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Lakhanpaul M, Bird D, Culley L, et al. The use of a collaborative structured methodology for the development of a multifaceted intervention programme for the management of asthma (the MIA project), tailored to the needs of children and families of South Asian origin: a community-based, participatory study. Southampton (UK): NIHR Journals Library; 2014 Sep. (Health Services and Delivery Research, No. 2.28.)

Cover of The use of a collaborative structured methodology for the development of a multifaceted intervention programme for the management of asthma (the MIA project), tailored to the needs of children and families of South Asian origin: a community-based, participatory study

The use of a collaborative structured methodology for the development of a multifaceted intervention programme for the management of asthma (the MIA project), tailored to the needs of children and families of South Asian origin: a community-based, participatory study.

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Appendix 1Asthma UK systematic evidence synthesis abstract

Background

South Asian children with asthma are less likely to receive prescriptions, more likely to suffer uncontrolled symptoms and admitted with acute asthma compared with White British children. Understanding and addressing barriers are therefore vital in addressing health inequalities. We therefore undertook a systematic review to identify explanatory factors which underlie barriers and facilitators to asthma management in South Asian children.

Methods

Data sources – MEDLINE, HMIC, EMBASE, ASSIA, Web of Science, BNI, CINAHL, PsycINFO, OpenSIGLE, CRD, Scopus, NHS Evidence, Cochrane Library, Campbell Collaboration, RCPCH, ATS, ERS, Asthma UK, Google Scholar & Asthma Guidelines (BTS, GINA, ATS, Monash, NAEPP, Singapore & New Zealand) to May 2010.

Inclusion criteria – Qualitative, quantitative or mixed research with primary focus on identifying explanations for barriers and/or facilitators to asthma management in South Asian children aged 0–18 years with diagnosed/suspected asthma and/or carers and/or healthcare professionals.

Data extraction – Three authors independently reviewed selected & extracted eligible articles with disagreements resolved by research team discussion.

Results

Fifteen studies encompassing 25,755 children, 18,483 parents/carers and 239 healthcare professionals were included. The barriers and explanatory factors identified were:

  1. lack of asthma knowledge in families and healthcare professionals.
  2. under-use of preventer medications
  3. non-acceptance/denial of asthma
  4. over-reliance on Emergency Department management
  5. communication problems
  6. non-adherence to medication
  7. use of complementary therapies.

Little information regarding asthma management facilitators was identified.

Conclusion

Several key issues were identified as likely to be ethnic specific to South Asian families, rather than a reflection of minority status: impact of parental and professional knowledge and beliefs, health service utilisation pattern explanations and the impact of prejudice and stigmatisation. Other explanations such as language barriers are not strictly ethnic specific but instead reflect a minority position.

Further research is required to move beyond only identifying what a barrier is and into identifying both what and why the barrier is and how it impacts on management. Furthermore, understanding the difference between barriers and explanations that are ethnic-specific and those related to being a minority will enable the application of generic system-wide interventions where ethnicity is not the issue and ethnically-tailored interventions where needed.

Copyright © Queen’s Printer and Controller of HMSO 2014. This work was produced by Lakhanpaul et al. under the terms of a commissioning contract issued by the Secretary of State for Health. This issue may be freely reproduced for the purposes of private research and study and extracts (or indeed, the full report) may be included in professional journals provided that suitable acknowledgement is made and the reproduction is not associated with any form of advertising. Applications for commercial reproduction should be addressed to: NIHR Journals Library, National Institute for Health Research, Evaluation, Trials and Studies Coordinating Centre, Alpha House, University of Southampton Science Park, Southampton SO16 7NS, UK.

Included under terms of UK Non-commercial Government License.

Bookshelf ID: NBK260070

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