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Knighting K, Pilkington G, Noyes J, et al. Respite care and short breaks for young adults aged 18–40 with complex health-care needs: mixed-methods systematic review and conceptual framework development. Southampton (UK): NIHR Journals Library; 2021 Feb. (Health Services and Delivery Research, No. 9.6.)

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Respite care and short breaks for young adults aged 18–40 with complex health-care needs: mixed-methods systematic review and conceptual framework development.

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Appendix 2Modified MEDLINE(R) ALL search strategy

Date searched: September 2019.

Date range searched: 1946 to 18 September 2019.

Search strategy

  1. exp Respite Care/
  2. exp Hospice Care/
  3. exp HOSPICES/
  4. exp Day Care, Medical/
  5. exp Night Care/
  6. exp Intermediate Care Facilities/
  7. exp HOLIDAYS/
  8. “day* away”.ti,ab.
  9. “day care*”.ti,ab.
  10. “day centre*”.ti,ab.
  11. “day center*”.ti,ab.
  12. “day program*”.ti,ab.
  13. “day service*”.ti,ab.
  14. holiday*.ti,ab.
  15. “home support*”.ti,ab.
  16. hospice*.ti,ab.
  17. “intermediate care”.ti,ab.
  18. “night care*”.ti,ab.
  19. “night-time care*”.ti,ab.
  20. “relief care*”.ti,ab.
  21. “relief support”.ti,ab.
  22. “residential care*”.ti,ab.
  23. “residential home*”.ti,ab.
  24. “residential facilit*”.ti,ab.
  25. respite*.ti,ab.
  26. “short break*”.ti,ab.
  27. “short stay*”.ti,ab.
  28. “sitting service*”.ti,ab.
  29. “support program*”.ti,ab.
  30. “support scheme*”.ti,ab.
  31. “support service*”.ti,ab.
  32. “temporary admission*”.ti,ab.
  33. “temporary break*”.ti,ab.
  34. “temporary care*”.ti,ab.
  35. “temporary relief”.ti,ab.
  36. “temporary support*”.ti,ab.
  37. “short-term admission*”.ti,ab.
  38. “short-term break*”.ti,ab.
  39. “short-term care*”.ti,ab.
  40. “short-term relief”.ti,ab.
  41. “short-term support*”.ti,ab.
  42. “time off”.ti,ab.
  43. vacation*.ti,ab.
  44. “care service*”.ti,ab.
  45. “overnight stay*”.ti,ab.
  46. “home-based support*”.ti,ab.
  47. “befriend* service*”.ti,ab.
  48. “short-break foster*”.ti,ab.
  49. “adult placement scheme*”.ti,ab.
  50. “shared care”.ti,ab.
  51. “replacement care”.ti,ab.
  52. “family support”.ti,ab.
  53. or/1-52
  54. exp MUSCULAR DYSTROPHY, DUCHENNE/
  55. exp Neoplasms/
  56. exp Muscular Dystrophies/
  57. exp Cerebral Palsy/
  58. exp Spinal Dysraphism/
  59. exp Cystic Fibrosis/
  60. exp Disabled Persons/
  61. exp Disabled Children/
  62. exp Neurodegenerative Diseases/
  63. exp Multiple Trauma/
  64. exp Genetic Diseases, Inborn/
  65. exp Chromosome Disorders/
  66. exp “CONGENITAL, HEREDITARY, AND NEONATAL DISEASES AND
  67. ABNORMALITIES”/
  68. (advanc* adj3 disease*).ti,ab.
  69. (advanc* adj3 illness*).ti,ab.
  70. (advanc* adj3 condition*).ti,ab.
  71. (advanc* adj3 disorder*).ti,ab.
  72. (advanc* adj3 abnormalit*).ti,ab.
  73. (advanc* adj3 impairment*).ti,ab.
  74. (advanc* adj3 handicap*).ti,ab.
  75. (degenerative adj3 disease*).ti,ab.
  76. (degenerative adj3 illness*).ti,ab.
  77. (degenerative adj3 condition*).ti,ab.
  78. (degenerative adj3 disorder*).ti,ab.
  79. (degenerative adj3 abnormalit*).ti,ab.
  80. (degenerative adj3 impairment*).ti,ab.
  81. (degenerative adj3 handicap*).ti,ab.
  82. (progressive adj3 disease*).ti,ab.
  83. (progressive adj3 illness*).ti,ab.
  84. (progressive adj3 condition*).ti,ab.
  85. (progressive adj3 disorder*).ti,ab.
  86. (progressive adj3 abnormalit*).ti,ab.
  87. (progressive adj3 impairment*).ti,ab.
  88. (progressive adj3 handicap*).ti,ab.
  89. “diminished life expectancy”.ti,ab.
  90. “limited life expectancy”.ti,ab.
  91. cancer*.ti,ab.
  92. duchenne.ti,ab.
  93. incurable.ti,ab.
  94. life-limit*.ti,ab.
  95. “life limit*”.ti,ab.
  96. (life adj3 short*).ti,ab.
  97. (live* adj3 short*).ti,ab.
  98. “life threaten*”.ti,ab.
  99. “limited life expectancy”.ti,ab.
  100. LLC.ti,ab.
  101. LLI.ti,ab.
  102. “muscular dystroph*”.ti,ab.
  103. neoplasm*.ti,ab.
  104. “neurodegenerative condition*”.ti,ab.
  105. “neurodegenerative disease*”.ti,ab.
  106. “neurodegenerative illness*”.ti,ab.
  107. “neurodegenerative disorder*”.ti,ab.
  108. “neurodegenerative abnormalit*”.ti,ab.
  109. “neurodegenerative impairment*”.ti,ab.
  110. “neurodegenerative handicap*”.ti,ab.
  111. oncology.ti,ab.
  112. “poor prognosis”.ti,ab.
  113. (serious* adj3 ill*).ti,ab.
  114. (genetic adj3 disease*).ti,ab.
  115. (genetic adj3 disorder*).ti,ab.
  116. (genetic adj3 illness*).ti,ab.
  117. (genetic adj3 condition*).ti,ab.
  118. (genetic adj3 abnormalit*).ti,ab.
  119. (genetic adj3 impairment*).ti,ab.
  120. (genetic adj3 handicap*).ti,ab.
  121. (chromosomal adj3 disease*).ti,ab.
  122. (chromosomal adj3 illness*).ti,ab.
  123. (chromosomal adj3 disorder*).ti,ab.
  124. (chromosomal adj3 condition*).ti,ab.
  125. (chromosomal adj3 abnormalit*).ti,ab.
  126. (chromosomal adj3 impairment*).ti,ab.
  127. (chromosomal adj3 handicap*).ti,ab.
  128. (congenital adj3 disease*).ti,ab.
  129. (congenital adj3 illness*).ti,ab.
  130. (congenital adj3 disorder*).ti,ab.
  131. (congenital adj3 condition*).ti,ab.
  132. (congenital adj3 abnormalit*).ti,ab.
  133. (congenital adj3 impairment*).ti,ab.
  134. (congenital adj3 handicap*).ti,ab.
  135. “complex health* need*”.ti,ab.
  136. “early death*”.ti,ab.
  137. “cerebral pals*”.ti,ab.
  138. “spina bifida”.ti,ab.
  139. “cystic fibrosis”.ti,ab.
  140. encephalopath*.ti,ab.
  141. disabilit*.ti,ab.
  142. disabled.ti,ab.
  143. handicap*.ti,ab.
  144. spastic*.ti,ab.
  145. “impaired motor skill*”.ti,ab.
  146. “spinal cord condition*”.ti,ab.
  147. “multiple trauma”.ti,ab.
  148. “acquired brain injur*”.ti,ab.
  149. “neurological condition*”.ti,ab.
  150. “neuromuscular condition*”.ti,ab.
  151. “multi-organ disease*”.ti,ab.
  152. neurodisabilit*.ti,ab.
  153. or/54-151
  154. “young adult*”.ti,ab.
  155. “young person”.ti,ab.
  156. “young people”.ti,ab.
  157. youth*.ti,ab.
  158. “emerg* adult*”.ti,ab.
  159. “early adult*”.ti,ab.
  160. (child* adj3 transition adj3 adult*).ti,ab.
  161. (adolescen* adj3 transition adj3 adult*).ti,ab.
  162. (teenage* adj3 transition adj3 adult*).ti,ab.
  163. (paediatric* adj3 transition adj3 adult*).ti,ab.
  164. (pediatric* adj3 transition adj3 adult).ti,ab.
  165. “college student*”.ti,ab.
  166. “university student*”.ti,ab.
  167. “post-secondary student*”.ti,ab.
  168. undergraduate*.ti,ab.
  169. postgraduate*.ti,ab.
  170. exp Young Adult/
  171. exp ADOLESCENT/
  172. exp ADULT/
  173. exp FAMILY/
  174. exp CAREGIVERS/
  175. exp PARENTS/
  176. famil*.ti,ab.
  177. carer*.ti,ab.
  178. caregiver*.ti,ab.
  179. parent*.ti,ab.
  180. grandparent*.ti,ab.
  181. relative*.ti,ab.
  182. relation*.ti,ab.
  183. sibling*.ti,ab.
  184. or/153-182
  185. 53 and 152 and 183
  186. limit 184 to ed = 20190201-20190918.
Copyright © Queen’s Printer and Controller of HMSO 2021. This work was produced by Knighting et al. under the terms of a commissioning contract issued by the Secretary of State for Health and Social Care. This issue may be freely reproduced for the purposes of private research and study and extracts (or indeed, the full report) may be included in professional journals provided that suitable acknowledgement is made and the reproduction is not associated with any form of advertising. Applications for commercial reproduction should be addressed to: NIHR Journals Library, National Institute for Health Research, Evaluation, Trials and Studies Coordinating Centre, Alpha House, University of Southampton Science Park, Southampton SO16 7NS, UK.
Bookshelf ID: NBK568089
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