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Parr J, Pennington L, Taylor H, et al. Parent-delivered interventions used at home to improve eating, drinking and swallowing in children with neurodisability: the FEEDS mixed-methods study. Southampton (UK): NIHR Journals Library; 2021 Mar. (Health Technology Assessment, No. 25.22.)

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Parent-delivered interventions used at home to improve eating, drinking and swallowing in children with neurodisability: the FEEDS mixed-methods study.

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Appendix 3Data extraction for systematic reviews

Marshall et al.5 review update

Study (first author and year of publication)Study designInterventionTimescale of interventionOutcomesOutcome measuresNAge rangeASD diagnosis
Johnson 201524Before and afterManualised Parent Training – Feeding (group-based behavioural intervention)9 × 1–1.5 hours (over 16 weeks)Mealtime behaviours, disruptive behaviours, dietary intake, parent stress and caregiver satisfactionBAMBI, ABC, PSI-SF, 3-day food records, Caregiver satisfaction and effectiveness questionnaire (bespoke, non-validated)143 years 4 months to 6 years 2 monthsMet diagnostic criteria according to DSM-IV and confirmed by ADOS in study
Marshall 201522RCTSystematic desensitisation (SD) vs. operant conditioning (OC): both with parent training10 sessions (weekly or intensively)Dietary intake and variety, mealtime behaviours, weight, height, BMI, behaviour outside mealtimes and parent stress3-day food records, food lists, BPFAS, ECBI and PSI-SF683 years 1 month to 5 years 2 monthsDocumented diagnosis by paediatrician, psychologist or psychiatrist: not formally assessed in study
Peterson 201623SCEDaApplied behaviour analysis (ABA) vs. modified sequential oral sensory (MSOS) programme1.5 hours 3 times per week: ABA = 9–16 sessions; MSOS = 15–19 sessionsFood acceptance, mouth clean, inappropriate mealtime behaviours and grams consumedN/A64–6 yearsDiagnosis given by MDT using structured interview, ADOS and mental state exam: not formally assessed in study
Sharp 201421RCTGroup parent training – behavioural intervention vs. waiting list control8 × 1-hour sessions (over 6 weeks)Mealtime behaviours, dietary variety, feasibility, parent stress and caregiver satisfactionBAMBI, FPI, PSI-SF, caregiver satisfaction and effectiveness questionnaire193–8 yearsDSM-IV and SRS used to confirm diagnosis in study

ABC, Aberrant Behaviour Checklist; ADOS, Autism Diagnostic Observation Schedule; DSM-IV, Diagnostic and Statistical Manual of Mental Disorders 4th Edition; ECBI, Eyberg Child Behaviour Inventory; FPI, Food Preference Inventory; N/A, not applicable; PSI-SF, Parenting Stress Index Short Form; SCED, single-case experimental design; SRS, Social Responsiveness Scale.

Note

Descriptions: SD – bottom-up play-based modelling; OC – top down, prompt and reward; ABA – behavioural intervention; MSOS – systematic desensitisation.

National Institute for Health and Care Excellence guidelines review (2017)6 update

Study (first author and year of publicationStudy designInterventionTimescale of interventionOutcomesOutcome measuresNAge range
Serel Arslan 201725RCTFCTa vs. OMEbFCTa = 12 weeks OMEb = 12 weeksChewing performance and feeding behavioursKCPS and BPFAS801 year 1 month to 5 years 7 months
Song 201526RCTOSTc + NMES vs. OSTc + NMES shamd8 weeksFeeding behaviours and severity of dysphagiaBASOFF and NOMSe swallowing scale203 years 4 months to 8 years 9 months

BASOFF, Behavioural Assessment Scale of Oral Functions of Feeding; FCT, functional chewing training; KCPS, Karaduman Chewing Performance Scale; NMES, neuromuscular electrical stimulation; NOMS, National Outcome Measurement System; OME, oral motor exercises; OST, Oral Sensorimotor Treatment.

a

FCT refers to functional chewing training – posture sensory and motor training, food and environmental modification.

b

OME refers to oral motor exercises (passive and active exercises of the lips and tongue).

c

OST refers to oral sensorimotor treatment – oral stimulation (child passive).

d

NMES sham refers to neuromuscular electrical stimulation equipment applied to child but not turned on.

e

NOMS refers to the American Speech–Language–Hearing Association’s National Outcome Measurement System.

Copyright © Queen’s Printer and Controller of HMSO 2021. This work was produced by Parr et al. under the terms of a commissioning contract issued by the Secretary of State for Health and Social Care. This issue may be freely reproduced for the purposes of private research and study and extracts (or indeed, the full report) may be included in professional journals provided that suitable acknowledgement is made and the reproduction is not associated with any form of advertising. Applications for commercial reproduction should be addressed to: NIHR Journals Library, National Institute for Health Research, Evaluation, Trials and Studies Coordinating Centre, Alpha House, University of Southampton Science Park, Southampton SO16 7NS, UK.
Bookshelf ID: NBK569103
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