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Committee on Strategies for Responsible Sharing of Clinical Trial Data; Board on Health Sciences Policy; Institute of Medicine. Discussion Framework for Clinical Trial Data Sharing: Guiding Principles, Elements, and Activities. Washington (DC): National Academies Press (US); 2014 Jan 22.

Cover of Discussion Framework for Clinical Trial Data Sharing

Discussion Framework for Clinical Trial Data Sharing: Guiding Principles, Elements, and Activities.

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COMMITTEE ON STRATEGIES FOR RESPONSIBLE SHARING OF CLINICAL TRIAL DATA

  • BERNARD LO (Chair), President, The Greenwall Foundation, New York City, New York
  • TIMOTHY COETZEE, Chief Advocacy, Services, and Research Officer, National Multiple Sclerosis Society
  • DAVE DEMETS, Professor and Chair, Department of Biostatistics and Medical Informatics, University of Wisconsin, Madison
  • JEFFREY DRAZEN, Editor-in-Chief, New England Journal of Medicine
  • STEVEN GOODMAN, Professor, Medicine & Health Research & Policy, Stanford University School of Medicine
  • PATRICIA KING, Carmack Waterhouse Professor of Law, Medicine, Ethics, and Public Policy, Georgetown University Law Center
  • TRUDIE LANG, Principal Investigator, Global Health Network, Nuffield Department of Medicine, University of Oxford
  • DEVEN MCGRAW, Director, Health Privacy Project, Center for Democracy & Technology
  • ELIZABETH NABEL, President, Brigham and Women's Hospital
  • ARTI RAI, Elvin R. Latty Professor of Law, Duke University School of Law
  • IDA SIM, Professor of Medicine and Co-Director of Biomedical Informatics of the Clinical and Translational Science Institute, University of California at San Francisco
  • SHARON TERRY, President and CEO, Genetic Alliance
  • JOANNE WALDSTREICHER, Chief Medical Officer, Johnson & Johnson

IOM Staff

  • ANNE B. CLAIBORNE, Senior Program Officer
  • LEIGHANNE OLSEN, Interim Study Director (until November 2013)
  • REBECCA N. LENZI, Study Director (from November 2013)
  • MICHELLE MANCHER, Associate Program Officer
  • RACHEL KIRKLAND, Senior Program Assistant (until October 2013)
  • BARRET J. ZIMMERMANN, Senior Program Assistant (from October 2013)
  • ANDREW M. POPE, Director, Board on Health Sciences Policy

Consultant

  • THERESA WIZEMANN, Wizemann Scientific Communications, LLC
Copyright 2014 by the National Academy of Sciences. All rights reserved.
Bookshelf ID: NBK253396

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