NCBI Bookshelf. A service of the National Library of Medicine, National Institutes of Health.
Excerpt
This meeting brought together demographers, economists, epidemiologists, ethicists, molecular biologists, physiologists, geneticists, pathologists, and sociologists, in addition to representatives of numerous government agencies. The workshop and this resultant volume sought to address a range of questions. What can social science, and demography in particular, reasonably expect to learn from biological information? Which genetic, pedigree, historical, and environmental data ought to be collected in order to be most useful to a wide range of scientists? Are there likely to be unintended side effects of amassing biological data (for example, what will attempts to collect bioindicators do to survey response rates, or to the quality of self-reported data)? How might ethical duties to research subjects change with the collection of bioindicators? How will confidentiality issues be handled? The methodological challenges for marrying large population surveys to genetic hypotheses are complex and not easily solved, in part because extant surveys have been structured and funded to address a set of important nongenetic scientific questions.
Contents
- THE NATIONAL ACADEMIES
- COMMITTEE ON POPULATION
- CONTRIBUTORS
- Preface
- 1. Collecting Biological Indicators in Household SurveysCaleb E. Finch and James W. Vaupel.
- 2. Integrating Biology into Demographic Research on Health and Aging (With a Focus on the MacArthur Study of Successful Aging)Eileen M. Crimmins and Teresa Seeman.
- 3. Biological Material in Household Surveys: The Interface Between Epidemiology and GeneticsKaare Christensen.
- 4. Demography in the Age of Genomics: A First Look at the ProspectsDouglas Ewbank.
- 5. The Value of Sibling and Other “Relational” Data for Biodemography and Genetic EpidemiologyGeorge P. Vogler.
- 6. Opportunities for Population-Based Research on Aging Human Subjects: Pathology and GeneticsGeorge M. Martin and Hu Qubai.
- 7. Indicators of Function in the Geriatric PopulationJeffrey B. Halter and David B. Reuben.
- 8. Biomarkers and the Genetics of Aging in MiceRichard A. Miller.
- 9. The Relevance of Animal Models for Human PopulationsGerald E. McClearn.
- 10. Applying Genetic Study Designs to Social and Behavioral Population SurveysRobert B. Wallace.
- 11. Stretching Social Surveys to Include Bioindicators: Possibilities for the Health and Retirement Study, Experience from the Taiwan Study of the ElderlyMaxine Weinstein and Robert J. Willis.
- 12. Informed Consent for the Collection of Biological Samples in Household SurveysJeffrey R. Botkin.
- 13. Ethical and Social Issues in Incorporating Genetic Research into Survey StudiesSharon J. Durfy.
- BACKGROUND
- IS GENETIC INFORMATION SPECIAL?
- PRIVACY OF GENETIC INFORMATION IN RESEARCH STUDIES
- ACCESS TO AND OWNERSHIP OF GENETIC INFORMATION AND SAMPLES
- PSYCHOLOGICAL RISKS OF PARTICIPATION IN GENETIC RESEARCH STUDIES
- GROUP-RELATED HARMS OF PARTICIPATION IN GENETIC RESEARCH STUDIES
- NEW DIRECTIONS
- REFERENCES
- 14. Biosocial Opportunities for SurveysKenneth W. Wachter.
- Suggested Readings
- Glossary
This study was supported by Task Order 49 under NIH Contract No. N01-OD-4-2139 between the National Academy of Sciences and the Office of the Demography of Aging, National Institute of Aging, National Institutes of Health, U.S. Department of Health and Human Services. Additional funding was provided by the Office of the Director of the Behavioral and Social Research Program, National Institutes of Health, by the William and Flora Hewlett Foundation, and by the Andrew W. Mellon Foundation.
Suggested citation:
National Research Council (2000) Cells and Surveys: Should Biological Measures Be Included in Social Science Research? Committee on Population. Caleb E. Finch, James W. Vaupel, and Kevin Kinsella, eds. Commission on Behavioral and Social Sciences and Education. Washington, D.C.: National Academy Press.
Any opinions, findings, conclusions, or recommendations expressed in this publication are those of the author(s) and do not necessarily reflect the views of the organizations or agencies that provided support for the project.
NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance.
- NLM CatalogRelated NLM Catalog Entries
- Review Conducting Biosocial Surveys: Collecting, Storing, Accessing, and Protecting Biospecimens and Biodata[ 2010]Review Conducting Biosocial Surveys: Collecting, Storing, Accessing, and Protecting Biospecimens and BiodataNational Research Council (US) Panel on Collecting, Storing, Accessing, and Protecting Biological Specimens and Biodata in Social Surveys, Hauser RM, Weinstein M, Pool R, Cohen B. 2010
- Health-related quality of life in early breast cancer.[Dan Med Bull. 2010]Health-related quality of life in early breast cancer.Groenvold M. Dan Med Bull. 2010 Sep; 57(9):B4184.
- Review Issues in Returning Individual Results from Genome Research Using Population-Based Banked Specimens, with a Focus on the National Health and Nutrition Examination Survey: Workshop Summary[ 2014]Review Issues in Returning Individual Results from Genome Research Using Population-Based Banked Specimens, with a Focus on the National Health and Nutrition Examination Survey: Workshop SummarySteering Committee for the Workshop on Guidelines for Returning Individual Results from Genome Research Using Population-Based Banked Specimens, Committee on National Statistics, Division of Behavioral and Social Sciences and Education, National Research Council. 2014 Sep 8
- Intellectual property rights, standards and data exchange in systems biology: Reflections from the IP Expert Meeting at the University of Luxembourg, 8-9 October 2015, ERASysAPP - ERA-Net for Systems Biology Applications.[Biotechnol J. 2016]Intellectual property rights, standards and data exchange in systems biology: Reflections from the IP Expert Meeting at the University of Luxembourg, 8-9 October 2015, ERASysAPP - ERA-Net for Systems Biology Applications.van Zimmeren E, Rutz B, Minssen T. Biotechnol J. 2016 Dec; 11(12):1477-1480.
- Six Sigma: not for the faint of heart.[Radiol Manage. 2003]Six Sigma: not for the faint of heart.Benedetto AR. Radiol Manage. 2003 Mar-Apr; 25(2):40-53.
- Cells and SurveysCells and Surveys
- Taxonomy Links for GEO Profiles (Select 109118311) (1)Taxonomy
Your browsing activity is empty.
Activity recording is turned off.
See more...