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Roundtable on Health Literacy; Board on Population Health and Public Health Practice; Health and Medicine Division; National Academies of Sciences, Engineering, and Medicine. Relevance of Health Literacy to Precision Medicine: Proceedings of a Workshop. Washington (DC): National Academies Press (US); 2016 Apr 11.

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Relevance of Health Literacy to Precision Medicine: Proceedings of a Workshop.

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Appendix AWorkshop Agenda

  • Roundtable on Health Literacy
  • Relevance of Health Literacy to Precision Medicine: A Workshop March 2, 2016
  • Open Session
8:30-8:40 a.m.Welcome and Workshop Overview
  • Bernard Rosof, M.D., Chair, Roundtable on Health Literacy
8:40-9:00 a.m.Communication from the Genomic Era to Precision Medicine
  • Joseph D. McInerney, M.A., M.S.
  • Executive Vice President
  • American Society of Human Genetics
9:00-10:30 a.m.The Intersection of Health Literacy and Precision Medicine
9:00-9:05
  • Introduction of speakers
  • Ruth Parker, M.D. (moderator)
  • Professor of Medicine, Pediatrics, and Public Health
  • Emory University School of Medicine
9:05-9:20
  • What is precision medicine and how has it evolved over time?
  • Sara Van Driest, M.D., Ph.D.
  • Assistant Professor of Pediatrics
  • Vanderbilt University School of Medicine
9:20-9:35
  • What is health literacy and how has it evolved over time?
  • William Elwood, Ph.D.
  • Office of Behavioral and Social Sciences Research National Institutes of Health
9:35-9:50
  • Issues at the intersection of precision medicine and health literacy?
  • Michael S. Wolf, Ph.D., M.A., M.P.H.
  • Professor, Medicine and Learning Sciences
  • Feinberg School of Medicine
  • Northwestern University
9:50-10:30Discussion (to include McInerney)
10:30-10:45 a.m.BREAK
10:45 a.m.-12:30 p.m.Health Literacy in Precision Medicine Research
10:45-10:50
  • Introduction of speakers
  • Laurie Myers, M.B.A. (moderator)
  • Global Health Literacy Director
  • Merck & Co., Inc.
10:50-11:05
  • Recruitment and messages (include privacy and informed consent)
  • Suzanne Bakken, R.N., Ph.D.
  • Alumni Professor of Nursing and
  • Professor of Biomedical Informatics
  • Columbia University
11:05-11:20
  • Engagement and retention
  • Consuelo Wilkins, M.D., MSCI
  • Executive Director
  • Meharry–Vanderbilt Alliance
11:20-11:35
  • Results reporting
  • Paul S. Appelbaum, M.D.
  • Elizabeth K. Dollard Professor of Psychiatry, Medicine, and Law
  • Director, Division of Law, Ethics, and Psychiatry Columbia University
11:35-11:45
  • Reactions
  • Health Literacy Reactor:
  • Marin P. Allen, Ph.D.
  • National Institutes of Health
  • Precision Medicine Reactor:
  • Benjamin Solomon
  • Inova Translational Medicine Institute
11:45-12:30Discussion
12:30-1:30 p.m.LUNCH
1:30-3:00 p.m.Communicating Risk and Uncertainty in the Clinical Setting
1:30-1:35
  • Introduction of speakers
  • Laurie Francis, M.P.H. (moderator)
  • Senior Director of Clinic Operations and Quality Oregon Primary Care Association
1:35-1:50
  • Communicating for understanding
  • Lori Erby, Ph.D.
  • Associate Program Director
  • Johns Hopkins University/
  • National Human Genome Research Institute Genetic Counseling Training Program
1:50-2:05
  • Communicating risk to low health literacy populations
  • Jessica Ancker, Ph.D.
  • Associate Professor of Healthcare Policy and Research
  • Weill Cornell Medical College
2:05-2:15
  • Reactions
  • Health Literacy Reactor:
  • Terry Davis, Ph.D.
  • Louisiana State University Health Sciences Center
  • Precision Medicine Reactor:
  • Cathy Wicklund, M.S.
  • Feinberg School of Medicine
  • Northwestern University
2:15-3:00Discussion
3:00-3:15 p.m.BREAK
3:15-4:45 p.m.Communicating with the Public
3:15-3:20
  • Introduction of speakers
  • Catina O'Leary, Ph.D., LMSW (moderator)
  • President and CEO
  • Health Literacy Missouri
3:20-3:35
  • The role of health associations
  • Kathleen Hickey, Ed.D., FNP, ANP, FAHA, FAAN
  • Associate Professor of Nursing
  • Columbia University Medical Center
3:35-3:50
  • Precision medicine in social media
  • Chris Gunter, Ph.D.
  • Director of Communication Operations
  • Children's Healthcare of Atlanta's
  • Marcus Autism Center
3:50-4:00
  • Reactions
  • Health Literacy Reactor:
  • Jennifer Dillaha, M.D.
  • Arkansas Department of Health
  • Precision Medicine Reactor:
  • Carla Easter, Ph.D.
  • National Human Genome Research Institute
  • National Institutes of Health
4:00-4:45Discussion
4:45-5:30 p.m.Reflections on the Day
5:30 p.m.ADJOURN
Copyright 2016 by the National Academy of Sciences. All rights reserved.
Bookshelf ID: NBK396127
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