Needs assessment of cancer survivors in Connecticut

J Cancer Surviv. 2012 Mar;6(1):1-10. doi: 10.1007/s11764-011-0198-2. Epub 2011 Oct 9.

Abstract

Introduction: There are knowledge gaps regarding the needs of cancer survivors in Connecticut and their utilization of supportive services.

Methods: A convenience sample of cancer survivors residing in Connecticut were invited to complete a self-administered (print or online) needs assessment (English or Spanish). Participants identified commonly occurring problems and completed a modified version of the Supportive Care Needs Survey Short Form (SNCS-SF34) assessing needs across five domains (psychosocial, health systems/information, physical/daily living, patient care /support, and sexuality).

Results: The majority of the 1,516 cancer survivors (76.4%) were women, 47.5% had completed high school or some college, 66.1% were diagnosed ≤5 years ago, and 87.7% were non-Hispanic white. The breast was the most common site (47.6%), followed by the prostate, colorectal, lung, and melanoma. With multivariate adjustment, need on the SCNS-SF34 was greatest among women, younger survivors, those diagnosed within the past year, those not free of cancer, and Hispanics/Latinos. We also observed some differences by insurance and education status. In addition, we assessed the prevalence of individual problems, with the most common being weight gain/loss, memory changes, paying for care, communication, and not being told about services.

Conclusions: Overall and domain specific needs in this population of cancer survivors were relatively low, although participants reported a wide range of problems. Greater need was identified among cancer survivors who were female, younger, Hispanic/Latino, and recently diagnosed.

Implications for cancer survivors: These findings can be utilized to target interventions and promote access to available resources for Connecticut cancer survivors.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Activities of Daily Living
  • Adolescent
  • Adult
  • Aged
  • Connecticut
  • Data Collection
  • Ethnicity
  • Female
  • Health Resources
  • Health Services Needs and Demand*
  • Humans
  • Male
  • Middle Aged
  • Needs Assessment*
  • Neoplasms* / psychology
  • Neoplasms* / therapy
  • Patient Education as Topic
  • Self Report
  • Sexual Behavior
  • Social Support
  • Socioeconomic Factors
  • Surveys and Questionnaires
  • Survivors* / psychology
  • Young Adult