Included under terms of UK Non-commercial Government License.
NCBI Bookshelf. A service of the National Library of Medicine, National Institutes of Health.
Metrics proposed for use in audit
Emergency unplanned readmissions to PICU within 1 year following infant heart surgery (for all infants).
Percentage of infants with HLHS/UVH/PA/neurodevelopmental conditions/LOS in the specialist centre > 1 month that receive ‘step-down’ care (i.e. discharge via their local hospital).
Percentage of infant deaths outside the specialist hospital that are discussed at a Network Mortality and Morbidity conference, with details recorded on a nationally standardised pro forma.
Percentage of infants for whom a nationally standardised structured discharge document is completed prior to discharge and distributed electronically to all of the HPs involved in their care.
Percentage of infants with HLHS/UVH/PA who are following a nationally agreed protocol for home monitoring.
Percentage of families that receive nationally agreed guidance on ‘what is normal’ for that child, signs and symptoms to look for, how to respond and important contact numbers (e.g. in the form of a traffic-light tool).
Percentage of infants for whom all of the HPs involved in their care receive nationally agreed guidance on ‘what is normal’ for that child, signs and symptoms to look for, how to respond and important contact numbers (e.g. in the form of a traffic-light tool).
Percentage of families that receive all required training and information prior to discharge (facilitated using a nationally standardised checklist).
Percentage of infants who, at discharge home (either from specialist or local hospital), have a named GP.
Percentage of infants who, at discharge home (either from specialist or local hospital), have a named pharmacist (if discharged with a long-term prescription).
Percentage of families offered an opportunity to connect with other families (e.g. through social media or charity support groups).
Percentage of families more likely to experience language/cultural barriers to accessing support that are offered buddying.
Included under terms of UK Non-commercial Government License.
NCBI Bookshelf. A service of the National Library of Medicine, National Institutes of Health.