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National Clinical Guideline Centre (UK). Crohn's Disease: Management in Adults, Children and Young People. London: Royal College of Physicians (UK); 2012 Oct 10. (NICE Clinical Guidelines, No. 152.)

  • This publication is provided for historical reference only and the information may be out of date.

This publication is provided for historical reference only and the information may be out of date.

Cover of Crohn's Disease

Crohn's Disease: Management in Adults, Children and Young People.

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Appendix PPatient information themes

Healthcare professionals should prepare or have access to accurate and reliable information about the subjects below for people with Crohn's disease when they ask for it. These topics should be frequently reinforced and/or people directed to reliable sources of such information. Data taken from five patient surveys.1-5 and considered by the patient and carer members of the GDG to be important.

  • Therapy/management
  • Prognosis
  • Surgery
  • Cancer
  • Causes (aetiology)
  • Complications
  • Transmission
  • Symptoms
  • Investigation
  • Diet
  • New treatment and drugs
  • Medical examination
  • Effect on work
  • Sexual activity and pregnancy
  • Life insurance
  • Disability insurance
  • Side effects

1.1 Reference List

1.
Casellas F, Fontanet G, Borruel N, Malagelada JR. The opinion of patients with inflammatory bowel disease on healthcare received. Revista Espanola De Enfermedades Digestivas. 2004;96(3):174–184. [PubMed: 15053732]
2.
Martin A, Leone L, Castagliuolo I, Di Mario F, Naccarato R. What do patients want to know about their inflammatory bowel disease? Italian Journal of Gastroenterology. 1992;24(9):477–480. [PubMed: 1489977]
3.
Mayberry JF, Morris JS, Calcraft B, Rhodes J. Information assessment by patients of a booklet on Crohn's disease. Public Health. 1985;99(4):239–242. [PubMed: 4048384]
4.
O'sullivan MA, Mahmud N, Kelleher DP, Lovett E, O'Morain CA. Patient knowledge and educational needs in irritable bowel syndrome. European Journal of Gastroenterology and Hepatology. 2000;12(1):39–43. [PubMed: 10656208]
5.
Rees JE, Mayberry JF, Calcraft B. What the patient wants to know about Crohn's disease. Journal of Clinical Gastroenterology. 1983;5(3):221–222. [PubMed: 6863879]
Copyright © October 2012, National Clinical Guideline Centre.

Apart from any fair dealing for the purposes of research or private study, criticism or review, as permitted under the Copyright, Designs and Patents Act, 1988, no part of this publication may be reproduced, stored or transmitted in any form or by any means, without the prior written permission of the publisher or, in the case of reprographic reproduction, in accordance with the terms of licences issued by the Copyright Licensing Agency in the UK. Enquiries concerning reproduction outside the terms stated here should be sent to the publisher at the UK address printed on this page.

The use of registered names, trademarks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant laws and regulations and therefore for general use.

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Bookshelf ID: NBK327554

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