Data collection for sexually transmitted disease diagnoses: a comparison of self-report, medical record reviews, and state health department reports

Ann Epidemiol. 2005 Mar;15(3):236-42. doi: 10.1016/j.annepidem.2004.07.093.

Abstract

Purpose: To compare three methods of data collection on case ascertainment of past chlamydia or gonorrhea diagnoses.

Methods: Data collection for 361 adolescent females between 1998 and 2000 included: 1) face-to-face interviews; 2) computerized and paper medical record reviews; and 3) chlamydia and gonorrhea reports to the state health department. Statistical methods include latent class and composite reference standard analyses.

Results: The estimated prevalence of past diagnoses did not differ significantly by data collection method for chlamydia (20.5%, 23.0%, and 19.7% by self-report, medical record reviews, and state health department reports, respectively) or gonorrhea (4.7%, 6.9%, and 5.5%, respectively) during the 2-year study period. The estimated latent class and composite reference standard prevalences for chlamydia were 23.5% and 26.9%, respectively (p=.04 and p < .01 for differences from self-report alone, respectively). For gonorrhea, the estimated latent class and composite reference standard prevalences were 7.8% and 6.9%, respectively (p < .01 for both differences from self-report alone). Kappa scores for self-report compared with the latent class and composite reference standard prevalences ranged from .67 to .80, and the magnitude of under-reporting ranged from 21% to 47%.

Conclusions: The similar case ascertainment from the three sources separately and high reliability of self-report, coupled with its feasibility and low cost, suggest that self-report is a viable data collection method for STD diagnoses. However, using multiple sources may be preferable when time and resources permit given that under-reporting by self-report is likely to occur (particularly for gonorrhea) and that greater case ascertainment can be achieved.

Publication types

  • Comparative Study
  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't
  • Research Support, U.S. Gov't, P.H.S.
  • Validation Study

MeSH terms

  • Adolescent
  • Adult
  • Chlamydia Infections / diagnosis
  • Chlamydia Infections / epidemiology*
  • Data Collection / methods*
  • Data Interpretation, Statistical
  • Disease Notification
  • Female
  • Gonorrhea / diagnosis
  • Gonorrhea / epidemiology*
  • Humans
  • Interviews as Topic
  • Medical Records
  • Pregnancy
  • Prevalence
  • Public Health Informatics
  • Risk Factors
  • Self Disclosure
  • Sexually Transmitted Diseases / diagnosis
  • Sexually Transmitted Diseases / epidemiology
  • State Government
  • United States / epidemiology