The committee and staff are indebted to a number of individuals and organizations for their contributions to this report. The following individuals provided testimony to the committee:

• DONNA BENTON, Director, Older Adults Pacific Clinic
• MARIE A. BERNARD, Deputy Director, National Institute on Aging, National Institutes of Health
• CLIFF BURT, Caregiver Specialist, Georgia Division of Aging Services
• CYNTHIA CALVERT, Founder and Principal, WORKFORCE 21C; Senior Counsel, WorkLife Law
• MARIE-THERESE CONNOLLY, Director, Life Long Justice; Senior Scholar, Woodrow Wilson International Center for Scholars
• EILEEN CRIMMINS, AARP Professor of Gerontology, Davis School of Gerontology, University of Southern California
• TOM DELBANCO, Co-Director, OpenNotes; Richard and Florence Koplow-James Tullis Professor of General Medicine and Primary Care, Harvard Medical School
• KAREN FREDRIKSEN-GOLDSEN, Professor and Director, Hartford Center of Excellence, University of Washington School of Social Work
• WINSTON GREENE, Family Caregiver
• KATHY KELLY, Executive Director, National Center on Caregiving, Family Caregiver Alliance
• KATHY KENYON, Family Caregiver
• NINA KOHN, Professor of Law, Syracuse University College of Law
• CAROL LEVINE, Director, Families and Health Care Project, United Hospital Fund
• SUSAN C. REINHARD, Senior Vice President and Director, AARP Public Policy Institute; Chief Strategist, Center to Champion Nursing in America
• ZALDY S. TAN, Medical Director, Alzheimer's and Dementia Care Program; Associate Professor, David Geffen School of Medicine, University of California, Los Angeles
• LAURA TREJO, General Manager, Los Angeles Department of Aging
• MARIKO YAMADA, Former State Assembly Member for California's 4th Assembly District
• DONNA L. YEE, Chief Executive Officer, Asian Community Center
• HEATHER YOUNG, Associate Vice Chancellor for Nursing, Betty Irene Moore School of Nursing, University of California, Davis

We also extend special thanks to the following individuals who were essential sources of information, generously giving their time and knowledge to further the committee's efforts:

• EILEEN APPELBAUM, Senior Economist, Center for Economic and Policy Research
• SCOTT BEACH, Center for Social and Urban Research, University of Pittsburgh
• ELLEN BLACKWELL, Senior Advisor, Centers for Medicare & Medicaid Services
• TERRY FULMER, Former Dean, Bouvé College of Health Sciences, Northeastern University
• BARBARA J. GAGE, Expert, Center for Health Policy, Brookings Institution
• MARISSA GORDON, Senior Health Information Privacy Specialist, U.S. Department of Health and Human Services (HHS)
• CHRISTINA HEIDE, Acting Deputy Director, Health Information Privacy, Office for Civil Rights, HHS
• SUSAN JENKINS, Administration for Community Living, HHS
• MEG KABAT, National Director, Caregiver Support Program, U.S. Department of Veterans Affairs
• HELEN LAMONT, Office of the Assistant Secretary for Planning and Evaluation, HHS
• SHARI LING, Deputy Chief Medical Officer, Center for Clinical Standards and Quality, Centers for Medicare & Medicaid Services
• GREG LINK, Aging Services Program Specialist, Administration for Community Living, HHS
• ELIZABETH McGLYNN, Director, Center for Effectiveness and Safety Research, Kaiser Permanente
• COLES MERCIER, Health Insurance Specialist, Centers for Medicare & Medicaid Services
• D. E. B. POTTER, Senior Survey Statistician, Agency for Healthcare Research and Quality, HHS
• RUTHIE ROSENFELD, Family Caregiver
• JANET SCHLARB, Center for Social and Urban Research, University of Pittsburgh
• RACHEL SEEGER, Senior Advisor, Public Affairs and Outreach, Office for Civil Rights, HHS
• JOAN WEISS, Senior Advisor, Health Resources and Services Administration

Funding for this study was provided by the Alliance for Aging Research, Alzheimer's Association, an anonymous donor, Archstone Foundation, California Health Care Foundation, The Commonwealth Fund, The Fan Fox and Leslie R. Samuels Foundation, Health Foundation of Western and Central New York, The John A. Hartford Foundation, May and Stanley Smith Charitable Trust, The Retirement Research Foundation, The Rosalinde and Arthur Gilbert Foundation, Santa Barbara Foundation, Tufts Health Plan Foundation, and the U.S. Department of Veterans Affairs. The committee appreciates the opportunity and support extended by the sponsors for the development of this report.

Many within the Health and Medicine Division of the National Academies of Sciences, Engineering, and Medicine were helpful to the study staff. We would like to thank Patrick Burke, Chelsea Frakes, Greta Gorman, Nicole Joy, Tracy Lustig, Bettina Ritter, and Lauren Shern.