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Mobley EM, Moke DJ, Milam J, et al. Disparities and Barriers to Pediatric Cancer Survivorship Care [Internet]. Rockville (MD): Agency for Healthcare Research and Quality (US); 2021 Mar. (Technical Brief, No. 39.)
Table 4Guiding Question 3: Proposed strategies
Author, Year Study Name/Trial ID | Country | Cancer Origin | Proportion of CCS | Strategy Type Strategy Title Strategy Description |
|---|---|---|---|---|
Masera, 1996109 International Society of Paediatric Oncology | Multiple countries | Multiple cancer origin | 100% | Clinical Practice Guideline SlOP Working Committee on Psychosocial Issues in Pediatric Oncology: Guidelines for Care of Long-Term Survivors Establish a specialty clinic oriented to the preventive medical and psychosocial care of long-term survivors which includes public education and advocacy. |
National Cancer Policy Board, 200380 National Academies of Sciences, Engineering, and Medicine | USA | Multiple cancer origin | 100% | Policy Statement Childhood Cancer Survivorship: Improving Care and Quality of Life Comprehensive policy agenda that links improved healthcare delivery, investments in education and training, and expanded research to improve the long-term outlook for survivors of childhood cancer. |
Goldsby, 200471 International Society of Paediatric Oncology | Multiple countries | Multiple cancer origin | 100% | Meeting Summaries and Recommendations International Society of Paediatric Oncology 2003 meeting summary of the Symposium on Long-Term Follow-up Guidelines Four models of survivorship care were endorsed with strengths and limitations. |
Skinner, 2005151 United Kingdom Children’s Cancer Study Group: Late Effects Subcommittee | UK | Multiple cancer origin | 100% | Clinical Practice Guideline Therapy Based Long Term Follow Up: Practice Statement: United Kingdom Children’s Cancer Study Group (Late Effects Group) Exposure-based clinical practice guidelines for pediatric cancer survivors. |
Skinner, 2006152 UK Children’s Cancer Study Group (UKCCSG) Late Effects Group (LEG) | UK | Multiple cancer origin | 100% | Clinical Practice Guideline Long-Term Follow-Up of People Who Have Survived Cancer During Childhood Ideal survivorship strategy will be one that captures the largest number of long-term survivors by ensuring that appropriate clinical and psychosocial care, health education, and health promotion advice are all delivered in an appropriate manner at an appropriate location, while taking advantage of important research opportunities that will benefit future generations of survivors. |
| Children’s Oncology Group Nursing Discipline, 200741 | USA | Multiple cancer origin | 50% or more | Meeting Summaries and Recommendations Establishing and Enhancing Services for Childhood Cancer Survivors: Long-term follow-up program resource guide Healthcare organizations and providers should deliver care and alleviate barriers to survivorship care for pediatric survivors. |
| American Academy of Pediatrics, 200914 | USA | Multiple cancer origin | 100% | Clinical Practice Guideline Long-Term Follow-Up Care for Pediatric Cancer Survivors Follow up care for pediatric cancer survivors concerning detecting serious late effects and promoting healthy lifestyles. |
| Late Effects Taskforce of the Dutch Childhood Oncology Group, 2010103 | Netherlands | Multiple cancer origin | 100% | Clinical Practice Guideline Guidelines for Follow-Up after Childhood Cancer More Than 5 Years After Diagnosis Exposure-based clinical practice guidelines for pediatric cancer survivors. |
| Scottish Intercollegiate Guidelines Network, 2013146 | UK | Multiple cancer origin | 100% | Clinical Practice Guideline Long term follow up of survivors of childhood cancer Exposure- and risk- based clinical practice guidelines for pediatric cancer survivors. |
| American Academy of Pediatrics, 201415, 16 | USA | Multiple cancer origin | 100% | Policy Statement Standards for Pediatric Cancer Centers Strategies for helping survivors transition to primary care with emphasis on pediatric cancer centers. |
Esherich, 201761 Working Group on Adolescents, Young Adults, and Transition (Arbeitsgemeinschaft Adoleszenten, junge Erwachsene, Transition) | Germany | Multiple cancer origin | Less than 50% | Meeting Summaries and Recommendations Building a National Framework for Adolescent and Young Adult Hematology and Oncology and Transition from Pediatric to Adult Care: Report of the Inaugural Meeting of the Working Group of the German Society for Pediatric Oncology and Hematology Establish a solid infrastructure for transition nationwide so that transition in care can start during adolescence. |
| Children’s Oncology Group, 201842 | USA | Multiple cancer origin | 50% or more | Clinical Practice Guideline Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers Exposure-based clinical practice guidelines for pediatric cancer survivors. |
| Cancer Leadership Council, 201925, 26 | USA | Multiple cancer origin | Less than 50% | Policy Statement Improve the Delivery of Survivorship Care Encouraged Congress to explore how to define and finance distinct episodes of survivorship care and encouraged the Centers for Medicare and Medicaid Innovation to carefully consider what to base payment for survivorship care on. |
Denlinger, 202053 National Comprehensive Cancer Network | USA | Multiple cancer origin | Less than 50% | Clinical Practice Guideline National Comprehensive Cancer Network Clinical Practice Guidelines in Oncology: Survivorship Clinical practice guidelines for cancer survivors, including focus on screening for cardiovascular, psychosocial, and chronic pain late effects and receipt of immunizations to prevent infections for pediatric survivors. |
| International Guideline Harmonization Group, 202081 | Multiple countries | Multiple cancer origin | 50% or more | Clinical Practice Guideline Long-Term Follow-Up Guidelines Surveillance recommendations regarding what surveillance modalities should be used, at what frequency surveillance should be performed, and what interventions are available if abnormalities are found. |
| Children’s Cancer Cause, 202037, 39, 40 | USA | Multiple cancer origin | 100% | Policy Statement Childhood Cancer Survivorship Proposal Endorsed testing of a comprehensive new model of care and survivorship care plan initiative (Child and Survivorship Transition Model), which uses local service delivery and state payment for those covered by Medicaid, coupled with the Children’s Oncology Group record – Summary of Cancer Treatment (Comprehensive) and a survivorship care plan; endorsed improving access to survivorship care via digital technology, improved data collection, and addressing barriers to clinical trial participation for survivors. |
CCS = childhood cancer survivors
- Table 4, Guiding Question 3: Proposed strategies - Disparities and Barriers to P...Table 4, Guiding Question 3: Proposed strategies - Disparities and Barriers to Pediatric Cancer Survivorship Care
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