Contents

• Introduction
• I. Overview of palliative care
  Kathy Burn, CBT Head.
  • Introduction
  • The history of palliative care:
  • There are three levels of palliative care:
  • Who makes up the team?
  • Examples of what a palliative care team can do:
  • What is palliative rehabilitation?
  • Some facts:
  • References
  • Further reading
• II. The Importance and need for palliative care in renal care
  Jenny McGarry, Renal Supportive Care Coordinator.
  • Introduction
  • Symptom burden & management
  • Individualised care plan & shared decision making
  • Teamwork/ Coordination of care
  • Conclusion
  • References
• III. The Psychological perspective – impact on nurses when a patient stops treatment
  Mike Kelly, EDTNA/ERCA Psychological Care Consultant.
  • Introduction
  • Clinical example
  • Loss and grief
  • Psychological discomfort
  • Pathways to support
  • Conclusion
  • References
• IV. The role of the nurse in supporting the patient and family
  Suan McKenna and Breda Callaghan Mulvanerty, Clinical Nurse Manager.
  • Introduction
  • Complexities of initiating end-of-life conversations
  • Genuine attentiveness to the patient’s decision-making process:
  • The challenge awaiting the family members’ processes:
  • Negotiating different professional responsibilities
  • Conclusion
  • References
• V. Strategies and support from the nursing perspective
  Jeanette Finderup, Clinical Nurse Specialist and Louise Engelbrecht Buur, PhD student.
  • Introduction
  • A specific strategy nurses can use to support patients
  • Decision making aids
  • Having the conversation
  • Documentation
  • Support for nurses who support the patient
  • Ongoing training
  • References

All rights are reserved by the author and publisher, including the rights of reprinting, reproduction in any form and translation. No part of this book may be reproduced, stored in a retrieval system or transmitted, in any form or by means, electronic, mechanical, photocopying, recording, or otherwise, without the prior written permission of the publisher.

First edition: April 2021

European Dialysis and Transplant Nurses Association/ European Renal Care Association (EDTNA/ERCA)

Seestrasse 91, CH 6052 Hergiswil, Switzerland

www.edtnaerca.org

ISBN: 978-8409-29060-4

Layout, Binding and Printing: Imprenta Tomás Hermanos

Río Manzanares, 42-44 · E28970 Humanes de Madrid

Madrid - Spain

www.tomashermanos.com