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Leavy MB, Schur C, Kassamali FQ, et al. Development of Harmonized Outcome Measures for Use in Patient Registries and Clinical Practice: Methods and Lessons Learned [Internet]. Rockville (MD): Agency for Healthcare Research and Quality (US); 2019 Feb.

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Development of Harmonized Outcome Measures for Use in Patient Registries and Clinical Practice: Methods and Lessons Learned [Internet].

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Abbreviations

AHRQ

Agency for Healthcare Research and Quality

AMA

American Medical Association

C-CDA

Consolidated Clinical Document Architecture

CBER

Center for Biologics Evaluation and Research

CCD

Continuity of Care

CDER

Center for Drug Evaluation and Research

CDRH

Center for Devices and Radiologic Health

CDRN

Clinical Data Research Network

CMS

Centers for Medicare and Medicaid Services

COMET

Care Outcome Measures in Effectiveness Trials

CTCAE

Common Terminology Criteria for Adverse Events

eCQI

Electronic Clinical Quality Improvement

eCQM

Electronic Clinical Quality Measure

EHR

Electronic Health Record

FDA

U.S. Food and Drug Administration

FHIR

Fast Healthcare Interoperability Resources

HAM-D

Hamilton Depression Rating Scale

HITSP

Health Information Technology Standards Panel

HL7

Health Level Seven

HSRProj

Health Services Research Projects in Progress

ICHOM

International Consortium for Health Outcomes Management

IHE

Integrating the Healthcare Enterprise

IHE PCC

Integrating the Healthcare Enterprise Patient Care Coordination

IT

Information Technology

LAA

Left Atrial Appendage

MADRS

Montgomery-Åsberg Depression Rating Scale

MMS

Minimum Measure Set

NSCLC

Non-Small Cell Lung Cancer

NIH

National Institutes of Health

NLM

National Library of Medicine

NQF

National Quality Forum

NQRN

National Quality Registry Network

ODF

Open Door Forum

ODI

Oswestry Disability Index

OMERACT

Outcome Measures in Rheumatology

OMF

Outcome Measures Framework

ONC

Office of the National Coordinator for Health Information Technology

PAS

Post-Approval Study

PCORI

Patient-Centered Outcomes Research Institute

PHQ-9

Patient Health Questionnaire-9

PI

Principal Investigator

PPRN

Patient-Powered Research Networks

PQRS

Physician Quality Reporting System

PRO

Patient-Reported Outcome

PROMIS

Patient-Reported Outcomes Measurement Information System

QRDA

Quality Reporting Document Architecture

RECIST

Response Evaluation Criteria in Solid Tumors

RoPR

Registry of Patient Registries

VSAC

Value Set Authority Center

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