'From my point of view, my wife has recovered': A qualitative investigation of caregivers' perceptions of recovery and peer support services for people with bipolar disorder in a Chinese community

Int J Soc Psychiatry. 2019 Jun;65(4):305-312. doi: 10.1177/0020764019842287. Epub 2019 Apr 15.

Abstract

Background: Bipolar disorder (BD) is a chronic mental disorder, and family members play a key role in taking care of the affected individuals. The recovery movement has gradually transformed mental health services, for example, through the introduction of peer support services (sharing of expert-by-experience knowledge), and it has challenged the prevailing view that people with mental illness cannot recover.

Aims: Through this study, the researchers explored how family caregivers in a Chinese context conceptualise recovery, how caregivers interact with peer support workers (PSWs) and how they perceive peer support services.

Methods: Fourteen family caregivers from community settings participated in individual semi-structured interviews. The data were analysed through thematic analysis.

Results: Family caregivers had multifaceted definitions of recovery and had various degrees of contact with PSWs. The views and experiences shared by PSWs were hope-instilling for caregivers and changed their perception of BD and their loved ones. Some limitations of PSWs were also identified.

Conclusion: Social connectedness and functional outcomes were important indicators of recovery among Chinese family caregivers. Caregivers began to understand the benefits of PSWs after experiencing their services. Peer-led services could be a helpful support for both service users and family caregivers.

Keywords: Family; mental health services; peer supporters; psychiatric rehabilitation; recovery.

MeSH terms

  • Adult
  • Aged
  • Bipolar Disorder / rehabilitation*
  • Caregivers / psychology*
  • China
  • Female
  • Humans
  • Interviews as Topic
  • Male
  • Mental Health Services / organization & administration*
  • Middle Aged
  • Peer Group*
  • Qualitative Research
  • Social Support*