]
69.
Scarton LJ, de Groot M. Emotional and Behavioral Aspects of Diabetes in American Indians/Alaska Natives. Health education & behavior : the official publication of the Society for Public Health Education. 2017 Feb;44(1):70–82. PMID: 27179289. [PubMed: 27179289]
70.
Totten AM, White-Chu EF, Wasson N, et al. AHRQ Comparative Effectiveness Reviews. Home-Based Primary Care Interventions. Rockville (MD): Agency for Healthcare Research and Quality (US); 2016. [PubMed: 27123512]
71.
Yasmin F, Banu B, Zakir SM, et al. Positive influence of short message service and voice call interventions on adherence and health outcomes in case of chronic disease care: a systematic review. BMC medical informatics and decision making. 2016 Apr 22;16:46. PMID: 27106263. [PMC free article: PMC4841956] [PubMed: 27106263]
72.
Vernooij RW, Willson M, Gagliardi AR. Characterizing patient-oriented tools that could be packaged with guidelines to promote self-management and guideline adoption: a meta-review. Implementation science : IS. 2016 Apr 14;11:52. PMID: 27079375. [PMC free article: PMC4832541] [PubMed: 27079375]
73.
Morgan HM, Entwistle VA, Cribb A, et al. We need to talk about purpose: a critical interpretive synthesis of health and social care professionals’ approaches to self-management support for people with long-term conditions. Health expectations : an international journal of public participation in health care and health policy. 2017 Apr;20(2):243–59. PMID: 27075246. [PMC free article: PMC5354019] [PubMed: 27075246]
74.
Mackey LM, Doody C, Werner EL, et al. Self-Management Skills in Chronic Disease Management: What Role Does Health Literacy Have? Medical decision making : an international journal of the Society for Medical Decision Making. 2016 Aug;36(6):741–59. PMID: 27053527. [PubMed: 27053527]
75.
Allen C, Vassilev I, Kennedy A, et al. Long-Term Condition Self-Management Support in Online Communities: A Meta-Synthesis of Qualitative Papers. Journal of medical Internet research. 2016 Mar 10;18(3):e61. PMID: 26965990. [PMC free article: PMC4807245] [PubMed: 26965990]
76.
Duprez V, Van Hooft SM, Dwarswaard J, et al. The development and psychometric validation of the self-efficacy and performance in self-management support (SEPSS) Instrument. Journal of advanced nursing. 2016 Jun;72(6):1381–95. PMID: 26913585. [PubMed: 26913585]
77.
Wiering B, de Boer D, Delnoij D. Patient involvement in the development of patient-reported outcome measures: a scoping review. Health expectations : an international journal of public participation in health care and health policy. 2017 Feb;20(1):11–23. PMID: 26889874. [PMC free article: PMC5217930] [PubMed: 26889874]
78.
de Ridder M, Kim J, Jing Y, et al. A systematic review on incentive-driven mobile health technology: As used in diabetes management. Journal of telemedicine and telecare. 2017 Jan;23(1):26–35. PMID: 26888421. [PubMed: 26888421]
79.
Willis EA, Szabo-Reed AN, Ptomey LT, et al. Do weight management interventions delivered by online social networks effectively improve body weight, body composition, and chronic disease risk factors? A systematic review. Journal of telemedicine and telecare. 2017 Feb;23(2):263–72. PMID: 26880695. [PMC free article: PMC4985486] [PubMed: 26880695]
80.
Arnold LM, Gebke KB, Choy EH. Fibromyalgia: management strategies for primary care providers. International journal of clinical practice. 2016 Feb;70(2):99–112. PMID: 26817567. [PMC free article: PMC6093261] [PubMed: 26817567]
81.
Benyamina A, Reynaud M. [Management of alcohol use disorders in ambulatory care: Which follow-up and for how long?]. L’Encephale. 2016 Feb;42(1):67–73. PMID: 26796554. [PubMed: 26796554]
82.
Kogan AC, Wilber K, Mosqueda L. Person-Centered Care for Older Adults with Chronic Conditions and Functional Impairment: A Systematic Literature Review. Journal of the American Geriatrics Society. 2016 Jan;64(1):e1–7. PMID: 26626408. [PubMed: 26626408]
83.
Cruz J, Marques A, Figueiredo D. Impacts of COPD on family carers and supportive interventions: a narrative review. Health & social care in the community. 2017 Jan;25(1):11–25. PMID: 26499310. [PubMed: 26499310]
84.
Altin SV, Halbach S, Ernstmann N, et al. [How can we measure cancer literacy?-A systematic review on the quality of available measurement tools]. Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen. 2015;109(6):466–82. PMID: 26474652. [PubMed: 26474652]
85.
Jamieson NJ, Hanson CS, Josephson MA, et al. Motivations, Challenges, and Attitudes to Self-management in Kidney Transplant Recipients: A Systematic Review of Qualitative Studies. American journal of kidney diseases : the official journal of the National Kidney Foundation. 2016 Mar;67(3):461–78. PMID: 26372087. [PubMed: 26372087]
86.
Keim-Malpass J, Letzkus LC, Kennedy C. Parent/caregiver health literacy among children with special health care needs: a systematic review of the literature. BMC pediatrics. 2015 Aug 5;15:92. PMID: 26242306. [PMC free article: PMC4525748] [PubMed: 26242306]
87.
Wu S, Kutlubaev MA, Chun HY, et al. Interventions for post-stroke fatigue. The Cochrane database of systematic reviews. 2015 Jul 2(7):Cd007030. PMID: 26133313. [PMC free article: PMC7387276] [PubMed: 26133313]
88.
Radhakrishnan K, Xie B, Berkley A, et al. Barriers and Facilitators for Sustainability of Tele-Homecare Programs: A Systematic Review. Health services research. 2016 Feb;51(1):48–75. PMID: 26119048. [PMC free article: PMC4722198] [PubMed: 26119048]
89.
Spaling MA, Currie K, Strachan PH, et al. Improving support for heart failure patients: a systematic review to understand patients’ perspectives on self-care. Journal of advanced nursing. 2015 Nov;71(11):2478–89. PMID: 26084885. [PubMed: 26084885]
90.
Fradgley EA, Paul CL, Bryant J. A systematic review of barriers to optimal outpatient specialist services for individuals with prevalent chronic diseases: what are the unique and common barriers experienced by patients in high income countries? International journal for equity in health. 2015 Jun 9;14:52. PMID: 26051244. [PMC free article: PMC4464126] [PubMed: 26051244]
91.
Bogetz JF, Rassbach CE, Bereknyei S, et al. Training health care professionals for 21st-century practice: a systematic review of educational interventions on chronic care. Academic medicine : journal of the Association of American Medical Colleges. 2015 Nov;90(11):1561–72. PMID: 26039140. [PubMed: 26039140]
92.
Davy C, Bleasel J, Liu H, et al. Effectiveness of chronic care models: opportunities for improving healthcare practice and health outcomes: a systematic review. BMC health services research. 2015 May 10;15:194. PMID: 25958128. [PMC free article: PMC4448852] [PubMed: 25958128]
93.
Khangura SD, Karaceper MD, Trakadis Y, et al. Scoping review of patient- and family-oriented outcomes and measures for chronic pediatric disease. BMC pediatrics. 2015 Feb 13;15:7. PMID: 25886474. [PMC free article: PMC4334411] [PubMed: 25886474]
94.
Zanchetta MS, Maheu C, Kolisnyk O, et al. Canadian Men’s Self-Management of Chronic Diseases: A Literature Analysis of Strategies for Dealing With Risks and Promoting Wellness. American journal of men’s health. 2017 Jul;11(4):1077–95. PMID: 25804217. [PMC free article: PMC5675330] [PubMed: 25804217]
95.
Dwarswaard J, Bakker EJ, van Staa A, et al. Self-management support from the perspective of patients with a chronic condition: a thematic synthesis of qualitative studies. Health expectations : an international journal of public participation in health care and health policy. 2016 Apr;19(2):194–208. PMID: 25619975. [PMC free article: PMC5055271] [PubMed: 25619975]
96.
Mbuagbaw L, Mursleen S, Lytvyn L, et al. Mobile phone text messaging interventions for HIV and other chronic diseases: an overview of systematic reviews and framework for evidence transfer. BMC health services research. 2015 Jan 22;15:33. PMID: 25609559. [PMC free article: PMC4308847] [PubMed: 25609559]
97.
Anglada-Martinez H, Riu-Viladoms G, Martin-Conde M, et al. Does mHealth increase adherence to medication? Results of a systematic review. International journal of clinical practice. 2015 Jan;69(1):9–32. PMID: 25472682. [PubMed: 25472682]
98.
Bratzke LC, Muehrer RJ, Kehl KA, et al. Self-management priority setting and decision-making in adults with multimorbidity: a narrative review of literature. International journal of nursing studies. 2015 Mar;52(3):744–55. PMID: 25468131. [PMC free article: PMC4315694] [PubMed: 25468131]
99.
Koch G, Wakefield BJ, Wakefield DS. Barriers and facilitators to managing multiple chronic conditions: a systematic literature review. Western journal of nursing research. 2015 Apr;37(4):498–516. PMID: 25193613. [PubMed: 25193613]
100.
Hynes L, Byrne M, Dinneen SF, et al. Barriers and facilitators associated with attendance at hospital diabetes clinics among young adults (15-30 years) with type 1 diabetes mellitus: a systematic review. Pediatric diabetes. 2016 Nov;17(7):509–18. PMID: 25080975. [PubMed: 25080975]
101.
Harkness K, Spaling MA, Currie K, et al. A systematic review of patient heart failure self-care strategies. The Journal of cardiovascular nursing. 2015 Mar–Apr;30(2):121–35. PMID: 24651683. [PubMed: 24651683]
102.
Ducasse D, Fond G. [Acceptance and commitment therapy]. L’Encephale. 2015 Feb;41(1):1–9. PMID: 24262333. [PubMed: 24262333]
103.
Vat LE, Finlay T, Jan Schuitmaker-Warnaar T, et al. Evaluating the “return on patient engagement initiatives” in medicines research and development: A literature review. Health expectations : an international journal of public participation in health care and health policy. 2019 Sep 6. PMID: 31489988. [PMC free article: PMC6978865] [PubMed: 31489988]
104.
Pham C, Lizarondo L, Karnon J, et al. Strategies for implementing shared decision making in elective surgery by health care practitioners: A systematic review. Journal of evaluation in clinical practice. 2019 Sep 6. PMID: 31490593. [PubMed: 31490593]
105.
Harris J, Haltbakk J, Dunning T, et al. How patient and community involvement in diabetes research influences health outcomes: A realist review. Health expectations : an international journal of public participation in health care and health policy. 2019 Jul 8. PMID: 31286639. [PMC free article: PMC6803418] [PubMed: 31286639]
106.
Vromans RD, van Eenbergen MC, Pauws SC, et al. Communicative aspects of decision aids for localized prostate cancer treatment - A systematic review. Urologic oncology. 2019 Jul;37(7):409–29. PMID: 31053529. [PubMed: 31053529]
107.
Chegini Z, Arab-Zozani M, Janati A. Patient and Health Professional Perspectives about Engaging Patients in Addressing Patient Safety: A Systematic Review Protocol. Open access Macedonian journal of medical sciences. 2019 May 15;7(9):1561–5. PMID: 31198473. [PMC free article: PMC6542410] [PubMed: 31198473]
108.
Yiu A, Bajorek B. Patient-focused interventions to support vulnerable people using oral anticoagulants: a narrative review. Therapeutic advances in drug safety. 2019;10:2042098619847423. PMID: 31205676. [PMC free article: PMC6535713] [PubMed: 31205676]
109.
Covvey JR, Kamal KM, Gorse EE, et al. Barriers and facilitators to shared decision-making in oncology: a systematic review of the literature. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. 2019 May;27(5):1613–37. PMID: 30737578. [PubMed: 30737578]
110.
Manias E, Bucknall T, Hughes C, et al. Family involvement in managing medications of older patients across transitions of care: a systematic review. BMC geriatrics. 2019 Mar 29;19(1):95. PMID: 30925899. [PMC free article: PMC6441224] [PubMed: 30925899]
111.
Larsen MH, Hagen KB, Krogstad AL, et al. Shared Decision Making in Psoriasis: A Systematic Review of Quantitative and Qualitative Studies. American journal of clinical dermatology. 2019 Feb;20(1):13–29. PMID: 30324563. [PubMed: 30324563]
112.
de Mik SML, Stubenrouch FE, Balm R, et al. Systematic review of shared decision-making in surgery. The British journal of surgery. 2018 Dec;105(13):1721–30. PMID: 30357815. [PMC free article: PMC6282808] [PubMed: 30357815]
113.
Martinez-Millana A, Jarones E, Fernandez-Llatas C, et al. App Features for Type 1 Diabetes Support and Patient Empowerment: Systematic Literature Review and Benchmark Comparison. JMIR mHealth and uHealth. 2018 Nov 21;6(11):e12237. PMID: 30463839. [PMC free article: PMC6282013] [PubMed: 30463839]
114.
Odgers HL, Tong A, Lopez-Vargas P, et al. Research priority setting in childhood chronic disease: a systematic review. Archives of disease in childhood. 2018 Oct;103(10):942–51. PMID: 29643102. [PubMed: 29643102]
115.
Dukhanin V, Topazian R, DeCamp M. Metrics and Evaluation Tools for Patient Engagement in Healthcare Organization- and System-Level Decision-Making: A Systematic Review. International journal of health policy and management. 2018 Oct 1;7(10):889–903. PMID: 30316241. [PMC free article: PMC6186472] [PubMed: 30316241]
116.
Rochfort A, Beirne S, Doran G, et al. Does patient self-management education of primary care professionals improve patient outcomes: a systematic review. BMC family practice. 2018 Sep 29;19(1):163. PMID: 30268092. [PMC free article: PMC6164169] [PubMed: 30268092]
117.
Simblett S, Greer B, Matcham F, et al. Barriers to and Facilitators of Engagement With Remote Measurement Technology for Managing Health: Systematic Review and Content Analysis of Findings. Journal of medical Internet research. 2018 Jul 12;20(7):e10480. PMID: 30001997. [PMC free article: PMC6062692] [PubMed: 30001997]
118.
Menichetti J, Graffigna G, Steinsbekk A. What are the contents of patient engagement interventions for older adults? A systematic review of randomized controlled trials. Patient education and counseling. 2018 Jun;101(6):995–1005. PMID: 29246493. [PubMed: 29246493]
119.
Grant S, Hazlewood GS, Peay HL, et al. Practical Considerations for Using Online Methods to Engage Patients in Guideline Development. The patient. 2018 Apr;11(2):155–66. PMID: 29030831. [PubMed: 29030831]
120.
Manafo E, Petermann L, Vandall-Walker V, et al. Patient and public engagement in priority setting: A systematic rapid review of the literature. PloS one. 2018;13(3):e0193579. PMID: 29499043. [PMC free article: PMC5834195] [PubMed: 29499043]
121.
Kim C, Wright FC, Look Hong NJ, et al. Patient and provider experiences with active surveillance: A scoping review. PloS one. 2018;13(2):e0192097. PMID: 29401514. [PMC free article: PMC5798833] [PubMed: 29401514]
122.
Baines RL, Regan de Bere S. Optimizing patient and public involvement (PPI): Identifying its “essential” and “desirable” principles using a systematic review and modified Delphi methodology. Health expectations : an international journal of public participation in health care and health policy. 2018 Feb;21(1):327–35. PMID: 28929554. [PMC free article: PMC5750770] [PubMed: 28929554]
123.
Aronson PL, Shapiro ED, Niccolai LM, et al. Shared Decision-Making with Parents of Acutely Ill Children: A Narrative Review. Academic pediatrics. 2018 Jan - Feb;18(1):3–7. PMID: 28723588. [PMC free article: PMC5756675] [PubMed: 28723588]
124.
Young A, Menon D, Street J, et al. Exploring patient and family involvement in the lifecycle of an orphan drug: a scoping review. Orphanet journal of rare diseases. 2017 Dec 22;12(1):188. PMID: 29273068. [PMC free article: PMC5741909] [PubMed: 29273068]
125.
Land V, Parry R, Seymour J. Communication practices that encourage and constrain shared decision making in health-care encounters: Systematic review of conversation analytic research. Health expectations : an international journal of public participation in health care and health policy. 2017 Dec;20(6):1228–47. PMID: 28520201. [PMC free article: PMC5690232] [PubMed: 28520201]
126.
Williams N, Fleming C, Doubleday A. Patient and provider perspectives on shared decision making: a systematic review of the peer-reviewed literature. Journal of comparative effectiveness research. 2017 Nov;6(8):683–92. PMID: 29148283. [PubMed: 29148283]
127.
Sharpe EE, Karasouli E, Meyer C. Examining Factors of Engagement With Digital Interventions for Weight Management: Rapid Review. JMIR research protocols. 2017 Oct 23;6(10):e205. PMID: 29061557. [PMC free article: PMC5673884] [PubMed: 29061557]
128.
Doody O, Butler MP, Lyons R, et al. Families’ experiences of involvement in care planning in mental health services: an integrative literature review. Journal of psychiatric and mental health nursing. 2017 Aug;24(6):412–30. PMID: 28102020. [PubMed: 28102020]
129.
Zandstra D, Busser JAS, Aarts JWM, et al. Interventions to support shared decision-making for women with heavy menstrual bleeding: A systematic review. European journal of obstetrics, gynecology, and reproductive biology. 2017 Apr;211:156–63. PMID: 28273646. [PubMed: 28273646]
130.
Doherr H, Christalle E, Kriston L, et al. Use of the 9-item Shared Decision Making Questionnaire (SDM-Q-9 and SDM-Q-Doc) in intervention studies-A systematic review. PloS one. 2017;12(3):e0173904. PMID: 28358864. [PMC free article: PMC5373562] [PubMed: 28358864]
131.
Alvarado MM, Kum HC, Gonzalez Coronado K, et al. Barriers to Remote Health Interventions for Type 2 Diabetes: A Systematic Review and Proposed Classification Scheme. Journal of medical Internet research. 2017 Feb 13;19(2):e28. PMID: 28193598. [PMC free article: PMC5329647] [PubMed: 28193598]
132.
Olding M, McMillan SE, Reeves S, et al. Patient and family involvement in adult critical and intensive care settings: a scoping review. Health expectations : an international journal of public participation in health care and health policy. 2016 Dec;19(6):1183–202. PMID: 27878937. [PMC free article: PMC5139045] [PubMed: 27878937]
133.
Singer AE, Ash T, Ochotorena C, et al. A Systematic Review of Family Meeting Tools in Palliative and Intensive Care Settings. The American journal of hospice & palliative care. 2016 Sep;33(8):797–806. PMID: 26213225. [PMC free article: PMC4728031] [PubMed: 26213225]
134.
Miller LM, Whitlatch CJ, Lyons KS. Shared decision-making in dementia: A review of patient and family carer involvement. Dementia (London, England). 2016 Sep;15(5):1141–57. PMID: 25370075. [PubMed: 25370075]
135.
Chaet AV, Morshedi B, Wells KJ, et al. Spanish-Language Consumer Health Information Technology Interventions: A Systematic Review. Journal of medical Internet research. 2016 Aug 10;18(8):e214. PMID: 27511437. [PMC free article: PMC4997005] [PubMed: 27511437]
136.
Barnes GD, Izzo B, Conte ML, et al. Use of decision aids for shared decision making in venous thromboembolism: A systematic review. Thrombosis research. 2016 Jul;143:71–5. PMID: 27203185. [PubMed: 27203185]
137.
Walsh S, Golden E, Priebe S. Systematic review of patients’ participation in and experiences of technology-based monitoring of mental health symptoms in the community. BMJ open. 2016 Jun 21;6(6):e008362. PMID: 27329437. [PMC free article: PMC4916567] [PubMed: 27329437]
138.
Peek ME, Lopez FY, Williams HS, et al. Development of a Conceptual Framework for Understanding Shared Decision making Among African-American LGBT Patients and their Clinicians. Journal of general internal medicine. 2016 Jun;31(6):677–87. PMID: 27008649. [PMC free article: PMC4870421] [PubMed: 27008649]
139.
Oczkowski SJ, Chung HO, Hanvey L, et al. Communication tools for end-of-life decision-making in the intensive care unit: a systematic review and meta-analysis. Critical care (London, England). 2016 Apr 9;20:97. PMID: 27059989. [PMC free article: PMC4826553] [PubMed: 27059989]
140.
Otte-Trojel T, de Bont A, Rundall TG, et al. What do we know about developing patient portals? a systematic literature review. Journal of the American Medical Informatics Association : JAMIA. 2016 Apr;23(e1):e162–8. PMID: 26335985. [PMC free article: PMC4954617] [PubMed: 26335985]
141.
Kynoch K, Chang A, Coyer F, et al. The effectiveness of interventions to meet family needs of critically ill patients in an adult intensive care unit: a systematic review update. JBI database of systematic reviews and implementation reports. 2016 Mar;14(3):181–234. PMID: 27532144. [PubMed: 27532144]
142.
Gagliardi AR, Legare F, Brouwers MC, et al. Patient-mediated knowledge translation (PKT) interventions for clinical encounters: a systematic review. Implementation science : IS. 2016 Feb 29;11:26. PMID: 26923462. [PMC free article: PMC4770686] [PubMed: 26923462]
143.
Phillips NM, Street M, Haesler E. A systematic review of reliable and valid tools for the measurement of patient participation in healthcare. BMJ quality & safety. 2016 Feb;25(2):110–7. PMID: 26415751. [PubMed: 26415751]
144.
Syrowatka A, Kromker D, Meguerditchian AN, et al. Features of Computer-Based Decision Aids: Systematic Review, Thematic Synthesis, and Meta-Analyses. Journal of medical Internet research. 2016 Jan 26;18(1):e20. PMID: 26813512. [PMC free article: PMC4748141] [PubMed: 26813512]
145.
Snyder H, Engstrom J. The antecedents, forms and consequences of patient involvement: A narrative review of the literature. International journal of nursing studies. 2016 Jan;53:351–78. PMID: 26602069. [PubMed: 26602069]
146.
Coxeter P, Del Mar CB, McGregor L, et al. Interventions to facilitate shared decision making to address antibiotic use for acute respiratory infections in primary care. The Cochrane database of systematic reviews. 2015 Nov 12(11):Cd010907. PMID: 26560888. [PMC free article: PMC6464273] [PubMed: 26560888]
147.
Calvillo J, Roman I, Roa LM. How technology is empowering patients? A literature review. Health expectations : an international journal of public participation in health care and health policy. 2015 Oct;18(5):643–52. PMID: 23711169. [PMC free article: PMC5060865] [PubMed: 23711169]
148.
Couet N, Desroches S, Robitaille H, et al. Assessments of the extent to which health-care providers involve patients in decision making: a systematic review of studies using the OPTION instrument. Health expectations : an international journal of public participation in health care and health policy. 2015 Aug;18(4):542–61. PMID: 23451939. [PMC free article: PMC5060794] [PubMed: 23451939]
149.
Welch JL, Johnson M, Zimmerman L, et al. Self-management interventions in stages 1 to 4 chronic kidney disease: an integrative review. Western journal of nursing research. 2015 May;37(5):652–78. PMID: 25239136. [PMC free article: PMC4364922] [PubMed: 25239136]
150.
Vaismoradi M, Jordan S, Kangasniemi M. Patient participation in patient safety and nursing input - a systematic review. Journal of clinical nursing. 2015 Mar;24(5–6):627–39. PMID: 25178172. [PubMed: 25178172]
151.
Menon D, Stafinski T, Dunn A, et al. Involving patients in reducing decision uncertainties around orphan and ultra-orphan drugs: a rare opportunity? The patient. 2015 Feb;8(1):29–39. PMID: 25516506. [PubMed: 25516506]
152.
Shay LA, Lafata JE. Where is the evidence? A systematic review of shared decision making and patient outcomes. Medical decision making : an international journal of the Society for Medical Decision Making. 2015 Jan;35(1):114–31. PMID: 25351843. [PMC free article: PMC4270851] [PubMed: 25351843]

No comparison group

1.
De Nunzio C, Presicce F, Lombardo R, et al. Patient centred care for the medical treatment of lower urinary tract symptoms in patients with benign prostatic obstruction: a key point to improve patients’ care - a systematic review. BMC urology. 2018 Jun 26;18(1):62. PMID: 29940928. [PMC free article: PMC6019782] [PubMed: 29940928]
2.
Slater H, Campbell JM, Stinson JN, et al. End User and Implementer Experiences of mHealth Technologies for Noncommunicable Chronic Disease Management in Young Adults: Systematic Review. Journal of medical Internet research. 2017 Dec 12;19(12):e406. PMID: 29233804. [PMC free article: PMC5743925] [PubMed: 29233804]
3.
Fernandes LTB Nobrega VMD Silva MEA et al. Supported self-care for children and adolescents with chronic disease and their families. Revista brasileira de enfermagem. 2017 Nov–Dec;70(6):1318–29. PMID: 29160496. [PubMed: 29160496]
4.
Morton K, Dennison L, May C, et al. Using digital interventions for self-management of chronic physical health conditions: A meta-ethnography review of published studies. Patient education and counseling. 2017 Apr;100(4):616–35. PMID: 28029572. [PMC free article: PMC5380218] [PubMed: 28029572]
5.
Reisinho MD, Gomes BP. Nursing interventions in monitoring the adolescent with Cystic Fibrosis: a literature review. Revista latino-americana de enfermagem. 2016 Dec 8;24:e2845. PMID: 27982311. [PMC free article: PMC5171783] [PubMed: 27982311]
6.
Boehmer KR, Gionfriddo MR, Rodriguez-Gutierrez R, et al. Patient capacity and constraints in the experience of chronic disease: a qualitative systematic review and thematic synthesis. BMC family practice. 2016 Sep 1;17:127. PMID: 27585439. [PMC free article: PMC5009523] [PubMed: 27585439]
7.
Allen C, Vassilev I, Kennedy A, et al. Long-Term Condition Self-Management Support in Online Communities: A Meta-Synthesis of Qualitative Papers. Journal of medical Internet research. 2016 Mar 10;18(3):e61. PMID: 26965990. [PMC free article: PMC4807245] [PubMed: 26965990]
8.
Jamieson NJ, Hanson CS, Josephson MA, et al. Motivations, Challenges, and Attitudes to Self-management in Kidney Transplant Recipients: A Systematic Review of Qualitative Studies. American journal of kidney diseases : the official journal of the National Kidney Foundation. 2016 Mar;67(3):461–78. PMID: 26372087. [PubMed: 26372087]
9.
Fu Y, McNichol E, Marczewski K, et al. Patient-professional partnerships and chronic back pain self-management: a qualitative systematic review and synthesis. Health & social care in the community. 2016 May;24(3):247–59. PMID: 25809204. [PubMed: 25809204]
10.
Zanchetta MS, Maheu C, Kolisnyk O, et al. Canadian Men’s Self-Management of Chronic Diseases: A Literature Analysis of Strategies for Dealing With Risks and Promoting Wellness. American journal of men’s health. 2017 Jul;11(4):1077–95. PMID: 25804217. [PMC free article: PMC5675330] [PubMed: 25804217]
11.
Dwarswaard J, Bakker EJ, van Staa A, et al. Self-management support from the perspective of patients with a chronic condition: a thematic synthesis of qualitative studies. Health expectations : an international journal of public participation in health care and health policy. 2016 Apr;19(2):194–208. PMID: 25619975. [PMC free article: PMC5055271] [PubMed: 25619975]
12.
Bratzke LC, Muehrer RJ, Kehl KA, et al. Self-management priority setting and decision-making in adults with multimorbidity: a narrative review of literature. International journal of nursing studies. 2015 Mar;52(3):744–55. PMID: 25468131. [PMC free article: PMC4315694] [PubMed: 25468131]
13.
Harkness K, Spaling MA, Currie K, et al. A systematic review of patient heart failure self-care strategies. The Journal of cardiovascular nursing. 2015 Mar–Apr;30(2):121–35. PMID: 24651683. [PubMed: 24651683]
14.
Lepore M, Scales K, Anderson RA, et al. Person-directed care planning in nursing homes: A scoping review. International journal of older people nursing. 2018 Dec;13(4):e12212. PMID: 30358099. [PMC free article: PMC6282715] [PubMed: 30358099]
15.
Davis S, Roudsari A, Raworth R, et al. Shared decision-making using personal health record technology: a scoping review at the crossroads. Journal of the American Medical Informatics Association : JAMIA. 2017 Jul 1;24(4):857–66. PMID: 28158573. [PMC free article: PMC7651971] [PubMed: 28158573]
16.
Alvarado MM, Kum HC, Gonzalez Coronado K, et al. Barriers to Remote Health Interventions for Type 2 Diabetes: A Systematic Review and Proposed Classification Scheme. Journal of medical Internet research. 2017 Feb 13;19(2):e28. PMID: 28193598. [PMC free article: PMC5329647] [PubMed: 28193598]
17.
Rose A, Rosewilliam S, Soundy A. Shared decision making within goal setting in rehabilitation settings: A systematic review. Patient education and counseling. 2017 Jan;100(1):65–75. PMID: 27486052. [PubMed: 27486052]

Not in English

1.
Ulbrich EM, Mattei AT, de Fatima Mantovani M, et al. Care models for people with chronic diseases: integrative review. Investigacion y educacion en enfermeria. 2017 Jan;35(1):8–16. PMID: 29767919. [PubMed: 29767919]
2.
Ducasse D, Fond G. [Acceptance and commitment therapy]. L’Encephale. 2015 Feb;41(1):1–9. PMID: 24262333. [PubMed: 24262333]

Non-USA based studies included in this systematic review

1.
Navodia N, Wahoush O, Tang T, et al. Culturally Tailored Self-Management Interventions for South Asians With Type 2 Diabetes: A Systematic Review. Canadian journal of diabetes. 2019 Aug;43(6):445–52. PMID: 31375180. [PubMed: 31375180]
2.
Tabassum R, Froeschl G, Cruz JP, et al. Untapped aspects of mass media campaigns for changing health behaviour towards non-communicable diseases in Bangladesh. Globalization and health. 2018 Jan 18;14(1):7. PMID: 29347986. [PMC free article: PMC5774160] [PubMed: 29347986]
3.
Lee MC, Wu SV, Hsieh NC, et al. Self-Management Programs on eGFR, Depression, and Quality of Life among Patients with Chronic Kidney Disease: A Meta-Analysis. Asian nursing research. 2016 Dec;10(4):255–62. PMID: 28057311. [PubMed: 28057311]
4.
Milavec Kapun M, Sustersic O, Rajkovic V. The Integrated Patient’s Self-Care Process Model. Studies in health technology and informatics. 2016;225:108–12. PMID: 27332172. [PubMed: 27332172]
5.
Wakefield D, Bayly J, Selman LE, et al. Patient empowerment, what does it mean for adults in the advanced stages of a life-limiting illness: A systematic review using critical interpretive synthesis. Palliative medicine. 2018 Sep;32(8):1288–304. PMID: 29956568. [PMC free article: PMC6088522] [PubMed: 29956568]

Not a systematic review

1.
Lombardero A, Hansen CD, Richie AE, et al. A Narrative Review of the Literature on Insufficient Sleep, Insomnia, and Health Correlates in American Indian/Alaska Native Populations. Journal of environmental and public health. 2019;2019:4306463. PMID: 31360174. [PMC free article: PMC6644264] [PubMed: 31360174]
2.
Miller WR. The Projected Care Trajectory for Persons with Epilepsy. The Nursing clinics of North America. 2019 Sep;54(3):425–35. PMID: 31331628. [PubMed: 31331628]
3.
Mollard E, Michaud K. Mobile Apps for Rheumatoid Arthritis: Opportunities and Challenges. Rheumatic diseases clinics of North America. 2019 May;45(2):197–209. PMID: 30952393. [PubMed: 30952393]
4.
Bertoncello C, Colucci M, Baldovin T, et al. How does it work? Factors involved in telemedicine home-interventions effectiveness: A review of reviews. PloS one. 2018;13(11):e0207332. PMID: 30440004. [PMC free article: PMC6237381] [PubMed: 30440004]
5.
Pinchera B, DelloIacono D, Lawless CA. Best Practices for Patient Self-Management: Implications for Nurse Educators, Patient Educators, and Program Developers. Journal of continuing education in nursing. 2018 Sep 1;49(9):432–40. PMID: 30148541. [PubMed: 30148541]
6.
Mabweazara SZ, Ley C, Leach LL. Physical activity, social support and socio-economic status amongst persons living with HIV and AIDS: a review. African journal of AIDS research : AJAR. 2018 Jul;17(2):203–12. PMID: 30003848. [PubMed: 30003848]
7.
Atreja A, Otobo E, Ramireddy K, et al. Remote Patient Monitoring in IBD: Current State and Future Directions. Current gastroenterology reports. 2018 Mar 7;20(2):6. PMID: 29516186. [PubMed: 29516186]
8.
Kahan SI. Practical Strategies for Engaging Individuals With Obesity in Primary Care. Mayo Clinic proceedings. 2018 Mar;93(3):351–9. PMID: 29502565. [PubMed: 29502565]
9.
Pugh P, Hemingway P, Christian M, et al. Children’s, parents’ and other stakeholders’ perspectives on early dietary self-management to delay disease progression of chronic disease in children: a protocol for a mixed studies systematic review with a narrative synthesis. Systematic reviews. 2018 Jan 25;7(1):20. PMID: 29370832. [PMC free article: PMC5785819] [PubMed: 29370832]
10.
Flanagan S, Damery S, Combes G. The effectiveness of integrated care interventions in improving patient quality of life (QoL) for patients with chronic conditions. An overview of the systematic review evidence. Health and quality of life outcomes. 2017 Sep 29;15(1):188. PMID: 28962570. [PMC free article: PMC5622519] [PubMed: 28962570]
11.
Bassola B, Lusignani M. Self-care in People With Motor Neuron Disease: An Integrative Review. The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses. 2017 Oct;49(5):311–7. PMID: 28817497. [PubMed: 28817497]
12.
Ghazisaeidi M, Safdari R, Goodini A, et al. Digital games as an effective approach for cancer management: Opportunities and challenges. Journal of education and health promotion. 2017;6:30. PMID: 28584830. [PMC free article: PMC5441205] [PubMed: 28584830]
13.
Hanlon P, Daines L, Campbell C, et al. Telehealth Interventions to Support Self-Management of Long-Term Conditions: A Systematic Metareview of Diabetes, Heart Failure, Asthma, Chronic Obstructive Pulmonary Disease, and Cancer. Journal of medical Internet research. 2017 May 17;19(5):e172. PMID: 28526671. [PMC free article: PMC5451641] [PubMed: 28526671]
14.
Wilson MG, Lavis JN, Gauvin FP. Designing Integrated Approaches to Support People with Multimorbidity: Key Messages from Systematic Reviews, Health System Leaders and Citizens. Healthcare policy = Politiques de sante. 2016 Nov;12(2):91–104. PMID: 28032827. [PMC free article: PMC5221714] [PubMed: 28032827]
15.
Kessler D, Liddy C. An integrative literature review to examine the provision of self-management support following transient ischaemic attack. Journal of clinical nursing. 2017 Nov;26(21–22):3256–70. PMID: 28001339. [PubMed: 28001339]
16.
Brzan PP, Rotman E, Pajnkihar M, et al. Mobile Applications for Control and Self Management of Diabetes: A Systematic Review. Journal of medical systems. 2016 Sep;40(9):210. PMID: 27520615. [PubMed: 27520615]
17.
Kitsiou S, Pare G, Jaana M. Effects of home telemonitoring interventions on patients with chronic heart failure: an overview of systematic reviews. Journal of medical Internet research. 2015 Mar 12;17(3):e63. PMID: 25768664. [PMC free article: PMC4376138] [PubMed: 25768664]
18.
Mbuagbaw L, Mursleen S, Lytvyn L, et al. Mobile phone text messaging interventions for HIV and other chronic diseases: an overview of systematic reviews and framework for evidence transfer. BMC health services research. 2015 Jan 22;15:33. PMID: 25609559. [PMC free article: PMC4308847] [PubMed: 25609559]
19.
Chegini Z, Arab-Zozani M, Janati A. Patient and Health Professional Perspectives about Engaging Patients in Addressing Patient Safety: A Systematic Review Protocol. Open access Macedonian journal of medical sciences. 2019 May 15;7(9):1561–5. PMID: 31198473. [PMC free article: PMC6542410] [PubMed: 31198473]
20.
Finset A. Special Section: Review articles on decision making and patient education interventions. Patient education and counseling. 2017 Dec;100(12):2157–8. PMID: 29032951. [PubMed: 29032951]
21.
Doody O, Butler MP, Lyons R, et al. Families’ experiences of involvement in care planning in mental health services: an integrative literature review. Journal of psychiatric and mental health nursing. 2017 Aug;24(6):412–30. PMID: 28102020. [PubMed: 28102020]
22.
Roberts S, Chaboyer W, Gonzalez R, et al. Using technology to engage hospitalised patients in their care: a realist review. BMC health services research. 2017 Jun 6;17(1):388. PMID: 28587640. [PMC free article: PMC5461760] [PubMed: 28587640]
23.
Scholz B, Gordon S, Happell B. Consumers in mental health service leadership: A systematic review. International journal of mental health nursing. 2017 Feb;26(1):20–31. PMID: 28093883. [PubMed: 28093883]
24.
Welch JL, Johnson M, Zimmerman L, et al. Self-management interventions in stages 1 to 4 chronic kidney disease: an integrative review. Western journal of nursing research. 2015 May;37(5):652–78. PMID: 25239136. [PMC free article: PMC4364922] [PubMed: 25239136]

Others

1.
Vo V, Auroy L, Sarradon-Eck A. Patients’ Perceptions of mHealth Apps: Meta-Ethnographic Review of Qualitative Studies. JMIR mHealth and uHealth. 2019 Jul 10;7(7):e13817. PMID: 31293246. [PMC free article: PMC6652126] [PubMed: 31293246]
2.
Mollard E, Michaud K. Mobile Apps for Rheumatoid Arthritis: Opportunities and Challenges. Rheumatic diseases clinics of North America. 2019 May;45(2):197–209. PMID: 30952393. [PubMed: 30952393]
3.
Sample D, Turner J. Improving gluten free diet adherence by youth with celiac disease. International journal of adolescent medicine and health. 2019 Mar 15. PMID: 30875325. [PubMed: 30875325]
4.
Maddison R, Cartledge S, Rogerson M, et al. Usefulness of Wearable Cameras as a Tool to Enhance Chronic Disease Self-Management: Scoping Review. JMIR mHealth and uHealth. 2019 Jan 3;7(1):e10371. PMID: 30609985. [PMC free article: PMC6682294] [PubMed: 30609985]
5.
Pinchera B, DelloIacono D, Lawless CA. Best Practices for Patient Self-Management: Implications for Nurse Educators, Patient Educators, and Program Developers. Journal of continuing education in nursing. 2018 Sep 1;49(9):432–40. PMID: 30148541. [PubMed: 30148541]
6.
Kusnanto H, Agustian D, Hilmanto D. Biopsychosocial model of illnesses in primary care: A hermeneutic literature review. Journal of family medicine and primary care. 2018 May–Jun;7(3):497–500. PMID: 30112296. [PMC free article: PMC6069638] [PubMed: 30112296]
7.
Byambasuren O, Sanders S, Beller E, et al. Prescribable mHealth apps identified from an overview of systematic reviews. NPJ digital medicine. 2018;1:12. PMID: 31304297. [PMC free article: PMC6550270] [PubMed: 31304297]
8.
Marcolino MS, Oliveira JAQ, D’Agostino M, et al. The Impact of mHealth Interventions: Systematic Review of Systematic Reviews. JMIR mHealth and uHealth. 2018 Jan 17;6(1):e23. PMID: 29343463. [PMC free article: PMC5792697] [PubMed: 29343463]
9.
Lamore K, Montalescot L, Untas A. Treatment decision-making in chronic diseases: What are the family members’ roles, needs and attitudes? A systematic review. Patient education and counseling. 2017 Dec;100(12):2172–81. PMID: 28838630. [PubMed: 28838630]
10.
Ghazisaeidi M, Safdari R, Goodini A, et al. Digital games as an effective approach for cancer management: Opportunities and challenges. Journal of education and health promotion. 2017;6:30. PMID: 28584830. [PMC free article: PMC5441205] [PubMed: 28584830]
11.
Bland V, Sharma M. Physical activity interventions in African American women: A systematic review. Health promotion perspectives. 2017;7(2):52–9. PMID: 28326284. [PMC free article: PMC5350550] [PubMed: 28326284]
12.
Wilson MG, Lavis JN, Gauvin FP. Designing Integrated Approaches to Support People with Multimorbidity: Key Messages from Systematic Reviews, Health System Leaders and Citizens. Healthcare policy = Politiques de sante. 2016 Nov;12(2):91–104. PMID: 28032827. [PMC free article: PMC5221714] [PubMed: 28032827]
13.
Morton K, Dennison L, May C, et al. Using digital interventions for self-management of chronic physical health conditions: A meta-ethnography review of published studies. Patient education and counseling. 2017 Apr;100(4):616–35. PMID: 28029572. [PMC free article: PMC5380218] [PubMed: 28029572]
14.
Ershad Sarabi R, Sadoughi F, Jamshidi Orak R, et al. The Effectiveness of Mobile Phone Text Messaging in Improving Medication Adherence for Patients with Chronic Diseases: A Systematic Review. Iranian Red Crescent medical journal. 2016 May;18(5):e25183. PMID: 27437126. [PMC free article: PMC4939231] [PubMed: 27437126]
15.
Matthew-Maich N, Harris L, Ploeg J, et al. Designing, Implementing, and Evaluating Mobile Health Technologies for Managing Chronic Conditions in Older Adults: A Scoping Review. JMIR mHealth and uHealth. 2016 Jun 9;4(2):e29. PMID: 27282195. [PMC free article: PMC4919548] [PubMed: 27282195]
16.
Ganguli A, Clewell J, Shillington AC. The impact of patient support programs on adherence, clinical, humanistic, and economic patient outcomes: a targeted systematic review. Patient preference and adherence. 2016;10:711–25. PMID: 27175071. [PMC free article: PMC4854257] [PubMed: 27175071]
17.
Flodgren G, Rachas A, Farmer AJ, et al. Interactive telemedicine: effects on professional practice and health care outcomes. The Cochrane database of systematic reviews. 2015 Sep 7(9):Cd002098. PMID: 26343551. [PMC free article: PMC6473731] [PubMed: 26343551]
18.
Button K, Roos PE, Spasic I, et al. The clinical effectiveness of self-care interventions with an exercise component to manage knee conditions: A systematic review. The Knee. 2015 Oct;22(5):360–71. PMID: 26056046. [PMC free article: PMC4642743] [PubMed: 26056046]
19.
Dukhanin V, Topazian R, DeCamp M. Metrics and Evaluation Tools for Patient Engagement in Healthcare Organization- and System-Level Decision-Making: A Systematic Review. International journal of health policy and management. 2018 Oct 1;7(10):889–903. PMID: 30316241. [PMC free article: PMC6186472] [PubMed: 30316241]
20.
Finset A. Special Section: Review articles on decision making and patient education interventions. Patient education and counseling. 2017 Dec;100(12):2157–8. PMID: 29032951. [PubMed: 29032951]
21.
Olding M, McMillan SE, Reeves S, et al. Patient and family involvement in adult critical and intensive care settings: a scoping review. Health expectations : an international journal of public participation in health care and health policy. 2016 Dec;19(6):1183–202. PMID: 27878937. [PMC free article: PMC5139045] [PubMed: 27878937]
22.
Oczkowski SJ, Chung HO, Hanvey L, et al. Communication tools for end-of-life decision-making in the intensive care unit: a systematic review and meta-analysis. Critical care (London, England). 2016 Apr 9;20:97. PMID: 27059989. [PMC free article: PMC4826553] [PubMed: 27059989]
23.
Kynoch K, Chang A, Coyer F, et al. The effectiveness of interventions to meet family needs of critically ill patients in an adult intensive care unit: a systematic review update. JBI database of systematic reviews and implementation reports. 2016 Mar;14(3):181–234. PMID: 27532144. [PubMed: 27532144]
24.
Gagliardi AR, Legare F, Brouwers MC, et al. Patient-mediated knowledge translation (PKT) interventions for clinical encounters: a systematic review. Implementation science : IS. 2016 Feb 29;11:26. PMID: 26923462. [PMC free article: PMC4770686] [PubMed: 26923462]
25.
Snyder H, Engstrom J. The antecedents, forms and consequences of patient involvement: A narrative review of the literature. International journal of nursing studies. 2016 Jan;53:351–78. PMID: 26602069. [PubMed: 26602069]

Does not report any of the outcomes of interest (QoL, Patient satisfaction/experience, Medication adherence, Healthcare utilization, Chronic disease management outcome, Implementation measure)

1.
Tricco AC, Ashoor HM, Cardoso R, et al. Sustainability of knowledge translation interventions in healthcare decision-making: a scoping review. Implementation science : IS. 2016 Apr 21;11:55. PMID: 27097827. [PMC free article: PMC4839064] [PubMed: 27097827]
2.
Kogan AC, Wilber K, Mosqueda L. Person-Centered Care for Older Adults with Chronic Conditions and Functional Impairment: A Systematic Literature Review. Journal of the American Geriatrics Society. 2016 Jan;64(1):e1–7. PMID: 26626408. [PubMed: 26626408]
3.
Vromans RD, van Eenbergen MC, Pauws SC, et al. Communicative aspects of decision aids for localized prostate cancer treatment - A systematic review. Urologic oncology. 2019 Jul;37(7):409–29. PMID: 31053529. [PubMed: 31053529]
4.
Dogba MJ, Dossa AR, Breton E, et al. Using information and communication technologies to involve patients and the public in health education in rural and remote areas: a scoping review. BMC health services research. 2019 Feb 19;19(1):128. PMID: 30782147. [PMC free article: PMC6381697] [PubMed: 30782147]
5.
Simblett S, Greer B, Matcham F, et al. Barriers to and Facilitators of Engagement With Remote Measurement Technology for Managing Health: Systematic Review and Content Analysis of Findings. Journal of medical Internet research. 2018 Jul 12;20(7):e10480. PMID: 30001997. [PMC free article: PMC6062692] [PubMed: 30001997]
6.
Menichetti J, Graffigna G, Steinsbekk A. What are the contents of patient engagement interventions for older adults? A systematic review of randomized controlled trials. Patient education and counseling. 2018 Jun;101(6):995–1005. PMID: 29246493. [PubMed: 29246493]
7.
Young A, Menon D, Street J, et al. Exploring patient and family involvement in the lifecycle of an orphan drug: a scoping review. Orphanet journal of rare diseases. 2017 Dec 22;12(1):188. PMID: 29273068. [PMC free article: PMC5741909] [PubMed: 29273068]
8.
Schmidt K, Damm K, Prenzler A, et al. Preferences of lung cancer patients for treatment and decision-making: a systematic literature review. European journal of cancer care. 2016 Jul;25(4):580–91. PMID: 26676876. [PubMed: 26676876]
9.
Walsh S, Golden E, Priebe S. Systematic review of patients’ participation in and experiences of technology-based monitoring of mental health symptoms in the community. BMJ open. 2016 Jun 21;6(6):e008362. PMID: 27329437. [PMC free article: PMC4916567] [PubMed: 27329437]
10.
Menon D, Stafinski T, Dunn A, et al. Involving patients in reducing decision uncertainties around orphan and ultra-orphan drugs: a rare opportunity? The patient. 2015 Feb;8(1):29–39. PMID: 25516506. [PubMed: 25516506]
11.
Waid J, Kelly M. Supporting family engagement with child and adolescent mental health services: A scoping review. Health Soc Care Community. 2020 Jan 17. doi: 10.1111/hsc.12947. Epub ahead of print. PMID: 31951087. [PubMed: 31951087] [CrossRef]
12.
Menear M, Dugas M, Careau E, Chouinard MC, Dogba MJ, Gagnon MP, Gervais M, Gilbert M, Houle J, Kates N, Knowles S, Martin N, Nease DE Jr, Zomahoun HTV, Légaré F. Strategies for engaging patients and families in collaborative care programs for depression and anxiety disorders: A systematic review. J Affect Disord. 2020 Feb 15;263:528–539. doi: 10.1016/j.jad.2019.11.008. Epu. 2019 Nov 4. PMID: 31744737. [PubMed: 31744737] [CrossRef]

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