Development of a culturally appropriate computer-delivered tailored Internet-based health literacy intervention for Spanish-dominant Hispanics living with HIV

BMC Med Inform Decis Mak. 2014 Nov 30:14:103. doi: 10.1186/s12911-014-0103-9.

Abstract

Background: Low health literacy is associated with poor medication adherence in persons with human immunodeficiency virus (HIV), which can lead to poor health outcomes. As linguistic minorities, Spanish-dominant Hispanics (SDH) face challenges such as difficulties in obtaining and understanding accurate information about HIV and its treatment. Traditional health educational methods (e.g., pamphlets, talking) may not be as effective as delivering through alternate venues. Technology-based health information interventions have the potential for being readily available on desktop computers or over the Internet. The purpose of this research was to adapt a theoretically-based computer application (initially developed for English-speaking HIV-positive persons) that will provide linguistically and culturally appropriate tailored health education to Spanish-dominant Hispanics with HIV (HIV + SDH).

Methods: A mixed methods approach using quantitative and qualitative interviews with 25 HIV + SDH and 5 key informants guided by the Information-Motivation-Behavioral (IMB) Skills model was used to investigate cultural factors influencing medication adherence in HIV + SDH. We used a triangulation approach to identify major themes within cultural contexts relevant to understanding factors related to motivation to adhere to treatment. From this data we adapted an automated computer-based health literacy intervention to be delivered in Spanish.

Results: Culture-specific motivational factors for treatment adherence in HIV + SDH persons that emerged from the data were stigma, familismo (family), mood, and social support. Using this data, we developed a culturally and linguistically adapted a tailored intervention that provides information about HIV infection, treatment, and medication related problem solving skills (proven effective in English-speaking populations) that can be delivered using touch-screen computers, tablets, and smartphones to be tested in a future study.

Conclusion: Using a theoretically-grounded Internet-based eHealth education intervention that builds on knowledge and also targets core cultural determinants of adherence may prove a highly effective approach to improve health literacy and medication decision-making in this group.

MeSH terms

  • Acculturation
  • Adult
  • Anti-HIV Agents / therapeutic use*
  • Communication Barriers
  • Consumer Health Information / methods
  • Consumer Health Information / standards*
  • Culturally Competent Care / methods
  • Culturally Competent Care / standards*
  • Evaluation Studies as Topic
  • Female
  • Florida / epidemiology
  • HIV Infections / drug therapy
  • HIV Infections / ethnology*
  • Health Knowledge, Attitudes, Practice / ethnology*
  • Health Literacy*
  • Hispanic or Latino*
  • Humans
  • Internet
  • Interviews as Topic
  • Language
  • Male
  • Medication Adherence / ethnology*
  • Middle Aged
  • Qualitative Research
  • Social Stigma
  • Socioeconomic Factors

Substances

  • Anti-HIV Agents