An official website of the United States government
The .gov means it's official. Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you're on a federal government site.
The site is secure. The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.
Registries for Evaluating Patient Outcomes: A User's Guide [Internet]. 3rd edition.
Gliklich RE, Dreyer NA, Leavy MB, editors.
Rockville (MD): Agency for Healthcare Research and Quality (US); 2014 Apr.
Table of contents
Linking Registry Data With Other Data Sources To Support New Studies.
Managing Patient Identity Across Data Sources.
Assessing Quality.
Patient Registries.
Analysis of Linked Registry Data Sets.
Data Elements for Registries.
Use of Registries in Product Safety Assessment.
Data Sources for Registries.
Registries for Medical Devices.
Registry Design.
Modifying and Stopping Registries.
Principles of Registry Ethics, Data Ownership, and Privacy.
Rare Disease Registries.
Preface.
Your browsing activity is empty.
Activity recording is turned off.
Turn recording back on