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Lakhanpaul M, Bird D, Culley L, et al. The use of a collaborative structured methodology for the development of a multifaceted intervention programme for the management of asthma (the MIA project), tailored to the needs of children and families of South Asian origin: a community-based, participatory study. Southampton (UK): NIHR Journals Library; 2014 Sep. (Health Services and Delivery Research, No. 2.28.)

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The use of a collaborative structured methodology for the development of a multifaceted intervention programme for the management of asthma (the MIA project), tailored to the needs of children and families of South Asian origin: a community-based, participatory study.

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Appendix 12Steering group suggestions for additions and considerations to proposed intervention

TABLE 23

Recommendations from external steering group

Issues and suggestionsClinical and layperson advice centresEducation and training modulesRaising awareness
Feasibility: issues raisedThe programme was felt to be ambitious but largely feasible, although the feasibility of achieving HCP change in practice was raised, in particular how liaison between the co-ordinating office and GPs will be providedOverall, this arm was reported as ambitious and resource intensive, with potential difficult issues around recruiting and retaining educatorsBroadly feasible to implement but risks of being too narrowly focused on one group and whether or not overworked NHS services can tolerate increased workloads
SuggestionsGood-quality and reliable computer system essential
Need consortia buy-in from early stages
To combine or condense the 14 modules into a shorter training course
To offer yearly refresher training for lay educators, and partner lay educators with professional educators
Need to ensure everyone relevant is included
Use Asian TV and partner with other organisations and community groups
Barriers: issues raisedHCP resistance to change was reported as the most likely barrier, although other considerations such as the need for a secure and reliable computer programme to manage this were also raisedToo many modules
People who think they know an area will opt out and miss vital knowledge
Big time commitment for families or professionals
Issues with HCPs’, teachers’ and parents’ lack of time, but also lack of knowledge and training or lack of interest in working this way
SuggestionsIt was suggested that strong support from the new GP consortia and linking this arm closely to the education and training modules would assist in overcoming barriersTo offer whole course as a fixed set, not to allow people to choose which modules to take
Sessions could be 30 minutes to 1 hour, whole programme about 4 hours
Could integrate awareness into existing classes
ResourcesReviewers identified that the staff required to run the co-ordinating centre and the cost of increased service demands would need to be accounted for
Concerns were raised over long-term sustainability without research funding
Will need to develop electronic and hard-copy back-up resources for each module
Resources to recruit and train lay educators, and pay for time spent on educating others, plus venues
Will need to have resources and clinical ability to support any changes in expectations or behaviours, linked to term sustainability/resources to embed this
SuggestionsWill need expert medical backup to ensure content of modules up to dateGet buy in from right people, time and effort to get people on board
Copyright © Queen’s Printer and Controller of HMSO 2014. This work was produced by Lakhanpaul et al. under the terms of a commissioning contract issued by the Secretary of State for Health. This issue may be freely reproduced for the purposes of private research and study and extracts (or indeed, the full report) may be included in professional journals provided that suitable acknowledgement is made and the reproduction is not associated with any form of advertising. Applications for commercial reproduction should be addressed to: NIHR Journals Library, National Institute for Health Research, Evaluation, Trials and Studies Coordinating Centre, Alpha House, University of Southampton Science Park, Southampton SO16 7NS, UK.

Included under terms of UK Non-commercial Government License.

Bookshelf ID: NBK260061

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