We are grateful to all patients, research participants, NHS staff and other stakeholders who contributed to the success of this research.
The IMPACT programme manager was Alison Littlewood. Administrative support was provided by Sue Bailey and Vaila Mallace, with thanks to Gemma Boswell and Shakil Chowdhury.
Members of the IMPACT programme steering committee: Pat Bowker, Robert Chalmers, Paul Fitzpatrick, Karina Jackson, Stephen Kownacki (chairperson), Sabera Kazi and Christopher Main.
Former IMPACT programme team members: Professor Bonnie Sibbald and Mrs Toni Doyle.
Associated researchers: Rachael Thorneloe, Laura Howells, Helen Kitchen, Susie Moschogianis, Alasdair Henry and Gemma Shields.
The team would like to thank Salford Royal NHS Foundation Trust and the five former primary care trusts in the north-west of England involved in workstream 2.
Contributions of authors
The corresponding author is Lis Cordingley (https://orcid.org/0000-0001-7675-240X), who is the guarantor of this report and led the writing team of Pauline A Nelson (https://orcid.org/0000-0003-4162-4736), Linda Davies (https://orcid.org/0000-0001-8801-3559) and Christopher EM Griffiths (https://orcid.org/0000-0001-5371-4427). They were responsible for drafting chapters or significant sections of the report, responding to reviewers’ comments and updating subsequent versions.
Additional contributors to individual chapters are given below. Where chapters are drawn from earlier publications arising from this work, readers are advised to consult the original work for details of specific contributions to those works.
Darren Ashcroft (https://orcid.org/0000-0002-2958-915X) contributed to Epidemiology of psoriasis and its association with risk of cardiovascular disease (lead) and Cardiovascular risk in patients with psoriasis.
Christine Bundy (https://orcid.org/0000-0002-5981-3984) contributed to Understanding the professional role in supporting lifestyle change in patients with psoriasis; Psoriasis and Wellbeing (PSO WELL): developing patient materials to broaden understanding of psoriasis as a long-term condition, psoriasis-associated comorbidities and the role of self-management; and Psoriasis and Wellbeing (PSO WELL): developing a patient-centred approach using motivational interviewing skills with dermatology clinicians to support healthy living in people with psoriasis (lead).
Carolyn Chew-Graham (https://orcid.org/0000-0002-9722-9981) contributed to Cardiovascular risk in patients with psoriasis, Cardiovascular disease risk communication and reduction in psoriasis and Coping with psoriasis: learning from patients.
Anna Chisholm (https://orcid.org/0000-0002-2054-7340) contributed to Cardiovascular disease risk communication and reduction in psoriasis; Understanding the professional role in supporting lifestyle change in patients with psoriasis; Psoriasis and Wellbeing (PSO WELL): developing patient materials to broaden understanding of psoriasis as a long-term condition, psoriasis associated co-morbidities and the role of self-management; and Psoriasis and Wellbeing (PSO WELL): developing a patient-centred approach using motivational interviewing skills with dermatology clinicians to support healthy living in psoriasis.
Jamie Elvidge contributed to Epidemiology of psoriasis and its association with risk of cardiovascular disease; Valuing the interventions with a stated preference survey; and Health economics modelling of costs of interventions for people with psoriasis.
Matthew Hamilton (https://orcid.org/0000-0001-7407-9194) contributed to Epidemiology of psoriasis and its association with risk of cardiovascular disease, Valuing the interventions with a stated preference survey and Health economics modelling of costs of interventions for people with psoriasis.
Rachel Hilton contributed to Epidemiology of psoriasis and its association with risk of cardiovascular disease; Psoriasis and Wellbeing (PSO WELL): developing patient materials to broaden understanding of psoriasis as a long-term condition, psoriasis associated co-morbidities and the role of self-management; and Psoriasis and Wellbeing (PSO WELL): developing a patient-centred approach using motivational interviewing skills with dermatology clinicians to support healthy living in psoriasis.
Karen Kane (https://orcid.org/0000-0001-8117-8318) contributed to Epidemiology of psoriasis and its association with risk of cardiovascular disease; Cardiovascular risk in patients with psoriasis; Cardiovascular disease risk communication and reduction in psoriasis; Understanding the professional role in supporting lifestyle change in patients with psoriasis; Psoriasis and Wellbeing (PSO WELL): developing patient materials to broaden understanding of psoriasis as a long-term condition, psoriasis associated co-morbidities and the role of self-management; Psoriasis and Wellbeing (PSO WELL): developing a patient-centred approach using motivational interviewing skills with dermatology clinicians to support healthy living in psoriasis; and Patient, public and practitioner involvement in the IMPACT programme (joint lead).
Christopher Keyworth (https://orcid.org/0000-0002-7815-6174) contributed to Cardiovascular disease risk communication and reduction in psoriasis and Understanding the professional role in supporting lifestyle change in patients with psoriasis.
Alison Littlewood (https://orcid.org/0000-0002-8766-9190) contributed to SYNOPSIS, Cardiovascular risk in patients with psoriasis and Patient, public and practitioner involvement in the IMPACT programme (joint lead).
Karina Lovell (https://orcid.org/0000-0001-8821-895X) contributed to SYNOPSIS and Valuing the interventions with a stated preference survey.
Mark Lunt (https://orcid.org/0000-0002-2391-5575) contributed to Epidemiology of psoriasis and its association with risk of cardiovascular disease, Cardiovascular risk in patients with psoriasis and Psoriasis and Wellbeing (PSO WELL): developing a patient-centred approach using motivational interviewing skills with dermatology clinicians to support healthy living in psoriasis.
Helen McAteer contributed to SYNOPSIS; Psoriasis and Wellbeing (PSO WELL): developing patient materials to broaden understanding of psoriasis as a long-term condition, psoriasis associated co-morbidities and the role of self-management; and Psoriasis and Wellbeing (PSO WELL): developing a patient-centred approach using motivational interviewing skills with dermatology clinicians to support healthy living in psoriasis.
Dionysios Ntais (https://orcid.org/0000-0002-5853-5548) contributed to Epidemiology of psoriasis and its association with risk of cardiovascular disease, Valuing the interventions with a stated preference survey and Health economics modelling of costs of interventions for people with psoriasis.
Rosa Parisi (https://orcid.org/0000-0002-0968-9153) contributed to Epidemiology of psoriasis and its association with risk of cardiovascular disease.
Christina Pearce (https://orcid.org/0000-0002-7393-191X) contributed to Cardiovascular disease risk communication and reduction in psoriasis; Understanding the professional role in supporting lifestyle change in patients with psoriasis; Psoriasis and Wellbeing (PSO WELL): developing patient materials to broaden understanding of psoriasis as a long-term condition, psoriasis-associated comorbidities and the role of self-management; and Psoriasis and Wellbeing (PSO WELL): developing a patient-centred approach using motivational interviewing skills with dermatology clinicians to support healthy living in people with psoriasis.
Martin Rutter (https://orcid.org/0000-0001-6380-539X) contributed to Epidemiology of psoriasis and its association with risk of cardiovascular disease and Cardiovascular risk in patients with psoriasis (lead).
Deborah Symmons (https://orcid.org/0000-0002-8625-1200) contributed to Epidemiology of psoriasis and its association with risk of cardiovascular disease and Cardiovascular risk in patients with psoriasis.
Helen Young (https://orcid.org/0000-0003-1538-445X) contributed to Cardiovascular risk in patients with psoriasis.
Publications
Workstream 1
Parisi R, Symmons DP, Griffiths CE, Ashcroft DM, Identification and Management of Psoriasis and Associated ComorbidiTy (IMPACT) project team. Global epidemiology of psoriasis: a systematic review of incidence and prevalence. J Invest Dermatol 2013;133:377–85. https://doi.org/10.1038/jid.2012.339
Hamilton MP, Ntais D, Griffiths CE, Davies LM. Psoriasis treatment and management – a systematic review of full economic evaluations. Br J Dermatol 2015;172:574–83. https://doi.org/10.1111/bjd.13486
Parisi R, Rutter MK, Lunt M, Young HS, Symmons DPM, Griffiths CEM, et al. Psoriasis and the risk of major cardiovascular events: cohort study using the Clinical Practice Research Datalink. J Invest Dermatol 2015;135:2189–97. https://doi.org/10.1038/jid.2015.87
Workstream 2
Keyworth C, Nelson PA, Chew-Graham CA, Kane K, Pearce CJ, Griffiths CEM, et al. Communicating cardiovascular disease risk to people with psoriasis: what techniques do practitioners use? Int J Behav Med 2016;23:168–78. https://doi.org/10.1007/s12529-015-9517-8
Nelson PA, Kane K, Chisholm A, Pearce CJ, Keyworth C, Rutter MK, et al. ‘I should have taken that further’: missed opportunities during cardiovascular risk assessment in patients with psoriasis in UK primary care settings – a mixed-methods study. Health Expect 2016;19:1121–37. https://doi.org/10.1111/hex.12404
Rutter MK, Kane K, Lunt M, Cordingley L, Littlewood A, Young HS, et al. Primary care-based screening for cardiovascular risk factors in patients with psoriasis. Br J Dermatol 2016;175:348–56. https://doi.org/10.1111/bjd.14557
Keyworth C, Nelson PA, Bundy C, Pye SR, Griffiths CEM, Cordingley L. Does message framing affect changes in behavioural intentions in people with psoriasis? A randomized exploratory study examining health risk communication. Psychol Health Med 2018;23:763–78. https://doi.org/10.1080/13548506.2018.1427876
Workstream 3
Cordingley L, Nelson PA, Griffiths CE, Chew-Graham CA. Beyond skin: the need for a new approach to the management of psoriasis in primary care. Br J Gen Pract 2012;62:568–9. https://doi.org/10.3399/bjgp12X658133
Nelson PA, Barker Z, Griffiths CE, Cordingley L, Chew-Graham CA, IMPACT Team. ‘On the surface’: a qualitative study of GPs’ and patients’ perspectives on psoriasis. BMC Fam Pract 2013;14:158. https://doi.org/10.1186/1471-2296-14-158
Nelson PA, Chew-Graham CA, Griffiths CE, Cordingley L, IMPACT Team. Recognition of need in health care consultations: a qualitative study of people with psoriasis. Br J Dermatol 2013;168:354–61. https://doi.org/10.1111/j.1365-2133.2012.11217.x
Workstream 4
Keyworth C, Nelson PA, Chisholm A, Griffiths CE, Cordingley L, Bundy C, Identification and Management of Psoriasis-Associated Co-morbidiTy (IMPACT) team. Providing lifestyle behaviour change support for patients with psoriasis: an assessment of the existing training competencies across medical and nursing health professionals. Br J Dermatol 2014;171:602–8. https://doi.org/10.1111/bjd.13067
Nelson PA, Keyworth C, Chisholm A, Pearce CJ, Griffiths CE, Cordingley L, et al. ‘In someone’s clinic but not in mine’: clinicians’ views of supporting lifestyle behaviour change in patients with psoriasis – a qualitative interview study. Br J Dermatol 2014;171:1116–22. https://doi.org/10.1111/bjd.13231
Keyworth C, Nelson PA, Griffiths CEM, Cordingley L, Bundy C. Do English healthcare settings use ‘Choice Architecture’ principles in promoting healthy lifestyles for people with psoriasis? BMC Health Serv Res 2015;15:215.
Chisholm A, Nelson PA, Pearce CJ, Keyworth C, Griffiths CE, Cordingley L, Bundy C, IMPACT Team. The role of personal models in clinical management: exploring health care providers’ beliefs about psoriasis. Br J Health Psychol 2016;21:114–34. https://doi.org/10.1111/bjhp.12148
Workstream 5
Chisholm A, Nelson PA, Pearce CJ, Littlewood AJ, Kane K, Henry AL, et al. Motivational interviewing-based training enhances clinicians’ skills and knowledge in psoriasis: findings from the PSO WELL® study. Brit J Dermatology 2017;176:677–86. https://doi.org/10.1111/bjd.14837
Nelson PA, Kane K, Pearce CJ, Bundy C, Chisholm A, Hilton R, et al. ‘New to me’: changing patient understanding of psoriasis and identifying mechanisms of change. The Pso Well® patient materials mixed-methods feasibility study. Br J Dermatol 2017;177:758–70. https://doi.org/10.1111/bjd.15574
Disclaimers
This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, CCF, NETSCC, PGfAR or the Department of Health and Social Care. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the PGfAR programme or the Department of Health and Social Care.