From: Appendix 1, Workstream 1a: full report
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Forster A, Ozer S, Crocker TF, et al. Longer-term health and social care strategies for stroke survivors and their carers: the LoTS2Care research programme including cluster feasibility RCT. Southampton (UK): NIHR Journals Library; 2021 Mar. (Programme Grants for Applied Research, No. 9.3.)
Longer-term health and social care strategies for stroke survivors and their carers: the LoTS2Care research programme including cluster feasibility RCT.
Show detailsTABLE 8
Name (pseudonym) | Age (years) | Time post stroke (months) | Barthel/LUNS | Living circumstances | Summary of life pre stroke (as reported in interviews) | Stroke impairments | Summary of life after stroke (as reported in interviews) |
---|---|---|---|---|---|---|---|
Marilyn | 70 | 43 | Moderate 12/low needs 0 | Lives with husband | She and her husband were ramblers, went line dancing |
| Watches television occasionally, goes to watch line dancing, attends weekly exercise group for multiple sclerosis |
Mavis | 60 | 43 | Moderate 17/low needs 1 | Lives with husband |
|
| Watches television, goes out to the theatre and cinema, goes out for meals |
Gordon | 63 | 38 | Moderate 17/multiple needs 4 | Lives with wife and adult son | Working delivering prescriptions, used to be happy |
| Volunteers as a hospital appointments driver, listens to music, would rather be at home than go out socially |
Ellie | 90 | 37 | Moderate 18/multiple needs 3 | Lives alone | Has been a widow for > 20 years; her husband died of cancer | Numbness on left side | Goes shopping, sees one or two friends, plays Scrabble, still able to drive, goes to church |
Roger | 74 | 42 | Independent 20/multiple needs 3 | Lives with wife |
|
| No longer able to drive, does exercises everyday, swims once a week, goes for a walk, gardens and goes for days out with wife |
Robert | 84 | 34 | Moderate 13/low needs 0 | Lives alone |
|
| Goes shopping, does not drive quite as far, sees his brother regularly, spends time gardening |
Michael | 63 | 39 | Severe 9/multiple needs 2 | Lives with wife |
|
| Goes out for a meal occasionally, watches television, spends most of his time in the house, can no longer drive |
Lizzy | 72 | 32 | Independent 20/multiple needs 6 | Lives alone |
|
| Belongs to the British Sugarcraft Guild, gardens, listens to music and does not drive as far |
Jimmy | 69 | 47 | Independent 20/low needs 1 | Lives with wife and daughter | Retired from working as an accounts manager, did not have an active hobby, did a lot of reading, spent time with daughter who has Down Syndrome |
| Attends stroke groups with his wife, goes to an active life class, can no longer drive. Spends time at home with his wife |
Iris | 76 | 40 | Moderate 18/multiple needs 6 | Lives alone |
|
| Takes care of her home, leads dances now she is unable to participate, uses computer regularly, occasionally goes out with friends |
Daphne | 78 | 32 | Independent 19/low needs 1 | Lives with husband | Played bowls, did the gardening and housework |
| Returned to playing bowls, does the gardening, does the housework, knitting |
Cedric | 75 | 36 | Moderate 16/multiple needs 9 | Lives with wife | Going away in the caravan with his wife |
| Goes away on short mini breaks with his wife in the UK, attends an IT class |
Carla | 54 | 36 | Severe 10/multiple needs 12 | Lives alone |
|
| No longer works, spends a lot of time in her house, does not drive any more, spends time with boyfriend |
Bob | 73 | 43 | Independent 20/low needs 1 | Lives with wife | Retired from teaching, spent time looking after young granddaughter, in the process of selling their house, role as the cook | Some speech impairment, lost confidence and motivation, lacks strength in legs | Able to drive again, does the gardening, goes on holiday with his wife |
Arnie | 75 | 34 | Severe 2/multiple needs 6 | Lives with wife | Prior to first stroke of six, he was president of the rugby club, worked full time lecturing, had busy social life | Impaired speech, impaired mobility, impaired vision, short-term memory loss, weakened right side, walking difficulties, uses stick and wheelchair | Can no longer drive, spends time with young grandson, goes for days out, watches television, reads the paper |
Timmy | 66 | 9 | Moderate 15/multiple needs 4 | Lives alone | Working as an engineer |
| Goes walking every day, sees his family regularly. Spends a lot of time at home |
Paddy | 53 | 9 | Independent 20/multiple needs 7 | Lives with wife, son and daughter |
|
| Spends most of his time at home, watches television, goes for the occasional walk to the local shop |
Maude | 79 | 10 | Independent 19/multiple needs 5 | Lives with husband | Attended U3A group, did the cleaning and shopping |
| Able to continue as she did before |
Malcolm | 71 | 12 | Independent 20/low needs 1 | Lives alone | Going to car rallies, drinking at the social club, socialising | No physical impairment | Goes walking near his house, still goes to social club but does not drink alcohol, still goes to car rallies |
Lisa | 54 | 9 | Moderate 16/multiple needs 11 | Lives with husband | She and her husband did not work prior to the stroke; spent a lot of time at home looking after the grandchildren |
| Majority of time spent at home, still sees family, goes out occasionally |
Julia | 84 | 10 | Moderate 18/multiple needs 2 | Lives with husband |
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|
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Jane | 82 | 10 | Independent 20/low needs 1 | Lives alone | Did activities such as camping, knitting, bowls | No physical impairment | Continues with all her hobbies as before, spends time looking after the house |
Evelyn | 82 | 9 | Moderate 18/multiple needs 5 | Lives alone | Widowed, spent time drinking with husband, used to go to bowls, did the house work | Weakened left side initially, balance affected, experienced depression, fatigue | Goes shopping with her son, goes out to lunch with friends, does the crosswords, reads the paper, does some housework |
Denise | 47 | 11 | Independent 20/multiple needs 1 | Lives with husband |
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|
David | 76 | 10 | Independent 20/low needs 0 | Lives with wife | Went on holidays with wife, had a hotel, helped son out with his business |
| Still goes on holidays with wife, goes walking, spends time with family |
Charlie | 62 | 10 | Independent 19/multiple needs 19 | Lives with wife | Worked in a recycling plant, loved watching rugby, spent a lot of time socialising |
|
|
Cathy | 54 | 11 | Independent 20/multiple needs 8 | Lives with teenage daughter | Worked full time as a teaching assistant, was a governor at the school |
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Alfred | 78 | 9 | Independent 19/multiple needs 2 | Lives with wife | Played table tennis five times a week, spent time reading |
| Goes to the gym, walks at least every other day, no longer able to drive, goes on holidays, reads novels |
U3A, University of the Third Age.
- TABLE 8, [Characteristics of workstream 1a interview participants]. - Longer-ter...TABLE 8, [Characteristics of workstream 1a interview participants]. - Longer-term health and social care strategies for stroke survivors and their carers: the LoTS2Care research programme including cluster feasibility RCT
- AAH43083 (0)MeSH
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