Contents

• THE NATIONAL ACADEMIES
• PANEL ON DHHS COLLECTION OF RACE AND ETHNICITY DATA
• COMMITTEE ON NATIONAL STATISTICS 2003-2004
• Acknowledgments
• Executive Summary
• 1. Introduction
  • DATA TO SUPPORT HEALTH DISPARITIES INTERVENTIONS AND RESEARCH
  • PANEL CHARGE
  • PREVIOUS REVIEWS OF DATA NEEDS
  • THE REPORT
• 2. The Importance of Data on Race, Ethnicity, Socioeconomic Position, and Acculturation in Understanding Disparities in Health and Health Care
  • DISPARITIES IN HEALTH AND HEALTH CARE
  • FOUR KEY DIMENSIONS OF DISPARITIES
  • THE IMPORTANCE OF UNDERSTANDING DISPARITIES IN HEALTH AND HEALTH CARE
• 3. Measuring Race, Ethnicity, Socioeconomic Position, and Acculturation
  • RACE AND ETHNICITY
  • SOCIOECONOMIC POSITION
  • ACCULTURATION AND LANGUAGE USE
  • CROSS-CUTTING ISSUES IN MEASUREMENT AND USE OF THESE DATA
• 4. DHHS Collection of Data on Race, Ethnicity, Socioeconomic Position, and Acculturation and Language Use
  • HOUSEHOLD AND INDIVIDUAL SURVEY DATA COLLECTIONS
  • PROVIDER-BASED SURVEYS
  • MEDICARE DATA
  • DISEASE SURVEILLANCE SYSTEM DATA COLLECTION
  • HUMAN SERVICES PROGRAMS
  • INDIAN HEALTH SERVICE DATA
  • RECOMMENDATIONS
• 5. State-Based Collection of Data on Race, Ethnicity, Socioeconomic Position, and Acculturation and Language Use
  • VITAL STATISTICS BIRTH AND DEATH RECORDS
  • HOSPITAL DISCHARGE ABSTRACTS
  • CANCER REGISTRIES
  • STATE HEALTH INTERVIEW SURVEYS
  • MEDICAID AND SCHIP DATA
  • RECOMMENDATIONS
• 6. Private-Sector Collection of Data on Race, Ethnicity, Socioeconomic Position, and Acculturation and Language Use
  • PRIVATE-SECTOR DATA COLLECTION SYSTEMS
  • LEGAL FRAMEWORK
  • CURRENT PRACTICES
  • RECOMMENDATIONS
• References
• Appendix A Descriptions of National Health and Health Care Surveys
• Appendix B Workshop on Improving Racial and Ethnic Data in Health
• Appendix C Recommendations on the Use of Socioeconomic Position Indicators to Better Understand Racial Inequalities in Health
• Appendix D The Role of Racial and Ethnic Data Collection in Eliminating Disparities in Health Care
• Appendix E State Collection of Racial and Ethnic Data
• Appendix F Collection of Data on Race and Ethnicity by Private-Sector Organizations: Hospitals, Health Plans, and Medical Groups
• Appendix G Racial and Ethnic Data Collection by Health Plans
• Appendix H Biographical Sketches

Suggested citation:

National Research Council. (2004). Eliminating Health Disparities: Measurement and Data Needs. Panel on DHHS Collection of Race and Ethnicity Data, Michele Ver Ploeg and Edward Perrin, Editors. Committee on National Statistics, Division of Behavioral and Social Sciences and Education. Washington, DC: The National Academies Press.

NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance.

This study was supported by Contract/Grant No. HHS-100-01-0022 between the National Academy of Sciences and the U.S. Department of Health and Human Services. Any opinions, findings, conclusions, or recommendations expressed in this publication are those of the author(s) and do not necessarily reflect the views of the organizations or agencies that provided support for the project.