- 1.
- 2.
- 3.
Pucci
E, Angelerie
F, Borsetti
G, Brizoli
E, Cartechini
E, Giuliani
G, et al.
General practitioners facing dementia: are they fully prepared?
Neurol Sci
2004;24:384–9. 10.1007/s10072-003-0193-0. [
PubMed: 14767683] [
CrossRef]
- 4.
Vernooij-Dassen
M, Moniz-Cook
E, Woods
R, De Lepeleire
J, Leuschner
A, Zanetti
O, et al.
Factors affecting the timely recognition and diagnosis of dementia in primary care across eight European states: a modified focus group study.
Int J Geriatr Psych
2005;20:1–10. 10.1002/gps.1302. [
CrossRef]
- 5.
- 6.
Boustani
M, Peterson
B, Hanson
L, Harris
R, Lohr
KN
US Preventive Services Task Force. Screening for dementia in primary care: a summary of the evidence for the US Preventive Services Task Force.
Ann Intern Med
2003;138:927–37. 10.7326/0003-4819-138-11-200306030-00015. [
PubMed: 12779304] [
CrossRef]
- 7.
Iliffe
S, Robinson
L, Brayne
C, Goodman
C, Rait
G, Manthorpe
J, et al.
Primary care & dementia: 1 Diagnosis, screening and disclosure.
Int J Geriatr Psych
2009;24:895–901. 10.1002/gps.2204. [
PubMed: 19226529] [
CrossRef]
- 8.
Jha
A, Tabet
N, Orrell
M.
‘To tell or not to tell – comparison of older patients’ reaction to their diagnosis of dementia and depression’.
Int J Geriatr Psych
2001;16:879–85. 10.1002/gps.412. [
PubMed: 11571768] [
CrossRef]
- 9.
Sullivan
K, O’Conor
F.
Should a diagnosis of dementia be disclosed?
Ageing Ment Health
2001;5:340–8. 10.1080/13607860120080297. [
PubMed: 11767982] [
CrossRef]
- 10.
Bamford
C, Lamont
S, Eccles
M, Robinson
L, May
C, Bond
J.
Disclosing a diagnosis of dementia: a systematic review.
Int J Geriatr Psych
2004;19:151–69. 10.1002/gps.1050. [
PubMed: 14758581] [
CrossRef]
- 11.
Pratt
R, Wilkinson
H.
A psychosocial model of understanding the experience of receiving a diagnosis of dementia.
Dementia
2003;2:181–99. 10.1177/1471301203002002004. [
CrossRef]
- 12.
Iliffe
S, Manthorpe
J, Eden
A.
Sooner or later? Issues in the early diagnosis of dementia in general practice: a qualitative study.
Fam Pract
2003;20:376–81. 10.1093/fampra/cmg407. [
PubMed: 12876106] [
CrossRef]
- 13.
- 14.
Stoppe
G, Knoblauch
A, Haak
S, Maeck
L.
Physicians competence regarding the early diagnosis of dementia: differences between family physicians and primary care neuropsychiatrists in Germany.
Psychiatr Prax
2007;34:134–8. 10.1055/s-2006-951855. [
PubMed: 17443455] [
CrossRef]
- 15.
Hinton
L, Franz
C, Reddy
G, Flores
Y, Kravitz
R, Barker
J.
Practice constraints, behavioural problems and dementia care: primary care physicians perspectives.
J Gen Intern Med
2007;22:1625–7. 10.1007/s11606-007-0317-y. [
PMC free article: PMC2219799] [
PubMed: 17823840] [
CrossRef]
- 16.
Iliffe
S, Jain
P, Wong
G, Lefford
F, Gupta
S, Warner
A, et al.
Dementia diagnosis in primary care: looking outside the educational box.
Ageing Health
2009;5:51–9. 10.2217/1745509X.5.1.51. [
CrossRef]
- 17.
Great Britain. Mental Capacity Act.
London:
The Stationery Office; 2005.
- 18.
Department of Health. National Dementia Strategy.
London:
The Stationery Office; 2009.
- 19.
Turner
S, Iliffe
S, Downs
M, Wilcock
J, Bryans
M, Levin
E, et al.
General practitioners’ knowledge, confidence and attitudes in the diagnosis and management of dementia.
Age Ageing
2004;33:461–7. 10.1093/ageing/afh140. [
PubMed: 15271637] [
CrossRef]
- 20.
Koch
T, Iliffe
S for the
EVIDEM-ED research team.
Rapid appraisal of barriers to the diagnosis and management of patients with dementia in primary care: a narrative review.
BMC Fam Pract
2010;11:52–9. 10.1186/1471-2296-11-52. [
PMC free article: PMC2909966] [
PubMed: 20594302] [
CrossRef]
- 21.
Downs
M, Turner
S, Bryans
M, Wilcock
J, Keady
J, Levin
E, et al.
Effectiveness of educational interventions in improving detection and management of dementia in primary care: a cluster randomised controlled study.
BMJ
2006;332:692–5. 10.1136/bmj.332.7543.692. [
PMC free article: PMC1410839] [
PubMed: 16565124] [
CrossRef]
- 22.
Waldorff
F, Almind
G, Makela
M, Moller
S, Waldemar
G.
Implementation of a clinical dementia guideline: a controlled study on the effect of a multifaceted strategy.
Scand J Prim Health Care
2003;21:142–7. 10.1080/02813430310005136. [
PubMed: 14531504] [
CrossRef]
- 23.
Rondeau
V, Allain
H, Bakchine
S, Bonet
P, Brudon
F, Chauplannaz
G, et al.
General practice-based intervention for suspecting and detecting dementia in France.
Dementia
2008;7:433–50. 10.1177/1471301208096628. [
CrossRef]
- 24.
Chodosh
J, Berry
E, Lee
M, Connor
K, DeMonte
R, Ganiats
T, et al.
Effect of a dementia care management intervention on primary care provider knowledge, attitudes, and perceptions of quality of care.
J Am Geriatr Soc
2006;54:311–17. 10.1111/j.1532-5415.2005.00564.x. [
PubMed: 16460384] [
CrossRef]
- 25.
Vickrey
B, Mittman
B, Connor
K, Pearson
ML, Della Penna
RD, Ganiats
TG, et al.
The effect of a disease management intervention on quality and outcomes of dementia care.
Ann Intern Med
2006;145:713–26. 10.7326/0003-4819-145-10-200611210-00004. [
PubMed: 17116916] [
CrossRef]
- 26.
Wenger
N, Roth
C, Shekelle
P, Young
RT, Solomon
DH, Kamberg
CJ, et al.
A practice-based intervention to improve primary care for falls, urinary incontinence, and dementia.
J Am Geriatr Soc
2009;57:547–55. 10.1111/j.1532-5415.2008.02128.x. [
PubMed: 19175441] [
CrossRef]
- 27.
Vollmar
H, Mayer
H, Ostermann
T, Butzlaff
ME, Sandars
JE, Wilm
S, et al.
Knowledge transfer for the management of dementia: a cluster-randomised trial of blended learning in general practice.
Implement Sci
2010;5:1. 10.1186/1748-5908-5-1. [
PMC free article: PMC2881109] [
PubMed: 20047652] [
CrossRef]
- 28.
Perry
M, Draskovic
I, van Achterberg
T, Borm
GF, van Eijken
MI, Lucassen
P, et al.
Can an EASYcare based dementia training programme improve diagnostic assessment and management of dementia by general practitioners and primary care nurses? The design of a randomised controlled trial.
BMC Health Serv Res
2008;8:71. 10.1186/1472-6963-8-71. [
PMC free article: PMC2391160] [
PubMed: 18384675] [
CrossRef]
- 29.
Callahan
C, Boustani
M, Unverzagt
F, Austrom
MG, Damush
TM, Perkins
AJ, et al.
Effectiveness of collaborative care for older adults with Alzheimer Disease in primary care: a randomised controlled trial.
JAMA
2006;295:2148–57. 10.1001/jama.295.18.2148. [
PubMed: 16684985] [
CrossRef]
- 30.
Fortinsky
R, Kulldorff
M, Kleppinger
A, Kenyon-Pesce
L.
Dementia care consultation for family caregivers: collaborative model linking an Alzheimer’s Association chapter with primary care physicians.
Ageing Ment Health
2009;13:162–70. 10.1080/13607860902746160. [
PubMed: 19347683] [
CrossRef]
- 31.
Clark
P, Bass
D, Looman
W, McCarthy
CA, Eckert
S.
Outcomes for patients with dementia from the Cleveland Alzheimer’s managed care demonstration.
Ageing Ment Health
2004;8:40–51. 10.1080/13607860310001613329. [
PubMed: 14690867] [
CrossRef]
- 32.
- 33.
- 34.
Moseley
A, Herbert
R, Sherrington
C, Maher
C.
Evidence for physiotherapy practice: a survey of the Physiotherapy Evidence Database (PEDro).
Aust J Physiother
2002;48:43–9. 10.1016/S0004-9514(14)60281-6. [
PubMed: 11869164] [
CrossRef]
- 35.
Bhogal
S, Teasell
R, Foley
N, Speechley
M.
The PEDro scale provides a more comprehensive measure of methodological quality that the Jadad Scale in stroke rehabilitation literature.
J Clin Epidemiol
2005;58:668–73. 10.1016/j.jclinepi.2005.01.002. [
PubMed: 15939217] [
CrossRef]
- 36.
National Institute for Clinical Excellence and Social Care Institute for Excellence (NICE/SCIE). Dementia: Supporting People with Dementia and their Carers in Health and Social Care.
London:
NICE/SCIE; 2006.
- 37.
Kaulio
M.
Customer, consumer and user involvement in product development: a framework and a review of selected methods.
Total Qual Manag Bus
1998;9:141–9. 10.1080/0954412989333. [
CrossRef]
- 38.
Wyatt
J, Spiegelhalter
D.
Evaluating medical expert systems: what to test and how?
Med Inform
1990;15:205–17. 10.3109/14639239009025268. [
PubMed: 2232956] [
CrossRef]
- 39.
Iliffe
S, Koch
T, Jain
P, Lefford
F, Wong
G, Warner
A, et al.
Developing an educational intervention on dementia diagnosis and management in primary care for the EVIDEM-ED trial.
Trials
2012;13:142. 10.1186/1745-6215-13-142. [
PMC free article: PMC3492020] [
PubMed: 22913431] [
CrossRef]
- 40.
Iliffe
S, Wilcock
J, Austin
T, Walters
K, Rait
G, Turner
S, et al.
Dementia diagnosis and management in primary care: developing and testing educational models.
Dementia
2002;1:11–23. 10.1177/147130120200100111. [
CrossRef]
- 41.
Wilcock
J, Iliffe
S, Walters
K, Rait
G, Austin
T, Turner
S, et al.
The development of an evidence-based curriculum for dementia care training in general practice. Educat Ageing
2002;17:217–36.
- 42.
Dockery
G. Rhetoric or reality? Participatory research in the National Health Service, UK. In De Koning
K, Martin
M, editors. Participatory Research in Health: Issues and Experiences.
London:
Zed books; 1996. pp. 164–176.
- 43.
- 44.
Carney
O, McIntosh
J, Worth
A.
The use of the nominal group technique in research with community nurses.
J Adv Nurs
1996;23:1024–9. 10.1046/j.1365-2648.1996.09623.x. [
PubMed: 8732532] [
CrossRef]
- 45.
Iliffe
S, Wilcock
J, Griffin
M, Jain
P, Thuné-Boyle
I, Koch
T, et al.
Evidence-based interventions in dementia: a pragmatic cluster-randomised trial of an educational intervention to promote earlier recognition and response to dementia in primary care (EVIDEM-ED).
Trials
2010;11:13. 10.1186/1745-6215-11-13. [
PMC free article: PMC2829558] [
PubMed: 20146803] [
CrossRef]
- 46.
Ukoumunne
OC, Gulliford
MC, Chinn
S, Sterne
JAC, Burney
PCJ.
Methods for evaluating area-wide and organisation-based interventions in health and health care: a systematic review.
Health Technol Assess
1999;3(5). [
PubMed: 10982317]
- 47.
Roberts
C.
The implications of variation in outcome between health professionals for the design and analysis of randomised controlled trials.
Statist Med
1999;18:2605–15. 10.1002/(SICI)1097-0258(19991015)18:19<2605::AID-SIM237>3.0.CO;2-N. [
PubMed: 10495459] [
CrossRef]
- 48.
Adams
G, Gulliford
MC, Ukoumunne
OC, Eldridge
S, Chinn
S, Campbell
MJ.
Patterns of intra-cluster correlation from primary care research to inform study design and analysis.
J Clin Epidemiol
2004;57:785–94. 10.1016/j.jclinepi.2003.12.013. [
PubMed: 15485730] [
CrossRef]
- 49.
Research Randomizer, A Free Online Tool Available for Researchers. URL:
www.randomizer.org (accessed June 2013).
- 50.
Great Britain. Data Protection Act.
London:
HMSO; 1998.
- 51.
- 52.
Folstein
M, Folstein
SE, McHugh
P.
‘Mini-Mental State’: a practical method for grading the cognitive state of patients for the clinician.
J Psychiatr Res
1975;12:189–98. 10.1016/0022-3956(75)90026-6. [
PubMed: 1202204] [
CrossRef]
- 53.
Barrett
JJ, Haley
WE, Harrell
LE, Powers
RE.
Knowledge about Alzheimer’s disease among primary care physicians, psychologists, nurses, and social workers.
Adv Biosci
1997;11:99–106. [
PubMed: 9194956]
- 54.
Dieckmann
L, Zarit
S, Zarit
J, Gatz
M.
The Alzheimer’s Disease Knowledge test.
Gerontologist
1988;28:402–7. 10.1093/geront/28.3.402. [
PubMed: 3396921] [
CrossRef]
- 55.
Taylor
RS, Mears
R, Reeves
B, Ewings
E, Binns
S, Keast
J, et al.
Developing and validating a questionnaire to evaluate the effectiveness of evidence-based practice teaching.
Med Educ
2001;35:544–7. 10.1046/j.1365-2923.2001.00916.x. [
PubMed: 11380856] [
CrossRef]
- 56.
Medical Research Council (MRC). A Framework for Development and Evaluation of RCTs for Complex Interventions to Improve Health.
London:
MRC; 2000.
- 57.
- 58.
Davis
D, Mazmanian
P, Fordis
M, van Harrison
R, Thorpe
K, Perrier
L.
Accuracy of physician self-assessment compared with observed measures of competence.
JAMA
2006;296:1094–102. 10.1001/jama.296.9.1094. [
PubMed: 16954489] [
CrossRef]
- 59.
National Institute for Health and Clinical Excellence (NICE).
Dementia: Supporting People with Dementia and their Carers.
London:
NICE; 2006. URL:
www.nice.org.uk/CG42 (accessed December 2013).
- 60.
Downs
M, Turner
S, Bryans
M, Wilcock
J, Keady
J, Levin
E, et al.
Family carers’ accounts of primary care services for their relatives with early signs of dementia.
Dementia
2006;5:353–73. 10.1177/1471301206067111. [
CrossRef]
- 61.
Edwards
R, Voss
S, Iliffe
S.
Education about dementia in primary care: is patient centredness the key?
[published online ahead of print July 4, 2012].
Dementia
2014;13:111–19. 10.1177/1471301212451381. [
PubMed: 24381042] [
CrossRef]
- 62.
Cummings
JL, Mega
M, Grey
K, Rosenberg-Thompson
S, Carusi
DA, Gornbein
J.
The Neuropsychiatric Inventory: comprehensive assessment of psychopathology in dementia.
Neurology
1994;44:2308–14. 10.1212/WNL.44.12.2308. [
PubMed: 7991117] [
CrossRef]
- 63.
Finkel
S, Burns
A. Behavioural and Psychological Symptoms of Dementia (BPSD): a clinical and research update. IPA Bull
1999;16:3–6.
- 64.
Alzheimer
A. Über eine eigenartige Erkrankung der Hirnrinde. Allgemeine Zeitschrift für Psychiatrie und Psychisch-Gerichtliche Medizin
1907;64:146–8.
- 65.
Aalten
P, DeVugt
ME, Lousberg
R, Korten
E, Jaspers
N, Senden
B, et al.
Behavioural symptoms in dementia: a factor analysis of the neuropsychiatric inventory.
Dement Geriatr Cogn
2003;15:99–105. 10.1159/000067972. [
PubMed: 12566599] [
CrossRef]
- 66.
Colerick
EJ, George
LK.
Predictors of institutionalisation among caregivers of patients with Alzheimer’s disease.
J Am Geriatr Soc
1986;34:492–8. [
PubMed: 3722665]
- 67.
Finkel
SI, Costa e Silva
J, Cohen
G, Miller
S, Sartorius
N.
Behavioural and psychological signs and symptoms of dementia: a consensus statement on current knowledge and implications for research and treatment.
Int Psychogeriatr
1997;8(Suppl. 3):497–500. 10.1017/S1041610297003943. [
PubMed: 9154615] [
CrossRef]
- 68.
Rabins
PV, Mace
NL, Lucas
MJ.
The impact of dementia on the family.
JAMA
1982;248:333–5. 10.1001/jama.1982.03330030039022. [
PubMed: 7087127] [
CrossRef]
- 69.
Cohen-Mansfield
J.
Assessment of disruptive behaviour/agitation in the elderly: function, methods and difficulties.
J Geriatr Psych Neurol
1995;8(Suppl. 1):52–60. [
PubMed: 7710649]
- 70.
Ballard
C, Cream
J.
Drugs used to relieve behavioural symptoms in people with dementia or an unacceptable chemical cosh?
Int Psychogeriatr
2005;17:4–12. 10.1017/S1041610205221026. [
PubMed: 15945588] [
CrossRef]
- 71.
Kales
H, Velenstein
M, Kim
HM, McCarthy
JF, Ganoczy
D, Cunningham
F, et al.
Mortality risk in patients with dementia treated with antipsychotics versus other psychiatric medications.
Am J Psychiatr
2007;164:1568–76. 10.1176/appi.ajp.2007.06101710. [
PubMed: 17898349] [
CrossRef]
- 72.
Ballard
C, Hanney
ML, Theodoulou
M, Douglas
S, McShane
R, Kossakowski
K, et al.
The dementia antipsychotic withdrawal trial (DART-AD): long term follow-up of a randomised placebo-controlled trial.
Lancet
2009;8:151–7. 10.1016/S1474-4422(08)70295-3. [
PubMed: 19138567] [
CrossRef]
- 73.
Devanand
DP, Lawlor
BA. Treatment of Behavioural and Psychological Symptoms of Dementia.
London:
Martin Dunitz; 2000.
- 74.
Mather
AS.
Effect of exercise on depressive symptoms in older adults with poorly responsive depressive disorder: a randomised control trial.
Br J Psychiatry
2002;180:411–15. 10.1192/bjp.180.5.411. [
PubMed: 11983637] [
CrossRef]
- 75.
- 76.
Heyn
P, Abreu
BC, Ottenbacher
KJ.
The effects of exercise training on elderly persons with cognitive impairment and dementia: a meta-analysis.
Arch Phys Med Rehabil
2004;85:1694–704. 10.1016/j.apmr.2004.03.019. [
PubMed: 15468033] [
CrossRef]
- 77.
Dixon-Woods
M, Cavers
D, Agarwal
S, Annandale
E, Arthur
A, Harvey
J, et al.
Conducting a critical interpretive synthesis of the literature on access to healthcare by vulnerable groups.
BMC Med Res Methodol
2006;6:35. 10.1186/1471-2288-6-35. [
PMC free article: PMC1559637] [
PubMed: 16872487] [
CrossRef]
- 78.
Thuné-Boyle
ICV, Iliffe
S, Cerga-Pashoja
A, Lowery
D, Warner
J.
The effect of exercise on behavioural and psychological symptoms of dementia: towards a research agenda.
Int Psychogeriatr
2012;24:1046–57. 10.1017/S1041610211002365. [
PubMed: 22172121] [
CrossRef]
- 79.
- 80.
World Health Organization. The ICD-10 Classification of Mental and Behavioural Disorders: Diagnostic Criteria for Research.
Geneva, Switzerland:
World Health Organization; 1993. pp. 36–40.
- 81.
Nandy
S, Parsons
S, Cryer
C, Underwood
M, Rashbrook
E, Carter
Y, et al.
Development and preliminary examination of the predictive validity of the Falls Risk Assessment Tool (FRAT) for use in primary care.
J Public Health
2004;26:138–43. 10.1093/pubmed/fdh132. [
PubMed: 15284315] [
CrossRef]
- 82.
Studenski
S, Duncan
PW, Chandler
J, Samsa
G, Prescott
B, Hogue
C, et al.
Predicting falls: the role of mobility and nonphysical factors.
J Am Geriatr Soc
1994;43:297–302. [
PubMed: 8120315]
- 83.
Borg
G. Borg’s Perceived Exertion and Pain Scales.
Champaign, IL:
Human Kinetics; 1998.
- 84.
Lowery
DP, Warner
J, Cerga-Pashoja
A, Thuné-Boyle
I, Iliffe
S.
Clinicians as recruiters to dementia trials: lessons from the EVIDEM-E project.
Int J Geriatr Psychiatry
2011;26:767–9. 10.1002/gps.2671. [
PubMed: 21495081] [
CrossRef]
- 85.
Goldberg
DP. The Detection of Psychiatric Illness by Questionnaire.
London:
Oxford University Press; 1972. p. 156.
- 86.
Smith
SC, Lamping
DL, Banerjee
S, Harwood
R, Foley
B, Smith
P, et al.
Measurement of health-related quality of life for people with dementia: development of a new instrument (DEMQOL) and an evaluation of current methodology.
Health Technol Assess
2005;9(10). 10.3310/hta9100. [
PubMed: 15774233] [
CrossRef]
- 87.
Bedard
M, Molloy
DW, Squire
L, Dubois
S, Lever
JA, O’Donnell
M.
The Zarit Burden Interview: a new short version and screening version.
Gerontologist
2001;41:652–7. 10.1093/geront/41.5.652. [
PubMed: 11574710] [
CrossRef]
- 88.
Beecham
J, Knapp
M. Costing Psychiatric Interventions. In Thornicroft
G, editor. Measuring Mental Health Needs. 2nd edn.
London:
Gaskell; 2001. pp. 203–27.
- 89.
- 90.
Joint Formulary Committee. British National Formulary. 58 ed.
London:
BMJ Group Pharmaceutical Press; 2009.
- 91.
- 92.
Zellner
A.
An efficient method of estimating seemingly unrelated regression equations and tests for aggregation bias.
J Am Stat Assoc
1962;57:348–68. 10.1080/01621459.1962.10480664. [
CrossRef]
- 93.
Willan
AR, Briggs
AH, Hoch
JS.
Regression methods for covariate adjustment and subgroup analysis for non-censored cost-effectiveness data.
Health Econ
2004;13:461–75. 10.1002/hec.843. [
PubMed: 15127426] [
CrossRef]
- 94.
Schreiner
AS, Morimoto
T, Arai
Y, Zarit
S.
Assessing family caregiver’s mental health using a statistically derived cut-off score for the Zarit Burden Interview.
Ageing Ment Health
2006;10:107–11. 10.1080/13607860500312142. [
PubMed: 16517485] [
CrossRef]
- 95.
Howard
R, Phillips
P, Johnson
T, O’Brien
J, Sheehan
B, Lindesay
J, et al.
Determining the minimum clinically important differences for outcomes in the DOMINO trial
[published online ahead of print September 16 2010].
Int J Geriatr Psychiatry
2011;26:812–17. 10.1002/gps.2607. [
PubMed: 20848576] [
CrossRef]
- 96.
Donaldson
C, Tarrier
N, Burns
A.
Determinants of carer stress in Alzheimer’s disease.
Int J Geriatr Psychiatry
1998;13:248–56. 10.1002/(SICI)1099-1166(199804)13:4<248::AID-GPS770>3.0.CO;2-0. [
PubMed: 9646153] [
CrossRef]
- 97.
Schur
D, Whitlatch
CJ.
Circumstances leading to placement: a difficult caregiving decision.
Lippincotts Case Manag
2003;8:187–95. 10.1097/00129234-200309000-00002. [
PubMed: 14517497] [
CrossRef]
- 98.
- 99.
Rendell
JM, Merritt
RD, Geddes
JR.
Incentives and disincentives to participation by clinicians in randomised controlled trials.
Cochrane Database Syst Rev
2007;2:MR000021. [
PMC free article: PMC7437389] [
PubMed: 17443636]
- 100.
Iliffe
S, Curry
L, Kharicha
K, Rait
G, Wilcock
J, Lowery
D, et al.
Developing a Dementia Research Registry: a descriptive case study from North Thames DeNDRoN and the EVIDEM programme.
BMC Med Res Methodol
2011;11:9. 10.1186/1471-2288-11-9. [
PMC free article: PMC3038162] [
PubMed: 21272296] [
CrossRef]
- 101.
Craig
P, Dieppe
P, MacIntyre
S, Michie
S, Nazareth
I, Petticrew
M.
Medical Research Council guidance. Developing and evaluating complex interventions: the new Medical Research Council guidance.
BMJ
2008;337:a1655. [
PMC free article: PMC2769032] [
PubMed: 18824488]
- 102.
Department of Health (DH). Living Well with Dementia.
London:
DH; 2009.
- 103.
Scottish Executive. National Dementia Strategy 2010–2013.
Edinburgh:
Scottish Executive; 2010.
- 104.
Australia Health Ministers Conference (AHMC). National Framework for Action on Dementia 2006–2010.
Sydney, New South Wales:
Department of Health on behalf of AHMC; 2006.
- 105.
- 106.
- 107.
Nurock
S. The Lived Experience of Dementia. In Ames
D, Burns
A, O’Brien
J, editors. Dementia. 4th edn.
London:
Hodder Arnold; 2010. pp. 18–22.
- 108.
Black
BS, Rabin
PV. The Quality of Life in Dementia: Conceptual and Practical Issues. In Ames
D, Burns
A, O’Brien
J, editors. Dementia. 4th edn.
London:
Hodder Arnold: 2010. pp. 293–304.
- 109.
Georges
J, Jansen
S, Jackson
J, Meyrieux
A, Sadowska
A, Selmes
M.
Alzheimer’s disease in real life: the dementia carer’s survey.
Int J Geriatr Psychiatry
2008;23:546–51. 10.1002/gps.1984. [
PubMed: 18232054] [
CrossRef]
- 110.
Hope
T, Keene
J, Gedling
K.
Predictors of institutionalisation for people with dementia living at home with a carer.
Int J Geriatr Psychiatry
1998;13:682–90. 10.1002/(SICI)1099-1166(1998100)13:10<682::AID-GPS847>3.0.CO;2-Y. [
PubMed: 9818303] [
CrossRef]
- 111.
Luppa
M, Luck
T, Braehler
E, Koenig
HH, Riedel-Heller
SG.
Prediction of institutionalisation in dementia: a systematic review.
Dement Geriatr Cogn Disord
2008;26:65–78. 10.1159/000144027. [
PubMed: 18617737] [
CrossRef]
- 112.
APA Work Group on Alzheimer’s Disease and other Dementias, Rabins
PV, Blacker
D, Rovner
BW, Rummans
T, Schneider
LS, et al.
American Psychiatric Association practice guideline for the treatment of patients with Alzheimer’s disease and other dementias. 2nd edn.
Am J Psychiatry
2007;164(Suppl. 12):5–56. [
PubMed: 18340692]
- 113.
- 114.
Stokes
G. Incontinent or not? Do not label: describe and assess. J Dement Care
1995;3:20–1.
- 115.
Kitwood
TM. Dementia Reconsidered: The Person Comes First.
Buckingham:
Open University Press; 1997.
- 116.
Milsom
I, Altman
D, Lapitan
MC, Nelson
R, Sillén
U, Thom
D.
Epidemiology of Urinary (UI) and Faecal (FI) Incontinence and Pelvic Organ Prolapse (POP). In Abrams
P, Alexopoulos
L, Khoury
S, Wein
A, editors.
Incontinence. 4th International Consultation on Incontinence; 2009: pp. 35–111. URL:
www.icsoffice.org/Publications/ICI_4/book.pdf (accessed July 2012).
- 117.
DuBeau
CE, Kuchel
GA, Johnson
T, 2nd, Palmer
MH, Wagg
A.
Fourth International Consultation on Incontinence: incontinence in the frail elderly: report from the 4th International Consultation on Incontinence.
Neurourol Urodyn
2010;29:165–78. 10.1002/nau.20842. [
PubMed: 20025027] [
CrossRef]
- 118.
Wimo
A, Winblad
B, Jönsson
L.
An estimate of the total worldwide societal costs of dementia in 2005.
Alzheimer’s Dement
2007;3:81–91. 10.1016/j.jalz.2007.02.001. [
PubMed: 19595921] [
CrossRef]
- 119.
- 120.
Abrams
P, Andersson
KE, Birder
L, Brubaker
L, Cardozo
L, Chapple
C, et al.
Members of the Committee.
Recommendations of the International Scientific Committee: evaluation and treatment of urinary incontinence, pelvic organ prolapse and faecal incontinence. In Abrams
P, Cardozo
L, Khoury
S, Wein
A, editors.
Incontinence.
4th International Consultation on Incontinence; 2009. pp.1767–808. URL:
www.icsoffice.org/Publications/ICI_4/book.pdf (accessed August 2012).
- 121.
Scottish Intercollegiate Guideline Network.
Management of Urinary Incontinence in Primary Care. National Clinical Guideline 79; 2004. URL:
www.sign.ac.uk/pdf/sign79.pdf (accessed October 2007).
- 122.
- 123.
North of England Evidence Based Guideline Development Project. Evidence-Based Guideline for the Primary Care Management of Dementia.
Newcastle upon Tyne:
Centre for Health Services Research; 1998.
- 124.
National Collaborating Centre for Mental Health.
Dementia. A NICE-SCIE Guideline on Supporting People with Dementia and their Carers in Health and Social Care.
London:
The British Psychological Society and the Royal College of Psychiatrists; 2007. [
PubMed: 21834193]
- 125.
Robson
C. Real Word Research: A Resource for Social Scientists and Practitioner-Researcher. 2nd edn.
Oxford:
Blackwell Publishers; 2002.
- 126.
- 127.
Higgins
JT, Green
S, editors.
Cochrane Handbook for Systematic Reviews of Interventions. Version 5.1.0 [updated March 2011]. URL:
www.cochrane-handbook.org/ (accessed August 2012).
- 128.
Loney
PL, Chambers
LW, Bennett
KJ, Roberts
JG, Stratford
PW.
Critical appraisal of the health research literature: prevalence or incidence of a health problem.
Chronic Dis Can
1998;19:170–6. [
PubMed: 10029513]
- 129.
Chung
JC.
Care needs assessment of older Chinese individuals with dementia of Hong Kong.
Ageing Ment Health
2006;10:631–7. 10.1080/13607860600650532. [
PubMed: 17050092] [
CrossRef]
- 130.
Landi
F, Cesari
M, Russo
A, Onder
G, Lattanzio
F, Bernabei
R, et al.
Potentially reversible risk factors and urinary incontinence in frail older people living in the community.
Age Ageing
2003;32:194–9. 10.1093/ageing/32.2.194. [
PubMed: 12615564] [
CrossRef]
- 131.
Meaney
AM, Croke
M, Kirby
M.
Needs assessment in dementia.
Int J Geriatr Psychiatry
2005;20:322–9. 10.1002/gps.1284. [
PubMed: 15799078] [
CrossRef]
- 132.
- 133.
Nakanishi
N, Tatara
K, Naramura
H, Fujiwara
H, Takashima
Y, Fukuda
H.
Urinary and faecal incontinence in a community-residing older population in Japan.
J Am Geriatr Soc
1997;45:215–19. [
PubMed: 9033523]
- 134.
Ouslander
JG, Zarit
SH, Orr
NK, Muira
SA.
Incontinence among elderly community-dwelling dementia patients. Characteristics, management, and impact on caregivers.
J Am Geriatr Soc
1990;38:440–5. [
PubMed: 2329252]
- 135.
Rait
G, Fletcher
A, Smeeth
L, Brayne
C, Stirling
S, Nunes
M.
Prevalence of cognitive impairment: results from the MRC trial of assessment and management of older people in the community.
Age Ageing
2005;34:242–8. 10.1093/ageing/afi039. [
PubMed: 15863409] [
CrossRef]
- 136.
Teri
L, Borson
S, Kiyak
HA, Yamagishi
M.
Behavioural disturbance, cognitive dysfunction, and functional skill. Prevalence and relationship in Alzheimer’s disease.
J Am Geriatr Soc
1989;37:109–16. [
PubMed: 2783433]
- 137.
Drennan
VM, Rait
G, Cole
L, Grant
R, Iliffe
S.
The prevalence of incontinence in people with cognitive impairment or dementia living at home: a systematic review.
Neurourol Urodynam
2013;32:314–24. 10.1002/nau.22333. [
PubMed: 23129242] [
CrossRef]
- 138.
McWalter
G, Toner
H, McWalter
A, Eastwood
J, Marshall
M, Turvey
T.
A community needs assessment: the care needs assessment pack for dementia (CareNap-D) its development, reliability and validity.
Int J Geriatr Psychiatry
1998;13:16–22. 10.1002/(SICI)1099-1166(199801)13:1<16::AID-GPS721>3.0.CO;2-N. [
PubMed: 9489576] [
CrossRef]
- 139.
Landi
F, Tua
E, Onder
G, Carrara
B, Sgadari
A, Rinaldi
C, et al.
The minimum dataset for home care: a valid instrument to assess frail older people living in community.
Med Care
2000;38:1184–90. 10.1097/00005650-200012000-00005. [
PubMed: 11186297] [
CrossRef]
- 140.
Martin
J, Metzer
H, Ellliot
D. The Prevalence of Disability Among Adults: OPCS Surveys of Disability in Great Britain, Report 1.
London:
HMSO; 1988.
- 141.
The 10/66 Dementia Research Group.
Methodological issues in population-based research into dementia in developing countries. A position paper from the 10/66 Dementia Research Group.
Int J Geriatr Psychiatry
2000;15:21–30. 10.1002/(SICI)1099-1166(200001)15:1<21::AID-GPS71>3.0.CO;2-5. [
PubMed: 10637401] [
CrossRef]
- 142.
- 143.
Grant
RL, Drennan
VM, Rait
G, Pettersen
L, Iliffe
S.
Incidence and management of incontinence in older people with and without dementia: a cohort study using a primary care database.
PLOS Med
2013;10:e1001505. 10.1371/journal.pmed.1001505. [
PMC free article: PMC3754889] [
PubMed: 24015113] [
CrossRef]
- 144.
Teunissen
D, van den Bosch
W, van Weel
C, Lagro-Janssen
T.
Urinary incontinence in the elderly: attitudes and experiences of general practitioners. A focus group study.
Scand J Prim Health
2006;24:56–61. 10.1080/02813430500417920. [
PubMed: 16464816] [
CrossRef]
- 145.
Wagg
A, Potter
J, Peel
P, Irwin
P, Lowe
D, Pearson
M.
National audit of continence care for older people: management of urinary incontinence.
Age Ageing
2008;37:39–44. 10.1093/ageing/afm163. [
PubMed: 18033776] [
CrossRef]
- 146.
Landi
F, Cesari
M, Onder
G, Zamboni
V, Barillaro
C, Lattanzio
F, et al.
Indwelling urethral catheter and mortality in frail elderly women living in community.
Neurourol Urodynam
2004;23:697–701. 10.1002/nau.20059. [
PubMed: 15382190] [
CrossRef]
- 147.
Pronovost
PJ, Bo-Linn
GW.
Preventing patient harms through systems of care.
JAMA
2012;308:769–70. 10.1001/jama.2012.9537. [
PubMed: 22910751] [
CrossRef]
- 148.
Gitlin
LN, Corcoran
MA. Expanding caregiver ability to use environmental solutions for problems of bathing and incontinence in the elderly with dementia. Technol Disabil
1993;2:12–21.
- 149.
Jirovec
MM, Templin
T.
Predicting success using individualised scheduled toileting for memory-impaired elders at home.
Res Nurs Health
2001;24:1–8. 10.1002/1098-240X(200102)24:1<1::AID-NUR1001>3.0.CO;2-R. [
PubMed: 11260580] [
CrossRef]
- 150.
Engberg
S, Sereika
SM, McDowell
BJ, Weber
E, Brodak
I.
Effectiveness of prompted voiding in treating urinary incontinence in cognitively impaired homebound older adults.
J Wound Ostomy Continence Nurs
2002;29:252–65. [
PubMed: 12510471]
- 151.
Drennan
VM, Greenwood
N, Cole
L, Rait
G, Grant
R, Iliffe
S.
A systemic review of conservative interventions for addressing incontinence in people with dementia living at home.
BMC Geriatr
2012;12:77. 10.1186/1471-2318-12-77. [
PMC free article: PMC3562513] [
PubMed: 23272951] [
CrossRef]
- 152.
Hagglund
D.
A systematic literature review of incontinence care for persons with dementia: the research evidence.
J Clin Nurs
2010;19:303–12. 10.1111/j.1365-2702.2009.02958.x. [
PubMed: 20500269] [
CrossRef]
- 153.
Bravo
C.
Urinary and faecal incontinence in dementia.
Rev Clin Gerontol
2004;14:129–36. 10.1017/S0959259804001388. [
CrossRef]
- 154.
Yap
P, Tan
D.
Urinary incontinence in dementia: a practical approach.
Aust Fam Physician
2006;4:237–41. [
PubMed: 16642241]
- 155.
Doody
RS, Stevens
JC, Beck
C, Dubinsky
RM, Kaye
JA, Gwyther
L, et al.
Practice parameter: management of dementia (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology.
Neurology
2001;56:1154–66. 10.1212/WNL.56.9.1154. [
PubMed: 11342679] [
CrossRef]
- 156.
- 157.
National Audit Office. First Assessment: A Review of District Nursing Services in England and Wales.
London:
National Audit Office; 1999.
- 158.
- 159.
Silverman
D. Interpreting Qualitative Data: Methods of Analysing Talk, Text, and Interaction. 3rd edn.
London:
Sage; 2006.
- 160.
Fermor
R. Directory of Community Health Services.
Teddington:
Keyways Publishing; 2009.
- 161.
Adams
T, Clarke
CL, editors. Dementia Care: Developing Partnerships in Practice.
Toronto:
Baillière Tindall; 1999.
- 162.
Drennan
V, Norrie
C, Cole
L, Donovan
S.
Addressing incontinence for people with dementia living at home: a documentary analysis of local English community nursing service continence policies and clinical guidance.
J Clin Nurs
2013;22:339–46. 10.1111/j.1365-2702.2012.04125.x. [
PubMed: 22788705] [
CrossRef]
- 163.
Crotty
M. The Foundations of Social Research: Meaning and Perspective in the Research Process.
London:
Sage; 1998.
- 164.
Wilkinson
H.
The Perspectives of People with Dementia: Research Methods and Motivations.
London:
Jessica Kingsley; 2002. [
PubMed: 27316366]
- 165.
Boyatzis
RE. Transforming Qualitative Information: Thematic Analysis and Code Development.
London:
Sage Publications; 1998.
- 166.
Horrocks
S, Somerset
M, Stoddart
H, Peters
TJ.
What prevents older people from seeking treatment for urinary incontinence? A qualitative exploration of barriers to the use of community continence services.
Fam Pract
2004;21:689–96. 10.1093/fampra/cmh622. [
PubMed: 15528285] [
CrossRef]
- 167.
Douglas
M.
Purity and Danger an Analysis of Concepts of Pollution and Taboo.
London:
Routledge and Keegan; 1966. 10.4324/9780203361832. [
CrossRef]
- 168.
Seale
C. The Quality of Qualitative Research.
London:
Sage; 1999.
- 169.
- 170.
Burgio
KL, Ives
DG, Locher
JL, Arena
VC, Kuller
LH.
Treatment seeking for urinary incontinence in older adults.
J Am Geriatr Soc
1994;42:208–12. [
PubMed: 8126338]
- 171.
Morgan
DL. Focus Groups as Qualitative Research. 2nd edn.
Thousand Oaks, CA:
Sage Publications; 1997.
- 172.
Resnick
B, Keilman
LJ, Calabrese
B, Parmelee
P, Lawhorne
L, Pailet
J, et al.
Nursing staff beliefs and expectations about continence care in nursing homes.
J Wound Ostomy Continence Nurs
2006;33:610–18. 10.1097/00152192-200611000-00004. [
PubMed: 17108770] [
CrossRef]
- 173.
Xie
J, Brayne
C, Matthews
F.
Medical Research Council Cognitive Function and Ageing Study collaborators. Survival times in people with dementia: analysis from population based cohort study with 14 year follow-up.
BMJ
2008;336:258–62. 10.1136/bmj.39433.616678.25. [
PMC free article: PMC2223023] [
PubMed: 18187696] [
CrossRef]
- 174.
Tashakkori
A, Teddlie
C. Handbook of Mixed Methods in Social and Behavioural Research.
Thousand Oaks, CA:
Sage Publications; 2003.
- 175.
Murray
SA, Shiekh
A.
Serial interviews for patients with progressive diseases.
Lancet
2006;368:9001–2. 10.1016/S0140-6736(06)69350-1. [
PubMed: 16962865] [
CrossRef]
- 176.
Gélinas
I, Gauthier
L, McIntyre
M, Gauthier
S.
Development of a functional measure for persons with Alzheimer’s disease: the disability assessment for dementia.
Am J Occup Ther
1999;53:471–81. 10.5014/ajot.53.5.471. [
PubMed: 10500855] [
CrossRef]
- 177.
Avery
K, Donovan
J, Peters
T, Shaw
C, Gotoh
M, Abrams
P.
ICIQ: a brief and robust measure for evaluating the symptoms and impact of urinary incontinence.
Neurourol Urodynam
2004;23:322–30. 10.1002/nau.20041. [
PubMed: 15227649] [
CrossRef]
- 178.
Brooks
R.
EuroQol: the current state of play.
Health Policy
1996;37:53–72. 10.1016/0168-8510(96)00822-6. [
PubMed: 10158943] [
CrossRef]
- 179.
Kaufer
DI, Cummings
JL, Christine
D, Bray
T, Castellon
S, Masterman
D, et al.
Assessing the impact of neuropsychiatric symptoms in Alzheimer’s disease: the Neuropsychiatric Inventory Caregiver Distress Scale.
J Am Geriatr Soc
1998;46:210–15. [
PubMed: 9475452]
- 180.
- 181.
Fader
M, Cottenden
A, Getliffe
K, Gage
H, Clarke-O’Neill
S, Jamieson
K, Green
N, Williams
P, Brooks
R, Malone-Lee
J.
Absorbent products for urinary/faecal incontinence: a comparative evaluation of key product designs.
Health Technol Assess
2008;12(29). 10.3310/hta12290. [
PubMed: 18547500] [
CrossRef]
- 182.
Mullen
PM.
Delphi: myths and reality.
J Health Organ Manag
2003;17:37–52. 10.1108/14777260310469319. [
PubMed: 12800279] [
CrossRef]
- 183.
Drennan
VM, Donovan
S. Developing and testing an additional continence assessment tool for people with dementia living at home: a modified Delphi study. 2013. (submitted in review).
- 184.
Drennan
VM. Incontinence and dementia. In Raymond
M, editor. Medical care quality improvement in dementia workbook. BMJ Quality
2015; in press.
- 185.
Drennan
VM, Greenwood
N, Cole
L.
Continence care for people with dementia at home.
Nurs Times
2014;110:19. [
PubMed: 24754106]
- 186.
Stokes
G. Incontinence and Inappropriate Urinating.
Bicester:
Winslow Press; 1986.
- 187.
- 188.
Stokes
G. Challenging Behaviour in Dementias.
Milton Keynes:
Speechmark Editions; 2003.
- 189.
Isaacs
B. The Challenge of Geriatric Medicine.
London:
Oxford University Press; 1992.
- 190.
Cox
S, Cook
A. Caring for people with dementia at the end of life. In Hockley
J, Clark
D. Palliative Care for Older People in Care Homes.
Buckingham:
Open University Press; 2002.
- 191.
Lunney
JR, Lynn
J, Foley
DJ, Lipson
S, Guralnik
JM.
Patterns of functional decline at the end of life.
JAMA
2003;289:2387–92. 10.1001/jama.289.18.2387. [
PubMed: 12746362] [
CrossRef]
- 192.
National Council for Palliative Care and NHS. Building on firm foundations: Improving end of life care in care homes – examples of innovative practice. NHS End of Life Care Programme in Collaboration with the National Council of Palliative Care.
London:
Department of Health; 2007.
- 193.
Darzi
A. Our NHS, Our Future.
London:
The Stationery Office; 2007.
- 194.
Mularski
RA, Dy
SM, Shugarman
LR, Wilkinson
AM, Lynn
J, Shekelle
PG, et al.
A systematic review of measures of end-of-life care and its outcomes.
Health Serv Res
2007;42:1848–70. 10.1111/j.1475-6773.2007.00721.x. [
PMC free article: PMC2254566] [
PubMed: 17850523] [
CrossRef]
- 195.
Lorenz
KA, Lynn
J, Dy
SM, Shugarman
LR, Wilkinson
A, Mularski
RA, et al.
Evidence for improving palliative care at the end of life: a systematic review.
Ann Intern Med
2008;148:147–59. 10.7326/0003-4819-148-2-200801150-00010. [
PubMed: 18195339] [
CrossRef]
- 196.
Hughes
JC, Jolley
D, Jordan
A, Sampson
EL.
Palliative care in dementia: issues and evidence.
Adv Psychiatr Treat
2007;13: pp. 251–60. 10.1192/apt.bp.106.003442. [
CrossRef]
- 197.
Lloyd-Williams
M, Payne
S.
Can multidisciplinary guidelines improve the palliation of symptoms in the terminal phase of dementia?
Int J Palliat Nurs
2002;8:370. 10.12968/ijpn.2002.8.8.10680. [
PubMed: 12271257] [
CrossRef]
- 198.
Volicer
L, Hurley
AC.
Management of behavioural symptoms in progressive degenerative dementias.
J Gerontol A Biol Sci Med Sci
2003;58:M837–45. 10.1093/gerona/58.9.M837. [
PubMed: 14528041] [
CrossRef]
- 199.
Bayer
A.
Death with dementia: the need for better care.
Age Ageing
2006;35:101–2. 10.1093/ageing/afj033. [
PubMed: 16414963] [
CrossRef]
- 200.
Goodman
C, Evans
C, Wilcock
J, Froggatt
K, Drennan
V, Sampson
E, et al.
End of life care for community dwelling older people with dementia: an integrated review.
Int J Geriatr Psychiatry
2010;25:329–37. 10.1002/gps.2343. [
PubMed: 19688739] [
CrossRef]
- 201.
van der Steen
JT, Albers
G, Licht-Strunk
E, Muller
MT, Ribbe
MW.
A validated risk score to estimate mortality risk in patients with dementia and pneumonia: barriers to clinical impact.
Int Psychogeriatr
2011;23:31–43. 10.1017/S1041610210001079. [
PubMed: 20653988] [
CrossRef]
- 202.
Reilly
S, Venables
D, Hughes
J, Challis
D, Abendstern
M.
Standards of care in day hospitals and day centres: a comparison of services for older people with dementia.
Int J Geriatr Psychiatry
2006;21:460–8. 10.1002/gps.1495. [
PubMed: 16676291] [
CrossRef]
- 203.
Venables
D, Reilly
S, Challis
D, Hughes
J, Abendstern
M.
Standards of care in home care services: a comparison of generic and specialist services for older people with dementia.
Ageing Ment Health
2006;10:187–94. 10.1080/13607860500310518. [
PubMed: 16517495] [
CrossRef]
- 204.
Goodman
C, Froggatt
K, Mathie
E,
NIHR School for Social Care Research Methods Review. End of Life Care.
London:
NIHR SSCR; 2011.
- 205.
Challis
D, Mozley
CG, Sutcliffe
C, Bagley
H, Price
L, Burns
A, et al.
Dependency in older people recently admitted to care homes.
Age Ageing
2000;29:255–60. 10.1093/ageing/29.3.255. [
PubMed: 10855909] [
CrossRef]
- 206.
Goodman
C, Woolley
R, Knight
D.
District nurse involvement in providing palliative care to older people in residential care homes.
Int J Palliat Nurs
2003;9:521–7. 10.12968/ijpn.2003.9.12.11987. [
PubMed: 14765008] [
CrossRef]
- 207.
Goodman
C, Woolley
R, Knight
D.
District nurses’ experiences of providing care in residential care home settings.
J Clin Nurs
2003;12:67–76. 10.1046/j.1365-2702.2003.00678.x. [
PubMed: 12519252] [
CrossRef]
- 208.
Ashton
S, McClelland
B, Roe
B, Mazhindu
D, Gandy
R. An end-of-life care initiative for people with dementia. Eur J Palliat Care
2009;16:240–3.
- 209.
Department of Health (DH). End of Life Care Strategy – Promoting High Quality Care for All Adults at the End of Life.
London:
DH; 2008.
- 210.
Goodman
C, Baron
NL, Machen
I, Stevenson
E, Evans
C, Davies
SL, et al.
Culture, consent, costs and care homes: enabling older people with dementia to participate in research.
Ageing Ment Health
2011;15:475–81. 10.1080/13607863.2010.543659. [
PubMed: 21500014] [
CrossRef]
- 211.
Small
N, Froggatt
K, Downs
M.
Living and Dying with Dementia: Dialogues About Palliative Care.
Oxford:
Oxford University Press; 2007. 10.1093/acprof:oso/9780198566878.001.0001. [
CrossRef]
- 212.
British Geriatric Society Joint Working Party. Inquiry into the Quality of Healthcare Support for Older People in Care Homes: A Call for Leadership, Partnership and Quality Improvement.
London:
British Geriatrics Society; 2011.
- 213.
- 214.
- 215.
- 216.
Badger
F, Thomas
K, Clifford
C. Raising standards for elderly people dying in care homes. Eur J Palliat Care
2007;14:238–41.
- 217.
Roe
B, McClelland
RS, Ashton
SE, Mazhindu
D, Gandy
R.
An Evaluation to Determine the Impacts of Introducing the Gold Standards Framework (GSF) and Liverpool Care Pathway (LCP) to Staff, Patients/residents, Family Caregivers and Practitioners Involved in the Care of Older People with Dementia in Greater Manchester Care Settings.
Liverpool:
John Moores University; 2008. URL:
www.ljmu.ac.uk/BLW/BLW_Facultytopleveldocs/EoL_Report_Executive_Summary.pdf (accessed December 2014).
- 218.
Collin
C, Wade
DT, Davies
S, Horne
V.
The Barthel ADL Index: a reliability study.
Disabil Rehabil
1988;10:61–3. 10.3109/09638288809164103. [
PubMed: 3403500] [
CrossRef]
- 219.
Cohen-Mansfield
J.
Agitated behaviors in the elderly: II. Preliminary results in the cognitively deteriorated.
J Am Geriatr Soc
1986;34:722–7. [
PubMed: 3760436]
- 220.
Alexopoulos
GS, Abrams
RC, Young
RC, Shamoian
CA.
Cornell scale for depression in dementia.
Biol Psychiatry
1988;23:271–84. 10.1016/0006-3223(88)90038-8. [
PubMed: 3337862] [
CrossRef]
- 221.
Parsons
C, Haydock
J, Mathie
E, Baron
N, Machen
I, Stevenson
E, et al.
Sedative load of medications prescribed for older people with dementia in care homes.
BMC Geriatr
2011;11:56. 10.1186/1471-2318-11-56. [
PMC free article: PMC3197480] [
PubMed: 21958366] [
CrossRef]
- 222.
Parsons
C, Johnston
S, Mathie
E, Baron
N, Machen
I, Stevenson
E, et al.
Potentially inappropriate prescribing in older people with dementia in care homes: a retrospective analysis.
Drugs Aging
2012;29:143–55. 10.2165/11598560-000000000-00000. [
PubMed: 22204669] [
CrossRef]
- 223.
Curtis
L. Unit Costs of Health and Social Care 2009.
Canterbury:
PSSRU, The University of Kent; 2010.
- 224.
BMJ Group and Pharmaceutical Press. British National Formulary. 59 ed.
London:
Joint formulary. Committee; 2010.
- 225.
Cooperrider
DL, Srivastva
S. Appreciative inquiry in organizational life. Res Organ Change Dev
1987;1:129–69.
- 226.
Cooperrider
DL, Whitney
DK. Collaborating for Change: Appreciative Inquiry.
San Francisco, CA:
Berrett-Koehler Communications; 1999.
- 227.
Nicholson
C, Goodman
C, Mathie
E, Amador
S, Baron
N, Machen
I.
End of life care for people with dementia: an intervention to promote collaborative working between care home staff and healthcare practitioners.
BMJ Support Palliat Care
2012;2:A23. 10.1136/bmjspcare-2012-000196.66. [
CrossRef]
- 228.
Hughes
CP, Berg
L, Danziger
WL, Coben
LA, Martin
RL.
A new clinical scale for the staging of dementia.
Br J Psychiatry
1982;140:566–72. 10.1192/bjp.140.6.566. [
PubMed: 7104545] [
CrossRef]
- 229.
Goodman
C, Amador
S, Elmore
N, Machen
I, Mathie
E.
Preferences and priorities for ongoing and end-of-life care: a qualitative study of older people with dementia resident in care homes.
Int J Nurs Stud
2013;50:1639–47. 10.1016/j.ijnurstu.2013.06.008. [
PubMed: 23866093] [
CrossRef]
- 230.
Amador
S, Goodman
C, King
D, Machen
I, Elmore
N, Mathie
E, et al.
Emergency ambulance service involvement with residential care homes in the support of older people with dementia: an observational study.
BMC Geriatr
2014;14:95. 10.1186/1471-2318-14-95. [
PMC free article: PMC4154936] [
PubMed: 25164581] [
CrossRef]
- 231.
Bardsley
M, Georghiou
T, Dixon
J. Social Care and Hospital Use at the End of Life.
London:
The Nuffield Trust; 2010.
- 232.
Seymour
JE, French
J, Richardson
E,
Dying Matters Coalition.
Dying matters: lets talk about it.
BMJ
2010;341:c4860. 10.1136/bmj.c4860. [
PubMed: 20847020] [
CrossRef]
- 233.
Higginson
IJ, Astin
P, Imperial
SD.
Where do cancer patients die? Ten-year trends in the place of death of cancer patients in England.
Palliat Med
1998;12:353–63. 10.1191/026921698672530176. [
PubMed: 9924598] [
CrossRef]
- 234.
Amador
S, Goodman
C, King
D, Ng
YT, Elmore
N, Mathie
E, et al.
Exploring resource use and associated costs in end-of-life care for older people with dementia in residential care homes.
Int J Geriatr Psychiatry
2014;29:758–66. 10.1002/gps.4061. [
PubMed: 24311386] [
CrossRef]
- 235.
- 236.
Froggatt
K, Hockley
J, Parker
D, Brazil
K.
A system lifeworld perspective on dying in long term care settings for older people: contested states in contested places.
Health Place
2011;17:263–8. 10.1016/j.healthplace.2010.11.001. [
PubMed: 21146443] [
CrossRef]
- 237.
Fisher
M, Ridley
S.
Uncertainty in end-of-life care and shared decision making.
Crit Care Resusc
2012;14:81–7. [
PubMed: 22404067]
- 238.
Hockley
J, Watson
J, Oxenham
D, Murray
SA.
The integrated implementation of two end-of-life care tools in nursing care homes in the UK: an in-depth evaluation.
Palliat Med
2010;24:828–38. 10.1177/0269216310373162. [
PubMed: 20663812] [
CrossRef]
- 239.
Hewison
A, Badger
F, Clifford
C, Thomas
K.
Delivering ‘Gold Standards’ in end-of-life care in care homes: a question of teamwork?
J Clin Nurs
2009;18:1756–65. 10.1111/j.1365-2702.2008.02613.x. [
PubMed: 19220608] [
CrossRef]
- 240.
Badger
F, Plumridge
G, Hewison
A, Shaw
KL, Thomas
K, Clifford
C.
An evaluation of the impact of the Gold Standards Framework on collaboration in end-of-life care in nursing homes. A qualitative and quantitative evaluation.
Int J Nurs Stud
2012;49:586–95. 10.1016/j.ijnurstu.2011.10.021. [
PubMed: 22130508] [
CrossRef]
- 241.
Birch
D, Draper
J.
A critical literature review exploring the challenges of delivering effective palliative care to older people with dementia.
J Clin Nurs
2008;17:1144–63. 10.1111/j.1365-2702.2007.02220.x. [
PubMed: 18416791] [
CrossRef]
- 242.
Small
N.
Living well until you die.
Ann N Y Acad Sci
2007;1114:194–203. 10.1196/annals.1396.019. [
PubMed: 17934058] [
CrossRef]
- 243.
Mathie
E, Goodman
C, Crang
C, Froggatt
K, Iliffe
S, Manthorpe
J, et al.
An uncertain future: the unchanging views of care home residents about living and dying.
Palliat Med
2012;26:734–43. 10.1177/0269216311412233. [
PubMed: 21697261] [
CrossRef]
- 244.
Davies
S, Goodman
C, Bunn
F, Victor
C, Dickinson
A, Iliffe
S, et al.
A systematic review of integrated working between care homes and health care services.
BMC Health Serv Res
2011;11:320. 10.1186/1472-6963-11-320. [
PMC free article: PMC3280330] [
PubMed: 22115126] [
CrossRef]
- 245.
Shah
SM, Carey
IM, Harris
T, DeWilde
S, Hubbard
R, Lewis
S, et al.
Identifying the clinical characteristics of older people living in care homes using a novel approach in a primary care database.
Age Ageing
2010;39:617–23. 10.1093/ageing/afq086. [
PubMed: 20639514] [
CrossRef]
- 246.
Seymour
J, Payne
S, Chapman
A, Holloway
M.
Hospice or home? Expectations of end-of-life care among white and Chinese older people in the UK.
Sociol Health Illn
2007;29:872–90. 10.1111/j.1467-9566.2007.01045.x. [
PubMed: 17986020] [
CrossRef]
- 247.
Kellehear
A, Young
B.
Resilient Communities. In Monroe
B, Olivière
D, editors.
Resilience in Palliative Care: Achievements in Adversity.
Oxford:
Oxford University Press; 2007: pp. 223–8. 10.1093/acprof:oso/9780199206414.003.0015. [
CrossRef]
- 248.
- 249.
- 250.
Dawson
C, McDonald
A.
Assessing mental capacity: a checklist for social workers.
Practice
2000;12:5–20. 10.1080/09503150008415180. [
CrossRef]
- 251.
Bradley
A.
The new independent mental capacity advocate service.
Working Older People
2007;11:13–16. 10.1108/13663666200700004. [
CrossRef]
- 252.
Bellhouse
J, Holland
A, Clare
I, Gunn
M, Watson
PC. Capacity-based mental health legislation and its impact on clinical practice: 1. Admission to hospital. J Ment Health Law
2003;9:9–23.
- 253.
Alzheimer’s Society. The Right to Decide. The National Newsletter of the Alzheimer’s Society, November
2007.
- 254.
Schiff
R, Sacares
P, Snook
J, Rajkumar
C, Bulpitt
CJ.
Living wills and the Mental Capacity Act: a postal questionnaire survey of UK geriatricians.
Age Ageing
2006;35:116–21. 10.1093/ageing/afj035. [
PubMed: 16414962] [
CrossRef]
- 255.
Mental Health Foundation. Mental Capacity and the Mental Capacity Act 2005: A Literature Review.
London:
Mental Health Foundation; 2012.
- 256.
Johns
R.
Who decides now? Protecting and empowering vulnerable adults who lose the capacity to make decisions for themselves.
Brit J Soc Work
2007;37:557–64. 10.1093/bjsw/bcm015. [
CrossRef]
- 257.
White
SM, Baldwin
TJ.
The Mental Capacity Act 2005: implications for anaesthesia and critical care.
Anaesthesia
2006;61:381–9. 10.1111/j.1365-2044.2006.04533.x. [
PubMed: 16548960] [
CrossRef]
- 258.
Samsi
K, Manthorpe
J, Rapaport
P.
‘As people get to know it more’: experiences and expectations of the Mental Capacity Act 2005 amongst local information, advice and advocacy services.
Soc Policy Soc
2011;10:41–54. 10.1017/S1474746410000370. [
CrossRef]
- 259.
- 260.
Myron
R, Gillespie
S, Swit
P, Williamson
T. Whose Decision? Preparation for and Implementation of the Mental Capacity Act in Statutory and Non-Statutory Services in England and Wales.
London:
Mental Health Foundation; 2008.
- 261.
Ritchie
J, Spencer
L. Qualitative Data Analysis for Applied Policy Research. In Bryman
A, Burgess
R, editors. Analysing Qualitative Data.
London:
Routledge: 1993. pp. 173–94.
- 262.
- 263.
Manthorpe
J, Samsi
K, Rapaport
J.
‘More of a leg to stand on’: views and usage of the Mental Capacity Act 2005 among local Alzheimer’s Society & Caregiver groups: findings from the EviDEM MCA project.
Ageing Ment Health
2012;16:102–9. 10.1080/13607863.2011.628971. [
PubMed: 22224707] [
CrossRef]
- 264.
Manthorpe
J, Rapaport
J, Harris
J, Samsi
K.
Realising the safeguarding potential of the Mental Capacity Act 2005: Early reports from adult safeguarding staff.
J Adult Protect
2009;11:13–24. 10.1108/14668203200900010. [
CrossRef]
- 265.
Manthorpe
J, Samsi
K, Rapaport
J.
‘Capacity is the key’: investigating new legal provisions in England and Wales for adult safeguarding.
J Elder Abuse Negl
2013;25;355–73. 10.1080/08946566.2013.770313. [
PubMed: 23768417] [
CrossRef]
- 266.
Manthorpe
J, Samsi
K, Rapaport
J.
Responding to the financial abuse of people with dementia: a qualitative study of safeguarding experiences in England.
Int Psychogeriatr
2012;24:1454–64. 10.1017/S1041610212000348. [
PubMed: 22464777] [
CrossRef]
- 267.
Manthorpe
J, Samsi
K, Rapaport
J. ‘Inherently risky?’ Personal budgets for people with dementia and the risks of financial abuse: findings from an interview-based study with Adult Safeguarding Coordinators. Brit J Soc Work
2012:1–15.
- 268.
Manthorpe
J, Samsi
K, Heath
H, Charles
N.
‘Early days’: knowledge and use of the Mental Capacity Act 2005 by care home managers and staff.
Dementia
2011;10:283–98. 10.1177/1471301211403970. [
CrossRef]
- 269.
Samsi
K, Manthorpe
J, Nagendran
T, Heath
H.
Challenges and expectations of the Mental Capacity Act 2005: an interview-based study of community-based specialist nurses working in dementia care.
J Clin Nurs
21:1697–705. 10.1111/j.1365-2702.2011.03912.x. [
PubMed: 22098493] [
CrossRef]
- 270.
Manthorpe
J, Samsi
K, Rapaport
J.
Dementia nurses’ experience of the Mental Capacity Act 2005; a follow-up-study.
Dementia
2014;13:131–43. 10.1177/1471301212454354. [
PubMed: 24381044] [
CrossRef]
- 271.
Samsi
K, Manthorpe
J, Chandaria
K.
Risks of financial abuse of older people with dementia: findings from a survey of UK voluntary sector dementia community services staff.
J Adult Protect
2014;16:180–92. 10.1108/JAP-04-2013-0018. [
CrossRef]
- 272.
Samsi
K, Manthorpe
J.
‘I live for today’: a qualitative study investigating older people’s attitudes to advance planning.
Health Soc Care Community
2011;19:52–9. 10.1111/j.1365-2524.2010.00948.x. [
PubMed: 20846274] [
CrossRef]
- 273.
- 274.
Phair
L, Manthorpe
J.
The use of the Mental Capacity Act among hospital patients: findings from a case study of one Acute Hospital Trust in England.
J Adult Protect
2012;14:259–70. 10.1108/14668201211286020. [
CrossRef]
- 275.
Samsi
K, Manthorpe
J. ‘Mental capacity and dementia: a review. Part 2’. J Dement Care
2013;21:35–8.
- 276.
Manthorpe
J, Samsi
K. ‘Mental capacity and dementia: a review. Part 1’. J Dement Care
2012;20:35–8.
- 277.
Baxter
K, Glendinning
C, Clarke
S.
Making informed choices in social care: the importance of accessible information.
Health Soc Care Community
2008;16:197–207. 10.1111/j.1365-2524.2007.00742.x. [
PubMed: 18290984] [
CrossRef]
- 278.
Purves
B, Perry
J. Families, Dementia and Decisions. In O’Connor
D, Purves
B, editors. Decision-Making, Personhood and Dementia.
London:
Jessica Kingsley; 2009. pp.172–86.
- 279.
Penhale
B, Perkins
N, Pinkney
L, Reid
D, Hussein
S, Manthorpe
J. Partnership and Regulation in Adult Protection: the Effectiveness of Multi-Agency Working and the Regulatory Framework in Adult Protection.
Sheffield:
University of Sheffield, School of Nursing and Midwifery; 2007.
- 280.
Hussein
S, Stevens
M, Manthorpe
J. International Social Care Workers in England: Profile, Motivations, Experiences and Future Expectations. Final Report to the Department of Health.
London:
Social Care Workforce Research Unit, King’s College London; 2010.
- 281.
Stanley
N, Lyons
C, Manthorpe
J, Rapaport
J, Rapaport
P, Carrahar
M, et al.
Mental Capacity Act 2005: Mental Health Training Set.
London:
Department of Health; 2007.
- 282.
Department of Health. Caring For our Future: Reforming Care and Support.
London:
The Stationery Office; 2012.
- 283.
Manthorpe
J, Samsi
K. Mental capacity: the force of law. J Dement Care
2012;20:12–13.
- 284.
Manthorpe
J, Samsi
K.
Care professionals’ understanding of the new criminal offences created by the Mental Capacity Act 2005 [published online ahead of print 30 May 2014].
Int J Geriatr Psychiatry
2014. 10.1002/gps.4147. [
PubMed: 24890855] [
CrossRef]
- 285.
Samsi
K, Manthorpe
J. Decision-Making and Communication in Housing with Care.
York:
Joseph Rowntree Foundation; 2010.
- 286.
Manthorpe
J, Samsi
K. Improving practice in communication with older people and support networks living in housing with care schemes: aspirations and ambitions. Brit J Soc Work
2012;42:1495–512.
- 287.
Alzheimer’s Society. Short Changed – Protecting People with Dementia from Financial Abuse.
London:
Alzheimer’s Society; 2011.
- 288.
Manthorpe
J, Samsi
K, Campbell
S, Abley
C, Keady
J, Bond
J, et al.
The Transition from Cognitive Impairment to Dementia: Older People’s Experiences.
Southampton:
NIHR Service Development and Organisation programme; 2011.
- 289.
Robinson
L, Gemski
A, Abley
C, Bond
J, Keady
J, Campbell
S, et al.
The transition to dementia: individual and family experiences of receiving a diagnosis: a review.
Int Psychogeriatr
2011;23:1026–43. 10.1017/S1041610210002437. [
PubMed: 21281553] [
CrossRef]
- 290.
Manthorpe
J, Samsi
K, Campbell
S, Abley
C, Keady
J, Bond
J, et al. A qualitative study of user and carer experiences of the diagnostic process in dementia: implications for clinicians and commissioners. Br J Gen Pract
2013;63:30–1.
- 291.
- 292.
- 293.
Shah
A, Banner
N, Heginbotham
C, Fulford
B.
The application of the Mental Capacity Act 2005 among geriatric psychiatry patients: a pilot study.
Int Psychogeriatr
2009;21:922–30. 10.1017/S1041610209990391. [
PubMed: 19552833] [
CrossRef]
- 294.
- 295.
Wilson
E, Seymour
JE, Perkins
P.
Working with the Mental Capacity Act: findings from specialist palliative neurological care settings.
Palliat Med
2010;24:396–402. 10.1177/0269216309360739. [
PubMed: 20176617] [
CrossRef]
- 296.
National Audit Office. Improving Services and Support for People with Dementia. Report by the Comptroller and Auditor General; HC 604 Session 2006–2007.
London:
National Audit Office; 2007.
- 297.
Audit Commission. Forget Me Not 2002: Developing Mental Health Services for Older People in England.
London:
Audit Commission; 2002.
- 298.
Warner
JP, Butler
RE, Wuntakal
B. Dementia. In Tovey
D, editor. Clinical Evidence.
London:
BMJ Books; 2006.
- 299.
Burns
A, O’Brien
J.
BAP Dementia Consensus group, clinical practice with anti-dementia drugs: a consensus statement from British Association for Psychopharmacology.
J Psychopharmacol
2006;20:732–55. 10.1177/0269881106068299. [
PubMed: 17060346] [
CrossRef]
- 300.
Vellas
B, Andrieu
S, Sampaio
C, Wilcock
G.
European Task Force group disease-modifying trials in Alzheimer’s disease: a European task force consensus.
Lancet Neurol
2007;6:56–62. 10.1016/S1474-4422(06)70677-9. [
PubMed: 17166802] [
CrossRef]
- 301.
Bartlett
C, Doyal
L, Ebrahim
S, Davey
P, Bachmann
M, Egger
M, et al.
The causes and effects of socio-demographic exclusions from clinical trials.
Health Technol Assess
2005;9(38). 10.3310/hta9380. [
PubMed: 16181564] [
CrossRef]
- 302.
Schoenmaker
N, Van Gool
WA.
The age gap between patients in clinical studies and in the general population: a pitfall for dementia research.
Lancet Neurol
2004;3:627–30. 10.1016/S1474-4422(04)00884-1. [
PubMed: 15380160] [
CrossRef]
- 303.
Wilcock
J, Bryans
M, Turner
S, Downs
M, Iliffe
S.
Methodological problems in dementia research in primary care: a case study of a randomised controlled trial.
Prim Health Res Dev
2007;8:12–21. 10.1017/S1463423607000035. [
CrossRef]
- 304.
- 305.
Roos
L, Nicol
J.
A Research register: uses, development, and accuracy.
J Clin Epidemiol
1999;52:39–47. 10.1016/S0895-4356(98)00126-7. [
PubMed: 9973072] [
CrossRef]
- 306.
Fitzgerald
SG, Kelleher
A, Teodorski
E, Collins
DM, Boninger
M, Cooper
RA.
The development of a nationwide register of wheelchair users.
Disabil Rehabil
2007;2:358–65. 10.1080/17483100701745752. [
PubMed: 19263566] [
CrossRef]
- 307.
Fritsch
T, McClendon
MJ, Smyth
KA, Lerner
AJ, Chen
CH, Petot
GJ, et al.
Effects of educational attainment on the clinical expression of Alzheimer’s disease: results from a research register.
Am J Alzheimers Dis Other Demen
2001;16:369–76. 10.1177/153331750101600606. [
PubMed: 11765862] [
CrossRef]
- 308.
Austrom
MG, Bachman
J, Altmeyer
L, Gao
S, Farlow
M.
A collaborative alzheimer disease research exchange: using a community-based helpline as a recruitment tool.
Alzheimer Dis Assoc Disord
2010;24:S49–53. [
PubMed: 22720321]
- 309.
- 310.
- 311.
Gauthier
S, Garcia
A, Sano
M, Robert
P, Senanarong
V, Woodward
M, et al.
Priorities for research criteria in Alzheimer’s disease.
Alzheimers Dement
2010;6:359–62. 10.1016/j.jalz.2010.05.2017. [
PubMed: 20630416] [
CrossRef]
- 312.
Roos
LL, Mustard
CA, Patrick
NJ, Comm
B, Mclerran
DF, Malenka
DJ, et al.
Registries and administrative data: organisation and accuracy.
Med Care
1993;31:201–12. 10.1097/00005650-199303000-00002. [
PubMed: 8450678] [
CrossRef]
- 313.
Bentley
S, Melville
J, Berry
B, Katon
W.
Implementing a clinical and research register in obstetrics: overcoming the barriers.
Gen Hosp Psychiatry
2007;29:192–8. 10.1016/j.genhosppsych.2007.01.011. [
PubMed: 17484935] [
CrossRef]
- 314.
- 315.
McCarney
R, Fisher
P, Iliffe
S, van Haselen
R, Griffin
M, van der Meulen
J, et al.
Ginkgo biloba for mild to moderate dementia in a community setting: a pragmatic, randomised, parallel-group, double-blind, placebo-controlled trial.
Int J Geriatr Psychiatry
2008;23:1222–30. 10.1002/gps.2055. [
PubMed: 18537221] [
CrossRef]
- 316.
Brodaty
H, Dresser
R, Eisner
M, Erkunjuntti
T, Gauthier
S, Graham
N, et al.
Alzheimer’s Disease International and International Working Group for Harmonisation of Dementia Drug Guidelines for research involving human subjects with dementia.
Alzheimers Dis Assoc Disord
1999;13:71–9. 10.1097/00002093-199904000-00003. [
PubMed: 10372949] [
CrossRef]
- 317.
- 318.
Cherry
D, Hahn
C, Vickery
B.
Educating primary care physicians in the management of Alzheimer’s disease: using practice guidelines to set quality benchmarks.
Int Psychogeriatr
2009;21:S44–52. [
PubMed: 19288963]
- 319.
Iliffe
S, Waugh
A, Poole
M, Bamford
C, Brittain
K, Chew-Graham
C, et al.
The effectiveness of collaborative care for people with memory problems in primary care: results of the CAREDEM case management modelling and feasibility study.
Health Technol Assess
2014;18(52). [
PMC free article: PMC4781405] [
PubMed: 25138151]
- 320.
Shekelle
PG, MacLean
CH, Morton
SC, Wenger
NS.
ACOVE quality indicators.
Ann Intern Med
2001;135:653–67. 10.7326/0003-4819-135-8_Part_2-200110161-00004. [
PubMed: 11601948] [
CrossRef]
- 321.
Robert
P, Schuck
S, Dubois
B, Olie
JP, Lepine
JP, Gallarda
T, et al.
Screening for Alzheimer’s disease with a short cognitive evaluation battery.
Dement Geriatr Cogn Disord
2003;15:92–8. 10.1159/000067971. [
PubMed: 12566598] [
CrossRef]
- 322.
Richardson
J.
The Easy-Care assessment system and its appropriateness for older people.
Nurs Older People
2001;13:17–19. [
PubMed: 12008559]
- 323.
Culverwell
A, Milne
A, Guss
R, Tuppen
J.
Screening for dementia in primary care: how is it measuring up?
Qual Ageing
2008;9:39–44. 10.1108/14717794200800019. [
CrossRef]
- 324.
Buckwalter
KC, Maas
M, Reed
D.
Assessing family and staff caregiver outcomes in Alzheimer’s disease research.
Alzheimer Dis Assoc Disord
1997;11:105–16. [
PubMed: 9437455]
- 325.
Culter
NE. Someone I know has Alzheimer’s: a statistical portrait from the First National Opinion Survey of Alzheimer’s Disease. Am J Alzheimer’s Dis Other Demen
1987;2:21–25.
- 326.
Gilleard
C, Groom
F.
A study of two dementia quizzes.
Br J Clin Psychol
1994;33:529–34. [
PubMed: 7874044]
- 327.
Ramsay
J, Campbell
JL, Schroter
S, Green
J, Roland
M.
The General Practice Assessment Survey (GPAS): tests of data quality and measurement properties.
Fam Prac
2000;17:372–9. [
PubMed: 11021894]
- 328.
Sloper
P, Turner
S. Adaptation and Help Seeking Strategies in Families of Children with Physical Disabilities.
Manchester:
Hester Adrian Research Centre, University of Manchester; 1991.
- 329.
Bowman
KF, Mukherjee
S, Fortinksy
RH. Exploring strain in community and nursing home family caregivers. J Appl Gerontol
1994;17:371–92.
- 330.
Zarit
SH. Brief measures of depression and cognitive function. Generations
1997;21:41–3.
- 331.
Rowley
N. Basic Clinical Science: Describing a Rose with a Ruler.
London:
Hodder and Stoughton; 1991.
- 332.
Livingston
G.
The scale of the problem. In Burns
A, Levy
R, editors.
Dementia. 1st edn.
London:
Chapman and Hall; 1994. pp. 21–35. 10.1007/978-1-4615-6805-6_2. [
CrossRef]
- 333.
- 334.
Mayeux
R, Sano
M.
Treatment of Alzheimer’s disease.
N Engl J Med
1999;341:1670–9. 10.1056/NEJM199911253412207. [
PubMed: 10572156] [
CrossRef]
- 335.
Birks
JS, Melzer
D, Beppu
H.
Donepezil for Mild and Moderate Alzheimer’s Disease.
Cochrane Database Syst Rev
2003;3:CD001190. [Update in
Cochrane Database Syst Rev 2000;
4:CD001190.] [
PubMed: 11034704]
- 336.
- 337.
Teri
L, Logsdon
RG, McCurry
SM.
Predictors non-pharmacological treatment of behavioural disturbance in dementia.
Med Clin N Am
2002;86:684–9. 10.1016/S0025-7125(02)00006-8. [
CrossRef]
- 338.
Stevens
J, Killeen
M.
A randomised control trial testing the impact of exercise on cognitive symptoms and disability of residents with dementia.
Contemp Nurs
2006;21:32–40. 10.5172/conu.2006.21.1.32. [
PubMed: 16594879] [
CrossRef]
- 339.
Rolland
Y, Pillard
F, Klapouszczak
A, Reynish
E, Thomas
D, Andrieu
S, et al.
Exercise program for nursing home residents with Alzheimer’s Disease: a 1-year randomised, controlled trial.
J Am Geriatr Soc
2007;55:158–65. 10.1111/j.1532-5415.2007.01035.x. [
PubMed: 17302650] [
CrossRef]
- 340.
Holmberg
SK.
Evaluation of a clinical intervention for wanderers on a geriatric nursing unit.
Arch Psychiatr Nurs
1997;11:21–8. 10.1016/S0883-9417(97)80046-5. [
PubMed: 9046640] [
CrossRef]
- 341.
Inouye
SK, Van Dyck
C, Alessi
CA, Balkin
S, Siegal
AP, Horwitz
RI.
Clarifying confusion: the Confusion Assessment Method. A new method for detection of delirium.
Ann Intern Med
1990;113:941–8. 10.7326/0003-4819-113-12-941. [
PubMed: 2240918] [
CrossRef]
- 342.
World Medical Association (WMA). Declaration of Helsinki: Ethical Principles for Medical Research Involving Humans. 52nd WMA General Assembly, Edinburgh, Scotland, 2000.
- 343.
Ouslander
JG, Griffiths
PC, McConnell
E, Riolo
L, Kutner
M, Schnelle
J.
Functional incidental training: a randomised, controlled, crossover trial in Veterans Affairs nursing homes.
J Am Geriatr Soc
2005;7:1091–100. 10.1111/j.1532-5415.2005.53359.x. [
PubMed: 16108924] [
CrossRef]
- 344.
Eccles
M, Clarke
J, Livingstone
M, Freemantle
N, Mason
J for the
North of England Evidence Based Dementia Guideline Development Group.
North of England evidence based guidelines development project: guideline for the primary care management of dementia.
BMJ
1998;317:802–8. 10.1136/bmj.317.7161.802. [
PMC free article: PMC1113910] [
PubMed: 9740574] [
CrossRef]
- 345.
Ferri
CP, Prince
M, Brayne
C, Brodaty
H, Fratiglioni
L, Ganguli
M, et al.
Alzheimer’s Disease International.
Global prevalence of dementia: a Delphi consensus study.
Lancet
2005;366:2112–17. 10.1016/S0140-6736(05)67889-0. [
PMC free article: PMC2850264] [
PubMed: 16360788] [
CrossRef]
- 346.
Bosanquet
N.
The socioeconomic impact of Alzheimer’s disease.
Int J Geriatr Psychiatry
2001;3:249–53. 10.1002/gps.332. [
PubMed: 11288157] [
CrossRef]
- 347.
Abrams
P, Cardozo
L, Fall
M, Griffiths
D, Rosier
P, Ulmsten
U, et al.
The standardisation of terminology in lower urinary tract function: report from the standardisation sub-committee of the International Continence Society.
Urology
2003;61:37–49. 10.1016/S0090-4295(02)02243-4. [
PubMed: 12559262] [
CrossRef]
- 348.
Norton
C, Christiansen
J, Butler
U, Harari
D, Nelson
RL, Pemberton
J, et al.
Anal incontinence. In Abrams
P, Cardozo
L, Khoury
S, Wein
A, editors. Incontinence. Proceedings of the 2nd International Consultation on Incontinence, Paris, 1–3 July 2001. 2nd edn.
Plymouth:
Health Publication; 2002. pp. 985–1043.
- 349.
Hunskaar
S, Burgio
K, Clarke
A, Lapitan
MC, Nelson
R, Sillen
U, et al.
Epidemiology of Urinary (UI) and Faecal (FI) Incontinence and Pelvic Organ Prolapse (POP). In Abrams
P, Cardozo
L, Khoury
S, Wein
A, editors. Incontinence: Basics and Evaluation.
Plymouth:
Health Publications; 2005. pp. 255–312.
- 350.
Perry
S, Shaw
C, Mcgrother
C, Matthews
RJ, Assassa
RP, Dallosso
H, et al.
Prevalence of faecal incontinence in adults aged 40 years or more living in the community.
Gut
2002;4:480–4. 10.1136/gut.50.4.480. [
PMC free article: PMC1773171] [
PubMed: 11889066] [
CrossRef]
- 351.
Fultz
NH, Herzog
AR.
Self-reported social and emotional impact of urinary incontinence.
J Am Geriatr Soc
2001;49:892–9. 10.1046/j.1532-5415.2001.49179.x. [
PubMed: 11527480] [
CrossRef]
- 352.
Stewart
WF, Van Rooyen
JB, Cundiff
GW, Abrams
P, Herzog
AR, Corey
R, et al.
Prevalence and burden of overactive bladder in the United States.
World J Urol
2003;20:327–36. [
PubMed: 12811491]
- 353.
Brown
JS, Vittinghoff
E, Wyan
JF, Stone
MC, Nevitt
MC, Grady
D.
Urinary incontinence: does it increase risk for falls and fractures.
J Am Geriatr Soc
2000;48:721–5. [
PubMed: 10894308]
- 354.
Iliffe
S, Lenihan
P, Orrell
M, Walters
K, Drennan
V, See Tai
S.
The development of a short instrument to identify common unmet needs in older people in general practice.
Br J Gen Pract
2004;509:914–18. [
PMC free article: PMC1326109] [
PubMed: 15588536]
- 355.
- 356.
Thomas
P, Ingrand
P, Lalloue
F, Hazif-Thomas
C, Billon
R, Vieban
F, et al.
Reasons of informal caregivers for institutionalizing dementia patients previously living at home: the Pixel study.
Int J Geriatr Psychiatry
2004;2:127–35. 10.1002/gps.1039. [
PubMed: 14758578] [
CrossRef]
- 357.
Wagg
A, Peel
P, Lowe
D, Potter
J. National audit of continence for older people: health care for older people programme. Report of the National Audit of Continence Care for Older People (65 Years and Above) in England, Wales & Northern Ireland.
London:
The Royal College of Physicians; 2006.
- 358.
Schneider
J, Kavanagh
S, Knapp
M, Beecahm
J, Netten
A.
Elderly people with advanced cognitive impairment in England: resource use and costs.
Ageing Soc
1993;13:27–50. 10.1017/S0144686X00000635. [
CrossRef]
- 359.
Cassells
C, Watt
E.
The impact of incontinence on older spousal caregivers.
J Adv Nurs
2003;42:607–16. 10.1046/j.1365-2648.2003.02664.x. [
PubMed: 12787234] [
CrossRef]
- 360.
Forbat
L.
Listening to carers talking about the subjects of continence and toileting.
Nurs Times
2004;2:46–9. [
PubMed: 14768154]
- 361.
Potter
J, Norton
C, Cottenden
A. Bowel Care in Older People: Research and Practice.
London:
Royal College of Physicians; 2002.
- 362.
Goodman
C, Davies
S, Norton
C, Leyshon
S, Gage
H, Fader
M, et al.
Can Clinical Benchmarking Improve Bowel Care in Care Homes for Older People?
Report for Nursing Quality Research Initiative.
London:
Department of Health; 2006.
- 363.
Department of Health (DH). Caring for the Carers.
London:
DH; 1998.
- 364.
Department of Health (DH). National Service Framework for Older People.
London:
DH; 2001.
- 365.
Department of Health. Good Practice in Continence Services.
London:
DH; 2000.
- 366.
- 367.
- 368.
- 369.
Robson
C. Real World Research. 2nd edn.
Oxford:
Blackwell; 2004.
- 370.
Pawson
R, Tilley
N. Realistic Evaluation.
London:
Sage; 1997.
- 371.
- 372.
Byford
S, Sefton
TAJ.
Economic evaluation of complex health and social care interventions.
Natl Inst Econ Rev
2003;1:98–108. 10.1177/002795010300100114. [
CrossRef]
- 373.
Shaw
C, Matthews
RJ, Perry
SI, Assassa
RP, Williams
K, Mcgrother
C, et al. and the
Leicestershire MRC Incontinence Study Team.
Validity and reliability of an interviewer-administered questionnaire to measure the severity of lower urinary tract symptoms of storage abnormality: the Leicester Urinary Symptom Questionnaire.
BJU Int
2002;90:205–15. 10.1046/j.1464–410X.2002.02893.x. [
PubMed: 12133054] [
CrossRef]
- 374.
- 375.
- 376.
Brown
JB. The use of focus groups in clinical research. In Crabtree
BF, Miller
WL, editors. Doing Qualitative Research.
Thousand Oaks, CA;
Sage; 1999. pp. 286–97.
- 377.
Crabtree
BF, Miller
WL. Primary Care Research: A Multi-Method Typology and Qualitative Road Map.
Thousand Oaks, CA:
Sage; 1992.
- 378.
Clarke
CL, Keady
J. Getting down to brass tacks: a discussion of data collection with people with dementia. In Wilkinson
H, editor. The Perspectives of People with Dementia: Research Methods and Motivations.
London:
Jessica Kingsley; 2002. pp. 25–46.
- 379.
Pratt
R. Nobody’s Ever Asked How I Felt. In Wilkinson
H, editor. The Perspectives of People with Dementia: Research Methods and Motivations.
London:
Jessica Kingsley Publications; 2002. pp. 165–82.
- 380.
- 381.
Royal College of Physicians (RCP). National audit of continence for older people: health care for older people programme. Report of the National Audit of Continence Care for Older People (65 Years And Above) in England, Wales & Northern Ireland.
London:
Clinical Effectiveness and Evaluation Unit. RCP; 2005.
- 382.
- 383.
- 384.
Payne
C, Blaivas
J, Brown
J, Hirsch
M, Peters
J, Kusek
T, et al.
Research methodology. In Abrahms
P, Cardozo
L, Khoury
S, Wein
A, editors. Continence. 3rd International Consultation on Incontinence; Monaco, 26–29 June 2004. 3rd edn.
Volume 1.
Paris:
International Continence Society & Les Editions;
21; 2005.
- 385.
Drennan
V, Cole
L. Comparing the views of people with dementia and their carers with health and social care staff on managing toilet difficulties and incontinence. 38th Annual Conference of the British Society of Gerontology. Culture, Diversity and Ageing, Bristol, 2–4 September 2009. Oral presentation.
- 386.
Glendinning
C, Tjadens
F, Arksey
H, Moree
M, Moran
N, Nies
H. Care Provision within Families and its Socio-Economic Impact on Care Providers.
York:
Social Policy Research Unit, University of York; 2009.
- 387.
Dahlberg
L, Bambra
C, Demack
S.
Age and gender of informal carers: a population-based study in the UK.
Health Soc Care Community
2007;5:439–45. 10.1111/j.1365-2524.2007.00702.x. [
PubMed: 17685989] [
CrossRef]
- 388.
Glaser
K, Evandrou
M, Tomassini
C.
The health consequences of multiple roles at older ages in the UK.
Health Soc Care Community
2005;13:470–7. 10.1111/j.1365-2524.2005.00574.x. [
PubMed: 16048535] [
CrossRef]
- 389.
Chappell
NL, Reid
CR.
Burden and well-being among caregivers: examining the distinction.
Gerontologist
2002;42:772–80. 10.1093/geront/42.6.772. [
PubMed: 12451158] [
CrossRef]
- 390.
Arksey
H.
Rationed care: assessing the support needs of informal carers in English Social Services Authorities.
J Soc Policy
2002;1:81–101. 10.1017/S0047279402006529. [
CrossRef]
- 391.
Drennan
V, Cole
L.
Promoting Continence and Managing Incontinence with People with Dementia Living at Home: One More Challenge for Integration.
J Integr Care
2009;17:15–25. 10.1108/14769018200900004. [
CrossRef]
- 392.
- 393.
Murray
SA, Boyd
K, Kendall
M, Worth
A, Benton
TF.
Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community.
BMJ
2002;325:929–32. 10.1136/bmj.325.7370.929. [
PMC free article: PMC130056] [
PubMed: 12399341] [
CrossRef]
- 394.
Pettigrew
A.
Longitudinal Field Research on Change: Theory and Practice.
Organ Sci
1990;3:267–92. 10.1287/orsc.1.3.267. [
CrossRef]
- 395.
Molloy
D, Woodfield
K, Bacon
J. Longitudinal Qualitative Research Approaches in Evaluation Studies. Working Paper 7.
London:
Department of Work and Pensions; 2002.
- 396.
Saldana
J. Longitudinal Qualitative Research: Analysing Change Through Time.
Walnut Creek, CA:
Altamira Press; 2003.
- 397.
Blythway
B, Borat
J. Recruitment for The Oldest Generation (TOG) project. In Shirani
F, Weller
S, editors. Conducting Qualitative Longitudinal Research: Fieldwork Experiences. ESRC Timescapes Working Paper Series No. 2.
Leeds:
University of Leeds; 2010.
- 398.
Hartney
E, Orford
J, Dalton
S, Ferrins-Brown
M, Kerr
C, Maslin
J.
Untreated heavy drinkers: a qualitative and quantitative study of dependence and readiness to change.
Addict Res Theory
2003;5:317–37. 10.1080/1606635031000141094. [
CrossRef]
- 399.
Wenger
GC.
Advantages gained by combining qualitative and quantitative data in longitudinal study.
J Ageing Stud
1999;4:369–76. 10.1016/S0890-4065(99)00015-8. [
CrossRef]
- 400.
Gitlin
LN, Schinfeld
S, Winter
L, Corcoran
M, Boyce
AA, Hauck
W.
Evaluating home environments of persons with dementia: interrater reliability and validity of the Home Environmental Assessment Protocol (HEAP).
Disabil Rehabil
2002;24:59–71. 10.1080/09638280110066325. [
PubMed: 11827156] [
CrossRef]
- 401.
Howard
RJ, Juszczak
E, Ballard
CG, Bentham
P, Brown
RG, Bullock
R.
CALM-AD Trial Group. Donepezil for the treatment of agitation in Alzheimer’s disease.
N Engl J Med
2007;14:1382–92. 10.1056/NEJMoa066583. [
PubMed: 17914039] [
CrossRef]
- 402.
Zarit
SH, Reever
KE, Bach-Peterson
J.
Relatives of the impaired elderly: correlates of feelings of burden.
Gerontologist
1980;20:649–55. 10.1093/geront/20.6.649. [
PubMed: 7203086] [
CrossRef]
- 403.
Corden
A, Miller
J. Qualitative longitudinal research for social policy: introduction to themed section. Soc Policy Soc
2007:6;529–32.
- 404.
Lewis
JD, Bilker
WB, Weinstein
RB, Strom
BL.
The relationship between time since registration and measured incidence rates in the General Practice Research Database.
Pharmacoepidemiol Drug Saf
2005;14:443–51. 10.1002/pds.1115. [
PubMed: 15898131] [
CrossRef]
- 405.
Goodman
C, Drennan
V, Davies
S, Masey
H, Gage
H, Scott
C, et al.
Nurses as Case Managers in Primary Care: the Contribution to Chronic Disease Management. Report for the National Institute for Health Research Service Delivery and Organisation programme.
London:
HMSO; 2010.
- 406.
Strauss
A, Corbin
J. Basics of Qualitative Research: Grounded Theory Procedures and Techniques.
Newbury Park, CA:
Sage Publications; 1990.
- 407.
- 408.
Perry
S, Shaw
C, Assassa
P, Dallosso
H, Williams
K, Brittain
KR, et al.
An epidemiological study to establish the prevalence of urinary symptoms and felt need in the community: the Leicestershire MRC Incontinence Study.
J Public Health Med
2000;3:427–34. 10.1093/pubmed/22.3.427. [
PubMed: 11077920] [
CrossRef]
- 409.
Maguire
A, Blak
BT, Thompson
M.
The importance of defining periods of complete mortality reporting for research using automated data from primary care.
Pharmacoepidemiol Drug Saf
2009;1:76–83. 10.1002/pds.1688. [
PubMed: 19065600] [
CrossRef]
- 410.
Davé
S, Petersen
I, Kalaitzaki
E.
Creating medical and drug code lists to identify cases in primary care databases.
Pharmacoepidemiol Drug Saf
2009;8:704–7. 10.1002/pds.1770. [
PubMed: 19455565] [
CrossRef]
- 411.
Peritz
E.
Berkson’s bias revisited.
J Chron Dis
1984;12:909–16. 10.1016/0021-9681(84)90067-5. [
PubMed: 6396316] [
CrossRef]
- 412.
- 413.
NHS Information Centre.
Prescription Cost Analysis England 2007.
The NHS Information Centre Part of the Government Statistical Service. URL:
www.ic.nhs.uk/pubs/prescostanalysis2007 (accessed 10 August 2008).
- 414.
InContact. National Survey of NHS Organisations. Reported in Section 2.12 of Department of Health (2000) Good Practice in Continence Services.
London:
Department of Health; 1997.
- 415.
Department of Health. Listen to Us: Involving People with Dementia in Planning and Developing Services.
London:
HMSO; 2005.
- 416.
Mostwyn
J, Bouricer
A, Haab
F, Koeble
H, Rao
S, Resnick
N, et al.
Pathophysiology of Faecal Incontinence. In Abrams
P, Cardozo
L, Khoury
S, Wein
A, editors. Incontinence. 3rd edn.
Plymouth:
Health Publications; 2005.
- 417.
- 418.
Turner
DA, Shaw
C, McGrowther
CW, Dallosso
HM, Cooper
NJ,
MRC Incontinence Team.
The cost of clinically significant urinary storage symptoms for community dwelling adults in the UK.
BJU Int
2004;9:1246–52. 10.1111/j.1464-410x.2004.04806.x. [
PubMed: 15180616] [
CrossRef]
- 419.
- 420.
Sepulveda
C, Marlin
A, Yoshida
T, Ullrich
A.
Palliative care: the World Health Organisation’s global perspective.
J Pain Symptom Manag
2002;24:91–6. 10.1016/S0885-3924(02)00440-2. [
PubMed: 12231124] [
CrossRef]
- 421.
Reilly
S, Abendstern
M, Hughes
J, Challis
D, Venables
D, Pedersen
I.
Quality in long-term care homes for people with dementia: an assessment of specialist provision.
Ageing Soc
2006;26:649–68. 10.1017/S0144686X06004909. [
CrossRef]
- 422.
Great Britain. Department of Health. Care Homes for Older People: National Minimum Standards, Care Homes Regulations. 3rd edn.
London:
The Sationery Office; 2003.
- 423.
Froggatt
K, Payne
S.
A survey of end of life care in care homes: issues of definition and practice.
Health Soc Care Community
2006;14:341–8. 10.1111/j.1365-2524.2006.00628.x. [
PubMed: 16787485] [
CrossRef]
- 424.
Australian Government Department of Health and Ageing. Guidelines for a Palliative Approach in Residential Aged Care.
Canberra:
Rural Health and Palliative Care Branch, Australian Government Department of Health and Ageing; 2004.
- 425.
National Institute for Clinical Excellence (NICE). Guidance on Cancer Services. Improving Supportive and Palliative Care for Adults with Cancer.
London:
NICE; 2004.
- 426.
Ross
M, Fisher
R, MacLean
MJ. A Guide to End-of-Life Care for Seniors.
Ottawa:
Health Canada; 2000.
- 427.
- 428.
Laing
W, Buisson
I. Care of Elderly People: Market Survey.
London:
Laing & Buisson; 2007.
- 429.
Goodman
C, Davies
S, Norton
C, Fader
M, Morris
J, Wells
M, et al.
Can district nurses and care home staff improve bowel care for older people using a clinical benchmarking tool?
Br J Community Nurs
2013;18:580–7. 10.12968/bjcn.2013.18.12.580. [
PubMed: 24335790] [
CrossRef]
- 430.
Netten
A. Care Homes for Older People. Volume 1: Facilities, Residents and Costs.
Canterbury:
PSSRU, University of Kent; 2001.
- 431.
Evans
C. The Analysis of Experiences and Representations of Older People’s Health in Care Homes to Develop Primary Care Nursing Practice.
London:
King’s College London; 2008.
- 432.
Reed
J, Payton
VR. Privileging the voices of the older service users. A methodological challenge. Soc Sci Health
1998;4:230–42.
- 433.
British Psychological Society (BPS). Conducting Research with People Not Having the Capacity to Consent to their Participation. A Practical Guide for Researchers.
Leicester:
BPS; 2008.
- 434.
Hubbard
G, Downs
MG, Tester
S.
Including older people with dementia in research: challenges and strategies.
Ageing Ment Health
2003;7:351–62. 10.1080/1360786031000150685. [
PubMed: 12959804] [
CrossRef]
- 435.
Prior
L. Using Documents in Social Research.
London:
Sage Publications; 2003.
- 436.
Corner
J, Halliday
D, Haviland
J, Douglas
HR, Bath
P, Clark
D, et al.
Exploring nursing outcomes for patients with advanced cancer following intervention by Macmillan specialist palliative care nurses.
J Adv Nurs
2003;41:561–574. 10.1046/j.1365-2648.2003.02568.x. [
PubMed: 12622865] [
CrossRef]
- 437.
Coffey
AJ, Atkinson
PA. Making Sense of Qualitative Data: Complementary Research Strategies.
Thousand Oaks, CA; 1996. pp. 195–202.
- 438.
- 439.
Dewing
J.
From ritual to relationship.
Dementia
2002;1:157–71. 10.1177/147130120200100204. [
CrossRef]
- 440.
Dewing
J. Understanding Wandering in Persons Living with Dementia. National Care Home Research and Development Forum.
Newcastle upon Tyne:
University of Northumbria; 2008.
- 441.
Davies
SM. Relatives’ Experiences of Nursing Home Entry: a constructivist inquiry. PhD thesis.
Sheffield:
University of Sheffield; 2001.
- 442.
Robinson
L, Hughes
J, Daley
S, Keady
J, Ballard
C, Ladislav
V.
End-of-life care and dementia.
Rev Clin Gerontol
2005;15:135–48. 10.1017/S0959259806001833. [
CrossRef]
- 443.
The Preferred Priorities for Care (PPC).
London:
NHS National End of Life Care Programme; 2007. Originated by Lancashire & South Cumbria Cancer Network June 2004 and endorsed by the NHS End of Life Care Programme. Revised December 2007 by the National PPC Review Team. URL:
www.nhsiq.nhs.uk/resource-search/publications/eolc-ppc.aspx (accessed December 2014).
- 444.
Kellehear
A.
Dementia and dying: the need for a systematic policy approach.
Crit Soc Policy
2009;29:146–57. 10.1177/0261018308098398. [
CrossRef]
- 445.
Reason
P, Bradbury
H. Handbook of Action Research.
London:
Sage; 2006.
- 446.
Department of Constitutional Affairs. Mental Capacity Act 2005 Draft Code of Practice.
London:
The Stationery Office; 2007.
- 447.
Age Concern. The Law and Vulnerable Elderly People.
London:
Age Concern; 1986.
- 448.
Manthorpe
J, Samsi
K. Mental capacity and dementia: a review, part 1. J Dement Care
2012;20:35–8.
- 449.
Glasby
J, Kilbride
L.
Who knows? The provision of information to the carers of people with dementia.
Practice
2003;15:51–67. 10.1080/09503150308416934. [
CrossRef]
- 450.
Mental Health Foundation. Mental Capacity Assessments: Working in Practice? Initial Findings from the Mental Health Foundation’s Assessment of Mental Capacity Audit Tool (AMCAT).
London:
Mental Health Foundation; 2010.
- 451.
Charmaz
K.
Constructing Grounded Theory: A Practical Guide through Qualitative Analysis.
London:
Sage Publications; 2006. [
PubMed: 27702218]
