In September 2010, the White House Office of National AIDS Policy commissioned an Institute of Medicine (IOM) committee to respond to a two-part statement of task concerning how to monitor care for people with HIV. The IOM convened a committee of 17 members with expertise in HIV clinical care and supportive services, epidemiology, biostatistics, health policy, and other areas to respond to this task. The committee's first report, Monitoring HIV Care in the United States: Indicators and Data Systems, was released in March 2012. The report identified 14 core indicators of clinical HIV care and mental health, substance abuse, and supportive services for use by the Department of Health and Human Services (HHS) to monitor the impact of the National HIV/AIDS Strategy (NHAS) and the Patient Protection and Affordable Care Act (ACA) on improvements in HIV care and identified sources of data to estimate the indicators.

The report also addressed a series of questions related to the collection, analysis, and dissemination of data necessary to estimate the indicators. In this second report, Monitoring HIV Care in the United States: A Strategy for Generating National Estimates of HIV Care and Coverage, the committee addresses how to obtain national estimates that characterize the health care of people with HIV within the context of the ACA, both before 2014 and after 2014, when key provisions of the ACA will be implemented. This report focuses on how to monitor the anticipated changes in health care coverage, service utilization, and quality of care for people with HIV within the context of the ACA.

Contents

• THE NATIONAL ACADEMIES
• COMMITTEE TO REVIEW DATA SYSTEMS FOR MONITORING HIV CARE
• Reviewers
• Acknowledgments
• Abbreviations and Acronyms
• Summary
  • COMMITTEE'S APPROACH TO ITS CHARGE
  • COMMITTEE'S CONCLUSIONS AND RECOMMENDATIONS
• 1. Introduction
  • THE COMMITTEE'S APPROACH TO ITS CHARGE
  • REPORT ORGANIZATION
  • STUDY CONTEXT
  • MONITORING HIV IN THE UNITED STATES
  • REFERENCES
• 2. Implications of Health Care Reform for People with HIV in the United States
  • AFFORDABLE CARE ACT
  • HEALTH REFORM AND PEOPLE WITH HIV
  • STATE IMPLEMENTATION
  • OPPORTUNITIES, CHALLENGES, AND LIMITATIONS
  • REFERENCES
• 3. How to Obtain National Estimates of Health Care Coverage and Utilization for People with HIV in the United States
  • HOW TO ESTABLISH A BASELINE OF HEALTH CARE COVERAGE AND UTILIZATION PRIOR TO 2014
  • HOW TO CONTINUE TO OBTAIN DATA TO MONITOR HEALTH CARE COVERAGE AND UTILIZATION AFTER 2014
  • ADDITIONAL DATA SOURCES
  • CHALLENGES OF COMBINING DATA FROM DIFFERENT SOURCES
  • REFERENCES
• 4. Conclusions and Recommendations
• Appendix Biographical Sketches of Committee Members

This study was supported by Contract No. HHSP23320042509XI between the National Academy of Sciences and the White House Office of National AIDS Policy. Any opinions, findings, conclusions, or recommendations expressed in this publication are those of the author(s) and do not necessarily reflect the view of the organizations or agencies that provided support for this project.

Suggested citation:

IOM (Institute of Medicine). 2012. Monitoring HIV Care in the United States: A Strategy for Generating National Estimates of HIV Care and Coverage. Washington, DC: The National Academies Press.

NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance.